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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 14 of 14. This is the beginning of the thread.
Posted by Maxime on January 28, 2005, at 22:10:11
I can't the take Nardil. I know I have only had a few dosage but it's doing what it did before. I am in fog. I am dissociating. I am nauseous. I just want to give up. My pdoc says Nardil is the end of line for me. But if this my last drug to try (actually retry) then forget it ... I will just wither up and die. I don't care anymore. I am just a shell of a person. There is one left inside.
NO MORE NARDIL! I'm DONE!
Maxime
Posted by Willyee on January 28, 2005, at 23:59:22
In reply to Please I can't take the Nardil, posted by Maxime on January 28, 2005, at 22:10:11
> I can't the take Nardil. I know I have only had a few dosage but it's doing what it did before. I am in fog. I am dissociating. I am nauseous. I just want to give up. My pdoc says Nardil is the end of line for me. But if this my last drug to try (actually retry) then forget it ... I will just wither up and die. I don't care anymore. I am just a shell of a person. There is one left inside.
Nardil is touted here,and im sure for great reason,it obvsiouly is helping many.But like i mentioned earlier,everyone is different,i did not respond well to nardil at all,i really wanted to,but parnate i have,and have been on it 4 years,so although similiar meds,they can have dramatic differences as far as indiividual success.So,my obvious question is,did u try it,parnate is one of the fastest acting meds and might give some type of postive response in 48 hrs,if you have not,then nardil is not the end of the line,and i encourage,no urge you to demand it.I had to go through a hurdle of docters who refues to prescribe it,till i finaly found one,im glad i did not give up,because i was on a coctail of god knows what,and i dident even know who i was anymore,good luck,best wishes,keep fighting the demons.
>
> NO MORE NARDIL! I'm DONE!
>
> Maxime
Posted by Phillipa on January 29, 2005, at 16:15:39
In reply to Re: Please I can't take the Nardil, posted by Willyee on January 28, 2005, at 23:59:22
What meds were you on before, and what are you on now? I've noticed tons of people use MAO's. Is it because no SSRI's or other atipical AD's work for you? Or is it the country you live in. I don't know of anyone who takes them around here NC,VA, where I worked in the field until I became ill. Maxine, what other drugs are you taking, and what is your dx if I may ask. Fondly, Phillipa
Posted by KaraS on January 29, 2005, at 19:36:00
In reply to Please I can't take the Nardil, posted by Maxime on January 28, 2005, at 22:10:11
Maxine,
Dr. Jay Goldberg claims to have had success reversing Parnate poop-out with 1 gram of inositol taken 4 times a day (total of 4 grams daily). Inositol is a supplement you can purchase in stores or on-line. Supposedly it gives people a lot of gas and diarrhea until your body adjusts to it.I don't know of anyone who has used this successfully to counter Parnate poop-out but it might be worth a try.
Kara
Posted by Maxime on January 29, 2005, at 22:08:03
In reply to Re: Please I can't take the Nardil » Willyee, posted by Phillipa on January 29, 2005, at 16:15:39
The link below will lead you to my post of all the meds I have tried.
http://www.dr-bob.org/babble/20050119/msgs/444915.htmlWillyee:
I was on 80 -100 mg of Parnate since December 2002. It pooped out. I have been in a suicidal depression for months now. Finally, I told my doctor that I didn't think the Parnate was working. I was scared to tell him because I am at the end of the line in terms of meds. Nardil is a "re-try".
Phillipa:
I am bipolar type 2 and anorexic (but my weight is stable right now). My mood stabilisers are trileptal and Klonopin. Trileptal was the last mood stabiliser for me to try and thankfully it works. And I take Adderall XR to combat the exhaustion I had on the Parnate. I take synthroid but because I am hypothyroid and I am not using it as a psych med.I am in Canada so I cannot try some the meds that are available in the US like Lexapro or Cymbalta and a couple of others as well. Besides I doubt that anything would help.
There is a percentage of people who will never find relief from medication. I guess I am in that group. But I can't continue to live like this because I am not living. So I think you know where that leaves me and that is probably the option I will take. I just can't screw it up this time.
Maxime
> What meds were you on before, and what are you on now? I've noticed tons of people use MAO's. Is it because no SSRI's or other atipical AD's work for you? Or is it the country you live in. I don't know of anyone who takes them around here NC,VA, where I worked in the field until I became ill. Maxine, what other drugs are you taking, and what is your dx if I may ask. Fondly, Phillipa
Posted by Willyee on January 30, 2005, at 0:45:03
In reply to Re: Please I can't take the Nardil » Willyee, posted by Phillipa on January 29, 2005, at 16:15:39
> What meds were you on before, and what are you on now? I've noticed tons of people use MAO's. Is it because no SSRI's or other atipical AD's work for you? Or is it the country you live in. I don't know of anyone who takes them around here NC,VA, where I worked in the field until I became ill. Maxine, what other drugs are you taking, and what is your dx if I may ask. Fondly, Phillipa
I actualy live in Virginia Beach now,and am in my late 20`s.My first med,i mean drug was handed to me while i went through what now i know was external depression,it was effexor.I felt different,but had no clue at 18 what these drugs were,i thought it was me.So the more i took the more i went back complaining,and that started a med-go-round that lasted five years.
