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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 23 of 23. This is the beginning of the thread.
Posted by bipolarspectrum on March 9, 2005, at 15:46:33
Hi,
I'm in the Toronto-area and I finally have a deep brain stimulation consultation... this would be for depression... hopefully everything works out but ill keep everyone updated as this treatment modality may potentially help many people!
bps
Posted by Maximus on March 9, 2005, at 19:43:09
In reply to Have a Deep brain stimulation consultation!!, posted by bipolarspectrum on March 9, 2005, at 15:46:33
Posted by The_Resistance on March 10, 2005, at 7:52:40
In reply to Have a Deep brain stimulation consultation!!, posted by bipolarspectrum on March 9, 2005, at 15:46:33
> Hi,
> I'm in the Toronto-area and I finally have a deep brain stimulation consultation... this would be for depression... hopefully everything works out but ill keep everyone updated as this treatment modality may potentially help many people!
Hi its always good to see people experimenting with new treatment.Best of luck, please keep us informed
Posted by Maxime on March 10, 2005, at 9:21:20
In reply to Have a Deep brain stimulation consultation!!, posted by bipolarspectrum on March 9, 2005, at 15:46:33
> Hi,
> I'm in the Toronto-area and I finally have a deep brain stimulation consultation... this would be for depression... hopefully everything works out but ill keep everyone updated as this treatment modality may potentially help many people!
> bps
Oh PLEASE let me know how it goes. My doctor is sending in the referal for me ... I'm in Montreal so living in Toronto for a month after the surgery is not a problem. I PRAY I get into the study.PLEASE post after the consultation!
Maxime
Posted by SLS on March 10, 2005, at 9:26:42
In reply to Have a Deep brain stimulation consultation!!, posted by bipolarspectrum on March 9, 2005, at 15:46:33
> Hi,
> I'm in the Toronto-area and I finally have a deep brain stimulation consultation... this would be for depression...GOOD LUCK !!!!
GOOD LUCK !!!! (Oops, I said that already).
> hopefully everything works out but ill keep everyone updated
You better! If you don't, I'm coming up to the Great White North and give you a form of deep brain stimulation that hurts. :-)
> as this treatment modality may potentially help many people!
Yes. You are a wonderfully altruistic person to think of others in such a way. Thank you.
- Scott
Posted by ed_uk on March 10, 2005, at 10:29:36
In reply to Have a Deep brain stimulation consultation!!, posted by bipolarspectrum on March 9, 2005, at 15:46:33
Hello!
Good luck :-) Deep brain stimulation is a very interesting idea.
Keep us posted,
Ed.
Posted by temoigneur on March 11, 2005, at 18:57:40
In reply to Have a Deep brain stimulation consultation!!, posted by bipolarspectrum on March 9, 2005, at 15:46:33
> Hi,
> I'm in the Toronto-area and I finally have a deep brain stimulation consultation... this would be for depression... hopefully everything works out but ill keep everyone updated as this treatment modality may potentially help many people!
> bps
Hi BPS, I wrote you yesterday as soon as i saw your post. Thanks for being so open about things. This is Ben in Vancouver, I was being considered for DBS in Florida, but they wanted a more 'pure' OCD case. I have mixed anxiety/OCD, and sent the highlights of my medical record to Dr. Lozano yesterday. You said you suffer from BP, and OCD, I guess they'll undoubtedly fill you in on what, if anything, is being done with OCD/anxiety, and dbs. This is unbelievable, I would be soooooo grateful, if you felt you could pass that info on, thanks so much, Ben
Posted by Phillipa on March 11, 2005, at 19:31:59
In reply to BPS, contacted Toronto about DBS Re: OCD Q. » bipolarspectrum, posted by temoigneur on March 11, 2005, at 18:57:40
Good Luck! Fondly, Phillipa
Posted by bipolarspectrum on March 11, 2005, at 20:13:58
In reply to BPS, contacted Toronto about DBS Re: OCD Q. » bipolarspectrum, posted by temoigneur on March 11, 2005, at 18:57:40
Hi D,
Yeah, I will definately report back everything about dbs.. i'm also a med student so the docs often take alot time to answer all my questions and fill me in on all the ins and outs of treatments... I will ask about DBS' use for OCD specificially for u... I'm not quite sure whether I will get it as I've been put on a lithium/neurontin combination which may help... but i definately want the info on this kuz lithium makes me kinda stupid... anywayz, stay in touch!
bps
ps. i believe u have to get referred to see these dbs neurosurgeons.. i think ur best bet would be to try and see a psychopharmacologist in vancouver and then they can refer u on.. nothing against pdocs, but the psychopharm people often are more knowledgable about new treatments..
