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Dr. Bob is Robert Hsiung, MD,
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Posted by over 55 on January 4, 2007, at 8:40:57
In reply to Re: Horrible Withdrawls from EFFEXOR XR » bayleebug, posted by dancingstar on December 26, 2006, at 10:46:42
Sorry it took so long to respond. I was on a little vacation to the Caribbean over the Holidays and ended up with a "bug" that laid me up since I got back. Hope you are feeling better by now and cetainly agree you need to go slow and listen to your own body to get off the effexor. I wean off with Prozac and now take 20 mg every other day of Prozac. Went four months w/o anythign, but feel much better on a small dose of prozac w/0 much side effect at all. Please know what we care about you and your journey and all hope for a better tomorrow!!
Posted by dancingstar on January 4, 2007, at 11:08:49
In reply to Re: Horrible Withdrawls from EFFEXOR XR, posted by over 55 on January 4, 2007, at 8:40:57
I have another suggestion for anyone who has stopped taking Effexor and is now afraid to go near meds, natural compounded seratonin. It may not be easy to get.
I spoke with my doctor who is well aware of the studies that show that "seratonin doesn't cross the blood/brain barrier," but we don't know who funded those studies because it seems to work quite well for many of us.
It's just a thought, and I only mention it because it may be helpful to someone.
Posted by Jen2 on January 15, 2007, at 21:57:40
In reply to Effexor XR withdrawal s/e's, posted by Amanda_S on November 25, 2006, at 0:21:51
Hi,
After 2 years on 75mg I successfully got off Effexor -- with the good advice from this list.
After going to 37.5 for a couple months (and having my pdoc tell me that since the pharma didn't make a smaller dose there wasn't anything she could do about that) I took the last two weeks of 37.5, opened them up, and divided up the little balls inside. I took 75% for 10 days, 50% for 8 days, and 25% for 10 days. There are about 80 or so little balls inside each 37.5mg capsule, and while it was a bit tedious dividing them each night, it was completely worth it. Two days after taking the last capsule of 25%, I started having very mild brain flashing and some memory problems -- but it was nothing compared to what I experienced when I forgot to take a pill occasionally. I still have some brain flashes and, oddly enough, tongue flashes, but I'm feeling clearer than I have in years and am very happy to be off the drugs.
So thanks to all of you -- and thanks to Dr. Bob for this list -- as the advice I received from this list was unimaginably valuable. Cheers!
> I am wondering if any of you have withdrawn cold turkey? If so, how long until the leg jerks, brain zaps & short-term memory loss (where I know what I want to say or write but can't get it out) stop? I took it for 7 months at 75mg day. But for the last month only every other day. Now its day 5 of being off the med totally. (I am on Wellbutrin now d/t weight gain and NO libido on Effexor, plus no lessening of depression). Please offer any advise. The side effects are not debilitating, just annoying and I'd love to know there's a light at the end of all this! Thanks and God Bless!!
Posted by rina on February 4, 2007, at 22:15:42
In reply to Re: Effexor XR withdrawal s/e's, posted by Jen2 on January 15, 2007, at 21:57:40
Okay here's the thing. My diagnosis is Bipolar, ADD and depression. Last week my pdoc decided to abruptly stop the Effex, due to a recent hypomanic occurence. I was on 225mg originally, then 150mg. She then had me go cold turkey. This is worse than labor without an epidural!! First, my head is about to explode due to the vertigo experience, insomnia, weird suicidal dreams, major dysphoria, diarrhea, vomitting, up and down mood swings and I've been shaking like a leaf as if I'm detoxing from alcohol. This is the worst thing, I've ever experienced.
Posted by dancingstar on February 4, 2007, at 22:25:29
In reply to Withdrawal From Effexor XR Worse Than Labor!!, posted by rina on February 4, 2007, at 22:15:42
Rina, I'm so sorry, my heart goes out to you.
Get your doc to put you back on E and get off more slowly, much more slowly. It took me two years to completely recover because I quit cold turkey, and I'm not sure I did completely recover. It's not the best way to stop taking that vile drug.