I quickly went through every ssris,then had the benzos,then the mood stablizers were tried,then just about every srris was re-tried,combined etc,each different doc had their own cocktail startegery,i had a bag full of bottles of every med there was,i usualy stayed on any of them no longer than 6 weeks as i could not bear it.
I let myself go to a hopsital at one point,onl to find no actual docters reside there,only 19 counslers wanting to talk about emotions as i sit there a trmebling mess,i quickly left.
I found parnate through www.remedyfind.com still a great resource.
I went through quite a few docs who refused to prescribe it,even letting one convince me it would not help and letting her re-try a failed combo.
Finaly i called the company,had data sheets sent,printed out bunch of stuff,took family members to a new doc,and just about threatened (lol) her to prescribe it,you know the brooklyn accent can come in handy.
Actualy this new doc was older,had rembered its use,and had no problem with it.Since then she has been open to augmenting it for me since i never in 4 years called her office,or complained of problems other than poop out.
I am now having certain problems with her concerning papaer work for getting the med through the company,she seems to be getting older and ready to maybe retire,not looking to do much anymore.
This scares me cause i dont wanna have to go search for a docter who will provide me it.I also dont wanna resort to oredering it online without script which i will if need be.
Its funny before parnate i switched docters routnly,once on it that doc became my permanent one for 4 years and counting now,she resembles judge judy,so imagine the fun in approaching her.
To answer yor question though lol,it is a hard med in this are to have prescribed,takes some doing.
To answer your second question,parnate is like the bottom of a pizza pie,its m foundation,i dont take many other script meds aside from klonopin and occasional beta blocker.
I do however try many augment strategys with herbs and such since parnate is the king of all poop out meds,i listen to my body if i feel sluggish i combine it with vivarin,if i feel over amped,ill take a small pieace of klonopin,parate seems to have different actions,that seem to vary non stop,extremly unconsistent for me,but still a main stay in treament.
I unfrotuantly can not say a single good word about any of the meds i have taken,of all of them they ALL hurt me deeply,robbed a pieace of my soul,of who i was.
Gabitril and seraquel were to script meds that were ok in conjunction with parnate,and thats about it.
P.S If i read you correctly and you said your in the Va/Nc area,then chances are youre not to far from me,feel free to email me brklyn234@yahoo.com
Posted by Phillipa on January 30, 2005, at 16:29:47
In reply to Re: Please I can't take the Nardil, posted by Willyee on January 30, 2005, at 0:45:03
Maxine, you have been through a lot. I too, get no relief from ADs, but I have not been on tricyclics, or MAOIs. Oh, once, before when there were no SSRI's etc, a pdoc tried me on a TCA which he said was an"upper downer",whatever that means. I can't remember the name but I wish I could cause the pdocs always ask. It was popular in the l970's. At this point I don't know what my dx is, but Ive never been manic. I've felt "good". Maybe this was hypomania who knows. But, please keep on trying don't give up . I know I am. Fondly, Phillipa
Posted by Maxime on January 30, 2005, at 20:28:47
In reply to Re: Please I can't take the Nardil » Maxime, posted by KaraS on January 29, 2005, at 19:36:00
I posted a response to you but I don't see it! I wanted to thank you for the information. Can you post the link for me from where you found this information. I bought the inositol today and I will call my pdoc tomorrow and see if we can give it a try.
Thank you so much!
Maxime
> Maxine,
> Dr. Jay Goldberg claims to have had success reversing Parnate poop-out with 1 gram of inositol taken 4 times a day (total of 4 grams daily). Inositol is a supplement you can purchase in stores or on-line. Supposedly it gives people a lot of gas and diarrhea until your body adjusts to it.
>
> I don't know of anyone who has used this successfully to counter Parnate poop-out but it might be worth a try.
>
> Kara
Posted by up'n'down on January 31, 2005, at 3:31:22
In reply to Re: Please I can't take the Nardil » KaraS, posted by Maxime on January 30, 2005, at 20:28:47
Please don't give up on the Mao inhibitor, whether it's Nardil or Parnate.
It took me 5 years to adjust to a reasonable dose, though not therapeutic,of Nardil. I went up and down on the dosage I could tolerate so many times, but I was so desperate that I stayed the course. I was finally able to even move up to a therapeutic dose. Nardil virtually wiped out my Migraine Syndrome, helped my irritable bowel syndrome, alleviated my depression and extreme chronic anxiety that led to panic attacks and immobility. I had become so anxious that not only did I have agorophobia, but I was so afraid that I laid flat on my back in bed so that unseen terror-causing thing wouldn't seize me. I was so relieved when Nardil started helping me that I went through much misery adjusting to the med because it was the only ray of light and hope, besides my belief in God.
Posted by ed_uk on January 31, 2005, at 7:48:09
In reply to Re: Please I can't take the Nardil, posted by Willyee on January 30, 2005, at 0:45:03
Hi Willyee,
What side effects did you experience from SSRIs?
Ed.
