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Dr. Bob is Robert Hsiung, MD,
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Posted by headachequeen on April 12, 2005, at 13:43:25
In reply to Re: Kat and everyone, posted by stresser on April 10, 2005, at 20:06:03
> Did I understand you correctly about having lost MORE weight since surgery on topamax? My daughter is back up to 400mg again, as I have titrated her up.
The slow titrating does take time but it is the safest way and pays off in the long run...and yes I have lost more weight, weight I am beginning to be unable to lose...
the other day I was trying to find something to wear to an occasion that needed something that fit reasonably and looked like an abandoned child in almost everything I own...
had to borrow clothes from the gal next door and I have always thought of her as needing a few good meals...
the 'stupids' should not interfere with the slow increases
sometimes we just forget things -- even people not on topomax do this...
at the moment I am busy trying to develop some sort of appetite... but with all grains ruled out that adds to the fun... but I feel so much better...
I am also trying IET and Reiki (I use it on my dogs and it is so good for them so thought it might help me in my desire to take back my life...)
Right now they are in serious mope mode as their big brother has gone back on his 'adventures'... funny how empty the house feels with his leaving...
and I will need more than topomax to calm my moods until he fetches up safely back in Canada again...
whose idea was it that he grow up to be a soldier anyway <s>
As I am back on antibiotics, tegretol and I are not speaking to each other... no risks wanted ... and I am quite happy about that, but they did boost my to Topomax again to fill in for the missing tegretol... seems to me there is a message there.. if it can fill in in the short term, why not always???????????
tell M I am here really rooting for her successes and yours
kat
Posted by headachequeen on April 12, 2005, at 13:44:38
In reply to Re: topomax pain migraine relief - side effects » headachequeen, posted by Interested on April 10, 2005, at 12:54:58
> I took my first dose of Topamax 25 mg. last night, and by 2:00 a.m. I woke up very nauseated and drugged, crummy, didn't sleep, felt absolutely terrible! I stayed in bed today until noon. Do these side effects wear off? I can't go to work feeling like this.
>
> Can you cut the pill in half?Yes they do and no you shouldn't
kat
Posted by headachequeen on April 12, 2005, at 13:48:19
In reply to Re: topomax pain, posted by rainy on April 11, 2005, at 4:43:20
> Kat, I read the BP Paintmom referred to as bipolar, not blood pressure. In this context that makes more sense.
> I have two concerns. One is that at 400 mgs Topamax seems to be doing a good job of mood stabilizing, although my new pdoc is not too happy with prescribing off lable and would rather go to lithium. (Help!) It has completely pooped out on any appetite suppression properties it ever had and I am gaining weight hand over fist on an increased dose of nefazodone HCL (genereic for Serzone). 2.5 pounds in two weeks.
> Second, the Topamax tingling in both hands has increased considerably, after a long interval of not happening at all. Have any of you noticed this? I'm wondering if it's the Top, or the fact that the arthritis in my neck is pressing on some nerve endings. Which ever it is, it's disconcerting.
> Thanks for any wisdom about Topamax to lithium and trickster tingling.
> rainy
>
>
>Oh, Rainy, with all the things that lithium does to suppress personality and so many other awful things, I would run screaming into the night to avoid it... I remember when my doctor thought it might be the answer for me when my epilepsy was presenting as depression or manic depression, rather... at least that is how he interpreted it...
this thing is so strange...
everything I read and heard from people who knew the drug said don't take it...
and the topomax tingling...
well, I wonder about that...
would like to experience it actually...
I would be inclined to suspect the pressure on the nerve endings...
any tingling around here is always a minor seizure...
any change would be good...
kat
Posted by headachequeen on April 12, 2005, at 13:49:46
In reply to Re: topomax pain, posted by paintmom on April 11, 2005, at 20:10:43
> > Kat, I read the BP Paintmom referred to as bipolar, not blood pressure. In this context that makes more sense.
> so sorry for the confusion
> Bipolar is what I meant...
> still getting used to having it...guess its hard to actually write it out LOLLunchbag letdown!!! Here I was hoping for a miracle side effect....
