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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 20 of 20. This is the beginning of the thread.
Posted by Jeroen on February 21, 2009, at 10:37:38
http://www.patientsville.com/medication/invega2_side_effects.htm
look at this list people
now im very scared to try INVEGA
Posted by Phillipa on February 21, 2009, at 11:06:45
In reply to INVEGA side effects - im very scared now, posted by Jeroen on February 21, 2009, at 10:37:38
Jeroen is this your doc's recommendation or yours? What happened to the seroquel that was working for you? love Phillipa
Posted by Jeroen on February 21, 2009, at 11:13:47
In reply to Re: INVEGA side effects - im very scared now » Jeroen, posted by Phillipa on February 21, 2009, at 11:06:45
im only on abilify atm, the psychosis wont go away, i only can recover MAYBE by taking large seroquel dosage, but i wont do this in the hospital, i find it very disturbing my situation
Posted by SLS on February 21, 2009, at 14:01:58
In reply to Re: INVEGA side effects - im very scared now, posted by Jeroen on February 21, 2009, at 11:13:47
Hi Jeroen.
> im only on abilify atm, the psychosis wont go away, i only can recover MAYBE by taking large seroquel dosage, but i wont do this in the hospital, i find it very disturbing my situation
You might want to try increasing the dosage of Abilify first. You're right there, you might as well do the simplest thing first.
From the outside looking in, it often appears that you jump from drug to drug without having a plan.
Schizophrenia takes longer to respond to an antipsychotic than does bipolar disorder or depression. You need to stay on these drugs longer if you want them to work.
Now, from the inside looking out, I really don't know the degree to which you have developed a methodical plan to get well. I am not in your shoes.
Please think about the Abilify. 10mg just ain't enough for treating schizophrenia.
Try not to get mad at me. I'm trying to use all of what little I know to help you.
One way or the other, you will find the right treatment. In the meantime, try not to feel desperate all of the time. It will cause you to make impulse decisions and not give these drugs enough time to work. Expect to feel bad for some period of time to come. I know what it is like to do anything to stop the pain. I used to make impulsive decisions. I would run to the medicine cabinet and desperately self-medicate to try to capture relief. I wish I could convey to you just how well I understand not having the patience to let drugs work. I remember once giving Marplan exactly 14 days to work. When I felt nothing, I wanted to hurry up and go back to Nardil because I thought it would help me more than it did the time before. Stupid.
- Scott
Posted by JadeKelly on February 21, 2009, at 22:50:33
In reply to Re: INVEGA side effects - im very scared now, posted by SLS on February 21, 2009, at 14:01:58
> Hi Jeroen.
>
> > im only on abilify atm, the psychosis wont go away, i only can recover MAYBE by taking large seroquel dosage, but i wont do this in the hospital, i find it very disturbing my situation
>
> You might want to try increasing the dosage of Abilify first. You're right there, you might as well do the simplest thing first.
>
> From the outside looking in, it often appears that you jump from drug to drug without having a plan.
>
> Schizophrenia takes longer to respond to an antipsychotic than does bipolar disorder or depression. You need to stay on these drugs longer if you want them to work.
>
> Now, from the inside looking out, I really don't know the degree to which you have developed a methodical plan to get well. I am not in your shoes.
>
> Please think about the Abilify. 10mg just ain't enough for treating schizophrenia.
>
> Try not to get mad at me. I'm trying to use all of what little I know to help you.
>
> One way or the other, you will find the right treatment. In the meantime, try not to feel desperate all of the time. It will cause you to make impulse decisions and not give these drugs enough time to work. Expect to feel bad for some period of time to come. I know what it is like to do anything to stop the pain. I used to make impulsive decisions. I would run to the medicine cabinet and desperately self-medicate to try to capture relief. I wish I could convey to you just how well I understand not having the patience to let drugs work. I remember once giving Marplan exactly 14 days to work. When I felt nothing, I wanted to hurry up and go back to Nardil because I thought it would help me more than it did the time before. Stupid.
>
>
> - Scott
>Hi Jeroen,
I'm trying again. Scott usually is right unfortunately for the rest of us. I just wanted to pass along a couple of things. Not suggesting anything cause I don't know what you've tried.
