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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 19 of 19. This is the beginning of the thread.
Posted by Phillipa on May 11, 2014, at 9:43:05
Sometimes I feel I'm being rude for not responding to threads on here. But since I joined the meds are so complicated and go way above my head. I just never hear people I see in real life and talk to are on any combination of meds. If on them it's a benzo, SSRI, maybe wellbutrin, and possibly gabapentin. And that's it. So anyone else feel the same? Thanks Phillipa
Posted by LouisianaSportsman on May 11, 2014, at 20:05:22
In reply to I Find It Hard To Relate To The Posts Here Now, posted by Phillipa on May 11, 2014, at 9:43:05
> Sometimes I feel I'm being rude for not responding to threads on here. But since I joined the meds are so complicated and go way above my head. I just never hear people I see in real life and talk to are on any combination of meds. If on them it's a benzo, SSRI, maybe wellbutrin, and possibly gabapentin. And that's it. So anyone else feel the same? Thanks Phillipa
Don't feel bad if you're not like the way modern psychiatric treatment is progressing as a veteran. You're no beginner; I'm sure it can't be that much more complicated any more now so? People can still relate on a personal level. We just know more of the science, and that really helps current treatment treatment options. It seems that the pipeline is, if anything, sluggish on the forefront of novelty in my eyes. I hope there continues to be continued discoveries and developments made in the field, but I assume that you're finding it maybe overwhelming as an older person? I'm not sure if I'm relating or what point you're trying to make, or if I don't understand or maybe I do. I'm confused.
Posted by LouisianaSportsman on May 11, 2014, at 20:23:48
In reply to I Find It Hard To Relate To The Posts Here Now, posted by Phillipa on May 11, 2014, at 9:43:05
BTW, Phillipa, I have settled with *only* six lol right in your eyes. I recently quit (Aplenzin and Gabapentin XR (Gralise) before) Lamictal and am going back with the Nuvigil
Brintellix (vortioxetine) 20mg.
Desoxyn (methamphetamine) 30mg.
Klonopin (clonazepam) 0.5mg. BID
Latuda (lurasidone) 80mg.
Nuvigil (armodafinil) 250mg.
Trokendi XR (Topamax [topiramate] XR) 200mg. BIDfor hopefully maintenance for awhile now.
Sarcasm, but I just thought that somebody might think, "Wow, I bet that guy must have a crack doc because he prescribes him a lot of Desoxyn along with 400mg. of daily max-dosage Topamax and Nuvigil. Not to mention that fancy new antidepressant that just came out without any proven efficiency or study with new-dangled Latuda, the newest trendy craze for bipolar depression, and what else can you expect on top of all of this, a benzo!" haha!
I could be on seven or eight (add back in Neurontin and Lamictal, extremely easily. Simply nine if you counted an augmentation agent. (ten in a scenario where I did as such but never quit Aplenzin (bupropion hbr; eleven perhaps with a clonidine or memantine or something like that as a nootropic)
I think I'm doing good with being "only on" six haha.
Posted by LouisianaSportsman on May 11, 2014, at 20:26:34
In reply to Re: I Find It Hard To Relate To The Posts Here Now, posted by LouisianaSportsman on May 11, 2014, at 20:23:48
*she prescribes
and it'd be funnier if I had said meth instead of Desoxyn and included Topamax with the phrase no effeincy somehow too haha
Posted by Phillipa on May 11, 2014, at 22:17:00
In reply to Re: I Find It Hard To Relate To The Posts Here Now, posted by LouisianaSportsman on May 11, 2014, at 20:05:22
Having been a Nationally Certified Psych RN it is just that back a few years ago no one that I ever cared for was on so many meds. New names are easy to google and see what that are for and supposed to do. But it's reminding me of what happens to the elderly when too many different meds are prescribed. No one knows what's causing what. Now it is or seems the same with psych meds.
Casually when out and about it's still the ad, usually here a benzo not antipsychotic, and a mood stabalizer. And that is it. Seems in real life that people are now only staying on a med or combo for about a year and then weaning off. And used to be that SSRI's and other ad's didn't have withdrawal symptoms that were talked about. Times are changing!!!! Also seems to be a lot of competition between natural supplements and prescribed medications. Phillipa
Posted by LouisianaSportsman on May 11, 2014, at 22:44:11
In reply to Re: I Find It Hard To Relate To The Posts Here Now » LouisianaSportsman, posted by Phillipa on May 11, 2014, at 22:17:00
> Having been a Nationally Certified Psych RN it is just that back a few years ago no one that I ever cared for was on so many meds. New names are easy to google and see what that are for and supposed to do. But it's reminding me of what happens to the elderly when too many different meds are prescribed. No one knows what's causing what. Now it is or seems the same with psych meds.
