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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 17 of 17. This is the beginning of the thread.
Posted by floatingbridge on September 21, 2010, at 10:40:24
Phillipa, has your MRI been interpreted?
Posted by Phillipa on September 21, 2010, at 10:49:23
In reply to Phillipa, mri results?, posted by floatingbridge on September 21, 2010, at 10:40:24
ENT's RN called yesterday said no reason for loss of taste and smell. But following up with the doc there orignally wanted to see. Now they only read it for taste and smell doesn't mean that hole link spoke of in my brain isn't in my brain. This part is joke. But now I'm feeling horrible as will I never smell a flower again or taste a taste? It's true loss. So glad you thought of me. Phillipa
Posted by floatingbridge on September 21, 2010, at 11:06:15
In reply to Re: Phillipa, mri results? » floatingbridge, posted by Phillipa on September 21, 2010, at 10:49:23
Phillipa, this is it? No more avenues of investigation?
Hmmmm. Would someone possibly be interested because of your situation's unusual nature?
Not only not smelling--not tasting. That is a tremendous loss. I'm really sorry Phillipa.
Posted by Phillipa on September 21, 2010, at 12:16:26
In reply to Re: Phillipa, mri results? » Phillipa, posted by floatingbridge on September 21, 2010, at 11:06:15
I guess so. I would appreciate anyone else's ideas for finding answers. I'm at a loss now. Phillipa
Posted by Simcha on September 21, 2010, at 12:39:46
In reply to Re: Phillipa, mri results? » floatingbridge, posted by Phillipa on September 21, 2010, at 12:16:26
Philippa,
I'm so sorry to hear about your loss. I hope that they can figure out what's going on.
Posted by violette on September 21, 2010, at 13:49:04
In reply to Re: Phillipa, mri results? » floatingbridge, posted by Phillipa on September 21, 2010, at 12:16:26
Phillipa, did you ask them if long term benzodiazepene use could cause nerve damage?
I read that long term alcohol use can cause neurological disease, it wouldn't suprise me if benzos could do the same.
Sorry to hear of such problems. Do you see a difference with taste-for example with sour vs bitter or sweet? Or is it diminished taste overall?
Posted by Maxime on September 21, 2010, at 20:07:24
In reply to Phillipa, mri results?, posted by floatingbridge on September 21, 2010, at 10:40:24
I'm sorry that nothing was found. What happened to you BEFORE you lost you sense of taste and smell. I imagine that it didn't just happen like that.
Posted by Phillipa on September 21, 2010, at 20:15:20
In reply to Re: Phillipa, mri results? » floatingbridge, posted by Maxime on September 21, 2010, at 20:07:24
My gut says that since it faded during the time I was having prk lasix surgery of eyes that somehow this was responsible. I did more googling today and the doc that I saw in DC was mentioned in most of the articles Dr. Heinkin. Anyway scarey thing I saw was loss of tasted can be first sign of Alzheimers and also related to Parkinson's. Haven't researched it yet. If anyone can think of key words to google with please let me know. I did try once to find a connection with lasix and couldn't. I just know it was that. Who knows what a laser can do? Thanks for caring guys. As for tastes the tongue has taste buds for sweet, sour, salty, bitter. Sour green ice tea a bit of taste, and also dark chocolate daily. Phillipa ps also never feel hunger or full? And then there is the lymes but I'm not going there.
Posted by floatingbridge on September 22, 2010, at 9:30:24
In reply to Re: Phillipa, mri results?, posted by Phillipa on September 21, 2010, at 20:15:20
Phillipa, Didn't know about a taste/parkenson's connection. My FIL hasn't reported any diminished taste or smell. Hmmmm. Try not to spook yourself, though I imagine in your situation, I would be wary and alert. Do you think there is a lymes connection?
Posted by gardenergirl on September 22, 2010, at 20:48:52
In reply to Re: Phillipa, mri results?, posted by Phillipa on September 21, 2010, at 20:15:20
I thought it was due to a viral infection. Maybe I imagined reading that, but I thought that's what the docs have said in the past?
gg
Posted by Phillipa on September 22, 2010, at 21:10:20
In reply to Re: Phillipa, mri results? » Phillipa, posted by gardenergirl on September 22, 2010, at 20:48:52
GG that's what they hypothethized but no proof. The lasix fits the time frame and that's what this ENT asked what happened when it happened. One eye done other just done. No viruses , no running nose, no fever, so I know it wasn't a virus. You just know. I also know not Alzheimers or Parkinsons after googling none of those symtoms. The docs I saw in the past just guessed as tested me for autoimmune sjournes as that's a symtom of it and was negative. Virus if so could be lymes. Probably will never know. Phillipa
Posted by creepy on September 23, 2010, at 14:31:37
In reply to Phillipa, mri results?, posted by floatingbridge on September 21, 2010, at 10:40:24
Have you ever taken an NRI like desipramine or strattera? Or NDRI like wellbutrin?
Ive read (and experienced) that NRIs seem to shrink the blood vessels in the sinus and reduce congestion a bit. Killed off a lot of my allergy symptoms by going on an NRI its great.
It might be that theres swelling which is putting pressure on olfactory nerves, or blocking air from flowing over?
Taste and smell are linked, without being able to smell your sense of taste is impared a bit.
Posted by Phillipa on September 23, 2010, at 20:06:59
In reply to Re: Phillipa, mri results?, posted by creepy on September 23, 2010, at 14:31:37
Hi took cymbalta 60mg at the time of the smell and taste loss and nothing. No stuffy nose that is what's so strange? Phillipa
Posted by Maxime on September 25, 2010, at 15:44:56
In reply to Re: Phillipa, mri results? » creepy, posted by Phillipa on September 23, 2010, at 20:06:59
Remember when you had the surgery done, you had saliva problems. I think it was coming out a gland on your face. Maybe it is related to that?
Posted by Phillipa on September 25, 2010, at 20:55:10
In reply to Re: Phillipa, mri results? » Phillipa, posted by Maxime on September 25, 2010, at 15:44:56
Spurting fluid when chewed but I'd already lost it then. Phillipa
Posted by Maxime on September 25, 2010, at 22:17:16
In reply to Re: Phillipa, mri results? » Maxime, posted by Phillipa on September 25, 2010, at 20:55:10
> Spurting fluid when chewed but I'd already lost it then. Phillipa
Oh. There goes that theory. I wish you would find some answers.
Posted by Phillipa on September 26, 2010, at 19:35:20
In reply to Re: Phillipa, mri results? » Phillipa, posted by Maxime on September 25, 2010, at 22:17:16
Me too will see the original doc wanted to see and have the MRI on a disc that is mine. Hoping he sees something. Thanks for caring. Phillipa
This is the end of the thread.
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