Posted by lunesta on November 24, 2005, at 15:57:46
In reply to Re: FDA gives nod to Xyrem for EDS in narcolepsy, posted by Phillipa on November 23, 2005, at 20:33:54
hey Philpa babble mail me sometime if you want. I follow your posts and you and I may have similar problems. I have CFS/FM and the related pathogins and defiences the accompany them. I am being treated maybe we can help each other. Xyrem helps great for Fibromyalgia sleep and eventually pain, problem is if you have high anxiety the rebound (it only lasts like 3-4 hurs) then you wake up with anxiety if you have a disorder already. It is SO salty it can make you gag and vomit. But it is just publised check Xyrems website, that it is successful and they are now going to get it approved for Fibromyalgia next.
chronicfatigue@gmail.com is my email anyone can email me about CFS/FM/Lyme/MCS etc. I am a self acclaimed expert in those syndrome diseases and talk to many researchers etc, and also am a volunteer for the national CFIDS foundation and am part of the genetic study for CFS which i am so elated about since it free for me.
poster:lunesta
thread:581538
URL: http://www.dr-bob.org/babble/20051119/msgs/581917.html