First, my teenage son has rapid onset, rapid cycling bi-polar 1. He's been hospitalized many times, for that and he has lung disease. But for the Bi-polar 1 what " worked" was riperdal, abilify, and haldol. During that time I felt I had lost my son. I told them to take him off all of them. He was back to himself, with crazy episodes every 3 weeks or so. Violent episodes.
I asked them what the mildest a/p was and the said Seraquel. He's already on 1500mg of depakote for epilepsy so that doubles as a mood stabilizer. We really have no choice there. So he takes 1500mg Depakote, and 300mg Seraquel although I understand you can go much higher.Another thing I faound out recently by accident, his doc didn't even know when he prescribed it, Seraquel at higher doses (300+) has anti-depressive properties. My son had recently come to me and said how he'd been feeling "happy". He never does that!
Now hes had 2 grand mal siezures in the last couple months which can bring on the bi-polar again. So we may have to raise that Seraquel.
Finally, for reasons I won't go into, I was in a deep dark hole of nasty depression that stared a couple years ago. I was in bed for a year. I got so desperate I decided I wanted a med I'd been seeing on Babble (before I joined). I was on it when I met Scott and Phillipa, and Scott talked me into staying on thru all kind of hateful side effects, haha. I stayed on that dam* med for almost 3 months befor I got a full response! I know crazy, huh? Finally, it set in, big time. I am a different, happy person.
I geuss what I'm saying is try to listen to Scott. As far as patience goes. If a med has real promise, stay with it!!
Now when I took one SSRI, I knew never again. I became paranoid, etc. Thats no good. But things like insomnia, nausea, headache, fatigue, those things will go away over time. With my med, the worst was the insomnia. Now, I sleep like a baby.
Okay, well, I hope you feel better. I hope I helped some. My son hated the hospital too.
~Jade ;-)
ps-I'll see what I can find out about Invega, okay? Must be new because I looked it up before I posted and there are no "real" patient complaints. I'll post ya back if I find anything.
Posted by Zyprexa on February 22, 2009, at 3:08:04
In reply to Re: INVEGA side effects - im very scared now, posted by SLS on February 21, 2009, at 14:01:58
Jeroen,
You already know the seroquel will work. Why not give it more time? Like a couple of years.
I know from experience, if a drug is not working and you know that. It is probably unlikely that it will work later or at a higher dose. If you are having bad side effects.
I think you are just paranoid about taking these drugs. You read one thing or some thing happens that scares you and you switch. Or freak out.
I took abilify too and after a 3-4 month trial at lower doses, it was having a bad effect. A very noticably bad effect. Told my doctor, and he incouraged me to stick with it or higher dose. I was noticing that the higher doses I went the worser effect that it was having. So I stuck with it and obviously things got worse. Wasn't sleeping, couldn't function at work. And voices.
Anyways I think you should just take Seroquel at the higher dose you said you needed. And not to worry about. I doubt you will die or get psychosis. As you said it worked. Once again I think you are paranoid, which is a symptom of psychosis. Which means the abilify is not working. Or you are at too low a dose.
When I started out with my disease, I didn't want to take my meds and didn't.. That is what put me in the hospital, 2 times. They fried my brains a few hundred times and I eventualy got the message. Take your meds! I did and within years I would start getting better. Once I had found the right med. I didn't spend much time on meds that didn't work. But zyprexa was pleasant and in time worked!
I think seroquel is the AP for you! You might not even need a higher dose in time when it starts working.
Anyways, Seroquel is my vote.
Zyprexa!
Posted by Jeroen on February 22, 2009, at 5:38:57
In reply to Re: INVEGA side effects - im very scared now » SLS, posted by JadeKelly on February 21, 2009, at 22:50:33
i dont know i tryed many drugs for months not even years, their response was poor except for seroquel wich pooped out, i can try a higher dosage butit will give me serious side effects
Posted by SLS on February 22, 2009, at 6:49:43
In reply to Re: Jeroen - im very scared now, posted by Zyprexa on February 22, 2009, at 3:08:04
Hi Jeroen.
You know that Invega is a metabolite of Risperdal. You really should ask the doctor what are those side effects that can happen in real life. One really does need a medical background to be able to interpret properly the side effects as listed by the drug manufacturer and any literature that uses it as a reference. Most of the side effects listed, you will never see.
