![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 19 of 19. This is the beginning of the thread.
Posted by Marty on August 13, 2008, at 16:13:56
PBabble needs to EVOLVE or risk extinction, gradually fading into the web history. While the value proposition of the competitors always increased in the last couple years, the value proposition of Dr.bob.org has not.
As a software developer I always thought there was an incredible lost of value generation on this site. With so many people willing to participae in finding something that works for them and help other and feed so much data about their experiences with their illness and medication experiences.. Think about it.. all the datamining and realtime statistics that we could do/have if this site would have (or would, never too late) offered.. just some possibilities :
- A user profile section including a biological background(age, sex, etnicity, disease running in the familly, everything related to health and experiences/reaction with prescribed and street drugs) and an historical background (personality as a child, familly history/problems, traumatism/adverse life situation) and diagnostic history.
- A journal which would include affect/mood/motivation/sexual functionning/cognitive functionning/...every pertinent symptoms. AND a medication journal with the drug/supplement/therapy, prescription (dosage, frequency), benifical effects assesment, SIDE EFFECTS assesment, rating on some aspect of the subjective experience (cost vs effiency etc).. also when a med is added or withdraw a more detailed questionaire could be offered/'requested' after sometime and would be an opportunity to gather even more data on a varity of aspect that you wouldn't want to include in the 'day-to-day' journal.
- Patient bloggin to allow him to express itself freely without a rigid format but every post linked to the other journals. Allow video blogging (Vlog).
- A wiki (like wikipedia: an open encyclopedia) on everything related to mental disorder:
- Medication basic info page (like the one already on wikipedia) + associated research paper + realtime statistics generated by the journals + user experiences + Experts (Docs and Scientists) experiences with the med + Experts theories about synergictic/agonistic/antagonistic relation with other drugs and user rating of those relation.
- Knowledgebase comprised of empirical data (Research paper backed), data generated by this site journals/rating/pools/theories etc (filtered to avoid inputing NOISE -> Garbage in, Garbage out!) + any thing that can be tagged/parsed for keywords like a website or document (note: very weak weight in analysis or can be turned off in datamining/analysis query). The entities would be organized by multiple dimension (subject, tags, medication, condition etc) and linked between each others which would allow to search/detect some possible links between a varity of entities (disease, medication, neurological knowledge, news, every recognized medical field papers/report ... etc), which are usually difficult to see because of the of the multiple 'degrees' between them. (just like there is 6.6 degree between every human, there could be something interesting to for scientist to study that they dont see yet because they are separated by many degrees .. 6, 10, 43 .. well formated data input and multidimensionally well linked, the computers could see some potential interesting links in about 2 to 4 years (of knowledgebase enrichment/development by volunteers) what scienctists from many different fields could finally see in 15, 20 years or just NEVER see because of the slow pace at which links are made between fields and subfields/areas of research). Note that there's already some database system in place that are facilitating research of those links... Check for Pubmed fellow MeSH (Medical Subject Headings) as an example. I'm not sugesting to do better than those system but doing something different that would use those systems to enrich itself and it analytical quality greatly. Without such systems, and other type like Pubmed as example, already in place and public this part of the project would be a lost of time.
SO........even with just a fraction of those idea developed, if well thought and well done, the possibilities are just short of MINDBLOWING on many different level. I wont describe all that could get out of this project as there's ALOT of possibilities. This all couldn't happen in a couple months but alot could be done in 1 or 2 years and a decade could be sufficient to develop the whole thing to a mature level so that it would become a favorite of Patients/Clinicians/Researchers in the psychiatry field. This, obviously, wouldn't never get as much attention as Wikipedia and would never have more than 2% the amount of Wikipedia contributors: Everybody needs an encyclopedia but not everyone has something to do with mental health (lucky b*st*rd!!). Just saying before someone think I'm manic .. (lol) I think the community could grow enough to happen. I could imagine the year 2014: ~10000 patient members, ~2000 clinician members, ~200 researchers.... what do you think ?Keep in mind that the data input wouldn't be exclusively by patient/sufferers but enriched/verified/corrected by all kind of experts willing to participate to what would be for neuroscience/psychiatry what SETI@Home, Folding@Home, Wikipedia, or Open Source software are for other fields: a platform to exploit the collective knowledge/experiences of a massive community of willing contributors where, because of the platform good data gathering/data relationing/Analysis and datamining, the total value generated would become with time bigger than the sum of the individual contributions. The created value for the users and the researchers would be many time more than the actual value generated/offered and would allow Pbabble not only to survive but become one of the best if not THE best site for mental disorder sufferers.