<ggg>
kat
Posted by headachequeen on April 12, 2005, at 13:53:06
In reply to Re: topomax pain-ramping schedule » hurtinhead, posted by Cairo on April 12, 2005, at 9:25:50
> I've been prescribed Topamax for Fibromyalgia pain . Because I am extremely sensitive to meds, my doc suggested the following schedule: 15mg at bedtime for two weeks (during that time I felt very dizzy and had difficulty writing, like the instructions to form the letters couldn't make it from my brain to my hand; it went away after two weeks. Fatigue was extreme, but is better now); now we're up to 15mg twice a day; after that 25mg at bedtime for one week, then increase at weekly intervals by 25mg, always adding the extra 25mg at bedtime. If fatigue or other side effects are too much, stick to previous dose for two weeks before increasing. If fatigue is too much, we may consider adding Provigil. She says that in her experience with Fibromyalgia and all the various meds she's tried with her patients, her "desert island" choice as of today is Topamax, though she is waiting for Pregabalin to be released in June.
At last a doctor with a slow approach to this...
My sister-in-law fell and broke her back... putting up Christmas lights in a tree... and has metal rods and pins and I don't know what all through and beside her spine as well as huge pain that sometimes requires morphine (she has a prescription for those days)
she was also given topomax to deal with the pain...
and the spasms of pain...
and it worked very well....
kat
Posted by stresser on April 12, 2005, at 21:11:09
In reply to Re: topomax, posted by spedmonkey on April 12, 2005, at 20:55:07
I really didn't know that topamax was given for pain until reading these past posts. I had read that sometimes it could be given...does this mean that those of us who take it shouldn't feel many aches and pains? -L
Posted by hurtinhead on April 13, 2005, at 11:21:03
In reply to Re: topomax pain-ramping schedule » hurtinhead, posted by Cairo on April 12, 2005, at 9:25:50
>Thanks for the input. After reading all the posts, I have decided to ramp up 25mg every 2 weeks. I have been on it 1 week now, and I was a bit sluggish at first, but I seem to be adjusting well. I also haven't had any more issues than usual with the stupids. I will be adding the next 25mg next week in the pm, and then 2wks later I will add the 3rd 25mg in the morning. That's the one I'm afraid of. I seem to do OK with taking it at night, I don't know how it will hit me once I start taking it in the morning as well.
I've been prescribed Topamax for Fibromyalgia pain . Because I am extremely sensitive to meds, my doc suggested the following schedule: 15mg at bedtime for two weeks (during that time I felt very dizzy and had difficulty writing, like the instructions to form the letters couldn't make it from my brain to my hand; it went away after two weeks. Fatigue was extreme, but is better now); now we're up to 15mg twice a day; after that 25mg at bedtime for one week, then increase at weekly intervals by 25mg, always adding the extra 25mg at bedtime. If fatigue or other side effects are too much, stick to previous dose for two weeks before increasing. If fatigue is too much, we may consider adding Provigil. She says that in her experience with Fibromyalgia and all the various meds she's tried with her patients, her "desert island" choice as of today is Topamax, though she is waiting for Pregabalin to be released in June.
>
> Weight loss doesn't kick in until higher doses, she said, as does muscle relaxation. Hope this helps.
>
> Cairo
>
> > I have had issues with migraines for years now. I am a 34 year old woman, and back in 2000 the doctors think I had a small stroke, as they found a "lacunar infarct" on my MRI, accompanied by localized numbness in my face and extremities. Therefore, the docs are afraid to prescribe the normal migraine meds like Zomig and Imotrex due to my "stroke" history. So today, a neurologist I've just begun seeing prescribed Topamax to prevent the migraines, since I can't take the other stuff. However, after reading these threads, I am scared as hell about it. First, I am an attorney and I can't afford to get "the stupids." (Especially because I've just started a new job and the stupids can get you fired right quick, although I know popular opinion is who would notice a lawyer with a case of the stupids)
> > Second, I could stand to lose about 60 lbs (all gained w/in the last year-coincidently my first year of work as an attorney.) However, I'd rather lose weight on my own than get stupid.
> >
> > Third, my doctor has me starting Topamax at 25mg daily for the first week, and then increasing 25mg each week until I reach 100mg. Is this too fast? I'm really afraid of the cognitive side effects. Do you all think it would be OK to double the time it takes me to work up to 100mg?
> >
> > Also, please, somebody tell me this drug did not make you incapable of thinking straight.
