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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 4 of 4. This is the beginning of the thread.
Posted by iforgotmypassword on January 28, 2006, at 18:20:54
"I've felt so completely immobile, as though I was withdrawn inside myself, and unable to get the impulses towards movement far enough out of my brain for my body to work."
i feel deeply like this explains how i feel all the time, and almost categorizes the root everything i am experiencing so severely now and for so many years, yet no one thinks it is anything but characterological fault. it IS PARALYSIS. it is having your mind almost as if almost being erased except for deadening factual data, segmented into inaccessible compartments, then being filled with cement and locked inside, where you cannot reach out to anybody.
i can talk and babble, but the paralysis extends so that i can only talk meaninglessly and can't say anything with any feeling or purpose, or even any actual relevance to me like i actually exist in the world. being around people is an anaesthetic and i can only be complacent and supportive of their arguments in their presence.
i just wanted to thank you for what you said.
please let me know if you ever find anything that helps, i am extremely desperate myself. (i am looking at lyme and the positive test i've had, but all doctors i see tell me to ignore it, and that my problems are characterological, not biological... :( )
Posted by Phillipa on January 28, 2006, at 18:37:00
In reply to Racer, posted by iforgotmypassword on January 28, 2006, at 18:20:54
Would you believe the health dept called me yesterday about my lyme titer being poisitive. I was sent to another doc who did further testing and said to forget the lymes that I had had enough of antibiotics. The man at the health dept said that he would send brochures to me. Asked if I was still on antibiotics. When I said that I am always tired he said that a lot of lyme's people told him that. So what do I think do I have damage from the lymes. Confused to say the least. Fondly, Phillipa
Posted by iforgotmypassword on January 29, 2006, at 0:08:44
In reply to Re: Racer » iforgotmypassword, posted by Phillipa on January 28, 2006, at 18:37:00
further antibiotics may help. some people seem to get no better on oral antibiotics and require IV antibiotics, especially neuropsychiatric and fatigue patients.
Rocephin appears most effective, but then you likely lose your gallbladder... i would do it, if i had a doctor willing in canada. :(
besides Ursodiol (Actigall, Urso) apparently can help... and the IV thing can be done on only four days a week in pulsed therapy, which may help.
Posted by ed_uk on January 29, 2006, at 12:04:16
In reply to Racer, posted by iforgotmypassword on January 28, 2006, at 18:20:54
IFMP,
I would like to meet you and talk.
Ed
This is the end of the thread.
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