Posted by rina on February 5, 2007, at 18:19:47
In reply to Re: Withdrawal From Effexor XR Worse Than Labor!! » rina, posted by dancingstar on February 4, 2007, at 22:25:29
> Rina, I'm so sorry, my heart goes out to you.
>
> Get your doc to put you back on E and get off more slowly, much more slowly. It took me two years to completely recover because I quit cold turkey, and I'm not sure I did completely recover. It's not the best way to stop taking that vile drug.The bad thing is, my psychiatrist is doing it. Get this, she suggested I might be coming down with the flu. Such a bag of bull****
Posted by dancingstar on February 5, 2007, at 18:26:05
In reply to Re: Withdrawal From Effexor XR Worse Than Labor!!, posted by rina on February 5, 2007, at 18:19:47
She has to know better. These are supposed to be educated, intelligent, well-read folks, aren't they?
Maybe you can find another pdoc to help you? That kind of pain is cruel and unusual punishment, and you didn't even do anything wrong.
Hang in there!!
> > Rina, I'm so sorry, my heart goes out to you.
> >
> > Get your doc to put you back on E and get off more slowly, much more slowly. It took me two years to completely recover because I quit cold turkey, and I'm not sure I did completely recover. It's not the best way to stop taking that vile drug.
>
> The bad thing is, my psychiatrist is doing it. Get this, she suggested I might be coming down with the flu. Such a bag of bull****
>
>
Posted by Jouezmoi on February 22, 2007, at 16:50:40
In reply to Re: Withdrawl, posted by shelby11 on October 17, 2006, at 16:31:54
All .... I have great news. A solution that has worked and I am finally Effexor free.
After suffering for 3 months trying to get off of this drug, I finally got my doc to do something. He did some thinking and some research and came up with the simplest thing that worked immediately. Understand, I was down to 37.5mg a day and could not get below that without the debilitating withdrawal effects that you all have described, and had only been on 75mg a day for about 7 months.
The solution? Tranxene. This drug is also used for severe alcohol withdrawal symptoms, and for some reason it worked perfectly for me.
I started with Tranxene T, 10mg twice daily. By the 3rd day, the symptoms were gone ... gone ... no brain shocks, no brain shivers, no nausea, no nightmares .. back to normal. The regimen is 10mg twice daily for 1 week, then once daily for the 2nd week and thats it.
I am finally free, and tranxene is a cheap drug. I think my doc needs an award for this one, because nowhere in all my research have I seen this as an option.
You gotta try this.
Posted by dancingstar on February 22, 2007, at 17:14:31
In reply to Re: Effexor Withdrawal Solution » shelby11, posted by Jouezmoi on February 22, 2007, at 16:50:40
Congratulations, Jouezmoi, on your wonderful news!
Long after I had stopped taking Effexor, one of my doctors did try a tiny dose of 2 micrograms of Naltrexone to help me with both fibromyalgia and the continuing symptoms of withdrawal from Effexor, but as has been my contention all along, I'm very sensitive to drugs, and don't tolerate them well.
Soon after I took it, I was in an enormous amount of pain and got a migraine that knocked me flat out. Not realizing it was the drug at first, I took them a few times, each time with the same result, before tossing them.
I think it's a solution that could work for some people. If someone begins to get even sicker, though, well, um, it isn't your imagination :-).
Posted by Jouezmoi on March 24, 2007, at 15:58:13
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
All .... I have great news. A solution that has worked and I am finally Effexor free.
After suffering for 3 months trying to get off of this drug, I finally got my doc to do something. He did some thinking and some research and came up with the simplest thing that worked immediately. Understand, I was down to 37.5mg a day and could not get below that without the debilitating withdrawal effects that you all have described, and had only been on 75mg a day for about 7 months.
The solution? Tranxene. This drug is also used for severe alcohol withdrawal symptoms, and for some reason it worked perfectly for me.
I started with Tranxene T, 10mg twice daily. By the 3rd day, the symptoms were gone ... gone ... no brain shocks, no brain shivers, no nausea, no nightmares .. back to normal. The regimen is 10mg twice daily for 1 week, then once daily for the 2nd week and thats it.
I am finally free, and tranxene is a cheap drug. I think my doc needs an award for this one, because nowhere in all my research have I seen this as an option.