> >
>
>
Posted by stresser on April 13, 2005, at 12:44:22
In reply to Re: topomax pain-ramping schedule, posted by hurtinhead on April 13, 2005, at 11:21:03
I was able to think straight on this drug, well.....as straight as I always could, haaa! I increased 25mg every two weeks. My daughter increased every week, because her doctor wanted her up faster because she is bipolar and she needed the effects of the drug faster. She really didn't have any trouble with that. I don't think you should go any fast that one week, and if you notice anything, then back down until the symptoms regress, and add in the 25mg again. I have done that with her in the past, and it worked very well. I remember when she first started taking topamax, I was very nervous for her. No big deal, really. Everyone is different, and neither of us have had serious trouble yet.
I know you are worried about getting stupid, and I am as well. I have not seen it in myself or my daughter, and I am taking 200mg per day. She is taking 400mg per day, and hasn't said anything about congnitive problems yet. If she does, we will back down until they go away. -L
Posted by rainy on April 13, 2005, at 16:16:45
In reply to Re: topomax pain-ramping schedule, posted by stresser on April 13, 2005, at 12:44:22
I would be very leery of a one week tiratation schedual. At least from my aging standpoint--I was 60 when I started the drug and already a veteran of a number of "psychotropic medications." M is what, 16 and you're not so old yourself. I think that age may have some effect on how we experience cognitive problems, which include forgetting events, other people's diagnoses, this kind of stuff.
Even now, at a steady 400 since mid January (I think) when I'm under stress I tend to forget stuff easily. It's there, and a neurologoist reminded me that all of this Topamax stuff is reversible--except maybe the bone stuff, we didn't talk about that--but I have problems with recall and word finding. Ha Ha, I say, Senior moments. I'm 62. Senior my eye.
rainy
Posted by headachequeen on April 13, 2005, at 18:31:54
In reply to Re: topomax pain-ramping schedule, posted by rainy on April 13, 2005, at 16:16:45
> I would be very leery of a one week tiratation schedual. At least from my aging standpoint--I was 60 when I started the drug and already a veteran of a number of "psychotropic medications." M is what, 16 and you're not so old yourself. I think that age may have some effect on how we experience cognitive problems, which include forgetting events, other people's diagnoses, this kind of stuff.
> Even now, at a steady 400 since mid January (I think) when I'm under stress I tend to forget stuff easily. It's there, and a neurologoist reminded me that all of this Topamax stuff is reversible--except maybe the bone stuff, we didn't talk about that--but I have problems with recall and word finding. Ha Ha, I say, Senior moments. I'm 62. Senior my eye.
> rainy
I agree with Rainy about the one-week titration.. that is asking for problems...
actually it is running headlong into them, sort of like driving a car headlong down the railroad tracks straight into a runaway freight engine thundering downhill....I have been on Topomax for two-and-a-half years now and am presently at 600 mg a day, three in the morning and three at night...
I have no cognitive problems aside from the ones caused by my condition and while I would like to be able to blame them on Topomax or Tegretol or Holy Cloboazam, Batman!, that would mean that they were regular or frequent, whereas mine happen only on 'our bad days"
When I am in one of my saran wrap days as Rainy, I think, so aptly described it, trying to fight my way out of a room filled with cotton wool or marshmallows or whatever it is that my world becomes, then my cognitive bit kicks in and words disappear --
it is so frustrating to be unable to think of the word I need or want, like learning English all over again...
I learned it once as a child, then came back to English Canada in my teens and learned it again...
now I have the agony of learning it again when these days kick in...
I know the word is there and I keep coming up with words that sound like what I mean and it is totally
agonising for a person who once was always articulate and precise in her speech and writing to have to struggle to be understood...
I find myself using a lot of hand signals, or slipping back into French until the English words come to me...
when I came to in Emergency last winter, I had no English at all, which was fine as the nurses and some of the doctors were bilingual and the nurses told me not to worry about it...
but I knew something was wrong... then it hit me... my husband does not speak English...
I didn't know the day of the week, how many fingers they were sticking in front of my face, and I did not know my name, but I knew that my husband spoke only English, so it was NOT all right unless one of them was bilingual and coming home to translate for me...
Give them credit, no one laughed...
