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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 25 of 37. This is the beginning of the thread.
Posted by Jeroen on February 9, 2006, at 10:58:09
hi, im so sick off it, my TD, dystonia stays,
i dont want to go into hospital again to try clozaril, what if this drug turns me into a zombie like all ones, then they will keep my there like a freaking moron. (sorry to say)
i do need blood monitoring, i dont know what to do........ PLEASE
Posted by ed_uk on February 9, 2006, at 15:44:48
In reply to TOED UK Clozapine for attempt reverse TD by geodo, posted by Jeroen on February 9, 2006, at 10:58:09
Hi J
Is there any possibility that your doc might let you try clozapine without admitting you to hospital?
Ed
Posted by Jeroen on February 9, 2006, at 16:05:08
In reply to Re: TOED UK Clozapine for attempt reverse TD by geodo » Jeroen, posted by ed_uk on February 9, 2006, at 15:44:48
first i will call my doc tomorrow and ask for cogentin as a last try, if this fails then i will start clozapine therapy, i need to give this a try. nothing worked so far :(
im not sure about that, there is a rule he said clozapine is only started in hospital for side effects
Posted by SLS on February 9, 2006, at 16:08:01
In reply to TOED UK Clozapine for attempt reverse TD by geodo, posted by Jeroen on February 9, 2006, at 10:58:09
Can you be more specific as to what you are experiencing? It might be more helpful if you were to provide factual descriptions rather than to ascribe medical labels, which can confer misdiagnosis.
Is there any history of Tourettes, OCD, or ADHD in your family?
- Scott
Posted by Jeroen on February 9, 2006, at 16:59:31
In reply to Re: TOED UK Clozapine for attempt reverse TD by geodo » Jeroen, posted by SLS on February 9, 2006, at 16:08:01
no, but my nephews have also social withdrawal problems but not as bad as mine, i used to be a social guy, hanging out with friends on a weekend at bowling, play some snooker, drink a few beers (no abuse) somethimes :), smoke marlboros, go on vacation and at nights having fun with my best friends on beach tell storys while having a smoke (not much and NO DRUGS i ever used). my misery started on 14 years old and now im 22 and the tardive dyskinesia affected my social life on 21 by geodon JUST WHEN MY LIFE WAS ABOUT TO CHANGE INTO SOMETHING SPECIAL, A ROMANTIC RELATIONSHIP WITH A GIRLFRIEND. worst happy birthday ever, i dont like exposing myself but sadly as it is, im just so sad.... starting at 14 years old i got problems into school because of this disorder, it went even that bad that people insult me, because i didnt feel good anymore against my will, i desperate cryed in myself for help but i didnt know who to ask for, so i went to psychiatrist and he prescribed me RISPERIDONE (RIsperdal) i was a zombie, total screwed, im affraid of dying and missing all the good things like havinga social life again like in the ages. boy i sound stupid!
maybe i have ADHD, schizophrenia, but the people i deal with at the hospital OVERDRUG PEOPLE. i dont know... i dont hallucinate and hear voices. im at this moment happy with any day i get and i can see the sun shining and hugging my cat :)i think of other children who also have a hard time out there, i found a page with nightmare storys about geodon in a hospital about a nurse who is really bad that people get high EPS from it. not only in eyes but tongue and stuff. and doctors who dont prescribe meds on time to prevent.
well i do have a broken heart for a year now. and i really miss her a bit. i think shes happy, good
Posted by Phillipa on February 9, 2006, at 19:15:26
In reply to TOED UK Clozapine for attempt reverse TD by geodo, posted by Jeroen on February 9, 2006, at 16:59:31
Jeroen I'm sorry you are still hurt by your old girlfriend. I know you will meet another one when the time is right. And I know you will get better. You've been getting better so far. Love Phillipa
Posted by SLS on February 10, 2006, at 6:44:06
In reply to TOED UK Clozapine for attempt reverse TD by geodo, posted by Jeroen on February 9, 2006, at 16:59:31
I forget, have you tried clonidine or Strattera?
- Scott
Posted by Jeroen on February 10, 2006, at 7:44:41
In reply to Re: TOED UK Clozapine for attempt reverse TD by geodo, posted by SLS on February 10, 2006, at 6:44:06
no what is that?
Posted by SLS on February 10, 2006, at 8:20:34
In reply to Re: TOED UK Clozapine for attempt reverse TD by geodo, posted by SLS on February 10, 2006, at 6:44:06
Clonidine is a drug used sometimes to treat both tardive dyskinesia and tic disorders. It is known to act as an agonist at NE alpha-2 receptors. Strattera is used for ADHD and can also help ameliorate tics. It is a NE reuptake inhibitor.
