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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 8 of 8. This is the beginning of the thread.
Posted by NikkiT2 on April 30, 2007, at 8:18:22
well.. doctors think I have fibro *on top* of the CRPS..
It would explain the exhuastion, the aches everywhere else, the IBS, the restless legs etc etc etc.
But. I'm pissed off by it.
Last lot of pain killing injections didnt work. Suprise suprise.. I was meant to be "topped up" after 4 weeks, and they left it 9 due to being short staffed and doctors having 3 eeks holidays.
Oly 4 1/2 more weeks till next appointment.. I can't have the initial series of 4 again though (combination of taking time of work, NHS not offering that lot more than once, and me working for NHS so underpaid and unable to afford the money it would take to go private), so its very unlikely that there will be any more sucess.
Having had a 4 week long reduction in pain, only for it to come back and not go away again has close to broken my heart.. I made plans and foujnd some hope..
Nikki
Posted by Phillipa on April 30, 2007, at 11:42:17
In reply to adding fibromyalgia to the CRPS.., posted by NikkiT2 on April 30, 2007, at 8:18:22
Nikki I'm so sorry. Seriously I am. Love Phillipa ps are there any meds for the IBS at least?
Posted by Larry Hoover on May 1, 2007, at 9:00:09
In reply to adding fibromyalgia to the CRPS.., posted by NikkiT2 on April 30, 2007, at 8:18:22
> well.. doctors think I have fibro *on top* of the CRPS..
>
> It would explain the exhuastion, the aches everywhere else, the IBS, the restless legs etc etc etc.I'd think that CRPS is just the sort of stressor that could go on to promote such an occurrence. I'm sorry to hear that it has.
> Last lot of pain killing injections didnt work. Suprise suprise.. I was meant to be "topped up" after 4 weeks, and they left it 9 due to being short staffed and doctors having 3 eeks holidays.
So, it wore off before it could be reinforced? Kee-ripes!
> Oly 4 1/2 more weeks till next appointment.. I can't have the initial series of 4 again though (combination of taking time of work, NHS not offering that lot more than once, and me working for NHS so underpaid and unable to afford the money it would take to go private), so its very unlikely that there will be any more sucess.:-(
> Having had a 4 week long reduction in pain, only for it to come back and not go away again has close to broken my heart.. I made plans and foujnd some hope..I'm so sorry, Nikki. I had hoped your recent lack of posting was due to success. I understand the disillusionment. My nerve blocks have proved worthless, too.
> But. I'm pissed off by it.
The fire's not out. You'll find other options. You're a fighter. An inspiration.
What about ketamine? It's showing promise for both CRPS and fibromyalgia. I know getting it would be hard, for either of us, but I am going to ask. Again and again, if need be.
Take care of you, Nikki.
Lar
Posted by NikkiT2 on May 3, 2007, at 12:56:52
In reply to Re: adding fibromyalgia to the CRPS.. » NikkiT2, posted by Phillipa on April 30, 2007, at 11:42:17
I control the IBS pretty well diet wise, so its not really a huge problem.. And I'm trying to manage with no meds for anything at moment.. hmmm!
Nikki
Posted by NikkiT2 on May 3, 2007, at 13:02:54
In reply to Re: adding fibromyalgia to the CRPS.. » NikkiT2, posted by Larry Hoover on May 1, 2007, at 9:00:09
yup.. meant to be "topped up" every 4 weeks, but they couldn't fit me in for 9 weeks.
I ~hate~ the fact that I was given hope.. I think thats the worst thing of the lot.
And I wish I could swear about your SGB's not working.. *sighs* One day..
Nikki
Posted by Phillipa on May 3, 2007, at 19:25:40
In reply to Re: adding fibromyalgia to the CRPS.. » Larry Hoover, posted by NikkiT2 on May 3, 2007, at 13:02:54
Nikki does nothing work? Don't some antidepressants like cymbalta help with pain? Love Phillipa
Posted by NikkiT2 on May 6, 2007, at 4:56:20
In reply to Re: adding fibromyalgia to the CRPS.. » NikkiT2, posted by Phillipa on May 3, 2007, at 19:25:40
They work for some.. but unfortunately not for me.
And, like I said, trying to do this med free at the moment..
Nikki
Posted by Phillipa on May 6, 2007, at 17:58:09
In reply to Re: adding fibromyalgia to the CRPS.. » Phillipa, posted by NikkiT2 on May 6, 2007, at 4:56:20
Nikki I admire you you are a strong woman. Love Phillipa
This is the end of the thread.
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