Who's with me ? Think I'm going manic with those potential ideas of grandeur ? I'm not. Just being ambitious when I don't feel sick. MANY incredible and just plain groundbreaking Internet community based projects wouldn't have seen the light of day if it wasn't for a couple ambitious and optimist fellows -c-r-a-z-y- enough to not only believe in the success of their ideas but also had the courage to gather around them and work on them together ! Think of Wikipedia for instance .. HOW crazy does someone looks in 2001 and announce that by 2008 his community based website would have become the biggest encyclopedia in the history of mankind with several million freely usable articles and pages in hundreds of languages worldwide, and content from millions of contributors !!! Keep in mind it wasn't a Bill Gates or a Rockfeller, an Eistein or a Philippe Pinel .. OR what about Open Source ? How the hell so many people from many different background, country, age group etc work together on the web without even actually seen each other let alone know the credential/talent of the other contributors and create succesfully something as complex as a computer operating system (Linux) in a couple years without much money/sponsors .. seens the different variation of Linux lately ? Every billions of Microsoft COULD NEVER beat that quality of engineering and product.
Dr-Bob.org was groundbreaking a couple years ago and could recycle itself/evolve to something as much, if not much, groundbreaking again in 2008.
I, for one, would be willing to work on this project if I could get some sponsorship/risk capital/financing and the participation of a couple clinicians/researchers willing to share their ideas as to how this platform could generate optimal value for them. Dr.Bob would without a doubt be someone very interesting to talk this project with as he must have put alot of thoughts into those kind of ideas since he created this website.
Anyone who had the nerve to read my post to this point (my written english is awful. I speak french) and is interested in dicussing this fantasm is welcomed to babblemail me!
/\/\arty
PS: RemedyFind (RevolutionHealth) ideas are good, but not great and they are implemented in a way which is very far from giving what I have in mind. That said, I think it would already be a good target to aim for this kind of simple implementation in a possible next version of Dr-Bob.org.
Posted by fayeroe on August 13, 2008, at 16:42:23
In reply to Dr-Bob v2.0: This website could EVOLVE like this.., posted by Marty on August 13, 2008, at 16:13:56
I've always felt limited by mental health forums because I don't know a poster's "history" and hesitate, at times, to answer a post.
Your "overview" is too big for me but I hope that some of what you suggest can be implemented.
Pat
Posted by Marty on August 13, 2008, at 17:01:07
In reply to Re: Dr-Bob v2.0: This website could EVOLVE like this.. » Marty, posted by fayeroe on August 13, 2008, at 16:42:23
> I've always felt limited by mental health forums because I don't know a poster's "history" and hesitate, at times, to answer a post.
>
> Your "overview" is too big for me but I hope that some of what you suggest can be implemented.
>
> Pat
--------------
So I get that at least you'll like a 'User profile' section. That's quick and easy to do and I too would like to have that implemented.Thanks for the feedback.
/\/\arty
Posted by Lou Pilder on August 13, 2008, at 21:42:42
In reply to Dr-Bob v2.0: This website could EVOLVE like this.., posted by Marty on August 13, 2008, at 16:13:56
> PBabble needs to EVOLVE or risk extinction, gradually fading into the web history. While the value proposition of the competitors always increased in the last couple years, the value proposition of Dr.bob.org has not.
>
> As a software developer I always thought there was an incredible lost of value generation on this site. With so many people willing to participae in finding something that works for them and help other and feed so much data about their experiences with their illness and medication experiences.. Think about it.. all the datamining and realtime statistics that we could do/have if this site would have (or would, never too late) offered.. just some possibilities :
>
> - A user profile section including a biological background(age, sex, etnicity, disease running in the familly, everything related to health and experiences/reaction with prescribed and street drugs) and an historical background (personality as a child, familly history/problems, traumatism/adverse life situation) and diagnostic history.
>
> - A journal which would include affect/mood/motivation/sexual functionning/cognitive functionning/...every pertinent symptoms. AND a medication journal with the drug/supplement/therapy, prescription (dosage, frequency), benifical effects assesment, SIDE EFFECTS assesment, rating on some aspect of the subjective experience (cost vs effiency etc).. also when a med is added or withdraw a more detailed questionaire could be offered/'requested' after sometime and would be an opportunity to gather even more data on a varity of aspect that you wouldn't want to include in the 'day-to-day' journal.
>
> - Patient bloggin to allow him to express itself freely without a rigid format but every post linked to the other journals. Allow video blogging (Vlog).
>
> - A wiki (like wikipedia: an open encyclopedia) on everything related to mental disorder:
> - Medication basic info page (like the one already on wikipedia) + associated research paper + realtime statistics generated by the journals + user experiences + Experts (Docs and Scientists) experiences with the med + Experts theories about synergictic/agonistic/antagonistic relation with other drugs and user rating of those relation.
