Posted by LifeTime on September 9, 2003, at 22:07:23
In reply to Another VNS study participant » LifeTime, posted by Ponder on September 9, 2003, at 16:44:36
Ponder,
I must have missed your posting indicating that you too are a VNS recipient. I would also like to ask of you many of the same questions that I presented to Jerry.
As a very forceful and vocal advocate for my spouse’s healthcare needs, these many years, I make an effort to share our experience, research and knowledge. One of the most important tools I’ve passed along to those who I have collaborated with, as it pertains to the VNS and all treatments, was to maintain a detailed diary and to make certain that they knew precisely all their VNS settings, details of any adjunctive treatment(s) and to strongly advocate for their own wellness.
I am somewhat dismayed and disheartened by your statement,
“I don't know what my settings are, but I was one of the people they ramped up after the initial study results.”
I knew all my wife’s settings. We discussed our theory with the researchers and when no valid explanations and/or reasoning could be given to the contrary we insisted upon our theory being executed. In collaboration with several recipients we concluded that the higher amplitudes may well be more efficacious for the depression subjects based upon our readings from the epilepsy community.
I would appreciate if you could elaborate in more detail what you mean when you indicated “I was one of the people they ramped up after the initial study results?”
I realize that every treatment and therapy will not be 100% efficacious for 100% of the consumers. Since there are no definitive settings for the VNS and like all medication(s), treatment(s) and therapy(s) for this illness we have to use a “trial and error approach” to wellness only I personally believe that encompasses the higher amplitudes.
For informational purposes only I am listing my wife’s current settings. This is not an endorsement to do as we do but is information that one might want to be discussing with a caring, compassionate and knowledgeable licensed healthcare practitioner.
VNS Settings
Output Current (milliamperes) 2.25
Signal Frequency (Hertz) 20
Pulse Width (microseconds) 130
Signal On Time (seconds) 60
Signal Off Time (minutes) 3
Magnet Current (milliamperes) 2.50
Magnet On Time (seconds) 7
Magnet Pulse Width (microseconds) 500Good luck to you too and I look forward to your responses.
.
poster:LifeTime
thread:255190
URL: http://www.dr-bob.org/babble/20030907/msgs/258597.html