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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 21 of 21. This is the beginning of the thread.
Posted by tiopenster on July 3, 2010, at 14:02:10
I tried regular Seroquel about 2 years ago but got horrible akathisia. I felt like I had to constantly move around and I was crawling out of my skin. But my new doc said that Seroquel XR may be different. Seems like it would cause the same problem. What do you think? I would be taking a low dose of 50mg for anxiety.
Posted by Christ_empowered on July 3, 2010, at 15:35:07
In reply to Will Seroquel XR give me akathisia this time?, posted by tiopenster on July 3, 2010, at 14:02:10
seroquel really isn't what I'd call a first-line treatment for anxiety. And you had pretty bad akathisia so..I'd say "NO!" to that suggestion. Long-term treatment with a neuroleptic can result in tardive akathisia, which basically means your akathisia has gone from a temporary condition to a permanent one, that will remain even after the drug is withdrawn. That's a high price to (potentially) pay for an anxiety treatment.
Plus, Seroquel sucks. The Seroquel people are always getting sued over diabetes, tardive dyskinesia, and other probs.
Can you take something, anything else?
Posted by fayeroe on July 3, 2010, at 17:17:37
In reply to why even try?, posted by Christ_empowered on July 3, 2010, at 15:35:07
I think I posted to you yesterday asking you to show some sensitivity when you talk about meds.
I believe at any one time there could be from 1-6 people on site reading your derogatory posts about "their" meds.
1. Have you personally tried every med you slam?
2. Are you a physician?
Posted by fayeroe on July 3, 2010, at 17:23:09
In reply to Will Seroquel XR give me akathisia this time?, posted by tiopenster on July 3, 2010, at 14:02:10
> I tried regular Seroquel about 2 years ago but got horrible akathisia. I felt like I had to constantly move around and I was crawling out of my skin. But my new doc said that Seroquel XR may be different. Seems like it would cause the same problem. What do you think? I would be taking a low dose of 50mg for anxiety.
Personally, I have never taken Seroquel or SeroquelXR. I would never,ever presume to know how a med would affect you.
I know that everyone responds to meds differently. I would discuss this with my prescribing physician rather than try and get an answer here to a serious question like yours.
Good luck, Faye
Posted by jade k on July 3, 2010, at 17:59:10
In reply to why even try?, posted by Christ_empowered on July 3, 2010, at 15:35:07
> seroquel really isn't what I'd call a first-line treatment for anxiety. And you had pretty bad akathisia so..I'd say "NO!" to that suggestion. Long-term treatment with a neuroleptic can result in tardive akathisia, which basically means your akathisia has gone from a temporary condition to a permanent one, that will remain even after the drug is withdrawn.
Props for your anxiety reducing method of posting.
>That's a high price to (potentially) pay for an anxiety treatment.
> Plus, Seroquel sucks.
For who? You? We should be talking about the poster or sharing personal experience (and referring to it as such)
The Seroquel people are always getting sued over diabetes, tardive dyskinesia, and other probs.
> Can you take something, anything else?
"why even try" seems a very insensitive way to start a post to a fellow babbler in need of help.How familiar are you with this posters full diagnosis, present and past, his full range of symptoms, etc.? Are you really qualified to suggest to him "why even try"?
Are you a pdoc?, it seems you are prone to make negative comments that may be of detriment to posters taking the meds you bash.
~Jade
Posted by jade k on July 3, 2010, at 18:10:59
In reply to Will Seroquel XR give me akathisia this time?, posted by tiopenster on July 3, 2010, at 14:02:10
> I tried regular Seroquel about 2 years ago but got horrible akathisia. I felt like I had to constantly move around and I was crawling out of my skin. But my new doc said that Seroquel XR may be different. Seems like it would cause the same problem. What do you think? I would be taking a low dose of 50mg for anxiety.
Hi Tiopenster,
I have a loved one that Seroquel saved. I have suffered from the akathisia and restlessness that you describe. As the med (similar to seroquel) was doing its job, I needed an augment and lower dose to end side effects. I no longer need it.
If your pdoc thinks its worth a shot, lower dose with a different delivery system, I'd consider it If I were you. Seems you'd know relatively soon if its acceptable. Also, there is a med called proprananol sp?, that is supposed to reduce the type of symptoms you describe.
In its class of drugs, I *think* (you'd have to confirm this) Seroquel is one of the safest.
Good luck whatever you decide.
