Posted by Pahro on May 18, 2008, at 1:42:16
Hello (very sorry this may be a long thread...)
My family and I have been watching the decline in the health of my youngest brother due to kidney disease.
I am on waiting list for a kidney exchange program for him and not able to take any drugs.
He has been sick all his life and now he is 22. Has had failed kidney transplant and been on dialysis all his life. This is horrible to say but he looks like a dead person. It is terrible what is happening to him. The family has been suffering along with him. He is in pain all the time. The doctors say they have done all they can for him and just have to wait for a transplant but he is a difficult case due to antibody rejection and so on so it could take another 5 years (if he survives). Meanwhile as I said the family is depressed. I can't speak for my parents but I for instance have developed an eating disorder and other than going to work or hospital or appointments I don't leave the house. This weekend I have so much to do but haven't been able to bring myself to leave.
I dont know what kind of help I am asking for but this has been going on with his illness for so long that it has taken its toll. I often think I wish we would all die to stop this suffering. I am thankful for so much but feel so guilty all the time. When I speak to renal professionals they advise this is what you have to put up with and "what do you expect there are lots of sick people out there". It's just too much, living with someone like that is awful I wish it was me and not him. He talks about killing himself everyday and how if he was dead it would be better for us all (as we care for him). I can't get on with my life at all. None of us can.
Pahro
poster:Pahro
thread:829759
URL: http://www.dr-bob.org/babble/20080510/msgs/829759.html