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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 21 of 21. This is the beginning of the thread.
Posted by lazylizard on November 12, 2013, at 12:35:38
I got TD from Zoloft and its not going away. Its been 3 months since being off of Zoloft. Can anyone, who has Tardive Dyskensia, tell me if it eventually got better? How do you deal with it? What did you take for it? How do you continue to live a normal happy life with this disfiguring problem?? I need some positive success stories please.
Posted by Lou Pilder on November 12, 2013, at 16:57:47
In reply to Tradive dyskensia-please help, posted by lazylizard on November 12, 2013, at 12:35:38
> I got TD from Zoloft and its not going away. Its been 3 months since being off of Zoloft. Can anyone, who has Tardive Dyskensia, tell me if it eventually got better? How do you deal with it? What did you take for it? How do you continue to live a normal happy life with this disfiguring problem?? I need some positive success stories please.
ll,
You wrote,[...Can anyone that has Tardive Dyskinesia tell me if it eventually got better?...].
I am unsure as to what you are asking for here. If you could post answers to the following, then I could respond to you.
True or False?
A. Only people that have TD now can respond to me
B. Only people that have TD and it is not as bad as it was initially, can respond to me
C. something else
Lou
Posted by Phillipa on November 12, 2013, at 17:03:38
In reply to Tradive dyskensia-please help, posted by lazylizard on November 12, 2013, at 12:35:38
I do hope someone that with good advice can answer your question. I don't know the answer but I bet there is one. Phillipa
Posted by lazylizard on November 12, 2013, at 17:05:50
In reply to Lou's reply-doughnoe » lazylizard, posted by Lou Pilder on November 12, 2013, at 16:57:47
Anyone can respond to me. I am sorry I probably didn't make much sense since I am so upset with my TD problem and panic attacks. Any response would be great!!
Posted by Lou Pilder on November 12, 2013, at 17:34:07
In reply to Re: Lou's reply-doughnoe » Lou Pilder, posted by lazylizard on November 12, 2013, at 17:05:50
> Anyone can respond to me. I am sorry I probably didn't make much sense since I am so upset with my TD problem and panic attacks. Any response would be great!!
lalz,
The condition called Tardive Dyskinesia is a result from the action of the chemicals in psychotropic drugs. The condition is said to be not known by many as to what causes it. I do know what causes it.
I am prevented from posting here how one could be freed from this condition due to the prohibitions posted to me here by Mr. Hsiung. It would come from a Jewish perspective that is prohibited by Mr. Hsiung for me to post here.
Now one thing that I can tell you is the chemical constituents of the drugs that you take have a historical development used in the commission of mass-murder. And even recently, these chemicals were used to kill thousands of people at a time. If you are here to have others tell you to find the "right" drug for you, don't forget that the drugs could kill you before you find it, if it could be found. And all the while that you are taking these mind-altering drugs, the chemicals could even short a switch in your brain so that you do not know right from wrong, and go on a shooting spree to kill others and then yourself. And if you try to stop the drugs there could be a horrific withdrawal syndrome where people kill themselves because they can not live in it, and think that they could never come out of it and kill themselves.
But be it as it may be, I know the way to being delivered from this captivity that Tardive Dyskinesia can shackle a person in. If you go to the admin board here, you will see the situation that I find myself here in. That situation prohibits me from telling you how you could have a new life, free from depression and addiction. I am so sorry my friend.
Lou
Posted by Lou Pilder on November 12, 2013, at 17:39:05
In reply to Lou's reply- » lazylizard, posted by Lou Pilder on November 12, 2013, at 17:34:07
> > Anyone can respond to me. I am sorry I probably didn't make much sense since I am so upset with my TD problem and panic attacks. Any response would be great!!
>
> lalz,
> The condition called Tardive Dyskinesia is a result from the action of the chemicals in psychotropic drugs. The condition is said to be not known by many as to what causes it. I do know what causes it.
> I am prevented from posting here how one could be freed from this condition due to the prohibitions posted to me here by Mr. Hsiung. It would come from a Jewish perspective that is prohibited by Mr. Hsiung for me to post here.