>
> Casually when out and about it's still the ad, usually here a benzo not antipsychotic, and a mood stabalizer. And that is it. Seems in real life that people are now only staying on a med or combo for about a year and then weaning off. And used to be that SSRI's and other ad's didn't have withdrawal symptoms that were talked about. Times are changing!!!! Also seems to be a lot of competition between natural supplements and prescribed medications. PhillipaI didn't know you had been a Psych RN, Phillipa! That's awesome! Yeah, I know you know what stuff does and everything and you probably see first hand what these medications do to older people that I've only read about. That's why I don't want to be on so many. You're right, there's so much we don't know about these drugs in the long run. And yes, a lot of drugs carry some heavy baggage, but not anymore so than usual?
I think that things are getting more awareness now that previously didn't have awareness. Discontinuation syndrome has been around forever.
Isn't it a good thing that people are able to try so many different medications to find what works best for them? The more access to medications, the more options, more is better.
Posted by SLS on May 12, 2014, at 8:09:06
In reply to I Find It Hard To Relate To The Posts Here Now, posted by Phillipa on May 11, 2014, at 9:43:05
> Sometimes I feel I'm being rude for not responding to threads on here. But since I joined the meds are so complicated and go way above my head. I just never hear people I see in real life and talk to are on any combination of meds. If on them it's a benzo, SSRI, maybe wellbutrin, and possibly gabapentin. And that's it. So anyone else feel the same? Thanks Phillipa
I am far from being an expert, and am often intimidated by the knowledge and insights accumulated by others. I look at Psycho-Babble as a dynamic knowledge base from which to learn. Regardless of what you think of your lack of expertise on matters of psychopharmacology, your contributions are always welcome and valuable. Remember, the consensus of opinion in medical science changes every day as ongoing research yields new information. It is difficult for even experts to keep up with.
- Scott
Posted by poser938 on May 12, 2014, at 12:44:55
In reply to Re: I Find It Hard To Relate To The Posts Here Now » Phillipa, posted by SLS on May 12, 2014, at 8:09:06
That is so true SLS. experts have a hard time keeping up. which is why you can go to 3 different doctors and get completely different advice on the same subject.
Posted by SLS on May 12, 2014, at 14:34:46
In reply to Re: I Find It Hard To Relate To The Posts Here Now, posted by poser938 on May 12, 2014, at 12:44:55
> That is so true SLS. experts have a hard time keeping up. which is why you can go to 3 different doctors and get completely different advice on the same subject.
It is frustrating. It seems like malpractice if you are the one being given conflicting opinions and inappropriate treatments.
Just to let you know, I'm glad that you remain a poster here and offer your own conflicting opinions. They are valuable, even if I don't agree with them all of the time. I genuinely profit from trying to place myself in your position and understand your opinions given your experiences. You have influenced my thinking. This is a good thing.
Right now, I am not terribly happy with the doctors who have managed my treatment with minocycline. I was not told about the risk of developing irreversible blue hyperpigmentation of the skin that emerges latently after several years of treatment. My dermatologist never told me that taking large amounts of vitamin C can prevent it from occurring. It was not a matter of her neglecting to tell me. It was a matter of her not knowing. Who is responsible when information generated by medical research is not disseminated to the clinical practicioner?
Be well.
- Scott
Posted by Beckett on May 12, 2014, at 14:50:47
In reply to I Find It Hard To Relate To The Posts Here Now, posted by Phillipa on May 11, 2014, at 9:43:05
Hi Phillipa,
Yes, well, psychiatry has become so complex since you were working, and I am not sure for the better. I am usually refusing meds from the pdoc mostly because I am not sure they'd help. But also because it would be so easy to have way too many meds and not be able to see what is doing what like you say.
That said, seroquel is some kind of top selling medication, so there must be tons of folks out there taking it. And the pharmaceutical companies have much to do with the proliferation of meds, many of them redundant.
If treatment was working, I don't think someone would then be googling new treatments. This forum is mainly for people dealing with a refractory illness.
Posted by poser938 on May 12, 2014, at 18:20:16
In reply to Re: I Find It Hard To Relate To The Posts Here Now » poser938, posted by SLS on May 12, 2014, at 14:34:46
Scott, are you sure you have the permanent form of blue pigmentation?
http://www.ncbi.nlm.nih.gov/m/pubmed/19595269/
Not sure if this link will work in your computer since I'm on a mobile device, (it might if you take the "/m" out of it) but according to this, there are types of it. type 1 and 2 aren't permanent, but take a while to go away. but type 3 is permanent.