Posted by KaraS on January 31, 2005, at 12:22:01
In reply to Re: Please I can't take the Nardil » KaraS, posted by Maxime on January 30, 2005, at 20:28:47
> I posted a response to you but I don't see it! I wanted to thank you for the information. Can you post the link for me from where you found this information. I bought the inositol today and I will call my pdoc tomorrow and see if we can give it a try.
>
> Thank you so much!
>
> Maxime
>
>
>
> > Maxine,
> > Dr. Jay Goldberg claims to have had success reversing Parnate poop-out with 1 gram of inositol taken 4 times a day (total of 4 grams daily). Inositol is a supplement you can purchase in stores or on-line. Supposedly it gives people a lot of gas and diarrhea until your body adjusts to it.
> >
> > I don't know of anyone who has used this successfully to counter Parnate poop-out but it might be worth a try.
> >
> > Kara
>
>
Maxime,
I hesitated to mention it to you because as I said I don't know anyone who has used it but Dr. Jay Goldstein (not Goldberg as I mentioned above) is well respected here at Babble.Here is a post that references Dr. Goldstein's book and includes the relevant passage.
http://www.dr-bob.org/babble/20000517/msgs/34117.html
He also has a newer book out called "Tuning the Brain". There may be more in it about this topic.
Studies have been done with people safely taking 12-18 grams a day of inositol alone for depression. You can do some searches on this topic here and probably find that info. So you can go a lot higher than 4 grams if you need to. Just remember that you will probably have a lot of gas and diahrrea from it at first.
I think Linkage has taken some inositol and is a big fan.
Good luck. My thoughts are with you.
Kara
Posted by KaraS on January 31, 2005, at 12:30:12
In reply to Re: Please I can't take the Nardil » KaraS, posted by Maxime on January 30, 2005, at 20:28:47
> I posted a response to you but I don't see it! I wanted to thank you for the information. Can you post the link for me from where you found this information. I bought the inositol today and I will call my pdoc tomorrow and see if we can give it a try.
>
> Thank you so much!
>
> Maxime
>
>
>
> > Maxine,
> > Dr. Jay Goldberg claims to have had success reversing Parnate poop-out with 1 gram of inositol taken 4 times a day (total of 4 grams daily). Inositol is a supplement you can purchase in stores or on-line. Supposedly it gives people a lot of gas and diarrhea until your body adjusts to it.
> >
> > I don't know of anyone who has used this successfully to counter Parnate poop-out but it might be worth a try.
> >
> > Kara
>
Maxime,
In re-reading the post I just sent you I don't see where Goldstein mentions Parnate specifically. I thought that he had. Maybe it's there in the book or possibly my memory is failing me. PLEASE MAKE SURE THAT THIS ISN'T CONTRAINDICATED WITH PARNATE before you start on it.I would feel so awful if I gave you false hope. I just wanted so much to help you.
k
Posted by KaraS on January 31, 2005, at 13:11:24
In reply to Re: Please I can't take the Nardil » KaraS, posted by Maxime on January 30, 2005, at 20:28:47
One more thing, inositol may also be contraindicated if you're diabetic or bipolar.
Posted by Willyee on January 31, 2005, at 23:50:51
In reply to Re: Side effects » Willyee, posted by ed_uk on January 31, 2005, at 7:48:09
> Hi Willyee,
>
> What side effects did you experience from SSRIs?
>
> Ed.Side effects....Hmmm that would be much too kind a word.
All of the ssri`s had a dramatic negative impact,i rember extreme agitation,pacing,i rember being very sleepy,my feelings numbed,as if i did not feel my soul anymore,i rember waking up with a sick feeling in my gut,crying spells,isolation,and at its worst sucideal ideation.
I felt as if each one was deepinging the damage.I cant say i expereianced a single itsy bitsy benifit,rather they felt like posion to me every one of them.
I still believe,personaly that i have irreversable damage from them,of course this is only theory,but wait thats pretty much all they have to base prescribing it to you as well.
I still live a "Unique life" and still battle things,but after taking parnate for the first week i actualy felt a feeling of anti-depressant,it was incredable that a med could live up to its name,maybe i feel i was more responsive to parnate during its initial onset was because i was finaly feeling what it felt like to be off srris,i went straight from them to parnate.
I dont argue whether they are good or bad,if someone finds them useful then thats the ultimate goal,HOWEVER my personal belief is that ssris unlike Maois are very specific in its target and action,and i believe they are pure poision,and are simply to new to know if they cause any actualy long lasting damage,......i remeber someones handle i seen many times,i think i would have choose the same one....."ssri hater"
If i ever had to get off parnate,and had no options,i would never ever touch a ssri again,id rather alternate various herbs and get medicaore results,least ill be somewhat myself,i loved the day i was able to take that BIG bag of partialy used ssris and mood stablizers,and toss em in the garbage.P.S With all the worrying of benzos,particular klonopin,unlike any of the meds it has been the only one that stayed consisent,and helped me keep my job on many occasions,looking back now i was so afraid of it,yet i would have had much easier ssri withdrawals had i been less afraid to use it,klonopin has helped me from going over the edge,i value it.
This is the end of the thread.
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