> - Knowledgebase comprised of empirical data (Research paper backed), data generated by this site journals/rating/pools/theories etc (filtered to avoid inputing NOISE -> Garbage in, Garbage out!) + any thing that can be tagged/parsed for keywords like a website or document (note: very weak weight in analysis or can be turned off in datamining/analysis query). The entities would be organized by multiple dimension (subject, tags, medication, condition etc) and linked between each others which would allow to search/detect some possible links between a varity of entities (disease, medication, neurological knowledge, news, every recognized medical field papers/report ... etc), which are usually difficult to see because of the of the multiple 'degrees' between them. (just like there is 6.6 degree between every human, there could be something interesting to for scientist to study that they dont see yet because they are separated by many degrees .. 6, 10, 43 .. well formated data input and multidimensionally well linked, the computers could see some potential interesting links in about 2 to 4 years (of knowledgebase enrichment/development by volunteers) what scienctists from many different fields could finally see in 15, 20 years or just NEVER see because of the slow pace at which links are made between fields and subfields/areas of research). Note that there's already some database system in place that are facilitating research of those links... Check for Pubmed fellow MeSH (Medical Subject Headings) as an example. I'm not sugesting to do better than those system but doing something different that would use those systems to enrich itself and it analytical quality greatly. Without such systems, and other type like Pubmed as example, already in place and public this part of the project would be a lost of time.
>
>
> SO........even with just a fraction of those idea developed, if well thought and well done, the possibilities are just short of MINDBLOWING on many different level. I wont describe all that could get out of this project as there's ALOT of possibilities. This all couldn't happen in a couple months but alot could be done in 1 or 2 years and a decade could be sufficient to develop the whole thing to a mature level so that it would become a favorite of Patients/Clinicians/Researchers in the psychiatry field. This, obviously, wouldn't never get as much attention as Wikipedia and would never have more than 2% the amount of Wikipedia contributors: Everybody needs an encyclopedia but not everyone has something to do with mental health (lucky b*st*rd!!). Just saying before someone think I'm manic .. (lol) I think the community could grow enough to happen. I could imagine the year 2014: ~10000 patient members, ~2000 clinician members, ~200 researchers.... what do you think ?
>
> Keep in mind that the data input wouldn't be exclusively by patient/sufferers but enriched/verified/corrected by all kind of experts willing to participate to what would be for neuroscience/psychiatry what SETI@Home, Folding@Home, Wikipedia, or Open Source software are for other fields: a platform to exploit the collective knowledge/experiences of a massive community of willing contributors where, because of the platform good data gathering/data relationing/Analysis and datamining, the total value generated would become with time bigger than the sum of the individual contributions. The created value for the users and the researchers would be many time more than the actual value generated/offered and would allow Pbabble not only to survive but become one of the best if not THE best site for mental disorder sufferers.
>
> Who's with me ? Think I'm going manic with those potential ideas of grandeur ? I'm not. Just being ambitious when I don't feel sick. MANY incredible and just plain groundbreaking Internet community based projects wouldn't have seen the light of day if it wasn't for a couple ambitious and optimist fellows -c-r-a-z-y- enough to not only believe in the success of their ideas but also had the courage to gather around them and work on them together ! Think of Wikipedia for instance .. HOW crazy does someone looks in 2001 and announce that by 2008 his community based website would have become the biggest encyclopedia in the history of mankind with several million freely usable articles and pages in hundreds of languages worldwide, and content from millions of contributors !!! Keep in mind it wasn't a Bill Gates or a Rockfeller, an Eistein or a Philippe Pinel .. OR what about Open Source ? How the hell so many people from many different background, country, age group etc work together on the web without even actually seen each other let alone know the credential/talent of the other contributors and create succesfully something as complex as a computer operating system (Linux) in a couple years without much money/sponsors .. seens the different variation of Linux lately ? Every billions of Microsoft COULD NEVER beat that quality of engineering and product.
>
> Dr-Bob.org was groundbreaking a couple years ago and could recycle itself/evolve to something as much, if not much, groundbreaking again in 2008.
>
> I, for one, would be willing to work on this project if I could get some sponsorship/risk capital/financing and the participation of a couple clinicians/researchers willing to share their ideas as to how this platform could generate optimal value for them. Dr.Bob would without a doubt be someone very interesting to talk this project with as he must have put alot of thoughts into those kind of ideas since he created this website.
>
> Anyone who had the nerve to read my post to this point (my written english is awful. I speak french) and is interested in dicussing this fantasm is welcomed to babblemail me!