> Now one thing that I can tell you is the chemical constituents of the drugs that you take have a historical development used in the commission of mass-murder. And even recently, these chemicals were used to kill thousands of people at a time. If you are here to have others tell you to find the "right" drug for you, don't forget that the drugs could kill you before you find it, if it could be found. And all the while that you are taking these mind-altering drugs, the chemicals could even short a switch in your brain so that you do not know right from wrong, and go on a shooting spree to kill others and then yourself. And if you try to stop the drugs there could be a horrific withdrawal syndrome where people kill themselves because they can not live in it, and think that they could never come out of it and kill themselves.
> But be it as it may be, I know the way to being delivered from this captivity that Tardive Dyskinesia can shackle a person in. If you go to the admin board here, you will see the situation that I find myself here in. That situation prohibits me from telling you how you could have a new life, free from depression and addiction. I am so sorry my friend.
> Loulazliz,
now here is a video that I think could help you here.
Lou
http://www.encognitive.com/node/886
Posted by Christ_empowered on November 12, 2013, at 18:39:23
In reply to Re: Lou's reply-doughnoe » Lou Pilder, posted by lazylizard on November 12, 2013, at 17:05:50
How severe is it? If you have decent insurance, you may want to visit a neurologist. They'll have someone do an AIMS (Abnormal Involuntary Movement Scale) test and rate the TD.
Benzos can help both the TD and the anxiety. TD sometimes remits after a couple years. Sometimes, you just get a few months of what's called "withdrawal emergent dyskinesia," which pops up after the drug that caused it is stopped.
Supplements might be your best (and cheapest) bet. Natural form E, melatonin at night, taurine, b-6, additional b-100/b-50 complex, high doses of time-release C (to work with the E), niacinamide, manganese.
I'm into Orthomolecular, and they have a lot on treatment and prevention of TD through supplementation, with meds if necessary. If you couple the supplements with, say, a benzo and/or low-dose Seroquel or something, you might get a very good outcome.
Good luck to you!
Posted by SLS on November 12, 2013, at 19:57:05
In reply to Tradive dyskensia-please help, posted by lazylizard on November 12, 2013, at 12:35:38
> I got TD from Zoloft and its not going away. Its been 3 months since being off of Zoloft. Can anyone, who has Tardive Dyskensia, tell me if it eventually got better? How do you deal with it? What did you take for it? How do you continue to live a normal happy life with this disfiguring problem?? I need some positive success stories please.
Sorry that I can't offer you a personal success story. The following questions might provide a clue as to what your are experiencing and how to treat it.
Can you describe your symptoms of involuntary movements?
Who diagnosed you as having Tardive Dyskinesia?
How long were you on Zoloft before your symptoms appeared?
Have you ever taken an antipsychotic?
- Scott
Posted by lazylizard on November 12, 2013, at 20:57:54
In reply to Re: Tradive dyskensia-please help » lazylizard, posted by SLS on November 12, 2013, at 19:57:05
I typed out a really long story but wasnt sure it was appropriate to post such a long story. Was on and off zoloft for 13 years (went off twice). I was off for a year and then took it again and had really bad reaction after one week on 25mg. I have never been on an antipsychotic.. Eyes brows move up and down, lips twitch, finger and toes twitch, and a lot of intense nerve pain. Been off it for 3 months. I went to many doctors and neurologists. One a movement specialist. She said she can see some twitching and weakness in my face but said shes not sure its TD yet what is it then? She's not sure. It sure sound and looks like TD to me. Whats weird is the movements are accompanied by intense nerve sensations/pain which supposedly isn't part of TD. My panic attacks are unbearable and I have to take something but I just don't know what to take. I am afraid to make this movement problem worse since its bad enough as it is but I cant live the way I am now. I was thinking about trying either Nefazodone, Celexa or Luvox but just don't know which one to take. Someone here said Nefazodone can cause way more anxiety. My doctors are useless really. So if any one has any suggestions for me I would love to here it. I feel like I am not going to make it REALLY.
