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Dr. Bob is Robert Hsiung, MD,
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Posted by floatingbridge on February 27, 2010, at 2:55:49
In reply to I want to cry, posted by Maxime on February 26, 2010, at 12:26:46
I recall that lithium wasn't too kind to you before.
Sorry sweetie. Are you able to taper off? Do you have another stabilzer in mind?
((((Honey))))
Posted by Maxime on February 27, 2010, at 9:31:41
In reply to (((((Maxime))))) » Maxime, posted by floatingbridge on February 27, 2010, at 2:55:49
Thank you for the hugs and understanding. I think I may have to go off this med. I certainly can't go any higher so it will be interesting to see what my levels show at 600 mg a day. I'm thinking of going back on Trileptal since that worked before. I just have to make sure it goes with the Parnate.
Thanks again.
Posted by Phillipa on February 27, 2010, at 19:31:45
In reply to Thank you, posted by Maxime on February 27, 2010, at 9:31:41
Maxi even I tolerated low doses of trileptal. Didn't know was taking it. Phillipa
Posted by meltingpot on March 1, 2010, at 14:09:39
In reply to I want to cry, posted by Maxime on February 26, 2010, at 12:26:46
Hi Maxime,
Here's a hug from me.
Denise
Posted by Maxime on March 1, 2010, at 14:09:53
In reply to I want to cry, posted by Maxime on February 26, 2010, at 12:26:46
Still hating this med. It's making me all jittery and now I have a tremor in both hands. I see my pdoc on Friday and will ask him if I can stop taking it. It is not even helping with my mood swings.
Posted by Phillipa on March 1, 2010, at 20:31:27
In reply to Re: I want to cry, posted by Maxime on March 1, 2010, at 14:09:53
Caused tremor in both deceased father in law and ex husband. Not nice. Phillipa
Posted by floatingbridge on March 1, 2010, at 20:52:56
In reply to Re: I want to cry, posted by Maxime on March 1, 2010, at 14:09:53
Maxime, you have tremors at 600? That's awful. Do you need to wait until Friday? Can you taper down a bit? (I appreciate working with your doctor; I just want you to get relief ASAP, and Friday seems so far off.)
Have you been sleeping?
Hugs!
Posted by Maxime on March 1, 2010, at 22:26:39
In reply to Re: I want to cry » Maxime, posted by floatingbridge on March 1, 2010, at 20:52:56
> Maxime, you have tremors at 600? That's awful. Do you need to wait until Friday? Can you taper down a bit? (I appreciate working with your doctor; I just want you to get relief ASAP, and Friday seems so far off.)
>
> Have you been sleeping?
>
> Hugs!Hi FB, I am just trying to be med compliant for once and not stop the med. I have a tendency to take things into my own hands. On Wednesday I am getting my levels check, maybe after that I will go back to 300 mg. I remember this happening to me the last time I was on lithium. I was toxic on really low doses.
Sleep? Not happening I am afraid. Maybe 2-3 hours a night. Although last week I went 4 nights straight with no sleep at all. The purple faery dust doesn't seem to work anymore. :-(
Posted by Justherself54 on March 1, 2010, at 23:00:01
In reply to Re: I want to cry, posted by Maxime on March 1, 2010, at 14:09:53
The same thing happened to me too Maxime. I had bad edema and had such bad tremors I couldn't type. The mouse would literally shoot out of my hand.
:( Side effects suck.
Posted by floatingbridge on March 2, 2010, at 1:27:38
In reply to Re: I want to cry, posted by Maxime on March 1, 2010, at 22:26:39
Well, maybe the sleep faery can fly over your house. She's been on vacation, so no wonder. I think your place might be on her way home.... And she has lots of colors!
((((good night sweetie))))
(Med compliance is good. I've finally realized that myself.)
Posted by Maxime on March 2, 2010, at 15:46:01
In reply to sleep faery » Maxime, posted by floatingbridge on March 2, 2010, at 1:27:38
The sleep fairy did come by and I got 5 hours of sleep which is a lot for me. Hopefully she will fly by tonight as well as I have a lot of catching up to do on sleep. :-)
Posted by floatingbridge on March 2, 2010, at 19:47:28
In reply to Re: sleep faery » floatingbridge, posted by Maxime on March 2, 2010, at 15:46:01
Yay!
Posted by Maxime on March 3, 2010, at 4:40:24
In reply to Re: sleep faery » Maxime, posted by floatingbridge on March 2, 2010, at 19:47:28
She didn't come last night. I waited until 5:30 am. She must be very busy.
Posted by Phillipa on March 3, 2010, at 19:41:32
In reply to Re: sleep faery » floatingbridge, posted by Maxime on March 3, 2010, at 4:40:24
I'm sorry think she was picking up teeth and leaving money? Just kidding. Sorry you didn't sleep. Tonight she will come. Phillipa
Posted by floatingbridge on March 3, 2010, at 20:37:59
In reply to Re: sleep faery » Maxime, posted by Phillipa on March 3, 2010, at 19:41:32
Yes, she must be rather busy with all those teeth. My son has his first loose one!
How are you doing with the lithium? Were you able to drop down?
Green faerie dust for St. Pattie's?
Chamomile scented hugs,
fb
Posted by Maxime on March 6, 2010, at 20:49:39
In reply to Re: sleep faery » Phillipa, posted by floatingbridge on March 3, 2010, at 20:37:59
I went to see my pdoc yesterday and there was note on his door saying that he had been in an accident and unable to see patients. I hope he is going to be okay.
