Posted by Reggie BoStar on March 30, 2007, at 23:49:22
In reply to Re: Trileptol disaster » Reggie BoStar, posted by Phillipa on March 29, 2007, at 11:36:28
Hi Phillipa,
You're right, Trileptol is now blacklisted. I wouldn't dare even think about trying it again just to verify that was the cause.As I work my way out of all that, though, it's becoming more and more apparent that Trileptol did this to me. I haven't even told my pdoc about stopping it because I haven't been very functional during business hours yet. He's one of these pdocs who has no voicemail. Instead he takes messages that I dictate to one of the receptionists. I don't mind doing that with the regular staff during the day - what the heck, they all know me on a first name basis by now - I just don't want to give any detailed reports to an anonymous third-party "answering service" at night.
I'm still going off on tangents. As far as the migraines go, I've found out that there's a LOT more to them than the head pain.
I always knew about the nausea, photophobia, isolation, bizarre moods and so on. But these had always been so masked by the pain that they were inconsequential.
Now there are all these fantastic meds for the pain component. Most of them are in the "Tryptan" class, like Imitrex, Zomig, Maxalt (I think). There's also one called Axert that I have but haven't tried yet. I'm not sure how that's classified.
Anyway, these meds really do take care of the pain component, and fast! It takes as little as 15 minutes depending on the delivery system. Pills take the longest. The nasal sprays (like Imitrex) are next.
Suprisingly, the fastest one is Maxalt, which is dissolved on the tongue. There are Maxalt pills too, and they're not bad.
Anyway, with the pain gone everything else comes to the fore. They're awful in their own right, especially the bizarre moods. Even though I logically know about migraines, i.e. what they are, how they work, how long they last, etc, when I'm having one I become absolutely convinced that it's never going to end.
This is when the suicide thoughts start coming in. Fortunately all the other symptoms and moods make suicide only a dark fantasy and nothing more.
Strangest of all is that I still want to be in a dark, quiet room. I still tremble and sometimes feel numb in places. And I urinate like a fiend, even though my fluid intake (and all other intakes) are low.
So, they haven't quite perfected the "cure" yet. The best route is prevention, for which I take a mix of Neurontin and Gabitril, both GABA regulators.
Normally these work fine. In fact they have an EXCELLENT track record. This is why I'm so b*-blasted when something like Trileptol comes along and breaks everything.
Another long message. Gag. Now how are things with you? Any updates on the new pdoc, therapist, et al?
I was glad to hear that the pdoc is making some attempt to pick up the communication shortfall with your endo(?).
What was that other specialist you mentioned?
Anyway, I hope you're doing well.
And watch out for Trileptol!
Reggie BoStar
poster:Reggie BoStar
thread:745118
URL: http://www.dr-bob.org/babble/20070327/msgs/745669.html