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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 2 of 2. This is the beginning of the thread.
Posted by lunesta on November 24, 2005, at 16:01:25
I am very excited about this. I mentioned on another board that I have CFS/FM and the related pathogins and defiences the accompany them. I am being treated maybe I can help someone. Xyrem helps great for Fibromyalgia sleep and eventually pain, problem is if you have high anxiety the rebound (it only lasts like 3-4 hurs) then you wake up with anxiety if you have a disorder already. It is SO salty it can make you gag and vomit and it is immunosupressive, for me it gave me many respitory infections. But it is just publised check Xyrems website, that it is successful and they are now going to get it approved for Fibromyalgia next.
chronicfatigue@gmail.com is my email anyone can email me about CFS/FM/Lyme/MCS etc. I am a self acclaimed expert in those syndrome diseases and talk to many researchers etc, and also am a volunteer for the national CFIDS foundation and am part of the genetic study for CFS in NYC which i am so elated about since it free. Anyone want info or to discuss, they are still recruiting patients for the study. It is through Dr Enlander, he prefers preestablished patients. www.enlander.com
lunny
Posted by James K on December 24, 2005, at 22:52:32
In reply to I am in the worldwide genetic study for CFS-FM etc, posted by lunesta on November 24, 2005, at 16:01:25
I also have cfs. I'm new here by the way. 12 years ago my father came home from Peru with a virus, gave it to me and I never got better. I have achieved functionality along the years. Bad enough to be depressed and drunk, then that. I was diagnosed with ulcerative colitis 3 years ago as well. It is interesting to read here how similar symptoms, meds, and supplements are for all of these problems. I think they are all connected, and am beginning to learn the science to heal myself because I can't trust the doctors. Dr. Cheney makes sense to me. I haven't heard of dr. Enlander before. Good luck to you and thank you for being involved with cures and solutions.
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