>
> /\/\arty
> PS: RemedyFind (RevolutionHealth) ideas are good, but not great and they are implemented in a way which is very far from giving what I have in mind. That said, I think it would already be a good target to aim for this kind of simple implementation in a possible next version of Dr-Bob.org.Marty,
You wrote,[...this fantasm...]
I am unsure if your text has in it all the fantasm that you could offer. If not , could you post some more of the fantasm that you may have?
Lou
Posted by Lou Pilder on August 13, 2008, at 22:08:57
In reply to Lou's request for fantasm-ifucndremitucnduit? » Marty, posted by Lou Pilder on August 13, 2008, at 21:42:42
Posted by Marty on August 14, 2008, at 9:18:01
In reply to Lou's request for fantasm-ifucndremitucnduit? » Marty, posted by Lou Pilder on August 13, 2008, at 21:42:42
> Marty,
> You wrote,[...this fantasm...]
> I am unsure if your text has in it all the fantasm that you could offer. If not , could you post some more of the fantasm that you may have?
> Lou
---
LOL. Not sure if you're being sarcastic as I never saw you post before. I hangout in the Med forum. So I'll answer to a sarcastic interpretation of your post and to a non-sarcastic one:Fantasm is a word which is not exclusively related to sexuality and so my project could be described as such. Especially considering the scope/size/ambition of the project!
Actually, yes, I have other ideas for that project. For some reason I prefer, at this stage, keep some for me as I'm evaluating the possibility of starting this project on my own if nobody here is interested in it. But since you ask and not many people here to date seem to care about those ideas (lol).. here's another little one:
The users would be allowed to post contents in (some) forums. By contents I mean videos, images, Website and polls. When browsing a forum, while standard threads are obviously listed with their 'Subject', the polls are listed with their question and current top result (ie: Yes, No, Nardil, Nausea etc), the videos and images are listed with small thumbnails of the videos/images (A la YouTube) and a description, website URL with a title and description. Also the contents in the forums could be 'voted' on (see Digg.com to understand what I'm talking about). For obvious reason there couldn't be NEGATIVE score for an entity as it could make the contributor of this entity feel bad about being 'burried'.. so the minimum score would be 0. What it gives us is:
1.The possibility to highlight what is considered worthy of more attention by the
community. When you enter a thread based on a question which you wish to know the answer.. and that thread as 5, 10, 15 posts into it.. you would appreciate that the community who already read the post and voted for the ones which they think was the best so that you quickly see/know which post contains the best answer/analysis/comment .. because it's visually highlighted. The highlight could be in the form of a star/icons, different font/font size/font type (bold,italic) and font colour... depeding on the popularity from pale to dark/fluorescent etc.2.When a user search for some keywords in the platform search engine, the search engine algorithm take into account the scores of the contents when deciding the order of relevancy (the order in which the search results are presented to the user).. this enrich greatly the search engine algorithm to take into account what matters to the community, not only 'word count' and 'view count'.
3.The possibility to build up a Top X(10, 50, 100) entity (post/video/image/poll/URL etc) based on a popularity algorithm who would take into account the popularity score and possibly other variable like view count. A Top 10 (of the last 24 hours or the last week) could be shown on the frontpage of the site. This frontpage Top 10 could be customized individually by the users to make it match what subjects matter to them.. (exclude/include some forums, keywords in title or description or post, exclude/proritize some contributors/user and set the timeframe they wish for their frontpage Top 10 (24 hours... 1 week, 1 month etc))
That's it. That's another thing that would be interesting. While this is not something very useful in a website which reveive about 10 new threads a day, keep in mind that this project if well done and supported could brings alot of contributors and not only of the 'patient/sufferer' type but also the 'clinicians/researchers' type. Note that the platform would adapt to the user type and take in account what that user said he was interested in and his purpose on the site when he created his account.. for this specific 'popularity engine' idea, it means that 'by default', without the need for the user to go customize his Top 10 or create custom 'forum views', a neuroscientist currently working on lets say "Modulation of basal and stress-induced amygdaloid substance P release by the potent and selective NK1 receptor antagonist L-822429" wouldn't have to see in his Top 10 a post about "poor /\/\arty having strange nightmares since he withdraw from X or Y med" but wouldn't miss post by one of his (unknown to him)peer in Liechtenstein (a 62 square miles country) relating how 3 in 70 of his lab rats has loosed their vision 6 hours after the administration of the selective NK1 receptor antagonist L-822429 when co-administred with mentos and diet coke. (you get my point.. lol)
I think it makes the site more interesting, interactive and somehow possibly more "productive" as it 'gets the word out' about the things that are worth seeing/reviewing.. also it encourage and reward the quality of the contributions.
