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Dr. Bob is Robert Hsiung, MD,
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Posted by gadman on January 31, 2005, at 17:38:09
In reply to Re: Effexor withdrawal - very bad news, posted by Dkscully on January 31, 2005, at 17:28:32
I have been off of Effexor now for 9 Days and know where you are coming from.
I have to repeat though I can never tell what is Effexor Withdrawal and what is my original illness because they seem so similar.
Everything I read suggests that yes, 5 weeks is NOT uncommon for the withdrawal symptoms and YES everything well go back to normal. When you might ask? It depends on the individual sorry to say... But be assured everything will be fine!
Gadman
Posted by Dkscully on January 31, 2005, at 18:20:32
In reply to Re: Effexor withdrawal - very bad news » Dkscully, posted by gadman on January 31, 2005, at 17:38:09
> I have been off of Effexor now for 9 Days and know where you are coming from.
>
> I have to repeat though I can never tell what is Effexor Withdrawal and what is my original illness because they seem so similar.
>
> Everything I read suggests that yes, 5 weeks is NOT uncommon for the withdrawal symptoms and YES everything well go back to normal. When you might ask? It depends on the individual sorry to say... But be assured everything will be fine!
>
> Gadman
Thanks, I need that right now! I think I'm definitely worse than I was before all this fun with meds, which is scary. I used to sort of be the type of person who could "suffer silently," meaning that I always seemed to be together and got everything done that I needed to, no matter how much time I spent crying alone in my room or having panic attacks that very few people knew about. Now, I almost have to disclose my situation to people, because I just feel so bad and am so unproductive, particularly later in the day...I just picked up some Claritin, since some people say that relieves the symptoms, but I really don't want to be taking anything else on a regular basis--for those of you who used that, how long/often did you take those to relieve your symptoms?
I guess I should be proud of going 5 weeks, Effexor-free, but really I'm just scared.
Again, thanks... I'm so glad I found this place.
Posted by Raggy on January 31, 2005, at 18:37:04
In reply to Re: Effexor withdrawal - very bad news, posted by Dkscully on January 31, 2005, at 18:20:32
Please, please, please, whether you have had sucess on effexor or not, please let the FDA know how this drug affected you, whether when taking or getting off it. It will help maybe hundreds of others.
They won't know if people like us don't tell them.
Thank you.
Posted by gadman on January 31, 2005, at 20:49:00
In reply to Re: Effexor withdrawal - very bad news, posted by Dkscully on January 31, 2005, at 18:20:32
Hang in there.... I am sure it gets better as soon as your brain adjusts.
I wonder if part of your problem might be the lack of Seratonin. You went a while with a boost and now you are not getting that boost.
I'm getting my boost with Cymbalta and still having bad days... But slowly and surely the bad ones become fewer and fewer....
Gadman
Posted by Dkscully on January 31, 2005, at 23:08:33
In reply to Re: Effexor withdrawal - very bad news » Dkscully, posted by gadman on January 31, 2005, at 20:49:00
> Hang in there.... I am sure it gets better as soon as your brain adjusts.
>
> I wonder if part of your problem might be the lack of Seratonin. You went a while with a boost and now you are not getting that boost.
>
> I'm getting my boost with Cymbalta and still having bad days... But slowly and surely the bad ones become fewer and fewer....
>
> Gadman
Yeah, I think the lack of seratonin is probably part of the problem--but if it wasn't helping me in the first place, it seems bizarre that it would make me feel so bad now.Actually, despite anxiety and my typical late-in-the-day sick feeling, I haven't burst into tears at any point today, which is actually an accomplishment. Maybe I'm on the way to improvement, although feeling sickish from mid-afternoon on makes it hard to feel too super, even if I'm slowly becoming less emotional. I'm going to try the Claritin tomorrow, in hopes that it'll "balance me out" like it has other people (I still don't understand why that is?). I'll keep you all updated. Any advice on when/if to take the Claritin for these side effects would be appreciated (though I really wish I didn't feel the need to do this after 5 weeks off effexor!)
Thanks!
