Psycho-Babble Medication | about biological treatments | Framed
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Re: Tardive Dyskinesia

Posted by Mama Bear on April 1, 2003, at 23:30:16

In reply to Re: Tardive Dyskinesia, posted by Guy on March 30, 2003, at 13:49:26

Thanks guys for the information. And the answer to the question of whether these drugs are approved for young children like my daugter is no. When we went in for a talk with the pediatrician who prescribed this neuroleptic he said that these drugs had been approved as orphan drugs for use in children 8 yrs old and older. I reminded him that Andrea is only 5. This doctor didnl't even really know what Tardive Dyskinesia was. He went to a convention with psychiatrists this past week-end. I know we got him thinking about all of this and the possible legal ramifications that go along with it. He said that he had talked to several different psychiatrists and only 1 had seen a child that developed Tardive Dyskinesia. He said that some of these psychaitrists had indicated to him that even without the 17 months on Respirdal ( at the end she was on 3mg/day) she may have developed Tardive Dyskinesia. He is obviously trying to cover himself. And no we were never informed of Tardive Dyskinesia ever ever ever. He never performed a AIMS scale test to look for this. She did have some symptoms while still on the drug it was when she was withdrawn from the agent that damaged her brain this is when it was painfully obvious there was something wrong. She is only 5 and has asked me if she will ever be able to stop moving. I cry inside every moment of every day for this child. This is not her fault. This and all the other doctors have responsibility in this. This is definately a miscarriage of justice hear. These pediatricians really don't know what they are prescribing to kids and the psychaitrists don't want you to know what can really happen because they would be out of a job. This is a very sad situation. Did you know that it is the American and Canadian Standard of care that all patients have the right to be informed of all the side effects good/bad. There should be some sort of consent form filled out saying that you knew all the side effects before you start taking them. It is my plan to have legislature make this mandatory. No consent, no prescription it will be as simple as that. This will prevent alot of undo suffering for patients that have already sufffered enough. I would like to call this Andrea's Law. We as parents have to be advocates for our children because the medical community sure doesn't. If there are other parents out there leave me your e-mail address' and I will let you know what your rights are. Mama Bear




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