When I am not fighting out of the marshmallow world, then I have no problems...
so I cannot blame even the high dose of topomax for the cognitive lapses...
can't even tag that wretched old tegretol for it...and lately the few times I have turned on the television set, it seems to be a medical programme with someone in the midst or beginning or later effects of some dire epileptical seizure or a problem that comes from a combination of childhood ailments attacking immune systems and the drugs given to combat the epilepsy...
oh tht gives me the warm fuzzies...there I have vented...
but DO NOT, repeat DO NOT titrate faster than two week intervals... you are in a danger zone otherwise....
and if it is done slowly there should be no cognitive problems...Rainy, there is nothing Senior about you...
you are the youngest in mind soul I know....
and I think of you often lately...
shall be in direct touch soon... so much to tell you shall have to write a book <sigh>
kat
Posted by paintmom on April 13, 2005, at 21:13:53
In reply to Re: topomax pain-ramping schedule » rainy, posted by headachequeen on April 13, 2005, at 18:31:54
Rainy.....I assumed you were in your thirties....you have a young spirit..
PM
Posted by rainy on April 14, 2005, at 7:27:41
In reply to Re: topomax pain-ramping schedule » rainy, posted by headachequeen on April 13, 2005, at 18:31:54
That must be why the twenties-something clerk at Trader Joe's called me "Dear" yesterday and I, in the clutches of an impending hypomanic episode quired sweetly if I'd heared correctly. "Did you call me 'Dear'?" I asked menacinely as if I were going to chew his tail off. Changing it to "M'am" or however you spell it allowed me to escacpe the store with some dignity and internal laughter instead of the steady growl increased nefazodone seems to be inducing in me lately.
Paintmom, I feel like I'm in my 30's. My mother's favorite adjective for me was immature--she feared that I'd never grow up, whatever that means. I am not elegant and I have to face the grouchies on a daily basis and don't do it with much grace. I swear with enjoyment, but too much. Since increasing the AD I've made some life decisions, like Sunday will be my last church service in the denomination where my husband has been minister for 30 some years--just can't stand it any longer (not church--we've only been here for less than 2 years) and I am not, I repeat NOT cook supper or cleaning up after it at least one night a week.
I am afraid of gaining weight and I want to go up a little more on this medication because I think I'm less depressed but the Topamax has stopped its magic re eating disorder which has been a problem since I was 15, and there are other issues.
So age is like truth, variable, many sided and often up to the beholder and the one who experiences it.
I am no spring chicken but I'm not decrepit yet, either.
rainy
Posted by stresser on June 1, 2005, at 21:16:27
In reply to Re: topomax pain-ramping schedule » headachequeen, posted by rainy on April 14, 2005, at 7:27:41
I am wanting to get this thread back up, because several people have posted questions concerning Topomax. I know there are many of you that can offer valuable advice to people that are new to this medication. Thanks everyone!
Posted by Alvin on June 2, 2005, at 12:10:32
In reply to New to Topomax, posted by stresser on June 1, 2005, at 21:16:27
> I am wanting to get this thread back up, because several people have posted questions concerning Topomax. I know there are many of you that can offer valuable advice to people that are new to this medication. Thanks everyone!
>I took it (175 mg) for almost 2 years (and ended it about 2 years ago). Helped me out greatly taking the rough edges off moods and no weight gain (I didn't lose weight either). I experienced no side effects but discontinued it when I began to have some mild memory problems; overall it was very helpful when I needed it - I was able to continue with post-graduate courses while I was taking it, so memory problems weren't all that bad.
Posted by bridgey1128 on June 2, 2005, at 16:03:34
In reply to Re: New to Topomax, posted by Alvin on June 2, 2005, at 12:10:32
I had stopped taking it because at 250mg it started making me apathetic. My Dr was not happy about me stopping all the meds but I couldn't help it really because my insurance had been cut off. NOW I finally have it reinstated( That was SOOOO not worth the irritation!) and I am going back on only 50mg. When I went off I suddenly got REALLY hungry and I have been fighting it. I have only gained back like 7lbs but that is 7lbs too much! I lost 35 but it was really because of the Atkins diet I was on and the fact that it did help my appetite. I didn't lose any weight BECAUSE of the Topomax. But I am now back on it, starting SLOWLY, of course and hopefully it will help my weight come off again.
Posted by stresser on June 2, 2005, at 19:09:23
In reply to Re: New to Topomax, posted by bridgey1128 on June 2, 2005, at 16:03:34
Bridgey!!!!!!!
Oh my!!! I have missed you!
How great to see your post! What were you doing for your BPII, if you weren't taking any medications?My daughter and I never did lose any weight on the topomax. It has worked at leveling out our moods, but M takes Trileptal with hers as well.