You gotta try this.
Posted by dsm3r on March 24, 2007, at 16:01:16
In reply to Effexor Withdrawal Solution, posted by Jouezmoi on February 22, 2007, at 16:55:51
> All .... I have great news. A solution that has worked and I am finally Effexor free.
>
> After suffering for 3 months trying to get off of this drug, I finally got my doc to do something. He did some thinking and some research and came up with the simplest thing that worked immediately. Understand, I was down to 37.5mg a day and could not get below that without the debilitating withdrawal effects that you all have described, and had only been on 75mg a day for about 7 months.
>
> The solution? Tranxene. This drug is also used for severe alcohol withdrawal symptoms, and for some reason it worked perfectly for me.
>
> I started with Tranxene T, 10mg twice daily. By the 3rd day, the symptoms were gone ... gone ... no brain shocks, no brain shivers, no nausea, no nightmares .. back to normal. The regimen is 10mg twice daily for 1 week, then once daily for the 2nd week and thats it.
>
> I am finally free, and tranxene is a cheap drug. I think my doc needs an award for this one, because nowhere in all my research have I seen this as an option.
>
> You gotta try this.
>Hi - do you mean you are off all meds or just the effexor? Are you using tranxene as a substitute for effexor? How are you doing? Sorry for all the questions - but if I could transition to a medication that has less side effects and costs a whole lot less would be a Godsend. I would greatly appreciate it if you could post more information. Thanks so much for the new info!!!!
Blessed journeys -
D
Posted by JouezMoi on March 24, 2007, at 16:01:20
In reply to Re: Effexor Withdrawal Solution » Jouezmoi, posted by dsm3r on February 24, 2007, at 12:56:38
I am currently off all meds and doing OK so far. I actually had a good test yesterday ... enduring a 5.0 earthquake which lasted about 15 seconds, without getting an anxiety/ panic attack. I was diagnosed with generalised anxiety disorder (I had constant palpitations, outrageous outbursts, impatience, mood swings, and constant fear of dying ....)
The Effexor worked very well for me, very little side effects except for yawning at 3:00 in the afternoon, increased insomnia (which I always had anyways ... I live on Unisom), and the most interesting dreams which made going to the movies unnecessary. Effexor effectively brought me to a state of normalcy and the doc decided it was time to come off ... and that was when the nightmare began with the "discontinuation syndrome".
I used the Tranxene for 2 weeks only and I am now completely medication free right now .. for the past 2 weeks or so. (About 4 or 5 weeks completely off of Effexor). I am doing well in terms of managing my anxiety and my mood swings, and I feel good (except for a one day bout of PMS).
I have been dealing with these issues since my early 20s and I know I am good for now, and may remain so for a couple years even. And, the time will come when my monsters will raise their heads again and I will have to go back on meds .. be it depression, or anxiety or hypomania.
When that time comes, I will choose my course of treatment more carefully.
Posted by dsm3r on March 24, 2007, at 16:04:29
In reply to Re: Effexor Withdrawal Solution, posted by JouezMoi on February 24, 2007, at 13:36:53
> I am currently off all meds and doing OK so far. I actually had a good test yesterday ... enduring a 5.0 earthquake which lasted about 15 seconds, without getting an anxiety/ panic attack. I was diagnosed with generalised anxiety disorder (I had constant palpitations, outrageous outbursts, impatience, mood swings, and constant fear of dying ....)
>
> The Effexor worked very well for me, very little side effects except for yawning at 3:00 in the afternoon, increased insomnia (which I always had anyways ... I live on Unisom), and the most interesting dreams which made going to the movies unnecessary. Effexor effectively brought me to a state of normalcy and the doc decided it was time to come off ... and that was when the nightmare began with the "discontinuation syndrome".
>
> I used the Tranxene for 2 weeks only and I am now completely medication free right now .. for the past 2 weeks or so. (About 4 or 5 weeks completely off of Effexor). I am doing well in terms of managing my anxiety and my mood swings, and I feel good (except for a one day bout of PMS).
>
> I have been dealing with these issues since my early 20s and I know I am good for now, and may remain so for a couple years even. And, the time will come when my monsters will raise their heads again and I will have to go back on meds .. be it depression, or anxiety or hypomania.
