Posted by rockette on March 11, 2004, at 15:41:55
In reply to Re: topomax and voice changes » rockette, posted by headachequeen on March 11, 2004, at 15:30:33
> > Topamax for my migraines has worked wonderfully for the past 2 years. Again I started with 25mg and gradually increased to 150mg (I have never had seizures)I also take Wellbutrin twice a day for migraines. I did lose over 40 pounds last year but was also dieting on purpose (Weight Watchers) so not sure if meds influenced weight loss or not. At first Topamx left my hands tingling. I get tinnitus (ringing in my ears) but not sure which med causes that.
> > I only got upset when the hair started to fall out! (Noticed it mostly at first when it would come out in my hands while shampooing---now I can see where it used to be on my head.) It's been several months now of talking Biotin and magnesium and the hair isn't worse but not any better either.
> > I gradually dropped the Topamax back to 25 mg/day and am now getting several headaches a week (yesterday was particularly nasty!!) Am seeing my doc in 2 weeks so we'll see what's next.
> > I use AMERGE when I get a migraine and it has really worked well. MOST of the time the headache is gone within 2 hours.
>
>
> Now this part is scary...
> As I mentioned, my sister-n-law who has beautifully healthy hair, and has maintained the most incredibly slim and wonderful weight level even though she has been off the topomax for a year or so now, was on the medication for a few years before I ever heard of it...
> I have been on it now for thirteen-and-a-half months.
> I have been forgetting the biotin and vitamins...
> forgot to renew them when I ran out... not the cognitive skills, just not thinking when I was at the store... and find some hair in the drain thing when I shampoo but my hair (before I put the stuff in it that makes it stand up on edge <g>) is relatively healthy... of course by the time I get ready to wash it the next day it is dry and awful but I think that is the paste and clay and wax that moulds it into the shape it is supposed to hold not anything the drugs do...
> and I cannot judge on the Topomax either as Tegretol has the same effect...
> all AED meds have the same effect...
>
> for that matter a young man who is a hair stylist and I must find out where he works!!! stopped me today to tell me how much he enjoys seeing my hair because the way I wear it always has this joyous appeal ... it looks so happy and uplifting... so the time spent in front of a mirror with various pots of goo and the frustration are worth it ...
> I guess???? and it can't be falling out to badly...
> but I am not in the two year time period yet...
> although I need to take quite a bit more than 150 mg...
> so now I start to chew my nails and wonder...
> and there is the 400 mg of Tegretol a day attacking my hair as well...
> hmmm maybe it is time to stop with the clean hair fetish...
> stop washing it daily....
> katTo: Headachequeen--
I STOPPED washing my hair every day just recently since my hair had become so dry. The extra oils from a days wait have helped with styling. I too, use styling gel and hair spray but am trying to use less as that is very drying also. I spray ona liquid conditioner (Pantene) between shampoos as it makes the hair softer and easier to comb thru without breaking. I tried using several teaspoons of baking soda in a cup of warm water to rinse out the "gunk". It helped...will use it again if I notice a build-up.Don't want to lose my hair but am not willing to have daily migraines either.....>rockette
poster:rockette
thread:50878
URL: http://www.dr-bob.org/babble/20040308/msgs/323294.html