Can you feel a difference at 50mg yet? Starting back over is a bear, I know that. My daughter had to do it in Jan., because she tried another medication. Titrating up again is long journey, especially when you know where you are going. It must be done. I think the seven pounds will come off, because a similiar thing happend to Kat, and she lost her re-gained weight again. She had to go off Topomax for something last winter.
M's hair is still falling out at a slow pace, but she is taking 300mg. When she lowered her dosage to 200mg, it slowed down a bit, but her moods were wacky. I am wondering if the doctor increased her Trileptal and lowered her Topomax, maybe her hair would stop coming out completely? It used to be really thick, and now it's just normal hair, like my hair.
I will let you know what happens after the doctor's appt. tomorrow! -L
Posted by paintmom on June 2, 2005, at 20:50:49
In reply to Re: New to Topomax, posted by stresser on June 2, 2005, at 19:09:23
Love the topamax...really leveled out my moods...I titered up VERY slowly...maxed out at 100mg....didn't really loose weight either....and you would think I would have lost a ton cause I virtually stopped the anit dep. that were making me blow up....but I am over 40...so times working against me....hahaha ...Anyway...only drawback is that I believe that the topamax is at the root of making my sleep problems 10x worse...
any thoughts or suggestions...I hate to have to find a whole new drug and start all over....
thanks all
paintmom
Posted by rainy on June 3, 2005, at 7:30:21
In reply to Re: New to Topomax, posted by paintmom on June 2, 2005, at 20:50:49
Hi, Paintmom. It's been so long since I've laid eyes on this board that I can't remember why you're taking Topamax. 100 mgs doesn't seem like a lot to me (I'm on 600.) You probably know that weight loss, if it's going to happen, usually doesn't occur until the Topamaxer reaches the 225 mg mark or above. Of course it's different for everybody.
As for sleep difficulties, my bottle says that it can cause drowsiness, although I've never noticed that--if anything it makes me edgy. What kind of sleep troubles are you having, if thats not too personal a question to ask?rainy
Posted by stresser on June 3, 2005, at 7:53:34
In reply to Re: New to Topomax » paintmom, posted by rainy on June 3, 2005, at 7:30:21
I don't have any sleep problems, and I think it's because I have to take Klonopin for my RLS at night. Sometimes Melatonin helps with sleep problems, and it's natural, so it won't affect you in any way. -L
Posted by bridgey1128 on June 3, 2005, at 9:06:07
In reply to Re: New to Topomax » paintmom, posted by rainy on June 3, 2005, at 7:30:21
To answer your question, I haven't been taking anything except an occasional Ativan but I have been doing fine. I DID notice as soon as I came off the Topomax that I slept like a LOG so I know it causes sleep problems. I even told a friend who is a counselor and she said, "So I guess you are sleeping better now." I guess that is a wide spread problem. I have noticed a tad more being impatient but to be honest I feel SOOO much better!! Well, I can ACTUALLY feel. Even at 250mg I felt apathetic and just had NO motivation to do anything. It was horrid. Oh and my bowels started working again. For me, Topomax slowed everything down in that area. I have just been back on 25mg for 2 days so far, so I haven't noticed anything. Even on the 25mg I am not as hungry, so that is a good thing.
Posted by paintmom on June 3, 2005, at 14:36:27
In reply to Re: New to Topomax » paintmom, posted by rainy on June 3, 2005, at 7:30:21
> Hi, Paintmom. It's been so long since I've laid eyes on this board that I can't remember why you're taking Topamax. 100 mgs doesn't seem like a lot to me (I'm on 600.) You probably know that weight loss, if it's going to happen, usually doesn't occur until the Topamaxer reaches the 225 mg mark or above. Of course it's different for everybody.
> As for sleep difficulties, my bottle says that it can cause drowsiness, although I've never noticed that--if anything it makes me edgy. What kind of sleep troubles are you having, if thats not too personal a question to ask?
>
> rainy
>HI rainy
T is for Bipolar II
Its been really great....I just got diagnosed in the past six months...was always diagnosed with depression...and just thought I snapped out of it really well...(hahahah)So its been a blessing for me....to finally know what my problem really is....and to find something that helps it!!I've always had sleep problems...I have Chronic Fatigue Syndrome...Apnea.....Insomnia....etc.....I have trouble falling asleep and staying asleep...and because of the apnea....my quality of sleep is poor. But since I've raised the topamax above 50mg....my sleep has been horrible!!!!!! I cant fall asleep and when I finally do...I wake up over and over again.
