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Update and thanks

Posted by garnet71 on February 9, 2009, at 17:21:50

In reply to Re: Short-term med tactic needed garnet71, posted by seldomseen on February 9, 2009, at 11:12:49

Thanks for offering your opinions, Seldomseen. I totally agree about total body exhaustion from maintaining anxiety and panic. I haven't ruled out all my options, so I'll think about what you said. SS, the retinal tears are just from the shape of a very nearsighted eye--your cornea shape is distorted, more oval instead of round. THis puts strain on the retina, stretches it. People as nearsighted as me all have a considerable chance of retinal detachment someday, and the tears are a sort of slow, protracted detachment.

I wanted to let you all know about my appointment with the endocronologist today.

I don't even know what all of these mean, but the tests ordered were:

Lyme-both enzymes
Iron & Ferritin
Follicle Stim. Hormone (FSH)
Luteinzing Hormone (LH)
Vitamin D
Comp. Metabolic Panel
Basic Metabolic Panel
Iron
TSH/Thyroid Stim. Horm.
Free T4
Thyroid Antibodies
Cortisol
Adrenocorticotripic Hormone
Urine Metanephrines - part of cortisol, i think
24-Hr urine catecholamine
Creatine Battery 24 hour urine
Cortisol (oo)

One of these tests is Cushings related; 2 neurotransmitters are included in the test above -she said one is neuroephrinine, I think. I don't remember the techical name of the other one.

She was very reluctant to order the cortisol and Lyme tests, but I pushed for them. She said Lyme would be in area of infectuous disease, outside her expertise, and that I did not seem to have any cortisol-related issues. Because I have no digestive problems, they always seem to immediately rule things certain things out. I honestly cannot wait weeks upon weeks, if the other tests were negative, then follow up appointments, more testing, etc. to get back to normal. The vision problems will be addressed by my opthamologist this month, so we didn't talk about that.

I have a feeling that many of the tests will be normal or close to normal, that I have wasted a lot of money I do not have. If anything stood out to her, it was only the potential of thyroid imbalance. For adrenal exhaustion or Cushings, she said weight loss is a major symptom for adrenal, and that I don't appear to have Cushings, but I told her my body feel so completely out of whack, what if the possiblilty exists that I have another imblance that mitigates the weight loss, so she agreed to the tests. I'm really tired of only be considered for "one diagnosis". I was absolutely shocked to find I had gained 30 pounds in only 2 months!!!! I have been eating so many healthy foods, although I crave sugar and carbs which I'm sure have contributed to this gain, I honestly cannot see where it all came from.

I also (briefly) asked her about long-term xxRI use that results in hormonal imbalance, and she said she had never heard of any such research. She was very young and very sharp, and I feel comfortable with the outcome of the appointment, though it was very rushed. They really don't have time to think about all of the stuff we find on the internet.

I gave 6 vials of blood today; the 24 hour tests I start tomorrow, and one involves getting a script filled, then getting my blood drawn 24 hours later. My head hurts so bad. I haven't taken any Ativan since about 1 pm yesterday, have none left, stayed up all night last night, but just slept 4 hours and woke up with a headache and burnt feeling in my brain. Piece of mind, though, is closer now.

The strangest thing is that I found out today I was only 37 years old; I have been thinking for months that I was 38. Good sign of being a basket case...lol.

So when the tests come back, I'll update you all if in doing so, it will help another.

Thanks for all the advice and I'll post another update in a couple of weeks when she calls me with all the results!!

 

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poster:garnet71 thread:878621
URL: http://www.dr-bob.org/babble/20090203/msgs/879132.html