Posted by Phillipa on March 11, 2005, at 20:18:23
In reply to DBS is the FUTURE!, posted by bipolarspectrum on March 11, 2005, at 20:13:58
Someone told me that a psychopharmacologist was a pdoc that just wanted to call himself that. What is a psychopharmacolgist? Education wise. Thanks, Phillipa
Posted by bipolarspectrum on March 11, 2005, at 21:00:11
In reply to Re: DBS is the FUTURE! » bipolarspectrum, posted by Phillipa on March 11, 2005, at 20:18:23
Hey P,
I psychopharmacologist is a pdoc who finished his/her speciality and then went on to do another 2 years (possibly more or less depending on the country) learning about psychopharmaceuticals... psychopharms tend to lecture and educate other healthcare professionals about these drugs... and they really know their esoteric drug combos too!
bps
Posted by temoigneur on March 11, 2005, at 21:34:00
In reply to DBS is the FUTURE!, posted by bipolarspectrum on March 11, 2005, at 20:13:58
> Hi D,
> Yeah, I will definately report back everything about dbs.. i'm also a med student so the docs often take alot time to answer all my questions and fill me in on all the ins and outs of treatments... I will ask about DBS' use for OCD specificially for u... I'm not quite sure whether I will get it as I've been put on a lithium/neurontin combination which may help... but i definately want the info on this kuz lithium makes me kinda stupid... anywayz, stay in touch!
> bps
> ps. i believe u have to get referred to see these dbs neurosurgeons.. i think ur best bet would be to try and see a psychopharmacologist in vancouver and then they can refer u on.. nothing against pdocs, but the psychopharm people often are more knowledgable about new treatments..
Thanks so much, I'm just trying to get referred to a anxiety specialist, but I look into a psychopharmacologist, definately, even my neurpsychiatrist, was very hesitant to make any sort of statement re: VNS. You're in med school, I wanted to be a pdoc, who knows, all depends on trtmt. Thank youBen -
Posted by temoigneur on March 11, 2005, at 21:39:23
In reply to Re: BPS, contacted Toronto about DBS Re: OCD Q., posted by Phillipa on March 11, 2005, at 19:31:59
> Good Luck! Fondly, Phillipa
Thanks Phillipa:)
Posted by Phillipa on March 11, 2005, at 22:07:16
In reply to Re: BPS, contacted Toronto about DBS Re: OCD Q., posted by temoigneur on March 11, 2005, at 21:39:23
Thanks BP for the definition. I guess some pdocs don't know what they're talking about, oh, we already knew this didn't we! Fondly, Phillipa
Posted by denise1966 on November 3, 2005, at 11:38:42
In reply to Have a Deep brain stimulation consultation!!, posted by bipolarspectrum on March 9, 2005, at 15:46:33
Hi,
I am just wondering if you had your deep brain stimulation consultation and how it went?
Kind Regards....Denise
Posted by Zoomclub on January 8, 2006, at 11:46:16
In reply to Re: Have a Deep brain stimulation consultation!! » bipolarspectrum, posted by ed_uk on March 10, 2005, at 10:29:36
Hi - Was just wondering, like denise, if there had been any developments after your consultation - or anyone else that was going for consultations etc re DBS for Treatment resistant depression.
There seemed to be a few people actively looking into this around the end of 2005, but I've not been able to find any postings as to how they got on.
Hope everyone has a better 2006 than 2005!!All the best
Jon W - Long term TRD sufferer from the UK
Posted by ed_uk on January 8, 2006, at 11:54:51
In reply to BP Spectrum -Deep brain stimulation consultation?, posted by Zoomclub on January 8, 2006, at 11:46:16
Hi
>Long term TRD sufferer from the UK
Which medications/combinations have you tried?
Ed
Posted by ed_uk on January 8, 2006, at 12:08:46
In reply to BP Spectrum -Deep brain stimulation consultation?, posted by Zoomclub on January 8, 2006, at 11:46:16
Hi again
Did you formerly post as JonW, or was that someone else?
Ed
Posted by bipolarspectrum on January 8, 2006, at 13:58:14
In reply to Re: BP Spectrum -Deep brain stimulation consultation? » Zoomclub, posted by ed_uk on January 8, 2006, at 12:08:46
Hello,
I had a consultation with one of the pdocs involved in DBS... They have so far done the procedure on at least 10 patients and seem to have a success rate of 75-80%... They are currently moving on and doing another 6-10 patients in January... Side effects appear to be low to non-existent... However, they seem to be doing them in treatment-resistant unipolars.. Although they were prepared to do the treatment on me, I was hesisatnt because:
1. I'm definately a soft bipolar and who knows what type of reaction i could have to DBS
2. My medications are beginning to work
Any questions or comments?
bps
Posted by Zoomclub on January 12, 2006, at 14:34:01
In reply to Re: BP Spectrum -Deep brain stimulation consultation?, posted by bipolarspectrum on January 8, 2006, at 13:58:14
Hi BPS - Thanks very much for taking time to give that information.Also, really glad to here that it sounds like you're getting things under control with the meds your on at the moment.
