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Re: Lack of Pediatric Psych Options Discussion

Posted by FloydAS on September 10, 2015, at 15:54:23

In reply to Re: Lack of Pediatric Psych Options Discussion FloydAS, posted by Horse on September 10, 2015, at 15:11:41

> That is so much for a child to handle. I'm very sorry she and your family go through this. Her experiences sound traumatic and the anxiety and separation anxiety sound completely understandable. She's very young, still, and I'm not completely surprised her cbt did not 'take' yet. Those skills might resurface in a couple of years. What I'd like to mention is the value of good play therapy for a child her age. Have you tried that. I believe it can be very effective with trauma and other ongoing stressful situations.
>
> I'm not sure I understand completely, but from what you say, the pediatric psychiatrist sounds like a horse's *ss. I'm not sure how resource rich your area is, but in my town, resources are kinda here, but darn take so much digging to get to. I'd have thought everyone would know everyone else and be able to refer. Nope. So I hope someone new will turn up. If, for instance, you try play/sand therapy (if you haven't already), that might yield new referrals.
>
> You and your girl are really up against some difficult stuff, and I'm so sorry your child feels afraid. Sending warm hugs and wishing you continued courage.

I appreciate your thoughts. We've been through much as a family. She's been through much more dealing with the disorder herself. I will fight till the death for my little one. It is the reason she was diagnosed after "only" 4 years of issues. The current average length of time for diagnosis of her immune condition is 12-15 years due to the rarity of the condition and the way it presents as "typical" infection that simply recurs. Unfortunately most primary care docs and even specialists are not well trained to identify these rare disorders and they go undiagnosed for far too long. My wife and I simply would not accept her condition as typical and we continued to hop from doc to doc until we finally got her diagnosed appropriately, and by a simple blood test go figure.

We'll do the same with the psychiatric issues. It is certainly frustrating because the pool of resources appears significantly limited which was my original point. And you're correct, the first pediatric psychiatrist was indeed an idiot to simply send us off with zero other options or referrals. We'll just stay the course until she gets better on all fronts.


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