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Re: Lack of Pediatric Psych Options Discussion FloydAS

Posted by SLS on September 10, 2015, at 16:00:55

In reply to Re: Lack of Pediatric Psych Options Discussion, posted by FloydAS on September 10, 2015, at 15:10:59

> My daughter's GI symptoms are a result of her primary immune deficiency. Your immune system is supported primarily by immunoglobulins that fight off infection, viral and bacterial. A large majority of these of these are created within your GI tract. There are different classifications of immunoglobulins - IgG, IgA, IgE, IgM.
>
> My daughter is deficient in IgG (fights upper respiratory infections and can be supplemented with infusions) and IgA (cannot be supplemented). IgA deficiency causes GI aggravation and small intestinal bacterial overgrowth and propensity for Giardia and other parasitic infections to take over. Where most medical practice shies away from the use of antibiotics, in patients with primary immune deficiency, doctors actually have to be fairly aggressive with antibiotic use.
>
> My daughter stays on a prophylactic treatment of Xifaxan to deal with the small intestinal bacterial overgrowth issues. The good thing with Xifaxan is that it doesn't get absorbed into the blood stream - it just sits in the gut and does its thing so it has a fairly safe profile. But sometimes a strain evolves that the drug doesn't treat and she has issues and other treatments need to be used on a trial and error basis and/or she gets scoped. she's had 5 endoscopies and 3 colonscopies in her 9 years among many other things so she's been through a lot.
>
> As you can see it's no secret as to why she may have psychiatric anxiety and panic disorder related issues and fear of dying. She's had to deal with more than her fair share for someone her age.

That is so very complicated. Thanks for taking the time to explain things. It is a blessing that you have educated yourself and understand so much. I wish for your daughter the healing she so very much deserves.

I'm always looking to fix things. It is a character flaw of mine. Anyway, I found the following abstract on Medline Pubmed:

http://www.ncbi.nlm.nih.gov/pubmed/26071205

I hope you feel supported here.


- Scott


Some see things as they are and ask why.
I dream of things that never were and ask why not.

- George Bernard Shaw

 

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