Posted by lazylizard on November 12, 2013, at 20:59:46
In reply to Re: Lou's reply-doughnoe, posted by Christ_empowered on November 12, 2013, at 18:39:23
Thank you Chris for the info
Posted by lazylizard on November 12, 2013, at 21:09:58
In reply to Lou's reply- » lazylizard, posted by Lou Pilder on November 12, 2013, at 17:34:07
Lou I know you want to help and I appreciate you reaching out. I really have tried all kinds of therapies, supplements, and spiritual practices, but I have to take medicines for my panic attacks. They are chemically induced. If I don't I would surely leave the planet. I know drugs can be bad because I am experiencing this first hand right now, but for 13 years Zoloft saved my life. I just wished I had known that once you have been on an antidepressant for so long, you really shouldnt go off them because you could have TD appear. Drugs help people and hurt people that a fact but they arent all evil that's my opinion.
Posted by Zyprexa on November 13, 2013, at 2:54:48
In reply to Tradive dyskensia-please help, posted by lazylizard on November 12, 2013, at 12:35:38
I've had TD many times from many drugs. It can take years for it to go away. But usually does. You can also take cogentin for it.
Posted by Lou Pilder on November 13, 2013, at 9:05:15
In reply to Re: Lou's reply-, posted by lazylizard on November 12, 2013, at 21:09:58
> Lou I know you want to help and I appreciate you reaching out. I really have tried all kinds of therapies, supplements, and spiritual practices, but I have to take medicines for my panic attacks. They are chemically induced. If I don't I would surely leave the planet. I know drugs can be bad because I am experiencing this first hand right now, but for 13 years Zoloft saved my life. I just wished I had known that once you have been on an antidepressant for so long, you really shouldnt go off them because you could have TD appear. Drugs help people and hurt people that a fact but they arent all evil that's my opinion.
LazLiz,
you wrote[...I have to take (mind-altering drugs)...]
The drug that you took for years has a chemical make-up that derives itself from toxic chemicals, some that can cause cancer and blood diseases and other diseases that could kill you. The chemist uses benzene as part f the chemical make-up by making derivations, like moth-balls, from it. The chemicals can cause an {injury} to the brain which could manifest itself into Tardive Dyskinesia and other conditions. The issue is that there is an injury as a direct consequence of taking the drug. This injury, I could show you how it could be {healed}. This healing I am prohibited from posting here due to the prohibitions posted to me here by Mr. Hsiung. But if there is an injury to a component in your brain, would it be wise to take any other psychoactive drug that could have the potential to even induce a worse injury?
Let us reason together. If you had a severe sun burn, would it make sense to go out in the sun to heal the burn? Now one poster here did tell you that the drug would need to be stopped in order for the TD to have a chance to stop. But if another drug is substituted, and the chemical make-up has the same chemicals but just modified in some way, would that not be going out in the same sun?
Now I know how the healing could take place without drugs. It has been revealed to me the mysteries of a new realm that one can enter so that old things pass away, and behold, all things become new. A new heart, a new spirit, a new mind, a new brain, not like the old brain where you took mind-altering chemicals for years, but a healed brain. The mysteries revealed to me will enable you to overcome all things, by a power that even overcomes death. And it is available freely, without price.
Lou
Posted by bleauberry on November 13, 2013, at 9:23:49
In reply to Tradive dyskensia-please help, posted by lazylizard on November 12, 2013, at 12:35:38
It might go away and it might not. It is one of the risks we take with this heavy duty meds.
Mine from years of ssris and antipsychotics did tame down over a period of several years but it will always probably be there to some degree.
How to continue to live a normal happy life? Well, I'm not sure what normal is. Happy is different for every one. The best way I know of to have a content fullfilling life is to become close to God.
It's not about the end point or the goal....it's about the journey. People with far worse situations than yours, grossly worse than yours, live what they would call normal happy lives.
I am not aware of anything that can help the symptoms. If there are any meds that can help, then that opens the door for some other unintended negative consequence to happen from that med.
We just have to do the best we can and lean on strength from above when it seems to much. My TD mostly went away with continual prayer and time.
Posted by Willful on November 13, 2013, at 9:58:42
In reply to Re: Lou's reply-, posted by lazylizard on November 12, 2013, at 21:09:58
Hi
I don't know if you really do have TD, because there are other movement disorders that have no connection to taking drugs.
But if you do have TD, it will almost certainly go away. But it may take quite a while--- or shorter time-- it's unpredictable. But my pdoc mentioned to me that it pretty much always (he said always) does extinguish. It can take a couple of years he said-- which makes it pretty awful, but not a life sentence. But, he also said, it can take much less than that.