Posted by gadman on February 1, 2005, at 7:52:48
In reply to Re: Effexor withdrawal - very bad news, posted by Dkscully on January 31, 2005, at 23:08:33
My guess is that even though the seratonin did not appear to be helping, your body was still "getting use to" having it in production a while longer than normal. Again, I am just guessing, I am not a doc (I just read alot) :-)
Anyway, claritan does not make you sleepy so in the AM should be good.
Keep me posted, As I will you...
<Yeah, I think the lack of seratonin is probably part of the problem--but if it wasn't helping me in the first place, it seems bizarre that it would make me feel so bad now.>
Posted by Dkscully on February 1, 2005, at 22:04:04
In reply to Re: Effexor withdrawal - very bad news » Dkscully, posted by gadman on February 1, 2005, at 7:52:48
Well, I tried the Claritin when I got up this morning. I'm not entirely clear on what it was supposed to do for my withdrawal symptoms, still, but I didn't see any effect. Still got that mid-afternoon nausea/dizziness/headache thing. Tomorrow I have to give a presentation at work during that time... I've gotten to the point that I donn't even want to take anything for my headaches after reading on here about people getting liver disease from Effexor--I already took tylenol PM for 2+ years, every night, I'm totally terrified that I killed my liver already, so I feel bad taking anything else.
I used to be such a healthy person. Miss Perfect Attendance in high school, and all that. I'm so scared effexor has destroyed me.
Posted by gadman on February 2, 2005, at 8:04:10
In reply to Re: Effexor withdrawal - very bad news-Claritin, posted by Dkscully on February 1, 2005, at 22:04:04
I understand exactly... The problem is that you/we don't know how to separate the truths from the realities when it comes to these things.
I had quite a long talk with my pdoc last night and he assured me that what I am experiencing is not necessarily effexor withdrawal, but seratonin withdrawal.
I am also in quite a bit of a quandry because the Cymbalta is not playing well with my Blood Pressure. Cymbalta was SUPPOSE to have less of an effect on BP than Effexor but it is just the opposite. My BP increased 20 points on the high and low end since I have been on Cymbalta and I am taking a BP med.
So, back comes Effexor for now... The Doc recommended I switch to Zoloft and I think I might eventually, but for now I have been through enough, so for now I am going to go back to a low dose of Effexor.
Oh Well... Such is life
> Well, I tried the Claritin when I got up this morning. I'm not entirely clear on what it was supposed to do for my withdrawal symptoms, still, but I didn't see any effect. Still got that mid-afternoon nausea/dizziness/headache thing. Tomorrow I have to give a presentation at work during that time... I've gotten to the point that I donn't even want to take anything for my headaches after reading on here about people getting liver disease from Effexor--I already took tylenol PM for 2+ years, every night, I'm totally terrified that I killed my liver already, so I feel bad taking anything else.
>
> I used to be such a healthy person. Miss Perfect Attendance in high school, and all that. I'm so scared effexor has destroyed me.
Posted by oilfan on February 6, 2005, at 0:26:10
In reply to Re: Effexor withdrawal - very bad news-Claritin, posted by gadman on February 2, 2005, at 8:04:10
I am currently going off effexxor xr 300mg . I am now down to 262.5 My clueless doctor told me before i started dropping he had no idea that it was as hard and had so many side effects to getting off. He just read up on it. My faith in physchitrist's and the medical community is very low.Any Ideas's????
Posted by gadman on February 6, 2005, at 7:06:59
In reply to effexxor wthdrwl - very worried - alternatives?, posted by oilfan on February 6, 2005, at 0:26:10
Go Slow... Take your time tapering down... Think Positive!
Don't let all the horror stories scare you, there are just as many positive stories...
gadman
Posted by oilfan on February 6, 2005, at 14:33:12
In reply to Re: effexxor wthdrwl - very worried - alternatives? » oilfan, posted by gadman on February 6, 2005, at 7:06:59
gadman: thanks for the encouragement! I have been on the withdrawl stage for about 3 weeks now and wow are the headaches something!
Posted by californiagirl on February 7, 2005, at 0:26:23
In reply to Re: Effexor withdrawal - very bad news, posted by worm on January 24, 2005, at 11:57:16
i have been completely off effexor for two days now. It didn't seem to work for my depression. i am nauseus and dizzy. i tried taking dramamine but puked. i was only on the drug for 8 weeks but was unable to sleep and in the past week decreased my dosage. i have been depressed and crying. what should i do to make it more tolerable? i am a student and need to make it through my day. please help.