Sincerely hope that your improvement is continuing, and carries on like that!
The DBS in Canada/USA is very interesting to me,as I'm hoping to get into a research program for DBS over here, but early days yet.
One question I have is how much emphasis did they seem to be placing on the PET /fMri scans? (as the 1st reported patients had prior & after the surgery).What I'm trying to ask is - Was it going to be a condition of you being fully accepted for treatment that when you had these scans they actually showed a similar area of "overactivity"?
As it's this overactive CG25/subgenual cingulate area that they believe may be the cause of other areas "see-sawing" and being underactive, I was just wondering if these scans are actually seen as vital before surgery is considered appropriate.
Sorry for the rambling - it's taken me about 4 days to push myself back on to the board to reply- brain just ain't what it should be at the moment!
Thanks again for any info' you can give -
Keep up the good work with the meds - No, I don't blame you for not going ahead with DBS if you've finally found some meds that will get things under control, and give you your life back!All the best
Posted by Zoomclub on March 31, 2006, at 13:54:20
In reply to Re: BP Spectrum -Deep brain stimulation consultation?, posted by Zoomclub on January 12, 2006, at 14:34:01
Hi - Was just wondering if there had been any developments for anyone that was going for consultations etc re DBS. Particularly interested in hearing back from BPS - See earlier posts -
There seemed to be a few people actively looking into this around July 2005 time, but I've not been able to find any postings as to how they got on.
All the best
Jon W - Long term TRD sufferer from the UK
Posted by bipolarspectrum on March 31, 2006, at 17:00:08
In reply to Re: BP Spectrum -Deep brain stimulation consultation?, posted by Zoomclub on January 12, 2006, at 14:34:01
Hey Zoom,
My understanding is that these PET scans are NOT important in deciding who gets the procedure... ie. the PET scans are not diagnostic... I believe the PET scans are more of an attempt to explain how DBS works... you should try and get ur hands on the original study published last year... alot of it is technical jargon but if i remember correctly, they let people in the study who did have that underactive area... I really think you should pursue DBS if u've failed meds and ECT... I dont think its that scary besides a painful surgery, theres no-reported side effects, and its removable... but if u want it done u gotta be aggressive! fight for ur rights as a patient! good luck
bps> Hi BPS - Thanks very much for taking time to give that information.Also, really glad to here that it sounds like you're getting things under control with the meds your on at the moment.
>
> Sincerely hope that your improvement is continuing, and carries on like that!
>
> The DBS in Canada/USA is very interesting to me,as I'm hoping to get into a research program for DBS over here, but early days yet.
>
> One question I have is how much emphasis did they seem to be placing on the PET /fMri scans? (as the 1st reported patients had prior & after the surgery).What I'm trying to ask is - Was it going to be a condition of you being fully accepted for treatment that when you had these scans they actually showed a similar area of "overactivity"?
>
> As it's this overactive CG25/subgenual cingulate area that they believe may be the cause of other areas "see-sawing" and being underactive, I was just wondering if these scans are actually seen as vital before surgery is considered appropriate.
>
> Sorry for the rambling - it's taken me about 4 days to push myself back on to the board to reply- brain just ain't what it should be at the moment!
>
> Thanks again for any info' you can give -
> Keep up the good work with the meds - No, I don't blame you for not going ahead with DBS if you've finally found some meds that will get things under control, and give you your life back!
>
> All the best
>
>
Posted by CEK on April 3, 2006, at 18:02:54
In reply to Re: BP Spectrum -Deep brain stimulation consultation?, posted by bipolarspectrum on March 31, 2006, at 17:00:08
I'm sorry to be retarded but what is this brain stimulation that you all are talking about? I have been going for neurofeedback or biofeedback since Febuary and was wondering what kind of treatment this is that y'll are writing about. The nuerofeedback is suppose to retrain your brain and fix many problems without needing medication and so I've been trying it. The doctor did a comprihensive EEG at the start and he could show me all the areas in my brain that were associated with my depression and anxiety. The brain waves showed all of this and he said he knew what areas needed to be retrained to resolve the problems. I wish I could go all the time because after I leave his office I feel so much better.(more alert, focused and much happier.) The only problem is that it costs $110 for 45minutes and my insurance doesn't cover it. I was going for double sessions twice a week until money got low. Have any of you ever heard of or tried neurofeedback?
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