Btw, I think that not everything that you can dream you can do or build. But in the case where you can't do it alone, if you believe enought in that dream and can inspire enough some people around that dream.. (depending on the nature of the dream in question) .. you could make it happen. In this case I have the technical abilities to make it happen on the technological side of most of my ideas... but without support in the form of a team/community/contributors/sponsors .. I doubt of the success of the project. Many great project ended up being awesome technology resting on an archived backup tape .. doing nothing for anyone.. only collecting dust and loosing value over time until it becomes worthless and unusable.
Later,
/\/\arty
Posted by Lou Pilder on August 14, 2008, at 9:37:31
In reply to Other Ideas » Lou Pilder, posted by Marty on August 14, 2008, at 9:18:01
Hi Marty,
I appreciate your fantasm and look forward to reading more of the ideas that arrise in your mind to post here. No sarcasm is intended in my request to you , for I believe in that the mind can go to places that we may not know where it is going or where it came from, like the wind.
Lou
Posted by Lou Pilder on August 14, 2008, at 10:29:52
In reply to Other Ideas » Lou Pilder, posted by Marty on August 14, 2008, at 9:18:01
> > Marty,
> > You wrote,[...this fantasm...]
> > I am unsure if your text has in it all the fantasm that you could offer. If not , could you post some more of the fantasm that you may have?
> > Lou
> ---
> LOL. Not sure if you're being sarcastic as I never saw you post before. I hangout in the Med forum. So I'll answer to a sarcastic interpretation of your post and to a non-sarcastic one:
>
> Fantasm is a word which is not exclusively related to sexuality and so my project could be described as such. Especially considering the scope/size/ambition of the project!
>
> Actually, yes, I have other ideas for that project. For some reason I prefer, at this stage, keep some for me as I'm evaluating the possibility of starting this project on my own if nobody here is interested in it. But since you ask and not many people here to date seem to care about those ideas (lol).. here's another little one:
>
> The users would be allowed to post contents in (some) forums. By contents I mean videos, images, Website and polls. When browsing a forum, while standard threads are obviously listed with their 'Subject', the polls are listed with their question and current top result (ie: Yes, No, Nardil, Nausea etc), the videos and images are listed with small thumbnails of the videos/images (A la YouTube) and a description, website URL with a title and description. Also the contents in the forums could be 'voted' on (see Digg.com to understand what I'm talking about). For obvious reason there couldn't be NEGATIVE score for an entity as it could make the contributor of this entity feel bad about being 'burried'.. so the minimum score would be 0. What it gives us is:
>
> 1.The possibility to highlight what is considered worthy of more attention by the
> community. When you enter a thread based on a question which you wish to know the answer.. and that thread as 5, 10, 15 posts into it.. you would appreciate that the community who already read the post and voted for the ones which they think was the best so that you quickly see/know which post contains the best answer/analysis/comment .. because it's visually highlighted. The highlight could be in the form of a star/icons, different font/font size/font type (bold,italic) and font colour... depeding on the popularity from pale to dark/fluorescent etc.
>
> 2.When a user search for some keywords in the platform search engine, the search engine algorithm take into account the scores of the contents when deciding the order of relevancy (the order in which the search results are presented to the user).. this enrich greatly the search engine algorithm to take into account what matters to the community, not only 'word count' and 'view count'.
>
> 3.The possibility to build up a Top X(10, 50, 100) entity (post/video/image/poll/URL etc) based on a popularity algorithm who would take into account the popularity score and possibly other variable like view count. A Top 10 (of the last 24 hours or the last week) could be shown on the frontpage of the site. This frontpage Top 10 could be customized individually by the users to make it match what subjects matter to them.. (exclude/include some forums, keywords in title or description or post, exclude/proritize some contributors/user and set the timeframe they wish for their frontpage Top 10 (24 hours... 1 week, 1 month etc))
>
> That's it. That's another thing that would be interesting. While this is not something very useful in a website which reveive about 10 new threads a day, keep in mind that this project if well done and supported could brings alot of contributors and not only of the 'patient/sufferer' type but also the 'clinicians/researchers' type. Note that the platform would adapt to the user type and take in account what that user said he was interested in and his purpose on the site when he created his account.. for this specific 'popularity engine' idea, it means that 'by default', without the need for the user to go customize his Top 10 or create custom 'forum views', a neuroscientist currently working on lets say "Modulation of basal and stress-induced amygdaloid substance P release by the potent and selective NK1 receptor antagonist L-822429" wouldn't have to see in his Top 10 a post about "poor /\/\arty having strange nightmares since he withdraw from X or Y med" but wouldn't miss post by one of his (unknown to him)peer in Liechtenstein (a 62 square miles country) relating how 3 in 70 of his lab rats has loosed their vision 6 hours after the administration of the selective NK1 receptor antagonist L-822429 when co-administred with mentos and diet coke. (you get my point.. lol)
>
> I think it makes the site more interesting, interactive and somehow possibly more "productive" as it 'gets the word out' about the things that are worth seeing/reviewing.. also it encourage and reward the quality of the contributions.