Posted by PoohBear on February 7, 2005, at 12:24:54
In reply to Re: Effexor withdrawal - very bad news » worm, posted by californiagirl on February 7, 2005, at 0:26:23
> i have been completely off effexor for two days now. It didn't seem to work for my depression. i am nauseus and dizzy. i tried taking dramamine but puked. i was only on the drug for 8 weeks but was unable to sleep and in the past week decreased my dosage. i have been depressed and crying. what should i do to make it more tolerable? i am a student and need to make it through my day. please help.
Go get a prescription for Prozac, 20mg per day. Plus Benedryl helps with the headaches and swooshy head feeling. I ramped down using Prozac and it works.
I'm hoping that you ramped down your Effexor and didn't quit cold.
I tapered off over ten days at the end of December and have been completely 'off' Effexor now for 5 weeks. I am still taking Prozac (I feel great on it) and plan to for the foreseeable future. I no longer take Benedryl.
Good Luck!
Tony
Posted by oilfan on February 7, 2005, at 12:49:35
In reply to Re: Effexor withdrawal - very bad news » californiagirl, posted by PoohBear on February 7, 2005, at 12:24:54
because of the side effects and how high my dosage is it is going to take approx. 5 months to get off!
Posted by oilfan on February 7, 2005, at 12:51:20
In reply to Re: Effexor withdrawal - very bad news » worm, posted by californiagirl on February 7, 2005, at 0:26:23
I have found that the dizziness and nausea as well as headaches go away with marijuana. even though its illegal it works!!
Posted by JennaStarrett on February 7, 2005, at 22:57:25
In reply to Re: Effexor withdrawal - very bad news, posted by Dkscully on January 31, 2005, at 23:08:33
> > Hang in there.... I am sure it gets better as soon as your brain adjusts.
> >
> > I wonder if part of your problem might be the lack of Seratonin. You went a while with a boost and now you are not getting that boost.
> >
> > I'm getting my boost with Cymbalta and still having bad days... But slowly and surely the bad ones become fewer and fewer....
> >
> > Gadman
>
>
> Yeah, I think the lack of seratonin is probably part of the problem--but if it wasn't helping me in the first place, it seems bizarre that it would make me feel so bad now.
>
> Actually, despite anxiety and my typical late-in-the-day sick feeling, I haven't burst into tears at any point today, which is actually an accomplishment. Maybe I'm on the way to improvement, although feeling sickish from mid-afternoon on makes it hard to feel too super, even if I'm slowly becoming less emotional. I'm going to try the Claritin tomorrow, in hopes that it'll "balance me out" like it has other people (I still don't understand why that is?). I'll keep you all updated. Any advice on when/if to take the Claritin for these side effects would be appreciated (though I really wish I didn't feel the need to do this after 5 weeks off effexor!)
>
> Thanks!Hi,
I have written a couple postings about Claratin because it helped me soooo much. I guess everyone is different though, because I never read any one else really raving about it like I do. I was taking Claratin-D either twice a day (12 hr) or once a day (24 hr). I could take it at night time and it never kept me up. It totally wiped out all of my side effects (I went off Claratin D once too early and all the sweats, crying, aggitation, nausea, "volts" etc... came right back). It took about 8-10 hours to get Claratin D back into my system after that experience. I went off 300mg Effexor in December, and I just recently quit taking the Claratin D (about two months total to get over the withdrawals). I don't believe I have anymore side effects from Effexor (I feel somewhat anxious but I think it from the Wellbutrin I'm taking now). The whole experience almost wiped me out, but I do a lot of praying and reading these postings help a lot. Please hang in there, there is a light at the end of the tunnel. God Bless, Jenna
Posted by Vexinvixen on February 17, 2005, at 9:28:16
In reply to Re: Effexor withdrawal - very bad news, posted by JennaStarrett on February 7, 2005, at 22:57:25
Effexor hasn't been good for me at all. Several years ago I had tried 2 or 3 other anti-depressants, but the side effects made my already-bad depression so much worse, that I stopped trying.
