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Re: Curious story on Dateline NBC--Klein-Levin Syndrom

Posted by imlucinda on March 18, 2001, at 16:19:16

In reply to Re: Curious story on Dateline NBC--Klein-Levin Syndrom, posted by Thomas W on October 26, 2000, at 16:45:11

I am the founder of the Kleine-Levin Syndrome Foundation, Inc. The website is www.klsfoundation.org. There are lots of females also with KLS. And it is true that most doctors do not know what it is. Their first diagnosis is usually depression, followed by bipolar, then they just don't know or say you are "too indulgent with your child and let them get away with this." Believe me, I have had my share of bad doctors for my son who has KLS. Anyway if anyone wants more info on this they can go to the website and read the diaries and the definition.


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