- Scott
Posted by ed_uk on February 10, 2006, at 16:21:59
In reply to Re: TOED UK Clozapine for attempt reverse TD by geodo, posted by Jeroen on February 10, 2006, at 7:44:41
Hi Jeroen
Phillipa is right, you have made a lot of progress over the last few months. The Seroxat has helped you especially. Give your cat a hug from me :)
Ed
Posted by Jeroen on February 10, 2006, at 18:14:11
In reply to Re: TOED UK Clozapine for attempt reverse TD by geodo » Jeroen, posted by ed_uk on February 10, 2006, at 16:21:59
i dont call TD improvement in my or anyones health like any other disease.
if doc doesnt prescribe cogentin or if it doesnt treat then i will get fazaclo or clozapine witouth blood monitoring, sounds very dangerous aint it?but i can call emergency room as soon i get flu symptoms agrycanolis,
what other risks are there? i asked my psy doctor talk about my eyes and he said no!
Posted by ed_uk on February 11, 2006, at 8:58:54
In reply to Re: TOED UK Clozapine for attempt reverse TD by geodo, posted by Jeroen on February 10, 2006, at 18:14:11
Hi Jeroen
>i dont call TD improvement in my or anyones health like any other disease
I was talking about the recent improvement in your depression and anxiety.
>i will get fazaclo or clozapine witouth blood monitoring, sounds very dangerous aint it?
Yes, it is. I don't think you will be able to obtain clozapine on the internet. Anything you buy which 'claims' to be clozapine is probably a fake. Clozapine is very tightly controlled compared with most drugs. Most pharmacies cannot dispense clozapine, only licensed pharmacies are permitted to supply it.
The dose of clozapine may need to be decreased when it is taken in combination with Seroxat.
>what other risks are there?
Potential side effects of clozapine....
1. Agranulocytosis - the most well known risk of clozapine. Fever may be a symptom, but clozapine can also induce a fever in the absense of agranulocytosis.
2. Seizures - common at high doses
3. Dizziness and fainting, low blood pressure
4. Certain types of heart disease - rare
5. Weight gain, obesity - common
6. Drowsiness, sedation - can be severe
7. Rapid/increased heart rate - common
8. Nausea/vomiting
9. Constipation - common. Bowel obstruction occurs occasionally.
10. Increased dreaming, unusual dreams, nightmares
11. Headache
12. Tremor
13. Excessive salivation, drooling during sleep 'wet pillow'. This is a very common side effect. Dry mouth may also more rarely.
14. Urinary incontinence
15. Sweating
16. Visual disturbances
17. Restlessness, agitation, confusion
18. Disturbance of sexual function, specifically ejaculation
19. Disturbance of liver function, hepatitis
20. Rash
21. Nasal congestion
22. Neuroleptic malignant syndrome - rare
23. Hyperglycemia and Diabetes Mellitus
24. Increased risk of DVT (deep vein thrombosis) and pulmonary embolism.
Regards
Ed
Posted by Jeroen on February 14, 2006, at 13:36:13
In reply to Side effects of clozapine (Clozaril) » Jeroen, posted by ed_uk on February 11, 2006, at 8:58:54
hi, i just spoke today with my doctor about the TD and cogentin, he said its same class as AKINETON and might make things worse. whats your opinion.
he also admitted Clozapine can treat and even reverse TD after 2 to 6 months but it has lot of risks as side effects, people died on this drug. he said people on where i stayed 8 months many are taking it because not respond to other drugs
he said its an option for me... but i need to get hospitalized again for this... and i dont want to go at this time there. i am much improved as you said, the magnesium and herb are making things somethimes better
i think (hope) Clozaril will cure my eyes. what should i do... im doing not bad on seroquel it is helping and i have a life, but i dont go out anymore and stuff, so i do want to risk it but when? i can get a legal prescription for Fazaclo or Clozapine witouth going to hospital, but its too dangerous so i dont wanna do that....SHOULD I TRY IT WITHIN A FEW MONTHS GET HOSPITALIZED AGAIN FOR THIS TREATMENT? LOT CAN GO WRONG... OR MAYBE THERE IS A SMALL CHANCE IT GET FIXED..... i dont know
please bob dont delete my post, not doing anything illegal. thanks
Posted by Jeroen on February 14, 2006, at 13:42:29
In reply to Side effects of clozapine (Clozaril) » Jeroen, posted by ed_uk on February 11, 2006, at 8:58:54
he said its a possible treatment (cure), but im doing not bad, i wanna get back to school. i felt good talking with my doctor, and i left the hospital happy.
but strange thing is he didnt knew what cogentin is, he looked it up on google.
Posted by ed_uk on February 14, 2006, at 16:20:17
In reply to TO EDUK I SPOKE WITH MY DOCTOR, posted by Jeroen on February 14, 2006, at 13:36:13
Hi J
>hi, i just spoke today with my doctor about the TD and cogentin, he said its same class as AKINETON and might make things worse. whats your opinion.
That's right, it is in the same class as Akineton. Are Cogentin tablets available in Belgium? Perhaps they're not, which could be why your doctor hadn't heard of Cogentin.