Posted by Phillipa on May 12, 2014, at 18:55:03
In reply to Re: I Find It Hard To Relate To The Posts Here Now » poser938, posted by SLS on May 12, 2014, at 14:34:46
I also read when researching it that this was reversible. Also could cause wasn't it a lupus type syndrome? Phillipa
Posted by LouisianaSportsman on May 12, 2014, at 21:05:26
In reply to Re: I Find It Hard To Relate To The Posts Here Now » Phillipa, posted by SLS on May 12, 2014, at 8:09:06
> I am far from being an expert, and am often intimidated by the knowledge and insights accumulated by others. I look at Psycho-Babble as a dynamic knowledge base from which to learn. Regardless of what you think of your lack of expertise on matters of psychopharmacology, your contributions are always welcome and valuable. Remember, the consensus of opinion in medical science changes every day as ongoing research yields new information. It is difficult for even experts to keep up with.
>
>
> - ScottMy sentiments, exactly.
I appreciate every poster that comes our way to the forum. Lately, I've been posting at an alternative forum that I don't like as much culturally but it gets more traffic. Phillipa, I've grown to expect your posts in a wide arrange of topics on this forum and you're a veteran member. Don't feel unsettled in any way.
This place seems receptive to knowledgeable, well-regarded posts regarding psychopharmacology moreso than a lot of places. I am definitely an amateur but this place is remarkable because I feel cozy at home among some brilliant people. I try my best to make my postings here quality, as does seemingly everyone.
Phillipa, you have a warm heart that radiates past the computer screen and you definitely have a purpose within our small, treasured community. Continue to play your part.
Posted by SLS on May 12, 2014, at 21:46:15
In reply to Re: I Find It Hard To Relate To The Posts Here, posted by poser938 on May 12, 2014, at 18:20:16
Thanks, Poser.
- Scott> Scott, are you sure you have the permanent form of blue pigmentation?
>
> http://www.ncbi.nlm.nih.gov/m/pubmed/19595269/
> Not sure if this link will work in your computer since I'm on a mobile device, (it might if you take the "/m" out of it) but according to this, there are types of it. type 1 and 2 aren't permanent, but take a while to go away. but type 3 is permanent.
Posted by Phillipa on May 12, 2014, at 22:40:23
In reply to Re: I Find It Hard To Relate To The Posts Here Now, posted by LouisianaSportsman on May 12, 2014, at 21:05:26
I thank-you so much for this compliment. I try my dardest to keep up with medications, and alternative treatments. Not only in Psych but also medical matters. It's a fast paced change. This is the only medication site I visit. I do google a lot. A whole lot lately. Also visit facebook. For different perspectives. So many friends from High School have terminal Cancer and Been researching this a lot also. And You seem to have a wide base of knowlege. Thanks again. Phillipa
Posted by Zyprexa on May 20, 2014, at 20:57:31
In reply to I Find It Hard To Relate To The Posts Here Now, posted by Phillipa on May 11, 2014, at 9:43:05
I know loads of people outside this site that take psych meds. Seroquel, etc..
Posted by Beckett on May 21, 2014, at 2:16:50
In reply to Re: I Find It Hard To Relate To The Posts Here Now, posted by Zyprexa on May 20, 2014, at 20:57:31
I really don't know anyone on psych meds. And not anyone dealing with the issues I am. I wish I did. It's a lonely feeling.
Posted by Zyprexa on May 22, 2014, at 5:25:58
In reply to Re: I Find It Hard To Relate To The Posts Here Now » Zyprexa, posted by Beckett on May 21, 2014, at 2:16:50
I'm very open about my meds and condition, with everyone. You would be suprised how many people come out and say they are taking meds. Or were and I met people in the mental hospital that I knew, even though I don't remember talking to because of the ECTs I was getting.
Posted by tom2228 on June 6, 2014, at 9:15:11
In reply to Re: I Find It Hard To Relate To The Posts Here Now » Zyprexa, posted by Beckett on May 21, 2014, at 2:16:50
> I really don't know anyone on psych meds. And not anyone dealing with the issues I am. I wish I did. It's a lonely feeling.
Have you heard of DBSA -- Depression-Bipolar Support Alliance? They are a national and international support group that meets in multiple states. I have met many people there who are taking medication and open to discussing their conditions and the trials and tribulations they experience in managing their lives. I have found them to be supportive, caring, friendly, as well as informative and comforting.
This is the end of the thread.
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