>
> Btw, I think that not everything that you can dream you can do or build. But in the case where you can't do it alone, if you believe enought in that dream and can inspire enough some people around that dream.. (depending on the nature of the dream in question) .. you could make it happen. In this case I have the technical abilities to make it happen on the technological side of most of my ideas... but without support in the form of a team/community/contributors/sponsors .. I doubt of the success of the project. Many great project ended up being awesome technology resting on an archived backup tape .. doing nothing for anyone.. only collecting dust and loosing value over time until it becomes worthless and unusable.
>
> Later,
> /\/\artyMarty,
You wrote,[...if you believe enough..an can inspire..people arouud that dream..could..happen...support in the form of a team..community/contributors...many..collecting dust...]
What I see in your text here is a vision. You could add me to the contributor base, but my vision is that a community is a {structure} and that a structure could be rehabilitated or dismantled and rebuilt. What could be your vision on that?
Lou
Posted by Marty on August 14, 2008, at 12:40:53
In reply to Lou's reply to Marty-ihnwthdhanu? » Marty, posted by Lou Pilder on August 14, 2008, at 10:29:52
> What I see in your text here is a vision. You could add me to the contributor base, but my vision is that a community is a {structure} and that a structure could be rehabilitated or dismantled and rebuilt. What could be your vision on that?
---
My vision on that agree with yours about a community being rehabilitated and transform. And I think life proved millions of time that a project injected in a community, if embraced and shared by the community members, can fortify the community or even resurrect a community spirit and dynamic. While some are bad example: a couple that decide to have a baby to resurrect their unhappy couple = bad idea. or a nation which fortify themselves behind an evil/destructive project = also very bad (WW2 Germany comes to mind).... but when the project has positive potential and isn't only started to sublime the fact that members of the team/community doesn't get well together and [other criterion] .. well I'm having difficulty finding something more salutary to a community which feels lost than a common new project that enrich or renew the purpose of this community: Energy(activity) level is increased, links/relations between people get stronger as the new purpose inspire again.. members retention level is MUCH improved and theres always more new members the next month than the last .. until plateau .. there's many variables and conditions to meet for that too happen that well .. but that's called a challenge and that's also part of why a project is good for a sleeping/bored community ! .. that would be my vision on how to rehabilitate a community. I'm aware that there is other things that can helps.. but not to the extend of a common project.What do you think ?
/\/\arty
Posted by SLS on August 14, 2008, at 15:51:58
In reply to Lou's request for fantasm-ifucndremitucnduit? » Marty, posted by Lou Pilder on August 13, 2008, at 21:42:42
Please enhance the value of this website by not changing the subject line and disrupting the continuity of threads.
- Scott
Posted by Marty on August 14, 2008, at 15:55:57
In reply to Dr-Bob v2.0: This website could EVOLVE like this.. » Lou Pilder, posted by SLS on August 14, 2008, at 15:51:58
> Please enhance the value of this website by not changing the subject line and disrupting the continuity of threads.
>
>
> - Scott
---
While you're there Scott, how crazy do you find my ideas ? anyone you like ? any of your own ?/\/\arty
Posted by llurpsienoodle on August 14, 2008, at 16:33:33
In reply to Re: Dr-Bob v2.0: This website could EVOLVE like this.. » SLS, posted by Marty on August 14, 2008, at 15:55:57
Hi Marty,
I like a lot of your ideas. A little exuberance never hurt anyone, so don't apologize for having big concepts!Starting with a small change that you propose- I think that having user profiles would be a real bonus to this site. It would increase a sense of community, by helping people find others who have things in common with them.
Unless I'm mistaken, Dr. Bob was considering implementing this change at some point, perhaps this summer, or when he gets a chance to.
-Ll
Posted by Lou Pilder on August 14, 2008, at 18:25:46
In reply to Re: Lou's reply to Marty-ihnwthdhanu? » Lou Pilder, posted by Marty on August 14, 2008, at 12:40:53
>
> > What I see in your text here is a vision. You could add me to the contributor base, but my vision is that a community is a {structure} and that a structure could be rehabilitated or dismantled and rebuilt. What could be your vision on that?
