Shown: posts 1 to 5 of 5. This is the beginning of the thread.
Posted by Dr. Bob on November 26, 2003, at 21:20:59
In reply to Re: who someone is, posted by Dr. Bob on November 26, 2003, at 9:32:22
I was actually speaking more generally. FAQ? (nm) » Dr. Bob
Posted by Dinah on November 26, 2003, at 10:14:14
In reply to Re: who someone is, posted by Dr. Bob on November 26, 2003, at 9:32:22
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Murphia is a Rockstar! :)
Posted by leopard on November 26, 2003, at 11:59:44
In reply to Re: headachequeen, posted by Murphia on November 25, 2003, at 13:19:34
Murphia (And all of the posters she has helped):
I am new to this site. In fact, the first email I posted was a question posed to Murphia. She responded immediately with a wealth of information. She seems to know her stuff, has no agenda, and is an absolute pleasure to read.
I haven't logged in for a few days, but to read the latest threads from regarding the reporter is very upsetting.
We are here to learn and share in a safe enviornemnt. I find this "investigative journalism" very disconcerting.
Murph, thank you again for the generosity and kindness you have shown to me and other posters.
Best,
Shannon
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Re: please be civil
Posted by leopard on November 26, 2003, at 12:39:51
In reply to Re: please be civil » Murphia » headachequeen, posted by Dr. Bob on November 25, 2003, at 23:10:15
After reading through the entire thread, I must admit, I am very disappointed by Dr. Bob's position on the "reporter" and Murphia's supposed "slight" against her. I didn't notice a slight. The connotation of deluded may be construed as a slight, but the denotation was right on the mark. Sorry, but I think Dr. Bob "jumped the gun" with his hand slap to Murphia. Further, Murphia's keen insight into the possible ulterior motives surrounding this article (more sales) seems highly plausible.
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Re: Let me publish your experiences and feelings
Posted by headachequeen on November 26, 2003, at 13:37:22
In reply to Re: Let me publish your experiences and feelings, posted by Dr. Bob on November 25, 2003, at 23:12:27
Maybe I should point out that one of my other incarnations is a journalist... yes, one of those nasty persons who runs around sticking microphones and tape recorders in peoples' faces... asking questions and writing down answers... I am for the most part.. when I am not doing the thing I love most, working with my dogs, but it doesn't pay a whole lot, a broadcast journalist... freelancing in print to pay for the dog food... I never leave the house without a camera in my bag... and I know how easy it is to step across the line from what was written in that first post to lord knows where... when there is a story, then the journalist is never one to be leashed... and, no, here I am not a journalist; it never occurred to me to use this forum as a place for a story; here I am learning about how to make my life work better for me, the person who loves working with her dogs and writing under her by-line and singing her heart out when that part of her life kicks in...
but I do know how easy it is for the writer to exploit the subject and I was affronted by the subtle entrance of the magazine writer, not for myself but for others...
if I crossed a line, I am sorry... but then again remembering the chaos that the student with his blind testing created on the other list with his publishing of experiences and feelings... he chose to attack one person's grammar and obvious lack of education then sat back and watched the fur fly as others either defended that person or joined the attack wondering why they had to put up with so illiterate a person in their forum...
this is a place where I have learned so much and hope to learn so much more as my neurologist has kicked me loose today, saying that as long as the status remains quo I do not need him... I need you people, for me this is the blanket to which Linus clings... oh how wonderful a comparison...
and I would not want to lose that...