>
> When that time comes, I will choose my course of treatment more carefully.Hi Jouezmoi -
Thanks for answering my questions. Sorry I haven't posted before this. With seasonal affective d/o on top of bi-polar let's just say I'm a tad bit off, lol.That is wonderful news about being off effexor and meds. Using Tranxene for withdrawl seemed to work for you. My physician informed me that she would prescribe this med if I wanted to quit smoking. Maybe I can kill 2 birds with 1 stone.
Again, thanks for posting the info. The more info we have from others, the better we are able to manage our illness.
Best wishes to you!!!!
Blessed journeys,
Me.
Posted by FredPotter on March 24, 2007, at 16:04:32
In reply to Re: Effexor Withdrawal Solution » JouezMoi, posted by dsm3r on March 15, 2007, at 0:07:24
I've been on 75 mg capsules of Effexor XR for about 5 years. Daytime sleepiness and weakness has been a problem though. I was up to 5 of these capsules at one time, but came down gradually to 2. I am going to start Nardil soon so my Dr told me to stop Effexor. Which I have done. Suddenly
Well today I've felt little more than dead. Sleeping all day on and off although the depression followed me into my (awful) dreams and I'd keep trying to wake but it was so hard due to sleep paralysis. Also "gaps" in consciousness. Are these the brain zaps people talk about? Puffy eyes, unable to open my eyelids properly
Is this to be expected? And how long will it go on? Does anyone know the washout period from Effexor XR to Nardil?
Thanks everyone
Fred
Posted by FredPotter on March 24, 2007, at 16:04:35
In reply to Sudden Effexor Withdrawal, posted by FredPotter on March 15, 2007, at 22:34:39
today I've felt slightly better but keep crying over God knows what. There's a whooshing sound when I move my eyes
Posted by FredPotter on March 24, 2007, at 16:04:38
In reply to Re: Sudden Effexor Withdrawal, posted by FredPotter on March 17, 2007, at 2:53:10
Hiya all I've found this blog (it takes you straight to my entry)
http://www.websitetoolbox.com/tool/post/focussober/vpost?id=1744192&pid=16652993#post16652993
I've never taken much interest in withdrawal complaints before as I believed it was drug company bashing. Hower this Blog and posts, our forum, have been saying for a long time that Effexor has more weird side effects and withdrawal effects than any other psychotropic drug (possible excepting Zyprexa and Xanax). At least with Xanax you have a feel for what's going on - it's called craving.
No-one on the blog seems to be withdrawing from Effexor in order to start another drug. But I start Nardil in 3 days. My doc and pharmacist roughly agreed 1 week to 10 days was enough to get rid of all Effexor traces. But my doc also told me to "stop taking the Effexor". So what does he know? Some people have said it might take a year to taper off
The last quarter of my life has mostly been spent in an inner world. Is that the illness, the drug or the effect of changing doses? Is Effexor a serious concern?
Much love
Fred
Posted by JouezMoi on March 24, 2007, at 16:04:41
In reply to Re: Sudden Effexor Withdrawal, posted by FredPotter on March 17, 2007, at 19:11:13
Hi Fred,
Is honestly think that Effexor is a very effective drug. I also believe that the only reason that the withdrawal nightmore is now coming to the fore, is that people are only now starting to come off of it. There are several reasons for this. This drug was originally used for serious clinical health concerns -- like OCD, and bi-oplar I/II, or severe depression where the patient's well-being was clearly at risk, so the benefits far outweighed the risks, and the patient was expected to be on the mediciation for the long haul .. "for life".
Now that its use has become more mainstream, doctors are prescribing it for less severe ailments with the intention of shorter periods of use. So suddenly, the problems associated with coming off have been exacerbated by the increase of short-term users, and the possibility of long-term users only now coming off.
This is no drug-company bashing. This is real. I know my experiences, and in many cases, the doctors have all been taken by surprise, to the extent that they themselves did not want to admit that there was a problem.