>SHOULD I TRY IT WITHIN A FEW MONTHS GET HOSPITALIZED AGAIN FOR THIS TREATMENT? LOT CAN GO WRONG... OR MAYBE THERE IS A SMALL CHANCE IT GET FIXED..... i dont know
I wouldn't try it yet J, too many side effects. It might be an option for the future though. What do you think about my Botox idea?
Ed
Posted by Jeroen on February 15, 2006, at 11:59:18
In reply to Re: TO EDUK I SPOKE WITH MY DOCTOR » Jeroen, posted by ed_uk on February 14, 2006, at 16:20:17
i cant do botox, option is out of the question
Posted by ed_uk on February 15, 2006, at 14:51:54
In reply to TO EDUK NO BOTOX, posted by Jeroen on February 15, 2006, at 11:59:18
Hi J
Why not?
Ed
Posted by Jeroen on February 15, 2006, at 15:02:27
In reply to Re: TO EDUK NO BOTOX » Jeroen, posted by ed_uk on February 15, 2006, at 14:51:54
i dont want it.
Posted by ed_uk on February 15, 2006, at 15:04:43
In reply to Re: TO EDUK NO BOTOX, posted by Jeroen on February 15, 2006, at 15:02:27
You are frightened by the idea?
Ed
Posted by Jeroen on February 15, 2006, at 15:57:47
In reply to Re: TO EDUK NO BOTOX » Jeroen, posted by ed_uk on February 15, 2006, at 15:04:43
ALL MY PSY DOCS SAY NO BECAUSE....
i have nystagmus (uncontrolled eye movement) and blepharospasm (only botox used for that not nystagmus)
it has improved by 35%+ id say 40%+ i think, also im ok with seroquel at this moment 100 AM and 200 PM, seroxat 30 mg, uni tranxene 15 mg (twice day), im stable, im following music lessons each week.i have ordered lecithin i will take that also twice a day. im ok at this moment, im living a life. not like before but its better... my doctor said yesterday i wont add cogentin it might make things worse... but he did agreed with Clozaril, but its a hard drug... my psy doc said Seroquel has same system like Clozaril.
should i low dosage abilify to my medicine cocktail like 5 mg or 2.5mg? maybe it will reverse the nystagmus..... BECAUSE on parts on brain where too much dopamine it will make it ok again. DYSTONIA is caused by dopamine blockage in the basial ganglia i think. i cant take more then 10 mg or i will get ugly side effects.
i dont know ed, what do you think of the abilify 2.5 or 5 mg? i did had lot of excessive blinking, but no uncontrolled eye movements with abilify sounds scary all
Posted by ed_uk on February 16, 2006, at 12:53:14
In reply to ALL MY PSY DOCS SAY NO BECAUSE...., posted by Jeroen on February 15, 2006, at 15:57:47
Hi Jeroen
>i have nystagmus (uncontrolled eye movement) and blepharospasm (only botox used for that not nystagmus)
That's right, the Botox wouldn't help the uncontrolled eye movements, only the blepharospasm.
>im following music lessons each week
Me too. I've just started playing the oboe again. I used to play but I gave up.
>i dont know ed, what do you think of the abilify 2.5 or 5 mg? i did had lot of excessive blinking, but no uncontrolled eye movements with abilify sounds scary all
I'm concerned about the excessive blinking you had on Abilify. What dose did you take previously?
Take care
Ed
Posted by Jeroen on February 16, 2006, at 12:55:47
In reply to Re: ALL MY PSY DOCS SAY NO BECAUSE.... » Jeroen, posted by ed_uk on February 16, 2006, at 12:53:14
5 10 and 15 WOW 15 WAS NIGHTMARE
Posted by Jeroen on February 18, 2006, at 14:28:15
In reply to Re: ALL MY PSY DOCS SAY NO BECAUSE.... » Jeroen, posted by ed_uk on February 16, 2006, at 12:53:14
hi eduk, im curious what my psy doc said about Clozaril. it can reverse the process maybe or treat he said but side effects :(. there is a little chance to it, but he mentioned its hardcore. diabetes and stuff.
and i need to get hospitalized again. MY WISH IS... *SNIF* to get back to my studys in september, be happy and meet new people.i ordered lecithin and i will retry it, maybe a chance it will work and no need for clozaril
Posted by ed_uk on February 18, 2006, at 14:45:45
In reply to TO EDUK... serious, posted by Jeroen on February 18, 2006, at 14:28:15
Hi J
What would you like to study?
Ed
Posted by Jeroen on February 18, 2006, at 17:03:20
In reply to Re: TO EDUK... serious » Jeroen, posted by ed_uk on February 18, 2006, at 14:45:45
dunno yet, resume economics i guess, no informatics, i want a SOCIAL LIFE and not a geek life, go out and have fun while i can. i lost my good feeling, if it aint return then theres no reason for me to exist
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