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Re: elusive putative seizure disorder » Elizabeth

Posted by Mitch on September 24, 2001, at 13:06:27

In reply to elusive putative seizure disorder, posted by Elizabeth on September 24, 2001, at 12:12:59

> Hi everyone.
>
> Last week (Tuesday, I think) I had a seizure (complex partial) or something. My BF says that when he got home from work, he found me slumped over at the computer, making gurgling sounds (he thought I might have swallowed my tongue or something). He was really scared because of what happened back in February (see http://www.dr-bob.org/babble/20010327/msgs/58035.html). After I appeared to be conscious again, he said that I was crying and acting scared and so forth.
>
> He called 911 and a whole bunch of cops and EMTs descended on our house (at least they didn't send in the fire department). The first thing I remember after I blacked out was being in my room with my boyfriend and several EMTs and cops. I was sobbing, for some reason of which I'm not aware. (Something similar happened in February -- I was in and out of the coma, but when I appeared "awake" I was acting scared and crying, according to my BF and parents.) I was sort of confused and disoriented, so I just went with the EMS folks. I spent a couple nights in the hospital, which is why I haven't been posting lately. My mother and sister came into town to visit me. My CAT scan and EEG were both normal. I haven't gotten the results of the blood tests yet (I think they did the standard ones plus a desipramine serum level and something else, I can't remember what). My pdoc gave me a script for a low dose of Trileptal. (Well, he says it's low -- I don't know what the typical therapeutic dose range is for oxcarbazepine. I'm taking 300 mg/day.) Does anybody have anything to say about it, good, bad, or otherwise?
>
> Anyway, it looks like I'm going to be seeing a neurologist, although I don't know how good the chances are that they'll be able to find a cause for this episode (or previous ones).
>
> I hope you're all well.
>
> -elizabeth

Good grief! Hope you are getting better. Trileptal is a cleaner form of Tegretol. You will need to take it two-three times a day. My guess is you are taking 150mg bid. Given Tegretol is a firstline anti-convulsant for complex partial seizures it is probably a good idea until they can figure out what the hell is going on. I was on it for a while, but I am real sensitive to nausea and it made me kind of nauseous and "wired" (I doubt if such a low dose could worsen depression-it might help some). I have talked to others here who seem to get by fine on it, though. Do you or your pdoc wonder if the desipramine is setting these episodes off? Keep us posted and get better.
Mitch


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poster:Mitch thread:79454
URL: http://www.dr-bob.org/babble/20010917/msgs/79461.html