Posted by Jenbracha on January 4, 2005, at 16:24:17
In reply to Re: zonegran and bipolar II/nausea/fatigue, posted by tired10mom on July 24, 2003, at 12:14:35
Hi there,
I read this post and am very concerened. I wonder if you can tell me what your daughter's initial symptoms were in re: to the burning? When did it start? What parts of her body were affected first? How much was she on?
Any detailed info is much appreciated.
Best,
Jen> My daughter was on Zonegran (the miracle drug) for
> just two weeks before she had an allergic reaction to it.
> It is a sulfonamide. Her body burned from the inside
> out with second degree burns over 51% of her body,
> and her mucous members burned from her mouth all the way
> through to her anus and vagina. We spent three weeks in
> June in the Burn Intensive Care Unit, and now that she is
> home, I am bathing my 16-year-old daugther, soaking off
> bandages, applying ointments, and putting dressings back on.
> She has massive scarring on her back, chest, arms, buttocks,
> and stomach. We are waiting on a compression suit that she
> will wear for 6-9 months, if not longer. Then we can consult
> with a plastic surgeon for reconstructive surgery.
>
> Sometimes miracle drugs aren't all they're cracked up to be.
> The thing that attracted my daughter to it was the weight loss
> side effect since most of the other drugs cause weight gain.
> The doctors and pharmacies tell you about the nausea, fatigue,
> headaches, weight loss, drowsiness... You can live with those.
> They don't tell you about Stevens-Johnson Syndrom or Toxic
> Epidermal Necrolysis which are also know side effects. These are
> the ones that will kill you. And your children.
>
> Please be careful. I don't want anyone to ever go through what
> we've experienced. Especially since the meds she was on were
> working well except for the weight. And imagine my surprise to
> find out that in Texas, for mental health issues, a 16-year-old
> can make decisions about their own welfare and sign for themselves.
>
>
poster:Jenbracha
thread:241313
URL: http://www.dr-bob.org/babble/20050103/msgs/437735.html