If you're considering taking another SSRI, I would find a pdoc who specializes in movement disorders-- even if you have to travel-- and consult him. I hear that you really need something for your anxiety-- and of course you don't want to do anything that would exacerbate the movements.
I would love to help, and I know how you feel about pdocs sometimes being useless, but it's the only way to get an informed clinical judgment and broad knowledge.
There are some excellent people and I imagine some specialize in movement disorders-- especially since your is somewhat unusual, having been caused, if it is TD, by Zoloft. I really encourage you to get some referrals. Like meds, pdocs don't always know the answer-- but they also have something to offer that none of us do, which is training and expertise.
Posted by fiat500 on November 13, 2013, at 13:28:01
In reply to Lou's reply- » lazylizard, posted by Lou Pilder on November 12, 2013, at 17:34:07
Lou,
You write as if you have the answer to all ills when it comes to the mind. I hope that you are open to the idea that you come across as "A Know It All". There are 8 billion brains on this planet none of which are biochemically exactly alike. People react differently to foods, beverages, situations that arise in life etc. No two people are completely similar so it is important to remember that we could react differently. I hope that you are open to the idea that you could be over generalizing and be making a blanket in thinking that your way is the right way. What has worked for you might work for someone else but might not. Who knows what your response will be. Looking at your previous responses I might (not sure thought so I am not over generalizing) expect you to analyze my sentences and pick up on my mistakes that I might have have made in my response and that is great. Just please, if you can, be open to the idea that you might, just might not have all the answers. Here is a definition of a "Know It All" that I found in Wikipedia. It might give you an idea as to how your responses reflect on others. I am sure you mean well but again it would be great for you to be open to the idea that for some people your responses are unhelpful and are not the way to his/her recovery.
"A know-it-all will invariably dispute others. For instance, someone may present a conflicting opinion or make a recommendation, but the know-it-all will act as though it had already been suggested, analyzed, and discounted. A know-it-all may also disregard or devalue advice from someone who actually has the knowledge the know-it-all purports to have. Know-it-all may also refer to a legitimate expert who flaunts his or her knowledge".
Posted by ed_uk2010 on November 13, 2013, at 14:53:03
In reply to Re: Tradive dyskensia-please help, posted by lazylizard on November 12, 2013, at 20:57:54
>Eyes brows move up and down, lips twitch, finger and toes twitch, and a lot of intense nerve pain.
Your movement disorder does not sound typical of TD. Unless severe muscle spasms are present, TD is not normally physically painful. Repetitive involuntary movement of the mouth and tongue are most typical eg. tongue repeatedly sticking out.
How do you respond to clonazepam (Klonopin)?
Posted by Phillipa on November 13, 2013, at 19:23:35
In reply to Re: Tradive dyskensia-please help, posted by ed_uk2010 on November 13, 2013, at 14:53:03
If so many meds are capable of producing TD how come no one has mentioned this before? Usually we encourage others to take meds. From now I don't think I will. If a med is needed it should be for the shortest amount of time. And watching TV and the adds seems Lou could be right about a lot of the side effects of meds. Personally years ago none of these meds were even available. Like SSRI's, atypical antipsychotics, even cholesterol meds and the list gets longer and longer. Phillipa
Posted by Dr. Bob on November 13, 2013, at 23:20:19
In reply to Re: Lou's reply- » Lou Pilder, posted by fiat500 on November 13, 2013, at 13:28:01
> You write as if you have the answer to all ills when it comes to the mind.
I'd like to redirect follow-ups about Lou to Psycho-Babble Administration. Here's a link:
http://www.dr-bob.org/babble/admin/20130903/msgs/1054296.html
Thanks,
Bob
Posted by Fiat500 on November 13, 2013, at 23:26:03
In reply to Redirect: Lou, posted by Dr. Bob on November 13, 2013, at 23:20:19
Will do Dr. Bob thanks.
Posted by Angela2 on November 15, 2013, at 20:09:57
In reply to Tradive dyskensia-please help, posted by lazylizard on November 12, 2013, at 12:35:38
I had a twitching in my eye when I increased my abilify. So I told my doctor and she reduced the amt, and now it's gone, though, it took a month or two. Sorry if this doesn't help you much.
This is the end of the thread.
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