Posted by bleauberry on March 1, 2010, at 19:06:45
In reply to Re: Savella - ex-users (bleuberry + any others?), posted by mommyron on February 28, 2010, at 22:31:48
> My pdoc and I are considering this drug if I give up on Emsam. Bleuberry--you've said a couple times that you really like it--do you still take it?--if not, how was it dc'ing it? Also--any noteworthy side effects?? Same questions for any other users/ex-users! Thanks! Teresa
It is one of my few standby meds. I can't seem to stay on any med for very long because some very bizarre very disturbing physical side effect happens. My standby list includes Savella, Amisulpride, Abilify, Parnate.
The reason I like Savella is because in a few days it had me lifting out of the dark after ECT had failed and after every other drug combination you can think of failed. To me, that is pretty impressive. This was also seen in a small case study on pubmed where 3 of 5 treatment resistant patients saw remission when a tiny dose of risperdal was added to their savella. The drug just has the potential. I don't think lexapro or any of its cousins could do that. Savella can.
Side effects were diminished appetite, deep sleep (beginning after 3 nights of disturbed sleep), waking headache that went away quickly, and the killer for me...extreme difficulty going pee. Probably the norepinephrine constriction on the urinary system. It is said that Flomax will prevent that. So next time, Flomax will be onboard.
Regular doses were too much for me. The norepinephrine effect gave me waves of goosebumps and hairs standing up. Felt good though. It was a smiling kind of thing. But too much because I couldn't pee. I made custom size doses in 6.25mg sizes and took 2 or 3 a day.
Withdrawal was minor. Maybe a day or two of some returning blueness, and that was about it.
Nest time I think I will take it with a tiny dose of Abilify.
Amisulpride is also an excellent med. For those in the USA who aren't familiar with it, that's a shame.
poster:bleauberry
thread:937881
URL: http://www.dr-bob.org/babble/20100216/msgs/938299.html