I eventually recovered from that divorce and illness-induced episode, but still had the dysphoria which I have always had. After some discussion with my doctor, we tried a different anti-depressant (I can't remember which one now.) There were a few mild side effects, but no real positive effect, so we discontinued that and decided to try Effexor.
There was an initial positive effect, with some initial intestinal distress, which subsided, and I was pleased. When the positive effect decreased, the initial very low dose was increased, with questionable additional positive effect, but additional gastro-intestinal discomfort including frequent burping, flatulence, and return of previously-controlled reflux disorder.
I also developed dry skin, dry hair and brittle nails, an itchy rash with compulsion to scratch to the point of bleeding. Also extreme sleepiness -- I was falling asleep at my desk at work.
The dosage was decreased, and a very small amount of Wellbutrin added, and symptoms increased again. Headache. Muscle and joint pain. Painful intercourse. Clumsiness. Nose bleeds. Constipation. Dry mouth. Weight gain. Increasing gastrointestinal reflux, often disturbing sleep. Increasing depression, thoughts of death, lack of interest in normal activities, lack of motivation, hopelessness, frustration. Loss of interest in sex.
Over several months we tried different dosages, with symptoms always increasing and becoming worse, with the exception of the rash, which decreased, but did not disappear.
Wellbutrin was discontinued fairly quickly, and I thought it was the cause of my increased symptoms, but symptoms did not decrease without it. In fact, they kept increasing. I was becoming so depressed, I was only a couple of steps above being suicidal.
After a few weeks, Effexor was slowly decreased and then discontinued a few days ago. Sleep has become troubled -- nightmares and odd disturbing dreams -- where previously there had never been any nightmares and dreams were nearly always pleasant and refreshing. My internal clock has been increasingly "off" -- sleepiness has been coming later and later at night, with difficulty getting up in the morning.
I've had increasing dry skin, dry mouth, dry and irritated eyes. Slight shortness of breath, and occasional heart "flutters." Constant thirst and dehydration. Occasional slight disorientation, lack of focus, increasing emotional swings, light-headedness that has become nearly constant, occasional dizziness. All symptoms seem to be remaining constant, or in many cases getting worse, with the exception of lack of interest in sex, which is subsiding.
I had to leave work yesterday, because the light-headedness/dizziness and fevers/chills were making it impossible to work. I also felt exhausted, but when I tried napping, I had strange, vivid, disquieting dreams.
I missed work today, and have been light-headed or dizzy every waking moment so far. Last night again I had very vivid, disturbing dreams. My dreams have always been very vivid, but never until recently have I had nightmares.
Effexor has made me feel much worse than I felt before taking it. Had I known this was even a possibility, I would never have tried the drug, as we were treating a relatively mild (though chronic) dysphoria. That was a lot easier to live with!
Posted by PoohBear on February 17, 2005, at 11:31:33
In reply to Re: Effexor withdrawal - very bad news, posted by Vexinvixen on February 17, 2005, at 9:28:16
Vexinvixen:
Sorry to hear of your rough time...
I too had heart 'flutters', or palpitations, and that's what got me off Effexor, though I'd gotten used to those side effects that remained past the break-in period.
If you get off Effexor, don't stop cold, but slowly discontinue while substituting Prozac. It worked very well for me, with slight discomfort made easier by Benedryl and Tylenol.
One of the things that bugged me the most with Effexor was the vivid dreams. Thankfully those are now gone. I take 25mg of Seroquel and 10mg of Ambien every night for sleep. I generally sleep through the night, whereas I would normally need to get up 3-4 times during the night.
The best thing for me has been the talk therapy that my therapist and I have been engaging in over the past 2 months. It has helped tremendously.
Take care and God Bless,
Tony
Posted by worm on February 17, 2005, at 18:38:03
In reply to Re: Effexor withdrawal - very bad news, posted by Vexinvixen on February 17, 2005, at 9:28:16
This sounds very much like my experience with Effexor. No Wellbutrin was added in my case, and I had no strange dreams. It was after my dosage was increased from 75 to 150 that I started getting more depressed, almost suicidal. I didn't realize that the Effexor was causing me to be tired all the time, disinterested in everything. Most people would assume it was the initial depression coming back, and raise the dose rather than lowering it, or adding yet another medication to the mix. It was this BB that saved me, and I discovered I was not alone. It wasn't me, it was the medication. I have never been happier than I have been since I got off the Effexor, at least after the withdrawal was over.
