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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 25 of 40. This is the beginning of the thread.
Posted by happyflower on October 19, 2007, at 10:03:51
I have read all your wonderful messages of support lots of times this week, it helped so much. It gave me a sense of comfort that someone really cares. I am just feeling too down and overwhelmed to respond to them, I hope that is okay.
They found out for sure that Baby L has a chromozone disorder and that her living past a week is very unlikely, she is on total life support now. So if both parents agree (one doesn't want to), they will take her off life support and allow the parents to hold her until she passes on. So very sad as this baby lookes healthy on the outside. I have pictures and she is very cute too. My husband says she looks at you and grabs your finger. It almost seems unreal to me. She just doesn't look sick.
My stepdaughter said she wanted my daughter to finish the quit as a rememberence of L. I think that is helping my daughter too, I told her that she can finish it when she feels ready. The funeral will be next week, this will be so hard for our family as we never had to deal with this before.
I have T on Monday, I don't feel like going, but I probably need to. I am not sure how I am going to get through this week, it seems so unreal.
Posted by LadyBug on October 19, 2007, at 11:30:32
In reply to To Babblers, posted by happyflower on October 19, 2007, at 10:03:51
You and your family are in my thoughts. I'm sorry for your pain.
Posted by LlurpsieNoodle on October 19, 2007, at 11:53:14
In reply to Re: (((((((Happyflower)))))), posted by LadyBug on October 19, 2007, at 11:30:32
happyflower,
even in the middle of all of this pain and hurt, your warm heart is helping you make good choices.(((((((((((((((happyflower)))))))))))))))
your friend,
-Ll
Posted by Phillipa on October 19, 2007, at 12:45:53
In reply to Re: (((((((Happyflower)))))) » LadyBug, posted by LlurpsieNoodle on October 19, 2007, at 11:53:14
Happyflower didn't know she was on life support so hard to do. You are in my prayers and thoughts. And baby what's her name? and your Daughter too. Phillipa
Posted by Poet on October 19, 2007, at 13:14:55
In reply to To Babblers, posted by happyflower on October 19, 2007, at 10:03:51
Hi Happyflower,
I am sorry, I'm surrounding you and your family with the white light of healing. Please don't apologize for not being able to respond to us, you need to take time for yourself.
Poet
Posted by rskontos on October 19, 2007, at 13:53:37
In reply to Re: To Babblers » happyflower, posted by Poet on October 19, 2007, at 13:14:55
((((((((Happyflower))))), I am sorry I think in a previous post I thought she had already passed. You are in my thoughts and prayers, you, your step-daughter and your extended family. This is such a difficult time. It is heartbreaking.......come and go as you need just know all of our hearts and thoughts are with you at this time. God Bless that precious soul. rk
Posted by B2chica on October 19, 2007, at 14:06:17
In reply to To Babblers, posted by happyflower on October 19, 2007, at 10:03:51
((((((((((((HF))))))))))))
i am so sorry for you and your family.
that is so terrible. what a tragic loss.i wanted to comment on the quilt.
many times people want to take something that is a momento and cherish it always, others don't want it around.
(ONLY) if your daughter decides she does not want to keep the quilt, she may want to consider donating it to the children's "ward" of a hospital. maybe another sick child can get Great Use from it.and please take time for yourself to rest and such HF. you need to remember to take care of yourself so that you are better able to help others through this.
LOTS OF HUGS (((((((((((((((HF))))))))))))))
b2cc.
Posted by DAisym on October 19, 2007, at 14:30:34
In reply to Re: To Babblers » happyflower, posted by B2chica on October 19, 2007, at 14:06:17
My thoughts and prayers are with you and your family. The death of a baby is so tragic. I have a story for you to think about sometime in the future.
I have a good friend who is a nurse. A long time ago, when she was in nursing school, she was doing her rotations and was in the newborn nursery on an evening shift. A baby was born - and he looked completely healthy but he died a short time later. My friend was very upset because she couldn't save him. (This was before the days of knowing about chromosones, etc.) She was so upset that she stayed in school an extra 8 years and became a PhD neontal nurse and her research has since saved thousands of babies. About 10 years after that night, she was again working in the newborn nursery. A mom came in, having her 5th child and she recognized the name on the chart. She went into the room and said to the mom, "I'm sure you don't remember me but I was here the night your oldest son was born and died. I want you to know that I believe with all my heart that he was sent here to show me what my path in life was supposed to be." My nurse friend and this mom cried together.
It is hard to get through these painful experiences but no life, however briefly lived, is meaningless.
Posted by LittleGirlLost on October 19, 2007, at 16:14:31
In reply to To Babblers, posted by happyflower on October 19, 2007, at 10:03:51
Safe, gentle, hugs for you ((((Happyflower)))). I can only imagine how difficult this must be for you and your family.
You, your family, and beautiful Baby L will be in my thoughts and prayers.
~LGL
Posted by Raindancer on October 19, 2007, at 19:52:07
In reply to To Babblers, posted by happyflower on October 19, 2007, at 10:03:51
Dear Happyflower, you give so much to us here with such a generous and loving heart. I feel your sadness for the young life that will pass so soon and for the pain it brings to you and your family. Baby L will feel your love and always have a special place in your heart. Take care of yourself, taking each hour, each minute as it comes and may peace gradually fill your heart. ((((happyflower))))
Posted by antigua3 on October 20, 2007, at 7:21:27
In reply to Re: To Babblers » happyflower, posted by Raindancer on October 19, 2007, at 19:52:07
I can't say anything more than I am so sorry for your family and that I am praying for all of you through this tragic time.
antigua
Posted by happyflower on October 20, 2007, at 9:57:30
In reply to To Babblers, posted by happyflower on October 19, 2007, at 10:03:51
I am feeling overwhelmed by all the support you have given me during this time, it really is helping me so much. I can once again believe in this place again, you all have given me so much, I am truely touched. It is something I won't ever forget.