I stopped taking the lithium yesterday. I felt so ill on it. I really wanted to stay med compliant, but since I couldn't see my doctor I can't do it. I know that it was helping me but I gained 18 pounds in one month of being on it. It made me so HUNGRY. I want to go on Trileptal instead but I guess I will have to wait for my doctor to return to his practice.
I've been sleeping well the past few days because my mum is in the hospital and I have been running back and forth between the hospital and home that I am exhausted.
Thanks for caring. I don't know, I have never used gree faery dust. Maybe it would work as well as the purple. I should try it. :-)
Goodnight everyone. xoxo
Posted by floatingbridge on March 7, 2010, at 0:27:15
In reply to Re: sleep faery » floatingbridge, posted by Maxime on March 6, 2010, at 20:49:39
Maxime, that's awful news about your doctor. I imagine someone will care for his patients for the interim. I'm very sorry. Do you think you'll know something by next week? It'd be good if you didn't have to wait too long to try the Treliptal.
I'm glad you're sleeping--and sorry to hear about your mum.
Hugs,
fb
Posted by Maxime on March 7, 2010, at 21:24:45
In reply to Re: sleep faery » Maxime, posted by floatingbridge on March 7, 2010, at 0:27:15
Thanks FB. I just received an email from my pdoc ... he is in the hospital with a broken hip. I am glad that he emailed me because I have been very worried about him. He said he will start seeing patients in about 2 weeks. I can wait that long. In the meantime, I have stopped the Lithium completly. I feel a lot better off it and I am not retaining as much water as when I was on it. Now all I have to lose is my Nutella weight since the Lithium made me crave carbs and I put on 18 pounds in a month. Very scary for anyone, but especially scary for someone with an ED. :-(
Posted by Phillipa on March 8, 2010, at 20:02:09
In reply to Re: sleep faery » floatingbridge, posted by Maxime on March 7, 2010, at 21:24:45
Maxie don't know where floatingbridge is but glad you stopped the med and 18 pounds must be extremely scary for you. Love Phillipa
Posted by kirbyw on March 8, 2010, at 22:46:29
In reply to Re: sleep faery » Maxime, posted by Phillipa on March 8, 2010, at 20:02:09
Maxime
In terms of sleep related issues, do you have any issues that would interfere with daily aerobic exercise, such as walking, jogging, climbing stairs, etc? I have found that this is helpful for me although I still have a serious insomnia problem with Parnate, and right now I am only at 20 mg daily. For many years I did not have this problem, but when I was younger I did jogging.
After my by pass surgery the best I can do is walk as much as possible. Since I live in a two story apartment, and if I am wide awake at 2 a.m. I will walk up and down the stairs maybe up to 10-15 times in a 15-30 minute period, and it does make me more able to sleep.
Posted by floatingbridge on March 8, 2010, at 22:47:48
In reply to Re: sleep faery » Maxime, posted by Phillipa on March 8, 2010, at 20:02:09
Hi Phillipa, I'm here. Just not as often--staying unplugged somewhat. I don't like my son to see me online or on my cell too often. It can become a bad habit.
Hugs to you!
fb
Posted by floatingbridge on March 8, 2010, at 22:56:28
In reply to Re: sleep faery » floatingbridge, posted by Maxime on March 7, 2010, at 21:24:45
Maxime, glad your doctor is relatively o.k. A broken hip can be quite serious--amazing that he'll be able to see you in two weeks.
18 lbs in a month sounds very uncomfortable! When my dosage of abilify increased, I put on so much weight so quickly, it just didn't feel healthy, meaning the process itself felt awful. That's quite a side-effect. Lithium is not a med for you, given this and your previous experience!
How are the mood swings?
Glad it's only a two week wait. Hang in there. Green faery dust still working?
Hugs,
fb
Posted by Phillipa on March 9, 2010, at 20:00:32
In reply to Re: sleep faery » Maxime, posted by floatingbridge on March 8, 2010, at 22:56:28
FB although I know your're right still miss you. Love Phillipa
Posted by floatingbridge on March 9, 2010, at 21:36:57
In reply to Re: sleep faery » floatingbridge, posted by Phillipa on March 9, 2010, at 20:00:32
Thanks sweetie! The board does seem quiet these days. I've been mostly lurking on psych board when I have time.
Hugs!
Posted by Jay_Bravest_FaCe on March 11, 2010, at 17:05:08
In reply to Re: sleep faery » floatingbridge, posted by Maxime on March 7, 2010, at 21:24:45
Hi Maxime:
I am really sorry you are having such a tough time. (What really seems odd is that often, when we hit bad times (over the years) we can, eventually, bounce-back....but the pain is still the same.)
I think Lithium is like most psych. drugs, in that it either works, doesn't work, or can really exacerbate our problems. I had a similar response to Lithium as you did. I became very frustrated and angry all the time. I remember phoning up my brother just to argue with him when I was on Lithium. But, to another person, the drug may be a resounding life-saver. I have found this website, http://www.askapatient.com/rateyourmedicine.htm ,
somewhat useful in the ranges of responses to certain meds. It is pretty clear...some of us do great on one combo or med, and it may feel poisonous to another. I hope you can get back to your doctor asap.Jay
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