I saw one particular combination work wonders for a girl I know. She had psychotic depression. She had been taking Risperdal 3.0mg. It helped only partially. To this, Seroquel 100mg was added with the intention of increasing the dosage to 600mg. However, she responded so completely to the 100mg, she was left on it. No more psychosis. No more depression. She was also taking Wellbutrin.
So... At some point, I would try combining Risperdal or Invega with Seroquel.
If the Abilify is not hurting you, I would still raise the dosage to 20-30mg and just leave it there for awhile to see what happens. The other drugs will always be there for you to investigate.
- Scott
Posted by JadeKelly on February 22, 2009, at 19:27:29
In reply to i dont know i tryed many drugs for months not even, posted by Jeroen on February 22, 2009, at 5:38:57
> i dont know i tryed many drugs for months not even years, their response was poor except for seroquel wich pooped out, i can try a higher dosage butit will give me serious side effects
>
Hi Jeroen!Thanks for posting me back. You have a few threads going at once, so if I miss an important post feel free to babblemail me. Do you use that by the way? You know you can talk like we are but its private, sent to your email, without giving out your email. It goes thru Dr. Bob. Scott's is usually off but he'll turn it on if you have an emergency.
So, you are afraid of the side effects if you increase Seroquel? What about take one in the morning and one at night? That doesn't effect my son at all, except he was sleepy at first. Then, we added a second one at night, that just made him fall asleep quicker and maybe a little tired in the morning. But it wears off (the sleepiness).Thats when he noticed he was happier by the way.
Aside from that, I don't remember any other side effects. In fact, he was doing so well for a while, I asked him if he wanted to lower his Seraquel (he was sleeping in 1st class) and he said "NO MOM"!!! I'll have an episode! So, it doesn't bother him. And now that he's taller and just had those seizures we may have to add another 100mg. I guess that would be 200mg in the morn and 200mg at night. It turned out to be our dream med compared to the other a/p's. He's 100% himself. I wish that for you.
Would you consider 100mg Seraquel in the morning, or an extra one at night? Total 200mg? Get used to that, then add 100mg more if you want to get some real a/d effect.
Here's a funny story, one morning I thought I had my vitamins in my hand, but it was my son's depakote and seraquel! I took ALL of it,haha
The next thing I knew I was in bed and slept ALL day. That was the only side effect for me but I thought no wonder the boy is tired!!! Depakote does alot of that too though. He's gotten a lot of tolerance to the tiredness. He sleeps from 10pm to 8am so thats 10 hours. He needs it.He's had to drop the first couple classes in school, this is the 3rd year. He should be a senior but he wont graduate and thats okay. As long as he's okay.
So Jeroen, I'm curious about what side effects you are afraid of adding more Seroquel? Did they try to give you more? How much? Maybe you just need to go slow? I'd do that before I'd start all over with a new drug. Do you take a mood stabilizer?
Do you have "angry episodes" like my son?I'm curious, how much Seroquel will they let you take? Could you start with just a 100mg more?
Let me know, okay? If you already responded to it, I think maybe a very slow titration if needed. Maybe you'll be okay on 200mg. My self, I'd go to 300mg where the real A/D starts.
But this is your life. I don't know what freedom you have in your med choices.
Stay calm ;-) Let me know about 100mg more Seraquel and how much they were talking about.Also what were your side effects your afraid of, okay? I want to help you. My son has been through hell and if I can give you one thing that makes your life better I will feel good too.
Your friend,~Jade
Posted by Jeroen on February 22, 2009, at 23:46:32
In reply to Re: i dont know i tryed many drugs for months not even » Jeroen, posted by JadeKelly on February 22, 2009, at 19:27:29
i've been on 400 mg in PM and 100 mg in the AM
think i need a very large dosage for it to work again wich is dangerous because of the tachardia side effects, like a racing heart and induced pannick attack before i fall asleep its very scary
Posted by manic666 on February 23, 2009, at 4:07:18
In reply to To JadeKelly, posted by Jeroen on February 22, 2009, at 23:46:32
jerohn my buddy i hear your hurting ,try whatching star ship trooper 1 not 2 or 3 just 1
Posted by Jeroen on February 23, 2009, at 5:03:50
In reply to Re: To JadeKelly, posted by manic666 on February 23, 2009, at 4:07:18
hi manic
i saw them all 3
Posted by manic666 on February 23, 2009, at 5:19:37
In reply to to manic, posted by Jeroen on February 23, 2009, at 5:03:50
you did the second two were bad , hey im jonny reco , the first was cool must be about 10 year old , i went to thr multi cinema with about 100 surround sound speakers , i was in the bug battle with them , medicccccccccccccc
Posted by Jeroen on February 23, 2009, at 5:33:35
In reply to Re: to manic, posted by manic666 on February 23, 2009, at 5:19:37
haha manic :p
Posted by JadeKelly on February 23, 2009, at 10:01:09
In reply to To JadeKelly, posted by Jeroen on February 22, 2009, at 23:46:32
> i've been on 400 mg in PM and 100 mg in the AM
>
> think i need a very large dosage for it to work again wich is dangerous because of the tachardia side effects, like a racing heart and induced pannick attack before i fall asleep its very scaryHi Jeroen,
Its Jade. Did a little research for ya, and wanted to refresh my memory because as I said before my son takes Seroquel.