I suppose it is like that supermarket bulletinboard, but can't quite see myself posting a notice telling the people in my supermarket that I am worried about hair thinning or about any of the other side effects of topomax <G>
kat
oh yeah and to add to the side effect carousel thanks to an asthma attack I now can add the prednisone SEs to the list to sort out... does it ever end... among them is a weight gain one... just what I don't need....LOL--
Re: Murphia is a Rockstar! :) » leopard
Posted by Murphia on November 26, 2003, at 14:10:39
In reply to Murphia is a Rockstar! :), posted by leopard on November 26, 2003, at 11:59:44
Gosh Thanks all **blush**.. you all are really great and I'm sorry if I had a hand in stirring up controversy. Media and reporters are great, I read everything all the time myself. But touting epilepsy medication as a thin pill, which could hurt unsuspecting people, perks "my little ears up"... just a little <big grin>. So that being aside, I would like to invite you to a topamax message group that I've been on and I think you will find it fun and informative. We even have search engines that you can go back in old posts and search a subject of interest to you. You do have to register, but there is no heavy hand rules. We don't judge, we want information, and we don't allow solicitation. We all seem to look out for each other. You are all great right here, and I'll be dropping in from time to time if I can...but you are all welcome over at
http://forum.ditonline.com/viewtopic.php?TopicID=7786
I sure hope that link works, I'm not on my regular computer. But if not, I'll resend it. Thanks all and have a GREAT and Happy Thanksgiving!! Hugs. Murph
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Whoops, better link here! » Murphia
Posted by Murphia on November 26, 2003, at 14:18:41
In reply to Re: Murphia is a Rockstar! :) » leopard, posted by Murphia on November 26, 2003, at 14:10:39
I knew I wouldn't get through this without having to redo it... ha ha ha
http://forum.ditonline.com/viewboard.php?BoardID=73
See ya!
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headachequeen » TexasChic
Posted by headachequeen on November 26, 2003, at 17:57:58
In reply to Re: please be civil, posted by TexasChic on November 26, 2003, at 15:28:40
You know, I am sitting here reading the above and thinking that if anyone should know this it is I... and yet here is a place that I do feel as if there is that safe and secure place to discuss the side effects and the concerns about this medication, a place where people who have concerns and even fears about the use of it can share their uncertainties among friends in safety... that cocoon you mention... we know that Dr. Bob is monitoring the site and may use comments or experiences mentioned; he states that up front, but not in the interest of selling magazines and raising demographics... that is a totally different thing...
and while there has been little of late that has given me reason to feel that I must try to defend it... having put Rosinante in her stall and hung up my dented lance over the fireplace for the last time, this is a place and these are people, totally unknown beyond names on a messageboard, I would defend...
and today of all days that is really something coming from me..
kat
Brothers and Sisters, I bid you beware
Of giving your heart to a dog to tear.
Posted by Dr. Bob on November 27, 2003, at 0:50:03
In reply to Redirected: the reporter, posted by Dr. Bob on November 26, 2003, at 21:20:59
> I was actually speaking more generally. FAQ?
>
> DinahI don't know, it's such a general issue...
----
> here is a ... safe and secure place to discuss the side effects and the concerns about this medication, a place where people who have concerns and even fears about the use of it can share their uncertainties among friends in safety
I'm glad people are looking out for each other, that's what support is all about. But does a reporter necessarily make it less safe or secure? If the side effects and concerns became known to strangers as well as friends, wouldn't that be a good thing?
> we know that Dr. Bob is monitoring the site and may use comments or experiences mentioned; he states that up front, but not in the interest of selling magazines and raising demographics... that is a totally different thing...
So people are feeling exploited? Made use of unjustly for someone else's advantage? Yes, maybe the magazine would benefit, but wouldn't its readers benefit, too? Would it be better if they remained unaware of the experiences of people here?
> Brothers and Sisters, I bid you beware
> Of giving your heart to a dog to tear.
>
> headachequeenBe wary, yes, but not all dogs want to tear your heart out...
Bob
Posted by Dinah on November 27, 2003, at 8:29:27
In reply to Re: the reporter, posted by Dr. Bob on November 27, 2003, at 0:50:03
> > I was actually speaking more generally. FAQ?
> >
> > Dinah
>
> I don't know, it's such a general issue...
>
> ----
>
"From time to time, people claiming to be conducting research solicit e-mail correspondence. Be aware that there is no way on the internet to prove that someone is who they claim to be. Be cautious in deciding to send personal information that you would not post on this public forum."Or a specific warning on the rare occasions it comes up would be even better, since I doubt many people bother reading the FAQ.
Posted by Dr. Bob on November 28, 2003, at 4:59:06
In reply to Redirected: the reporter, posted by Dr. Bob on November 26, 2003, at 21:20:59
Re: POST NO BILLS
Posted by Caleb96 on November 27, 2003, at 15:35:21
In reply to Re: who someone is, posted by Dr. Bob on November 26, 2003, at 9:32:22
Uhhhh, Wait a minute, what's this?
>>I am a reporter for a national women's magazine writing an article on drugs that people use for weight loss, and on people's real experiences with those drugs.<<
This is an advertisement. Please, no advertising on this web site!
