Posted by exquilter on March 11, 2007, at 23:19:24
In reply to Re: 10 months on EMSAM!!- Update » exquilter, posted by RN320 on March 11, 2007, at 9:20:16
I'm not surprised that the Neurontin isn't helping much yet. I needed to take 2400 mg plus 750mg of Depakote plus narcotics to manage, not eliminate, the nerve pain. I also discovered certain areas in my mouth that triggered pain and discovered I could minimize pain by avoiding contact with those areas. Very hot or cold foods were likely to cause trouble as well. It sounds like you have had several problems that could have put pressure on that nerve and irritated it.
Your Internist sounds like she could be a lot of help in formulating what info is going to be relevant to the neurosurgeon. Maybe she would be willing to make a summary note for him before you have your appointment on Friday.
Try not to forget that there are still treatment options for this pain and that remission can happen. It has been years since I had a bad attack. Other options include carbamazapine and Lyrica among others, so keep on hoping. I've got my fingers crossed for you.
Exquilter
poster:exquilter
thread:739754
URL: http://www.dr-bob.org/babble/20070308/msgs/740307.html