Posted by hopndoodle on February 18, 2005, at 22:35:00
In reply to Re: Effexor withdrawal - very bad news, posted by Vexinvixen on February 17, 2005, at 9:28:16
My heart goes out to you. I, too, have experienced many of the same symptoms. It helped greatly to find this site and feel validation. Somehow that alone made my distress manageable. I have also recently tapered down and then stopped effexor completely. It's been about 10 days. The first four days were the worst. I almost went home from work due to the nausea on day 4. But that decreased and subsided altogether around day 6 or 7. That was the worst symptom for me, and now that its gone I feel I can manage the rest. I wanted to encourage you that things WILL get better. I have one persistent symptom: hives. Itchy, torturous hives. The day after I cut down from 150mg to 75mg they doubled. I lifted my sweater to show my tummy to a couple of my co-workers and they gasped out loud. I told them that they weren't just on my tummy, but all over my body. That's when I went to the Dr. and, of course, he said the hives couldn't possibly be from the withdrawal. He said probably a food allergy to one of five culprits: peanuts, chocolate, strawberries, shell fish and tomatoes. So we have a bet going. I haven't eaten any of those foods for three weeks and I still have hives. Now that I am completely off the effexor, they are getting better and I can manage them with antihistimines. Once they are completely gone I plan to add those foods back into my diet one at a time and dollars-to-doughnuts I bet the hives don't come back.
I have a funny story about the hives, tho. One morning, at their worst, we were all at the breakfast table. I stood up and discreetly pulled down my the back of my pjs to show my husband how bad they were on my butt. He chuckled, "Oh, I bet they liked that." I looked behind me to see the drapes wide open on the picture window! I sighed and said, "Well, I guess they saw the moon...even if it was all pink." A few minutes later I saw my 8 year old daughter looking out the window, very puzzled. She said, "Mommy, I don't see any pink moon out there." We had a great giggle when I explained what "the moon" meant.
God bless you. Hang in there. It WILL all pass.=======================================
> There was an initial positive effect, with some initial intestinal distress, which subsided, and I was pleased. When the positive effect decreased, the initial very low dose was increased, with questionable additional positive effect, but additional gastro-intestinal discomfort including frequent burping, flatulence, and return of previously-controlled reflux disorder.
>
> I also developed dry skin, dry hair and brittle nails, an itchy rash with compulsion to scratch to the point of bleeding. Also extreme sleepiness -- I was falling asleep at my desk at work.
>
> The dosage was decreased, and a very small amount of Wellbutrin added, and symptoms increased again. Headache. Muscle and joint pain. Painful intercourse. Clumsiness. Nose bleeds. Constipation. Dry mouth. Weight gain. Increasing gastrointestinal reflux, often disturbing sleep. Increasing depression, thoughts of death, lack of interest in normal activities, lack of motivation, hopelessness, frustration. Loss of interest in sex.
>
> Over several months we tried different dosages, with symptoms always increasing and becoming worse, with the exception of the rash, which decreased, but did not disappear.
>
> Wellbutrin was discontinued fairly quickly, and I thought it was the cause of my increased symptoms, but symptoms did not decrease without it. In fact, they kept increasing. I was becoming so depressed, I was only a couple of steps above being suicidal.
>
> After a few weeks, Effexor was slowly decreased and then discontinued a few days ago. Sleep has become troubled -- nightmares and odd disturbing dreams -- where previously there had never been any nightmares and dreams were nearly always pleasant and refreshing. My internal clock has been increasingly "off" -- sleepiness has been coming later and later at night, with difficulty getting up in the morning.
>
> I've had increasing dry skin, dry mouth, dry and irritated eyes. Slight shortness of breath, and occasional heart "flutters." Constant thirst and dehydration. Occasional slight disorientation, lack of focus, increasing emotional swings, light-headedness that has become nearly constant, occasional dizziness. All symptoms seem to be remaining constant, or in many cases getting worse, with the exception of lack of interest in sex, which is subsiding.