I am thinking I should probably ask my doctor to try something else...but I hate switching pysch meds...its such a drag....and I am a divorced mom...I don't want to get moody for my son. I can have some pretty freaky reactions to meds...I am very sensative and have been known to have the opposite reactions..(just like you said...topamax makes most people drowsy:)
You all on this board are so knowledgable and helpful...you are a godsend...thanks
Paintmom
Posted by paintmom on June 7, 2005, at 6:59:26
In reply to Re: New to Topomax » paintmom, posted by rainy on June 3, 2005, at 7:30:21
I talked with my psych nurse practitioner and we lowered my topamax from 100 to 50 yesterday. I took a little temazapam just to help me fall asleep cause I was punch drunk from being over tired...I swear I haven't slept thru the night in two months....and low and behold...I SLEPT 8 HOURS STRAIGHT!!!!!!!!!
I am so happy!
I am just a little nervous because I don't see the NP till next thursday....and I think I am going to have some issues on the lower dose. I mean the 100mg was perfect for me.....I felt very evened out. Lower and I was getting a little depressed.
Guess I will try to do natural stuff to help myself...exercise, eat right, and take my Omega 3's and B's...that really seems to help.
I am hoping that she adds a little something to the topamax that doesn't make me gain weight but will help to keep me on an even keel. I don't want to start getting all reactive again....I was that way my whole life and I hated it. It was like being a big raw open nerve.Well, I'll keep you guys posted.
All the best,
Paintmom
Posted by lara53 on June 7, 2005, at 8:05:47
In reply to Re: New to Topomax, posted by paintmom on June 7, 2005, at 6:59:26
Hi
Topomax is going to be one I suggest to pdoc today.Did you ever try lamictal? Doesn't seem to be for me.Thank you.
Laura
Posted by paintmom on June 7, 2005, at 9:04:50
In reply to Re: New to Topomax » paintmom, posted by lara53 on June 7, 2005, at 8:05:47
I never tried Lamictal but its on my list of ones to research along with tegretol and trileptal...why didn't it work for you??
thanks
PM
Posted by headachequeen on June 9, 2005, at 22:06:13
In reply to Re: New to Topomax, posted by stresser on June 2, 2005, at 19:09:23
> Bridgey!!!!!!!
>
> Oh my!!! I have missed you!
> How great to see your post! What were you doing for your BPII, if you weren't taking any medications?
>
> My daughter and I never did lose any weight on the topomax. It has worked at leveling out our moods, but M takes Trileptal with hers as well.
>
> Can you feel a difference at 50mg yet? Starting back over is a bear, I know that. My daughter had to do it in Jan., because she tried another medication. Titrating up again is long journey, especially when you know where you are going. It must be done. I think the seven pounds will come off, because a similiar thing happend to Kat, and she lost her re-gained weight again. She had to go off Topomax for something last winter.
>
> M's hair is still falling out at a slow pace, but she is taking 300mg. When she lowered her dosage to 200mg, it slowed down a bit, but her moods were wacky. I am wondering if the doctor increased her Trileptal and lowered her Topomax, maybe her hair would stop coming out completely? It used to be really thick, and now it's just normal hair, like my hair.
>
> I will let you know what happens after the doctor's appt. tomorrow! -L
>
>
>There are special shampoos and vitamin and mineral supplements for people with hair problems... that we can't discuss here...
however at 600 mg a day I am not having any hair loss at all. and I would notice it... so would my stylist!!! I have exceptionally thick hair, another redhead thing <g>
and have now decided to try another radical hair change... going from the short short spiked to a longer, layered look I think... it will take ten years for the hair to grow that long, but this is
my new mission
Somewhere in the posts I have read today I saw tegretol mentioned and I can't remember why...
nothing to do with topomax memory problems but strongly related to the epilepsy...
I have declared war on the condition and have also determined not to take the tegretol as my speech slurs and my mind loses words and concepts when I am on the stuff...
the past few weeks have been truly disastrous to the point that my primary care, who is leaving for the big city, has decided that if he is not happy with what he hears from the neuro when I finally see him on that emergency appointment, the one booked last January, that I shall see another one at once...
yesterday morning another seizure of a new sort, but when I finally came out of it, I had no idea of anyone or anything, who I was, where I was, the whole nine yards...
the topomax and clobozam seem to work to a degree, but if I try adding the tegretol even in a low dose, life becomes very challenging.
Never did like that stuff...kat
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