I am writing now as the baby is getting ready to go to heaven. It is so very sad. My husband called and just wanted to hear my voice. We used to be each other's support system a lot, until the last couple of years. I am supporting him, he is their with his daughter, and she needs him, and he needs me to keep him strong for her. He is driving home early this evening.
The viewing will be on Tues, and the funeral on Wed. I am so overwhelmed with tears and sadness. It has been a tough year for me losing my FIL who was like a father to me, my T who I wish I could reach out to right now, and now my baby granddaughter Lia. This will make the holidays so hard plus we are going on a vacation before Christmas. Maybe that will be good for me , DH and the kids.
Okay, I am not even sure what I am writing right now, I just wanted to share this time with you. I appreciate your prayers, thoughts and all your caring. I will get through this, but it will be really hard this week. Thank you again.
Posted by seldomseen on October 20, 2007, at 16:04:57
In reply to Re: To Babblers, posted by happyflower on October 20, 2007, at 9:57:30
My thoughts are with you HF.
Love
Seldom
Posted by TherapyGirl on October 20, 2007, at 21:16:50
In reply to Re: To Babblers, posted by happyflower on October 20, 2007, at 9:57:30
I'm so sorry, HF. You and your family are in my thoughts. And I think it's great that you've been able to be a support to your husband.
Please keep us posted.
(((((HappyFlower)))))
Posted by MidnightBlue on October 20, 2007, at 21:31:00
In reply to To Babblers, posted by happyflower on October 19, 2007, at 10:03:51
Prayers coming your way!
MidnightBlue
Posted by happyflower on October 20, 2007, at 22:03:17
In reply to Re: To Babblers » happyflower, posted by MidnightBlue on October 20, 2007, at 21:31:00
Well they took her off life support and only expected her to live for 1/2 hour, well she has been going for over 9 hours now and still looks good! She is still terminal but I am glad the mom and dad could hold her and have time with her like this.
Today was the first they even got to hold her. And now it is without all the hookups. She had on a pretty pink dress and now they put on pj's on her. They had to buy special clothes since she is so tiny only 4 lbs (full term) or else by doll clothes.The doctors are amazed she has hung on so long, she isn't even connected to O2. Who knows maybe there will be a miracle or something. I am just so happy for the parents, plus all the relatives have left so they have this time to themselves.
Posted by Phillipa on October 20, 2007, at 22:23:25
In reply to unbelievable ! Update, posted by happyflower on October 20, 2007, at 22:03:17
Happyflower no way they could have misdiagnosed her is there? I hope they did and this is wonderful. Love Phillipa
Posted by happyflower on October 20, 2007, at 22:28:47
In reply to Re: unbelievable ! Update » happyflower, posted by Phillipa on October 20, 2007, at 22:23:25
Yeah, I wish the was the case, but they tested her twice. You asked me earlier if she had some prenatal tests done, and she did, but nothing showed up. She has a lot of physical internal problems, but who knows? I am just happy they have this extra precious time. What a blessing.
Posted by Phillipa on October 20, 2007, at 22:33:32
In reply to Re: unbelievable ! Update » Phillipa, posted by happyflower on October 20, 2007, at 22:28:47
Happyflower I will hope for a miracle. Love to you, baby, Daughter and rest of family. Phillipa
Posted by LittleGirlLost on October 20, 2007, at 23:06:41
In reply to unbelievable ! Update, posted by happyflower on October 20, 2007, at 22:03:17
awww :*)
What a blessing! Sounds like little 4lb Baby Lia is quite a fighter. Glad her parents were able to have this extra, precious time with her.
~LGL
Posted by Dinah on October 21, 2007, at 10:08:46
In reply to unbelievable ! Update, posted by happyflower on October 20, 2007, at 22:03:17
I'm so glad they have this extra time with her, and are able to hold her. I can imagine how comforting that must be, in the midst of all that's happened.
Posted by happyflower on October 21, 2007, at 10:25:38
In reply to Re: unbelievable ! Update » happyflower, posted by Dinah on October 21, 2007, at 10:08:46
She made it through the night and they might let her come home with her (3 hour drive). They would need hospice 24 hours at home though. If she come back home I might go and see her. It will so hard but I think it would be good for me maybe. The doctors believe because of human touch and holding her, is helping her fight for her life. I am so exhausted right now.
Posted by annierose on October 21, 2007, at 11:21:12
In reply to Re: unbelievable ! Update, posted by happyflower on October 21, 2007, at 10:25:38
Are they able to feed her? The mother must have so many feelings all tangled up. I can't even imagine what is floating through her mind. Post-partum is difficult enough. My prayers are with this family.
Posted by rskontos on October 21, 2007, at 13:59:07
In reply to Re: unbelievable ! Update, posted by annierose on October 21, 2007, at 11:21:12
Happyflowers, my thoughts and prayers are with you too. What a nice and wonderful unexpected turn of events. A blessing for the young parents and your family. I will keep all of you in my prayers!!!! I know you are exhausting but hang in there!
(((((((((((Happyflower)))) ((((BabyLia and Her Family)))))))))))))
rk
Posted by happyflower on October 21, 2007, at 16:04:22
In reply to Re: unbelievable ! Update, posted by rskontos on October 21, 2007, at 13:59:07
They are on their way home so we are go to meet her and her husband at home. I hope they make it okay home it is a 4 hour ride. It will be so hard to hold her, it is just so sad. But I am going to do it anyways. Thank you everyone for all your support.
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Dr. Bob is Robert Hsiung, MD,
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