Incidentally, I have been on and off Xanax for decades, without any addiction problem. I plan in future, when I need help with my anxiety I will go back to short-term Xanax or Ativan which worked for me. For depression, a short course of one of the tri-cyclics will do.
I want to stay far from these new "designer" drugs. They are potent, and very effective, but I am concerned that in my case, they may have done more harm than good. My eye-sight has not been the same since Effexor, and I had 20/10 vision.
There has also been concerns from one doctor that I know, that long-term use may lead to stroke in some patients. He is seeing it more and more with patients in their early forties who have been on SSRI's for more than 15 years (i.e. from inception).
The overall verdict is not out, and won't be until there is more emperical data to assess.
> Hiya all I've found this blog (it takes you straight to my entry)
>
> http://www.websitetoolbox.com/tool/post/focussober/vpost?id=1744192&pid=16652993#post16652993
>
> I've never taken much interest in withdrawal complaints before as I believed it was drug company bashing. Hower this Blog and posts, our forum, have been saying for a long time that Effexor has more weird side effects and withdrawal effects than any other psychotropic drug (possible excepting Zyprexa and Xanax). At least with Xanax you have a feel for what's going on - it's called craving.
>
> No-one on the blog seems to be withdrawing from Effexor in order to start another drug. But I start Nardil in 3 days. My doc and pharmacist roughly agreed 1 week to 10 days was enough to get rid of all Effexor traces. But my doc also told me to "stop taking the Effexor". So what does he know? Some people have said it might take a year to taper off
>
> The last quarter of my life has mostly been spent in an inner world. Is that the illness, the drug or the effect of changing doses? Is Effexor a serious concern?
>
> Much love
>
> Fred
Posted by FredPotter on March 24, 2007, at 16:04:44
In reply to Re: Sudden Effexor Withdrawal, posted by JouezMoi on March 18, 2007, at 11:34:21
Chere Jouezmoi Your post is very thoughtful and well-balanced. I don't like conspiracy theories against drug companies as they wouldn't stay in business if all the accusations were true. I know several biostatisticians who work for them and they are scientists who are genuinely trying to create better drugs, the more to alleviate suffering.
However, yes, Effexor came as a shock to the professionals. I've never really had withdrawal effects from ADs before apart from Serzone.
Fred
Posted by teady-joshua on March 24, 2007, at 16:05:16
In reply to withdrawal, posted by jeanette on April 12, 2000, at 16:31:48
Greetings,
I’m hoping to get some help here. I myself am not on Effexor (thank God), however my friend is. She was placed on this med. in the summer of 2006 (it is now March of 07), by a Physician’s Assistant. The penitent suffers from anxiety attracts and for some reason the PA put her on Effxor XR.75mg. once a day. I am not a physician however looking in the PDR I can’t understand this drug being prescribed.
Here’s my dilemma the patient has decided to go off of Effxor XR cold turkey. Her script ran out (has refills) and was unable to take the drug for two (2) days. In those days she decide to drop the drug. It has been now four (4) days since she went off and we are going through severe withdrawals. The symptoms are chills, nausea, sever back pain, dizziness, incoherence, and shortness of breath. Also last I examined her she is not suicidal but is very miserable and beginning to sound depressed.
I’ve done the reading on Effxor XR as well as many accounts of patients with withdrawals and I’m not happy with what I see. I’m looking for some advice here. Seeing as her script is small (75mg.). Is there a way to wean her off slowly? I have attempted to get her to see a doctor however she is persistent against that. (Rightly so after this hellatious experience with this drug)
What can I do for her?
Thank you,
Joshua
Posted by Clayton on March 24, 2007, at 16:05:20
In reply to Re: withdrawal, posted by teady-joshua on March 24, 2007, at 2:56:24
Hi,
I just want to let everyone know that I took Effexor for 9 months (150mg x 2/day) and discontinued it abruptly. I had no withdrawl symptoms whatsoever. None!
At first when I was offered Effexor by my Pdoc, I refused to take it because of the ominous accounts I had read on PsycoBabble about the withdrawl syndrome...brainshocks and all that. None of it has occerred for me at all.
It was an excellant antidepresnat while I took it and truly helped me. I would hate for anyone else to refuse the help they could obtain from this medication because a few people experience the withdrawl symptoms so graphically described on this site.