> ---
> My vision on that agree with yours about a community being rehabilitated and transform. And I think life proved millions of time that a project injected in a community, if embraced and shared by the community members, can fortify the community or even resurrect a community spirit and dynamic. While some are bad example: a couple that decide to have a baby to resurrect their unhappy couple = bad idea. or a nation which fortify themselves behind an evil/destructive project = also very bad (WW2 Germany comes to mind).... but when the project has positive potential and isn't only started to sublime the fact that members of the team/community doesn't get well together and [other criterion] .. well I'm having difficulty finding something more salutary to a community which feels lost than a common new project that enrich or renew the purpose of this community: Energy(activity) level is increased, links/relations between people get stronger as the new purpose inspire again.. members retention level is MUCH improved and theres always more new members the next month than the last .. until plateau .. there's many variables and conditions to meet for that too happen that well .. but that's called a challenge and that's also part of why a project is good for a sleeping/bored community ! .. that would be my vision on how to rehabilitate a community. I'm aware that there is other things that can helps.. but not to the extend of a common project.
>
> What do you think ?
>
> /\/\artyMarty, You wrote,[...My vision..agree(s) with yours..a project if embraced and shared by the ..members..,can...I am having difficulty finding..other than a common new project..].
The concept of a common project sometimes IMO can be counterproductive to the goals of rehabilitating oe rebuilding a community. But to rehibilitate generally means to restore to what was the original, such as to rehibilitate a building that was damaged in a flood.
Another aspect of communities that I am interested in is in dismantling a community and rebuilding the community to a new community that differs from the original. This could be like if a city was alowed to degrade and eventually was left to become ruins because of neglect or mismanagement. Here in the city that I am in there are neighborhoods of abandoned houses that are not maintained and crime and fires are there and the buildings are approaching falling down. One way would be to rehabilitate the houses and another would be to dismantle them and rebuild a new community. My question there could be as to what could be the end result of rehabilitating verses dismantling and building a new community so that what was of the original could not be seen. Another way could be a combination of restoration and dismantleing or something else.
But back to the common project. There are criteria used from historical paralles that could show as to if a particular commion project could or could not be benificial to the community as you have written about here.
You asked,[...What do you think?...]
I think that if you can dream it you can do it...
Lou
Posted by Sigismund on August 14, 2008, at 23:27:20
In reply to Dr-Bob v2.0: This website could EVOLVE like this.. » Lou Pilder, posted by SLS on August 14, 2008, at 15:51:58
>I believe in that the mind can go to places that we may not know where it is going or where it came from, like the wind.
Lou, that was wonderful.
Posted by SLS on August 15, 2008, at 5:45:11
In reply to Re: Dr-Bob v2.0: This website could EVOLVE like this.. » SLS, posted by Marty on August 14, 2008, at 15:55:57
>
> > Please enhance the value of this website by not changing the subject line and disrupting the continuity of threads.
> >
> >
> > - Scott
> ---
> While you're there Scott, how crazy do you find my ideas ? anyone you like ? any of your own ?
>
> /\/\arty
>I find your volume of thoughts a bit difficult to keep up with. I like your ideas. I guess the only thing left to do is to figure out the logistics of getting things started. In 2000, I laid out a similar set of ideas. I was not taken seriously, primarily because people in the newsgroup refused to think "outside the box".
Keep thinking!
- Scott
Posted by SLS on August 16, 2008, at 5:18:50
In reply to Lou's reply to Marty-everly » Marty, posted by Lou Pilder on August 14, 2008, at 18:25:46
http://www.dr-bob.org/babble/admin/20080719/msgs/846221.html
- Scott
Posted by Deputy Dinah on August 16, 2008, at 10:57:05
In reply to Dr-Bob v2.0: This website could EVOLVE like this.. » Lou Pilder, posted by SLS on August 14, 2008, at 15:51:58
> Please enhance the value of this website by not changing the subject line and disrupting the continuity of threads.
It's not against board guidelines to change the subject line of a thread. It's a relatively common practice, and Dr. Bob does it himself.
You've asked Lou several times not to do this. Please follow the civility guidelines about not pressuring others.
http://www.dr-bob.org/babble/faq.html#civil
Dinah, acting as deputy to Dr. Bob
Posted by SLS on August 16, 2008, at 12:21:12
In reply to Please follow site guidelines » SLS, posted by Deputy Dinah on August 16, 2008, at 10:57:05
> > Please enhance the value of this website by not changing the subject line and disrupting the continuity of threads.
>
> It's not against board guidelines to change the subject line of a thread. It's a relatively common practice, and Dr. Bob does it himself.
>
> You've asked Lou several times not to do this. Please follow the civility guidelines about not pressuring others.I understand. Thanks for the reminder.
- Scott
Posted by okydoky on August 16, 2008, at 13:37:39
In reply to Dr-Bob v2.0: This website could EVOLVE like this.., posted by Marty on August 13, 2008, at 16:13:56
> PBabble needs to EVOLVE or risk extinction, gradually fading into the web history. While the value proposition of the competitors always increased in the last couple years, the value proposition of Dr.bob.org has not.
