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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 8 of 8. This is the beginning of the thread.
Posted by daisym on February 11, 2005, at 23:08:16
I received an email today from a young mom who lives in Wales. She has a three month old baby who seems to be developmentally delayed and may have vision problems. She is from the states (married a welshman) and doesn't know where to do for help.
I'd appreciate any advice anyone could give me to pass along. I'm sending her stuff but here in the states we have laws about services for disabled children. All I know so far is that mom took depakote, for seizure disorder, throughout her pregnancy (high dose). The concerns are that the baby is not tracking things visually, not smiling to outside stimulus.
Posted by Angielala on February 11, 2005, at 23:53:53
In reply to Needs some help from the UK, posted by daisym on February 11, 2005, at 23:08:16
My heart just broke- my prayers and thoughts go to her, let her know that.
I found this: http://www.cafamily.org.uk/ it's a site for families with children with disabilities, it seems to have some information to give her some direction. It looks like it deals with how to help a family cope and where to get the child some help too. It lists Wales as an area that they cover.
There is also this site: http://www.dwp.gov.uk/lifeevent/benefits/disability_liv_allowance2.asp
It seems to help families secure an allowance for care for children with disabilities in the UK.I'll continue to look, but I wanted to post something for now.
My whole heart goes out to her and the child.
> I received an email today from a young mom who lives in Wales. She has a three month old baby who seems to be developmentally delayed and may have vision problems. She is from the states (married a welshman) and doesn't know where to do for help.
>
> I'd appreciate any advice anyone could give me to pass along. I'm sending her stuff but here in the states we have laws about services for disabled children. All I know so far is that mom took depakote, for seizure disorder, throughout her pregnancy (high dose). The concerns are that the baby is not tracking things visually, not smiling to outside stimulus.
Posted by Angielala on February 11, 2005, at 23:54:56
In reply to Needs some help from the UK, posted by daisym on February 11, 2005, at 23:08:16
This site lists helpful resource sites (from the UK as well as other places)
Posted by Angielala on February 12, 2005, at 0:07:52
In reply to Needs some help from the UK, posted by daisym on February 11, 2005, at 23:08:16
There are all groups in Wales for Children and their familes with a disability
************************************
Parent.Works Service
Powys Health Care NHS Trust
Ynys-y-Plant
Plantation Lane
NEWTOWN
SY16 1JH
Telephone: 01686 617444
Fax: 01686 617440
Email: parentworks@barnardos.org.ukOffers early support and help to improve the health and psychological well being of children and parents in Powys.
***************************
Monmouthshire Community Links Service
Social Services Department
Newbridge House
Baker Street
ABERGAVENNY
NP7 5HY
Telephone: 01873 735975
Fax: 01873 735999
Email: monmouthshire.communitylinks@barnardos.org.ukProvides a range of services for disabled children and young people in Monmouthshire and South East Wales. Working towards inclusion of disabled children and young people by ensuring that they access good quality support services and by influencing other individuals, organisations and processes.
**********************************
Cyfle: Services For Disabled Children and their Families
Henllan Day Centre
Henllan
DENBIGH
LL16 5YA
Telephone: 01745 817216
Fax: 01745 817521
Email: glenys.griffiths@barnardos.org.ukProvides family support to disabled children and their families.
**************************************
Posted by Angielala on February 12, 2005, at 0:17:03
In reply to Needs some help from the UK, posted by daisym on February 11, 2005, at 23:08:16
UK Disability Information Services:
http://www.diss.org.uk/
DISS
Harrowlands Centre
Harrowlands Park
Dorking
Surrey RH4 2RAFax: 01306 741740
IT Helpline: 01306 742130
Manager: 01306 742282******************************
This is for children with Cerebal Palsy- which I'm only giving because I did a search for "Depakote" "Child Disability" and this site came up:
*****************************
This site is run by parents with children with special needs- seems like a very supportive community:
***************************
This is a site that lists UK charities- perhaps a place she could find one that can help her:
hthttp://www.charitylibrary.co.uk/listallcharities.php
*****************************
Posted by daisym on February 12, 2005, at 0:31:12
In reply to More UK resources, posted by Angielala on February 12, 2005, at 0:17:03
wow, Angielala, thank you SO much. This is really helpful. I will send all of this to her. I can't imagine how alone and scared she must feel, so far away from her family.
It makes me remember how blessed I am that my children are healthy.
I knew the babble community would help. :)
Posted by Angielala on February 12, 2005, at 1:21:42
In reply to Re: More UK resources, posted by daisym on February 12, 2005, at 0:31:12
I wish resources for this kind of help was readily available everywhere.
I just hope something I found will get her some help.
Please let me know how she does, and if she needs more help. Maybe a University in Wales could help her too- I know they have some excellent schools there.
You are so wonderful to reach out for her.
> wow, Angielala, thank you SO much. This is really helpful. I will send all of this to her. I can't imagine how alone and scared she must feel, so far away from her family.
>
> It makes me remember how blessed I am that my children are healthy.
>
> I knew the babble community would help. :)
Posted by Angielala on February 14, 2005, at 23:46:38
In reply to Needs some help from the UK, posted by daisym on February 11, 2005, at 23:08:16
This is the end of the thread.
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