~Jade
Posted by Christ_empowered on July 3, 2010, at 18:26:13
In reply to Re: why even try? » Christ_empowered, posted by fayeroe on July 3, 2010, at 17:17:37
My problem isn't that seroquel doesn't work; I'm sure it does. My problem was that it seems a little bit risky for a doc to ask someone to take a medication that has already resulted in a negative side-effect. My concern was with the poster, not painting seroquel in the best possible light. No, I am not a doc, just a skeptical and possibly somewhat bitter patient.
I'll be nicer in the future.
Posted by ed_uk2010 on July 3, 2010, at 18:46:52
In reply to Will Seroquel XR give me akathisia this time?, posted by tiopenster on July 3, 2010, at 14:02:10
>But my new doc said that Seroquel XR may be different. Seems like it would cause the same problem. What do you think? I would be taking a low dose of 50mg for anxiety.
It is certainly possible that Seroquel XR could cause akathisia. I would be very cautious with the dose.
What sort of anxiety do you suffer from? Seroquel is most appropriate for anxiety associated with bipolar disorder or psychotic illness. For other types of anxiety, other meds are usually preferred....but Seroquel can occasionally have a role.
Posted by fayeroe on July 3, 2010, at 19:20:39
In reply to Sorry :-), posted by Christ_empowered on July 3, 2010, at 18:26:13
Posted by jade k on July 3, 2010, at 19:33:37
In reply to Sorry :-), posted by Christ_empowered on July 3, 2010, at 18:26:13
Posted by Phillipa on July 3, 2010, at 21:20:10
In reply to Re: Sorry :-) Thank you (nm) » Christ_empowered, posted by fayeroe on July 3, 2010, at 19:20:39
My personal feeling is how would the extended version be different. But what is your diagnosis and what other meds have you tried for the anxiety. Phillipa
Posted by tiopenster on July 3, 2010, at 22:14:51
In reply to why even try?, posted by Christ_empowered on July 3, 2010, at 15:35:07
> seroquel really isn't what I'd call a first-line treatment for anxiety. And you had pretty bad akathisia so..I'd say "NO!" to that suggestion. Long-term treatment with a neuroleptic can result in tardive akathisia, which basically means your akathisia has gone from a temporary condition to a permanent one, that will remain even after the drug is withdrawn. That's a high price to (potentially) pay for an anxiety treatment.
> Plus, Seroquel sucks. The Seroquel people are always getting sued over diabetes, tardive dyskinesia, and other probs.
> Can you take something, anything else?I am not looking at Seroquel as a first line treatment. I've tried about 30 other meds for anxiety and the best I've come up with is a cocktail of Remeron, Geodon, Lyrica and Neurontin.
SSRI's make me paranoid and increase the anxiety. I don't respond to benzos. Abilify and Risperdal didn't do anything. Zyprexa helped a little bit but had too many side effects. I've even tried Serdolect.
I tried Seroquel at 25 and 50mg before with bad akathisia, but my new doctor says that her patients seem to respond better to the XR version. She doesn't know if it will cause the akathisia.
Any other suggestions are appreciated.
Posted by fayeroe on July 3, 2010, at 22:21:44
In reply to Re: why even try?, posted by tiopenster on July 3, 2010, at 22:14:51
I had looked for a diagnosis and meds for over 30 years when my NEW Pdoc put me on Lamictal. My life changed dramatically.
I hope that you do find something that will help you.
I'll be rooting you on from the sidelines! :-) Keep me updated. Take care, Faye
Posted by Phillipa on July 4, 2010, at 0:13:00
In reply to Re: why even try?, posted by tiopenster on July 3, 2010, at 22:14:51
Wishing you the best that it works great for you and it sure may. Phillipa
Posted by SLS on July 4, 2010, at 5:56:56
In reply to Re: why even try?, posted by tiopenster on July 3, 2010, at 22:14:51
Have you tried promethazine (Phenergan)? I have seen it work well for anxiety that was not adequately treated with Zyprexa. There is also perphenazine (Trilafon).
As far as antidepressants are concerned, phenelzine (Nardil) can really make a difference.
Good luck with the Seroquel XR. If akathisia emerges, at least you will now be able to recognize it immediately.
- Scott
Posted by Dr. Bob on July 4, 2010, at 9:55:53
In reply to Re: why even try? » Christ_empowered, posted by jade k on July 3, 2010, at 17:59:10
> show some sensitivity
>
> your derogatory posts
>
> 1. Have you personally tried every med you slam?
>
> 2. Are you a physician?
