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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 7 of 7. This is the beginning of the thread.
Posted by spira on November 3, 2008, at 5:05:06
Hi
Just wondered if anyone can help.
Currently receiving treatment for High Histamine and Pyroluria.
Along with many supplements I take a 200mg of SAMe although my doc suggests 2 of these a day including 3 x Methionine a day.
Whilst on the doctor's recommended dose I was awake in the early hours panicking and couldn't calm down. So I reduced to the one SAMe a day.
Is this a normal reaction?
Do I have to go through these feelings of panic to get the histamine levels down?
Even on this dose I feel very nervous.
I am just sick of the feeling of fear and doom trying to overwhelm me at certain times of the day. I am and have been agoraphobic for 3 years now.
Will the agoraphobia go eventually?
Thanks so much for any help you can offer.
Kind regards
Posted by Jimmyboy on November 3, 2008, at 9:06:49
In reply to PYROLURIA, HISTADELIA AND AGORAPHOBIA, posted by spira on November 3, 2008, at 5:05:06
SAM-e can be very bad for people with anxiety. I know it caused me panic attacks when I had never had one before in my life. I would see if there was some other route of doing ths otehr than the SAM-e
Posted by Phillipa on November 3, 2008, at 9:58:46
In reply to Re: PYROLURIA, HISTADELIA AND AGORAPHOBIA, posted by Jimmyboy on November 3, 2008, at 9:06:49
Welcome to babble see you're new. Also What's the pyroluria. Agoraphobia can relate to. I think trying to get out even if for a short walk can help. Are you currently seeing a doc or is the samee on your own. I'm guessing you're from overseas with the wilst. Good luck hope you get lots of responses. Phillipa
Posted by spira on November 5, 2008, at 3:54:45
In reply to Re: PYROLURIA, HISTADELIA AND AGORAPHOBIA, posted by Phillipa on November 3, 2008, at 9:58:46
Hi Jimmyboy and Phillipa
Thanks for the replies and the welcome. I am in Australia and after lots of research found out I have pyroluria and high histamine which appear to cause the phobia/s.
I am seeing a doc (just been to see him again today). He is an orthomolecular physician.
Apologies if you already know about this stuff but to explain my issues:
Pyroluria is a genetic condition where the individual secretes zinc and vitamin b6 via urine. This is appearing easy to correct for me with huge doses of the correct specific vitamins.
The high histamine seems to be the problem needing the SAMe or methionine to reduce the symptoms which will in turn eventually reduce the phobias.
I just take 1 x 200mg of SAMe at the moment and can seem to tolerate that. This along with another 20 or so vitamins each day.
I do get out with my husband every day it's just going out on my own which seems to be the issue.
I am hoping once the histamine lowers this irrational fear will disappear.
I have noticed some of the fearful symptoms are lessening I am just impatient to be independent.
Thanks again.
Posted by Phillipa on November 5, 2008, at 19:02:51
In reply to Re: PYROLURIA, HISTADELIA AND AGORAPHOBIA, posted by spira on November 5, 2008, at 3:54:45
Spira thanks for the great explaination. Hope soon you're able to accomplish your goals. Phillipa
Posted by Bull_Dog_82 on October 26, 2009, at 23:44:25
In reply to PYROLURIA, HISTADELIA AND AGORAPHOBIA, posted by spira on November 3, 2008, at 5:05:06
Hi just wanted to let you know I have also tested as having pyroluria and histadelia but I do not have any phobias
I am not on sam-e but may have to take it after further tests.
I am from Brisbane so let me know how you go with your treatment.
I take methyl-B12, methionine and ester-c for the histadelia.
p5p and zinc for the pyroluria.
as well as magnesium and blackcurrant oil
I see Dr Frank Golic at clayfield in brizy.
Posted by Deneb on October 26, 2009, at 23:52:57
In reply to Re: PYROLURIA, HISTADELIA AND AGORAPHOBIA » spira, posted by Bull_Dog_82 on October 26, 2009, at 23:44:25
Hi Bulldog82!
Welcome to Psycho-Babble! That thread you posted to is a year old and old threads tend to get lost and the previous posters aren't usually here to respond. You might want to start a new thread so that people can help you more.
There are lots of people on different supplements. You can check out the Alternative Board for ideas.
Deneb
This is the end of the thread.
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