>I would love to see a self help mental health site that is not founded by or run by mental health professionals. I think that the essence of mental health self help could be addressed fundamentally different and because of this perhaps be able to provide a very different type of platform and/or function in addition to what psycho-babble already does. One which has the potential to see some potential interesting links in about 2 to 4 years (of knowledgebase enrichment/development by volunteers) what scientists from many different fields could finally see in 15, 20 years or just NEVER see because of the slow pace at which links are made between fields and subfields/areas of research).
You have provided many different examples here. I do not know much about other sites but if they are run by mental health professionals I do believe from my experience they would be similar in process and function with certain of parameters explicitly directed at or for the mental health community. I think it is stifling but I am beginning to understand it serves a very specific purpose having to do with the established functions of real life mental health facilities and the needs of their patients And before people get up in arms I am not purposing that this is the end all of psycho-babble, not in the least. This is a very simplistic explanation of my (attempt at) understanding of this online community and the whys and hows of it. What you are proposing has a much broader function(s), with so much potential as you described and probably, over time can affect outcomes by its functions.
> - A user profile section including a biological background(age, sex, etnicity, disease running in the familly, everything related to health and experiences/reaction with prescribed and street drugs) and an historical background (personality as a child, familly history/problems, traumatism/adverse life situation) and diagnostic history.
>
> - A journal which would include affect/mood/motivation/sexual functionning/cognitive functionning/...every pertinent symptoms. AND a medication journal with the drug/supplement/therapy, prescription (dosage, frequency), benifical effects assesment, SIDE EFFECTS assesment, rating on some aspect of the subjective experience (cost vs effiency etc).. also when a med is added or withdraw a more detailed questionaire could be offered/'requested' after sometime and would be an opportunity to gather even more data on a varity of aspect that you wouldn't want to include in the 'day-to-day' journal.
>
> - Patient bloggin to allow him to express itself freely without a rigid format but every post linked to the other journals. Allow video blogging (Vlog).I see a lot of the above if implemented on psycho-babble having very practical and immediate applications.
I am not familiar with blogging. If this were a different site (still a message board format) could it not allow for a less rigid format and therefore the patient or poster to express himself more freely? Or does the blog format allow for this more readily than the current message board format of psycho-babble? I searched a bit and here are two sites I found on the topic:
http://www.commoncraft.com/archives/000768.html
http://cmnu531.blogspot.com/2006/04/blogs-vs-message-boards.html
There was discussion of implementing some of what is currently done on a blog on a message board format. Do you think having one format would be more advantageous than two? (I apologize for not having any prior knowledge about blogs or even much on other message boards.)
> - A wiki (like wikipedia: an open encyclopedia) on everything related to mental disorder: ..
> - Medication basic info page
> - Knowledgebase comprised of empirical data (Research paper backed),
..,a platform to exploit the collective knowledge/experiences of a massive community of willing contributors where, because of the platform good data gathering/data relationing/Analysis and datamining, the total value generated would become with time bigger than the sum of the individual contributions. The created value for the users and the researchers would be many time more than the actual value generated/offered
I cannot remember (I have cognitive problems) but I think it was some programming on Charlie Rose having to do with A nonproprietary automated clinical research data collection system. There were scientists discussing how when research had been linked, across different fields sometimes even, certain outcomes could be reached with no further research needed. Outcomes were reached in a very short time span just because someone bothered to collect and link a variety of research which was readily available. I think your ideas are great and would like to be involved.I dont know how I could help you except to add some input in the discussion you started. I myself would like to see another site with a lot of the attributes you describe. As far as psycho-babble goes I believe much of what you propose is beyond the scope and purpose of this site.
I would like to see further discussion about either broadening the scope of this site or starting another. There are no doubt others posting on this site who have more knowledge and could provide more input than I.>if I could get some sponsorship/risk capital/financing and the participation of a couple clinicians/researchers willing to share their ideas as to how this platform could generate optimal value for them.
Do you believe you have the requisite skills to create or co-create such a website?
I have a retired research psycho pharmacologist in mind that might be of some assistance as he spent almost the entirety of his career in research. (I have not been in touch with him in a couple of years though)
As far as capital/financial backing have you researched anything yet?
If you could generate enough interest/participation by all that you mentioned and with it establish some type of proposal perhaps we could go to several established foundations with proposal in hand to ask for financial backing or seed money?
Background:
(I was involved several years ago in establishing a rehabilitation facility for people suffering with mental health problems in society where we received several million dollars for as I remember a three year start up. The money was provided to a fiduciary with legal arrangement as to managerial terms of the fiduciary.)Good Luck,
oky
This is the end of the thread.
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