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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 15 of 15. This is the beginning of the thread.
Posted by lymom3 on December 6, 2006, at 17:07:48
Anyone else have Abilify swell up their legs and feet like bratwursts on a grill? Even a diuretic isn't helping much; for sure no help by the end of the day.
It is helping so much but I can't even wear my regular shoes any more..wide widths are even tight. It might have to go. Ugh.
Lisa
Posted by Phillipa on December 6, 2006, at 17:27:35
In reply to Abilify and peripheral edema, posted by lymom3 on December 6, 2006, at 17:07:48
Still?????Love Phillipa
Posted by lymom3 on December 6, 2006, at 17:29:40
In reply to Re: Abilify and peripheral edema » lymom3, posted by Phillipa on December 6, 2006, at 17:27:35
Still...unfortunately. If there is a stupid side effect, chances are I'll get it... Only on the meds that actually help though it seems.
Posted by SLS on December 8, 2006, at 6:12:40
In reply to Abilify and peripheral edema, posted by lymom3 on December 6, 2006, at 17:07:48
> Anyone else have Abilify swell up their legs and feet like bratwursts on a grill? Even a diuretic isn't helping much; for sure no help by the end of the day.
>
> It is helping so much but I can't even wear my regular shoes any more..wide widths are even tight. It might have to go. Ugh.
Hi Lisa.Edema is listed as an infrequent side effect of Abilify.
Sorry.
- Scott
Posted by lymom3 on December 8, 2006, at 10:19:22
In reply to Re: Abilify and peripheral edema, posted by SLS on December 8, 2006, at 6:12:40
How long would you suppose if I discontinued Abilify would it take for the swelling to go down. I'm on day 3 and it's not any different. That leads me to wonder if Provigil could be the cause? That is the only other thing that I added around the same time. Or possibly could one of those react with Lamictal or Inderal to cause edema?
Or maybe after 2 months of workups of every kind by every doctor something is wrong with me and I could start all the tests over? I feel like crap and am meaner than heck again so I'm thinking that I'll end my non Abilify experiment as I would think even with the long half life I should see some improvement by now.
Opinions anyone?
Posted by SLS on December 8, 2006, at 12:50:15
In reply to SLS or anyone? Input, posted by lymom3 on December 8, 2006, at 10:19:22
Abilify has a half-life of 4 days. If it is indeed the culprit in causing the edema, I suppose it might take longer than 3 days to see a difference.
- Scott
Posted by TrishP on December 9, 2006, at 11:07:21
In reply to Re: SLS or anyone? Input, posted by SLS on December 8, 2006, at 12:50:15
> Abilify has a half-life of 4 days. If it is indeed the culprit in causing the edema, I suppose it might take longer than 3 days to see a difference.
>
>
> - ScottI thought it was my thyroid - but I had it checked and it was fine. My hands, feet, face and whole body have swollen up. I look fat.
Is there any way to counter this or will it go away after a while?
Posted by lymom3 on December 9, 2006, at 13:42:59
In reply to Me too!, posted by TrishP on December 9, 2006, at 11:07:21
How about clenching your jaw? I seem to be having a huge problem with that. I have been on a diuretic for over a week now and the swelling is not any better with that than it was before. I'm over the 30 day mark on Abilify at this point; hard to imagine it will ease up after this long. Monday I talk to the pdoc so we'll see what happens then. As much as it has helped my mood, I am about done with the whole situation.
Posted by TrishP on December 10, 2006, at 14:06:09
In reply to Re: Me too! » TrishP, posted by lymom3 on December 9, 2006, at 13:42:59
> How about clenching your jaw? I seem to be having a huge problem with that. I have been on a diuretic for over a week now and the swelling is not any better with that than it was before. I'm over the 30 day mark on Abilify at this point; hard to imagine it will ease up after this long. Monday I talk to the pdoc so we'll see what happens then. As much as it has helped my mood, I am about done with the whole situation.
I totally understand. I stopped it for a few days and started back up again and I trying to deal with the akathesia when the edema started up. I think I had the teeth clenching in my sleep early on. We probably started about the same time - around first of November I think.
I just don't know what I would go to now. I'm going to stick it out a little longer. My next appt is at the beginning of Jan. We'll see.
Posted by stargazer on December 10, 2006, at 14:52:45
In reply to Abilify and peripheral edema, posted by lymom3 on December 6, 2006, at 17:07:48
Hi,
I saw your post on the SE of peripheral edema...is your doc concerned about this?
I always thought PE was a sign of congestive heart failure and if so, I would have thought the doc would have taken you off Abilify rather than risk heart failure.
If it is related to CHF, isn't this a more serious SE indicating you should not be on it or at least requiring a refrral to a cardiologist?
Peripheral edeam is a pretty significant SE...Just my opinion.
Stargazer
Posted by lymom3 on December 10, 2006, at 16:38:54
In reply to Re: Abilify and peripheral edema/Is doc concerned?, posted by stargazer on December 10, 2006, at 14:52:45
I know that I personally have had every blood test, ultrasound, xray known to mankind and there's nothing wrong with me that anyone can find except that I'm a pain in the butt to medicate.
I do take a low dose of Lamictal. When I tried a higher dose that would be therapeutic, I get side effects that I can't tolerate (excessive bruising, purple spots). I wonder if the Abilify could interact with the Lamictal and cause side effects from the Lamictal that I didn't have before at the lower dose?
I know that I have another month before my pdoc appointment. I skipped my dose of Lamictal this morning (only 25mg in am and 25mg in the pm) and my jaw clenching has been much less today. Of course, I also skipped my Abilify last night. I had quit taking it for a few days and then started again. Swelling is about the same still though.
I'm probably going to be a wreck by the time I'm done figuring out what is causing my problems!!
Posted by Phillipa on December 10, 2006, at 19:14:01
In reply to Re: Abilify and peripheral edema/Is doc concerned?, posted by lymom3 on December 10, 2006, at 16:38:54
No doubt about that it's only natural. I will support you emotionally. But listen to stargazer. Love Phillipa ps you know I care
Posted by lymom3 on December 10, 2006, at 20:09:02
In reply to Re: Abilify and peripheral edema/Is doc concerned?, posted by stargazer on December 10, 2006, at 14:52:45
I have had an ECG, a chest xray, blood tests for everything to include BNP, electrolytes, CMP etc. Also the doc said that the swelling is non pitting edema which is not associated with CHF. Abilify, Lamictal and Provigil all have edema listed as a side effect. I feel like I've covered my bases here. I do take it seriously, I just hate to have to back off all my meds to find out which thing or interaction of things is causing me grief this time.
I get so many stupid side effects that others rarely get that it seriously limits my med choices. I think that next in line with my pdoc was Trileptal which I don't know too much about. I guess I'll find out more about that tomorrow when I talk to him though.
Posted by Phillipa on December 10, 2006, at 21:51:45
In reply to Re: Abilify and peripheral edema/Is doc concerned?, posted by lymom3 on December 10, 2006, at 20:09:02
I took low dose trileptal discontinued it as my insurance which I have none now . I think it was closed to $200. But I didn't have side effects. l50mg was what I was taking supposed to go up to 300mg didn't happen. Thanks for reminding me. You know it's tegretol with an extra oxygen ion learned it here but don't know what it means. Love Phillipa
Posted by stargazer on December 11, 2006, at 19:55:41
In reply to Re: Abilify and peripheral edema/Is doc concerned?, posted by lymom3 on December 10, 2006, at 20:09:02
Hi,
just curious what are BNP and CMP? I am not familiar with those abbreviations.
Glad to hear you had the workups for the edema, that was my concern.
SG
This is the end of the thread.
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