>
> fayeroe> "why even try" seems a very insensitive way to start a post
>
> How familiar are you with this posters full diagnosis, present and past, his full range of symptoms, etc.?
>
> Are you a pdoc?, it seems you are prone to make negative comments
>
> ~JadePlease don't post anything that could lead others to feel accused or put down.
But please don't take this personally, either, this doesn't mean I don't like you or think you're bad people, and I'm sorry if this hurts you.
Christ_empowered, I'm also sorry if you felt hurt.
I appreciate efforts to keep this site supportive, and posters do tend to prefer friendly reminders from other posters to official notices from me and the deputy administrators, but the key to friendly reminders is being friendly, or at least civil. If you feel a medication is being slammed, don't slam the poster, post more positive information. If you feel they're exaggerating or overgeneralizing, you can also use the "notify administrators" button to let us know.
Someone doesn't have to take a medication, be a physician, or know all of someone else's present and past diagnoses and symptoms to make helpful suggestions.
More information about posting policies and tips on alternative ways to express oneself, including a link to a nice post by Dinah on I-statements, are in the FAQ:
http://www.dr-bob.org/babble/faq.html#civil
http://www.dr-bob.org/babble/faq.html#enforceFollow-ups regarding these issues should be redirected to Psycho-Babble Administration. They, as well as replies to the above posts, should of course themselves be civil.
Thanks,
Bob
Posted by RocketMan on July 4, 2010, at 11:49:08
In reply to Will Seroquel XR give me akathisia this time?, posted by tiopenster on July 3, 2010, at 14:02:10
> I would be taking a low dose of 50mg for anxiety.
>My pdoc uses low dose seroquel for anxiety with good results. I experienced some mild dystonia several hrs after dosing with 100mg. I think you should follow your pdocs advise and give it a try. At 50mg, you may do just fine, if not, at least you can say you tried. Anxiety can be a nasty beast to slay so hang in there, it always passes and your days will become more enjoyable.
Regards,
Rick
Posted by RocketMan on July 4, 2010, at 12:18:15
In reply to Re: why even try?, posted by tiopenster on July 3, 2010, at 22:14:51
> I've tried about 30 other meds for anxiety and the best I've come up with is a cocktail of Remeron, Geodon, Lyrica and Neurontin.
SSRI's make me paranoid and increase the anxiety. I don't respond to benzos. Abilify and Risperdal didn't do anything. Zyprexa helped a little bit but had too many side effects.
>One thing I've learned over the years is a negative response to a given drug should not necessarily be cause to rule it out of the medicine cabinet permanently. Sometimes, the drug in question was not able to work as designed due to compounding factors, whether it be interactions with the cocktail of meds, external factors or your bodies immune system not functioning as should be.
My first trial with the ssrs's did not go well and I refused them for several years. Turns out a second attempt yield positive results.... why, I can't explain, nor could my pdoc. He said it was not important to figure out why they sometimes work, or not, as long as your response is positive!
Of all the meds I have taken for anxiety (clonazepam 23 yrs) I felt best with a low dose of paxil along with valium 5mg tid. That very same combo may not of worked at an earlier date, but proved quite helpful when the 2 were combined with no other mitigating factors.
I know its hard to keep an open mind when struggling as everything seems so overwhelming. The fact is, you will find the right combo. Just keep reminding yourself that the bad feelings always pass.... believe me, been there - done that. You also need a good support system in place. My wife has been a pillar of strength when I was at my lowest. If not for her, I may have given up on my current meds, which are now a true blessing... feeling great for several mths now.
Regards,
Rick
Posted by ed_uk2010 on July 4, 2010, at 15:26:01
In reply to Re: why even try? » tiopenster, posted by SLS on July 4, 2010, at 5:56:56
>If akathisia emerges, at least you will now be able to recognize it immediately.
Also, it would be useful to have an anti-akathisia medication available in case it does happen eg. a few diazepam 5mg tablets or an anticholinergic.
Posted by Phillipa on July 4, 2010, at 19:27:53
In reply to Re: why even try? » SLS, posted by ed_uk2010 on July 4, 2010, at 15:26:01
Would that be cogentin or even benydryl? Phillipa
Posted by ed_uk2010 on July 5, 2010, at 0:38:33
In reply to Re: why even try?, posted by Phillipa on July 4, 2010, at 19:27:53
>Would that be Cogentin or even Benadryl?
Yes, that's right. They are anticholinergics (they are also antihistamines).
This is the end of the thread.
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