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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 7 of 7. This is the beginning of the thread.
Posted by healingmysoul on March 18, 2011, at 19:07:05
I started having numbness in my hands and feet for over two years. I was just in the hospital for six days because I had issues with falling and losing my balance. All the tests came back normal i.e., Cscan, mri, EMG, lab tests, etc. They diagnosed me with "conversion disorder" because of the EMG and low muscle tone in my legs. The doctors said it was not a side effect due to adderall, but i still can't help but wonder.
Anyone else have any numbness??????
Thanks.
Posted by bleauberry on March 19, 2011, at 6:14:40
In reply to Adderall, posted by healingmysoul on March 18, 2011, at 19:07:05
Well, I have taken criticism for saying this multiple times in the past years, but it needs to be said.
When there is numbness and/or pain involved, and especially when you've got other bizarre stuff with it such as balance control, this is a clear clue we are not talking about a medication side effect or a psychiatric disorder. What is the first thing that pops to mind when I see those symptoms, especially when the patient has a history of psychiatric care? ...... Lyme....or Lyme-like infections. Unfortunately this is a poorly recognized disease, and in my opinion epidemic. Whatever the annual diagnostic numbers are, my hunch is they are actually about 10 times higher. Most cases are: 1)not suspected, 2)not diagnosed, 3)given a different name (MS, depression, arthritis, etc, since it can mimic all of the mystery diseases), 4)falsely diagnosed negative based on a lab test (high error rates). Many longterm patients never recall being bitten by a tick.
I could be wrong but I do not see Adderall as the culprit here. I would suggest spending a day surfing the web on the topic Lyme because there is a ton to learn. And buy the book Healing Lyme by Stephan buhner. Let's assume you don't have Lyme....all the research and that book will open your eyes wide to things your doctor has not thought of or mentioned...and things you can do to treat and reverse the numbness.
There are at least a dozen different infections very similar to Lyme. It's impossible to test them accurately. We can only make a confident diagnosis by treating as if we did have it, and then seeing what the reaction is. Does a Herxheimer reaction happen? Does nothing happen? Does improvement happen? The answers to these questions tell us what is really going on.
I believe the medical community has it backwards sometimes....make the diagnosis first and then treat it second. Well, with a lot of mystery symptoms, it almost has to be the other way around....treat it first on hunches and clinical evidence, and then make the diagnosis based on what worked. For example if the numbness improved on antibiotics and/or herbs, then you would know for sure your diagnosis was a chronic infection. You may never know exactly what infection, and it doesn't matter, only that whatever it was it was in the nervous system, probably in the brain, damaging cranial nerves, and that you got better.
MS patients have been cured by treating them as if they had Lyme disease, including the disappearance of the brain lesions on MRIs. Stuff like that kind of has to make you stand back and ponder what little we really know about disease.
With symptoms like yours, the top drug that you have to study and try is LDN.
Neuromuscular damage doesn't just happen for no reason....there is some kind of insult going on. Adderall is not that insult. The insult is something else. If I had to make a blind bet right now and pluck down a $100 in the kitty, my bet is....chronic infection responding to the same herbal and medicinal treatments used in Lyme and/or malaria.
Heavy metals deserve mention. Do you have, or ever had, silver fillings in your teeth? If not, disregard this question. If yes, then you need to read the book Amalgam Illness by Phd Andrew Cutler and begin slow low dose chelation after having those fillings removed. The symptoms you described are consistent with both Lyme-like infections as well as heavy metal accumulation. Not consistent with Adderall.
Posted by Phillipa on March 19, 2011, at 11:19:58
In reply to Re: Adderall, posted by bleauberry on March 19, 2011, at 6:14:40
Brain lesions on MRI's with lymes. Wow that means I don't have it as my MRI I just had one are normal. Also was told lesions were a sign of MS. And dx'd negative for that!!!! Phillipa
Posted by healingmysoul on March 19, 2011, at 11:52:39
In reply to Re: Adderall, posted by bleauberry on March 19, 2011, at 6:14:40
bleauberry ,
Thank you for replying to my post, and your post made me think about a few things... I had a period of two months were all my symptoms went away. I felt like I had a new life, and made me appreciate good health, but it returned very quickly. I did not understand it, and the docs make me feel like i am just totally nuts.
The last two years I have had so many tests for and they all come up negative. I went into the hospital last week because I fell several times due to weakness; even the docs said i had extreme low muscle tone, but came up with the diagnosis of "conversion disorder." The EMGs came back fine, and it seemed so different than my first one. It was like when my limbs didnt respond he would see how far he could go with the test. In addition, I showed nerve damage two years ago, but they say it was in normal range now.
I looked back at all my meds and it appears I was on an antibiotic the week before the symptoms went away. I know around the time because it was my daughters forth birthday party. I am contacting my 2nd mom who came from out of town, and want to get the dates she came correctly. If my dates are correct that means the numbness and tingling left within three days. That is something even I find hard to believe.
I really just want some answers and I am tired of docs giving me the run around. I have a five year old within the autism spectrum, and i am running out of energy!!!
Posted by healingmysoul on March 19, 2011, at 11:54:05
In reply to Re: Adderall » bleauberry, posted by Phillipa on March 19, 2011, at 11:19:58
> Brain lesions on MRI's with lymes. Wow that means I don't have it as my MRI I just had one are normal. Also was told lesions were a sign of MS. And dx'd negative for that!!!! Phillipa
I have had four mri's in the past two years and have no lesions. Sometimes i just wish they would give me some sort of DX!!!
Posted by Phillipa on March 19, 2011, at 22:04:33
In reply to Re: Adderall, posted by healingmysoul on March 19, 2011, at 11:54:05
According to Western blot still positive for six bands six years later. The problem is antibiotics are dangerous themselves. Google biaxin la and I lost taste and smell due to that taking for two years for lymes. Can't win!!!! Phillipa
Posted by B2Chica on March 21, 2011, at 15:26:28
In reply to Adderall, posted by healingmysoul on March 18, 2011, at 19:07:05
ive been on adderall for a while and i've never had said side-effect.
i know everyone reacts differently but i must agree with bleauberry here.
This is the end of the thread.
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