Please are discussing very important personal experiences on this site. What's next? Popup ads?
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headachequeen » Caleb96
Posted by headachequeen on November 27, 2003, at 15:51:51
In reply to Re: POST NO BILLS, posted by Caleb96 on November 27, 2003, at 15:35:21
> Uhhhh, Wait a minute, what's this?
>
>
>
> This is an advertisement. Please, no advertising on this web site!
>
>>I am a reporter for a national women's magazine writing an article on drugs that people use for weight loss, and on people's real experiences with those drugs.<<
> Please are discussing very important personal experiences on this site. What's next? Popup ads?Oh dear, not to drag this out, but I was running through some back posts looking for some information I wanted and I came across her introductory post..
>>I am a reporter for a national women's magazine writing an article on drugs that people use for weight loss, and on people's real experiences with those drugs.<<and lights and bells and whistles went off... that should have gone off before... I guess it was the topomax and one of its random side effects affecting my memory cells...
when I am looking for information for an article I want to write or have been assigned to write, I do not introduce myself as a reporter for 'a' magazine, or 'a' radio news magazine or or or...
If I am not proud enough to be writing for the magazine or station or newspaper hiring me, then I don't work there, otherwise I state the name of the employer proudly; it means that I have arrived and usually that I have achieved a by-line with them...
where was the pride in having arrived? something doesn't quite jibe here....--
Re: headachequeen
Posted by Caleb96 on November 27, 2003, at 19:12:52
In reply to headachequeen » Caleb96, posted by headachequeen on November 27, 2003, at 15:51:51
OK headachequeen, now I'm totally confused. I guess I better just stay off the thread.
Caleb96 signing off.
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Re: Redirect: posting policies and complaints
Posted by leopard on November 27, 2003, at 19:44:20
In reply to Redirect: posting policies and complaints, posted by Dr. Bob on November 26, 2003, at 21:22:07
Wow. I am a little more than ticked off. I really didn't think that my post, or the other's, regarding the 'journalist' should be relegated to the redirect link Dr. Bob suggested.
> > PS: Follow-ups regarding posting policies, and complaints about posts, should be redirected to Psycho-Babble Administration
I think a complaint about an intrusion is a far cry from a complaint about a belligerent person, for example. It is also important that other posters know that this person is not a fellow member and does in fact have an agenda.
Yes, posting here is a public forum, but most people here are of common mind/experience. I doubt seriously that any of us would like our privacy violated by having our thoughts shared (and possibly misconstrued) in a national magazine with people who most likely DO NOT have similar experiences.
Most troubling is that Dr. Bob doesn't seem to have a problem with the magazine reporter asking questions or the article she is trying to drum up. Does publicity for this site mean more than the member's feelings?
I do not want my post redirected to an administrative branch of this web site. This is an important discussion, not a one time complaint.
Thanks in advance,
Shannon
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Re: headachequeen
Posted by headachequeen on November 27, 2003, at 22:25:21
In reply to Re: headachequeen, posted by Caleb96 on November 27, 2003, at 19:12:52
> OK headachequeen, now I'm totally confused. I guess I better just stay off the thread.
Caleb I was simply agreeing with you and in a big way... sorry...
Posted by Dr. Bob on November 28, 2003, at 7:20:16
In reply to Redirected: the reporter, posted by Dr. Bob on November 28, 2003, at 4:59:06
> It is also important that other posters know that this person is not a fellow member and does in fact have an agenda.
Didn't she already make it clear herself that she had an agenda?
> I doubt seriously that any of us would like our privacy violated by having our thoughts shared (and possibly misconstrued) in a national magazine with people who most likely DO NOT have similar experiences.
If someone doesn't want to share their thoughts with her, then they don't have to share their thoughts with her.
> Most troubling is that Dr. Bob doesn't seem to have a problem with the magazine reporter asking questions or the article she is trying to drum up. Does publicity for this site mean more than the member's feelings?
>
> leopardWhen people share their experiences and feelings, it can be really helpful to others. I'm not against publicity for this site, but there wasn't any deal or anything.
> I do not want my post redirected to an administrative branch of this web site. This is an important discussion, not a one time complaint.
Sorry, but this area isn't just for unimportant discussions and onetime complaints.
Bob
This is the end of the thread.
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