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Re: The official SLS thread

Posted by SLS on October 20, 2005, at 18:06:15

In reply to The official SLS thread, posted by ed_uk on October 20, 2005, at 15:10:08

Hi Ed.

> When are you starting your dexamethasone trial?

I'm going to wait until Saturday (10-22-2005) to begin dexamethasone treatment. I will be taking 4mg for four consecutive days while remaining on my previous treatment regime.

Lamictal 150mg
Parnate 80mg
nortriptyline 100mg
Abilify 10mg
Keppra 1000mg

I am not so excited about this treatment. I stumbled upon it while researching mifepristone. I would much rather have tried mifepristone first. Unfortunately, the FDA has provided me with an obstacle to getting it. There is some disagreement between agencies, but the FDA currently is asking my doctor to provide an IRB (institutional review board), something that the drug distributor denies is a requirement. I guess we'll wait until we see how the dexamethasone trial goes before pursuing mifepristone any further. If the FDA representative is wrong (which I strongly suspect), I should have the mifepristone in about a month. If he is right, I might have to locate another doctor willing to oversee the treatment. I already have one in mind whom I consulted with earlier this year. He is quite interested in my case and would have an IRB, as he is the chief of staff at a major university hospital. I would rather see my doctor have the opportunity to write up the case, though, should it be successful.


- Scott

 

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URL: http://www.dr-bob.org/babble/20051017/msgs/569438.html