I thought you said you were on 100mg of Seraquel, but it sounds like you tried 400mg in the eve and 100mg in morn. Are we talking 500mg total then?
Did you actually have ventricular tachycardia type symptoms? Heart is beating at least 120 beats per minute? Or your afraid of that side effect?
Even in my at home "pill book" doses of seraquel are routinly prescribed at 750mg per day. They can prescribe more in hospital settings. If you were taking 500mg a day, what about adding to the morning dose? Say 300mg in morn and 300mg at night? Something like that? Were getting ready to increase my sons Seraquel also, but he needs his levels done for depakote first. So he'll be taking 4-500mg of Seroquel and 1500mg of Depakote. The only side effect we see is fatigue.
I think because the Invega is new, I'd go with Seroquel Jeroen. Its a proven med, it has A/D properties, you liked it before, and it can easily work for you again.
Please let me know what the actual dose was that you last took, 400eve/100morn? Did you experience heart palpitations on 400mg? if so, maybe they can split them up. Also I'm sure they can or will monitor your heart rate after each dose. Would that work?
I hate to see you go thru the stress I know it causes you to try a new med (Invega), even if it may help, if the Seraquel works too.
Let me know what you decide, and how you are today! ;-)
~Jade PS-How much Seraquel did they want to give you now?
Posted by Jeroen on February 23, 2009, at 10:17:08
In reply to Re: To JadeKelly » Jeroen, posted by JadeKelly on February 23, 2009, at 10:01:09
hi, i get serious tachardya from seroquel if 400 mg wont work a higher dose maybe
im currently taking abilify only, why not got invega a shot. my life is not so good anymore, im glad seroquel is helping your son!
Posted by Zyprexa on February 23, 2009, at 15:52:27
In reply to To JadeKelly, posted by Jeroen on February 23, 2009, at 10:17:08
Jeroen?
When you were getting tachardia was it after the morning dose or the evening dose? You may just need to make the 2 more even. Like 200mg morning and 300mg evening. I suspect its the morning dose that gave you tacardia. My aunt who takes seroquel had the same problem. She still takes it now and its working realy good!
Posted by Jeroen on February 23, 2009, at 16:27:30
In reply to Re: To Jeroen!, posted by Zyprexa on February 23, 2009, at 15:52:27
above 225 mg seroquel causes tachardia
im planning to get on it again soon i hope the XR version
Posted by JadeKelly on February 23, 2009, at 18:07:58
In reply to To JadeKelly, posted by Jeroen on February 23, 2009, at 10:17:08
> hi, i get serious tachardya from seroquel if 400 mg wont work a higher dose maybe
>
>
> im currently taking abilify only, why not got invega a shot. my life is not so good anymore, im glad seroquel is helping your son!Thanks Jeroen ;-)
My son thanks you too! I don't know what we would have done if Seroquel hadn't worked, but everyone is different. I'm glad you know Seroquel is available, and should you ever decide to go back to it, have them split it up and give you something for the racing heart. If they cant give you somthing for racing heart, maybe split into 3 doses.
I saw below you're going to give Invega a shot. I really hope it works for you!! Give it a chance though, most things do have some s/e in the beginning.
~Jade
Posted by Zyprexa on February 24, 2009, at 12:10:19
In reply to to Zyprexa, posted by Jeroen on February 23, 2009, at 16:27:30
Glad to hear it!
This is the end of the thread.
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