>
> I had to leave work yesterday, because the light-headedness/dizziness and fevers/chills were making it impossible to work. I also felt exhausted, but when I tried napping, I had strange, vivid, disquieting dreams.
>
> I missed work today, and have been light-headed or dizzy every waking moment so far. Last night again I had very vivid, disturbing dreams. My dreams have always been very vivid, but never until recently have I had nightmares.
>
> Effexor has made me feel much worse than I felt before taking it. Had I known this was even a possibility, I would never have tried the drug, as we were treating a relatively mild (though chronic) dysphoria. That was a lot easier to live with!
Posted by roobie on February 18, 2005, at 22:43:36
In reply to Re: Effexor withdrawal - very bad news » Vexinvixen, posted by PoohBear on February 17, 2005, at 11:31:33
Ok - I have to ask... what's with the dreams? I had VERY erotic dreams when I started Effexor. When I tried to cut back in December, they subsided, but since then I re-increased my dosage to ward off the returning hostility I had. Now, I have vivid dreams, some of which I cannot figure if it REALLY happened or if they truly were dreams - however, no longer erotic.
What causes this? Is there a particular area in the brain that the med affects?
roobie
Posted by PoohBear on February 19, 2005, at 23:08:11
In reply to Re: Effexor withdrawal - very bad news » PoohBear, posted by roobie on February 18, 2005, at 22:43:36
> Ok - I have to ask... what's with the dreams? I had VERY erotic dreams when I started Effexor. When I tried to cut back in December, they subsided, but since then I re-increased my dosage to ward off the returning hostility I had. Now, I have vivid dreams, some of which I cannot figure if it REALLY happened or if they truly were dreams - however, no longer erotic.
>
> What causes this? Is there a particular area in the brain that the med affects?
>
> roobieI did't have erotic dreams, just very VIVID dreams, in unusual detail. As you noted, such vivid detail that it WAS difficult to tell what was real and what wasn't. That's what made them so disturbing... They were worse at first and then evened out as my brain got used to the stimulation. I don't have any input on the why, but Effexor works on Serotonin and Neopinephrin.
Tony
Posted by Si Kottic on February 20, 2005, at 17:51:10
In reply to Re: Effexor withdrawal - very bad news » roobie, posted by PoohBear on February 19, 2005, at 23:08:11
I am new to this post and hope that I am doing this correctly. I have been taking Effexor for at least 4 yrs. and it has changed my life for the worse. I have 2 masters degrees and at this point can't remember peoples names. My job is suffering due to my memmory loss and would like to go off this drug. I tried to do it on my own and I just started screaming at my son and everyone around me. I couldn't get rid of my anger and was saying things I couldn't take back. I thought it better to stay on the drug than to traumatize everyone. My 14 yr old son was in tears all the time. I tried taking adderal so that I could focus and then I just became flat - I couldn't think at all. I feel as if I am drowning with this drug and my life is wasting away. The quality is 0! I don't know where to go for help. I've had all the symptoms that everyoen is talking about, the dreams, muscle pain, headaches. I am only on 37.5 mg. dose. That seems like nothing compared to what I am reading on this thread.
Posted by gadman on February 21, 2005, at 9:19:20
In reply to Re: Effexor withdrawal - very bad news, posted by Si Kottic on February 20, 2005, at 17:51:10
Are you sure the memory loss is the drug and not age/natural causes?
I thought this same thing about myself until I started observing my wife who is not on an antidepressant whatsoever. She is about the same as myself as far as forgetfulness.
Yes we are both educated but I don't think that has anything to do with anything.
I am not saying you shouldn't try to get off of it, but the big question is, are you ready? Why did you start taking it to begin with?
I myself am on 75 mg, 37.5 is not alot.. It is not even a therapeutic dose.
gadman
Posted by Si Kottic on February 21, 2005, at 14:17:41
In reply to Re: Effexor withdrawal - very bad news » Si Kottic, posted by gadman on February 21, 2005, at 9:19:20
YOu present a good point. I am 55 and am forgetting names, I'm in the car and forget where I have to go etc; That seems pretty severe to me. Are these just senior moments you think??
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