Take care, everyone!
Posted by dancingstar on March 24, 2007, at 17:05:22
In reply to Re: Sudden Effexor Withdrawal, posted by FredPotter on March 17, 2007, at 2:53:10
Fred,
I'm so sorry you and all are in pain. I stopped taking Effexor in Sept. of '04. The doctors have now known about this for a long time. Wyeth has known about it for what seems like a very long time now, truly, if my research has not been deleted; and yet they prescribe the drug to very many people who never had depression, like me, for pain and symptoms of all sorts of other things, knowing it is potentially very problematic.
After two years, I'm mostly well now, but it's not the same. I was never depressed -- unless something sad happened -- until I took Effexor. Now I have annoying symptoms, like having trouble leaving home. Effexor, as you should know, is a multi-billion dollar business for Wyeth. What they have done is sinful.
I was told that the family pracice quack that put me on E for back pain and fatigue seems to be in jail. I have no idea why. A formerly health-conscious man, I hear he has gotten fat and has lost his teeth. All of this means nothing to me. The part that made me smile is that I hear he is now being given Effexor. That, I must say, is sweet justice.
Posted by dancingstar on March 24, 2007, at 18:27:58
In reply to Re: withdrawal, posted by teady-joshua on March 24, 2007, at 2:56:24
Hey Joshua,
Looking back, though you could not have convinced me of this at the time, I think it would have been best to go back on Effexor and wean off of it slowly.
There are two ways to do this. One is to take Effexor tablets instead of capsules because the tablets come in smaller dose amounts, and you can easily break them into ever smaller and smaller amounts until your friend is safely off the drug.
The other way is to empty the capsules and take fewer and fewer grains of Effexor. Read through the years of posts on this board where it has been done. I'm sorry that I'm not more help with this, but I didn't do it myself. I do know that there is not a prescribed way to do it. The doctors don't seem to have the method down to a science either. Don't rush. Just do what her body will tolerate without pain.
I didn't know about this method when I quit cold turkey, and I only heard about it around three months after I had already quit. Then I kept thinking I'd get better any day which turned out to not be true. If you're sick from withdrawal, it seems like for most of us that lasts a while. That's the only reason I'm recommending that your friend consider quitting slowly.
Best of luck to you both!!!
Posted by JouezMoi on March 24, 2007, at 22:40:44
In reply to Re: withdrawal » teady-joshua, posted by dancingstar on March 24, 2007, at 18:27:58
Joshua,
See my post on what worked for me. My doctor put me on 2 weeks of Tranxene. By the third day the symptoms disappeared completely, and this was after three months of trying to wean off slowly. I was down to 37.5mg every other day and suffering from the terrible physical withdrawal symptoms. (I had even ended up in the ER thinking I was having a stroke or epileptic event ..which I do not suffer from).
One week of Tranxene 10mg twice a day. One week of 10mg once a day.
Posted by FredPotter on March 25, 2007, at 15:55:53
In reply to Re: Horrible Withdrawls from EFFEXOR XR, posted by bayleebug on December 26, 2006, at 10:38:51
Prozac has a half-life of 5 weeks, while Effexor's is 7 hours. So withdrawal from Prozac isn't in the same league as Effexor. I had no withdrawal effects that I was aware of, except sex came back into my life. Effexor has been a very different story
Fred
Posted by FredPotter on March 28, 2007, at 0:25:34
In reply to Re: Horrible Withdrawls from EFFEXOR XR » bayleebug, posted by FredPotter on March 25, 2007, at 15:55:53
Of course half life isn't everything. The metabolites downstream be be psychoactive (good or bad). Indeed some drugs are not psychoactive by and of themselves at all. Also, as we are all told, brain changes occur, so presumably these can persist long after the half-life of the original drug. My psych said the time taken for the brain to recover from severe alcohol abuse is 6 years.
So I'm a bit despondent because, although the Effexor w/d effects may not last foerever, it may be months or years, and , well I'm 60 and time's running out. The whooshing when moving the eyes shows no sigs of abating (after 2 weeks - that's nothing I suppose and liveable with). But it make me wonder what's going on
Fred
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