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Dr. Bob is Robert Hsiung, MD,
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Posted by Phillipa on December 7, 2004, at 20:40:30
In reply to Re: ***********Must Read Effexor Article************** » Dan Perkins, posted by dancingstar on December 7, 2004, at 20:14:59
I already possted on another thread that had this article what happened to me. I had an appointment with the head of Infection Control at a prestigious Hospital in NC. He is an MD and I see him due to chronic Lyme's Disease. He had a pamphlet in his office on Effexor. told him what everyone on the computer was saying about
Effexor and he said that most of their pts that took Effexor had to go off of it because of high blood pressure, and he was glad that he had never had to take any of tnese drugs. Needless to say this made me more motivated to contilnue my own withdrawal from Cymbalta. But,it's the first time I've heard an MD against a med!
Posted by corafree on December 7, 2004, at 21:41:13
In reply to Re: ***********Must Read Effexor Article************** » Dan Perkins, posted by dancingstar on December 7, 2004, at 20:14:59
Thanks Dan. I've printed it and will keep for reference. Anyone else who runs across any such articles, bring 'em on. merry stressmas cf
Posted by Smeegle on December 8, 2004, at 16:00:45
In reply to Re: side effects from withdrawing/fatigue Gia » Auntiemogs, posted by MKB on December 6, 2004, at 8:43:03
I am about half-way thru getting off Effexor XR and it's going better than I expected. After being on 300mg for well over 3 years, Although it really helped for a while, I was once again having break-thru depression and was needing dosage increases more and more frequently. I was at the max dosage he would prescribe and I was ready to get off it anyhow. It was to the point that the withdrawal crap started if I was even late taking my daily dose (forget missing a whole day). I was also having major problems with fatigue and motivation. I felt like a major slug dragging myself thru the day so I could collapse on the couch. My energy has improved (getting there, but still tired), the brain fog is getting better and I actually manage to get at least one chore done at night before hitting the couch. In three weeks I have made it down to 75mg (from 300), which is much faster than I anticipated. I started ramping up on Lamictal the same week I started ramping down the Effexor. So far no probs with the Lamictal (and perhaps it's keeping the brain zaps at bay). I expect the last step to be the worse (when I stop completely after a week at 37.5 mg).
It was a great med at first, but long-term wasn't such a good idea. I felt like such a crack addict needing my Effexor fix every day, panicking when the bottle got low.
Smeegs
Posted by corafree on December 8, 2004, at 16:21:05
In reply to Re: side effects from withdrawing/fatigue, posted by Smeegle on December 8, 2004, at 16:00:45
What is the Lamictal doing to help you, if ya' don't mind my asking? Are you taking anything else, scrips or alternative? Hang in there cf
Posted by S.Bartel on December 8, 2004, at 22:14:27
In reply to Re: side effects from withdrawing/fatigue, posted by Smeegle on December 8, 2004, at 16:00:45
Yes, I know what mean. I think a better name for it would be Effixer. LOL
Posted by S.Bartel on December 8, 2004, at 22:25:07
In reply to Re: side effects from withdrawing/fatigue » Smeegle, posted by S.Bartel on December 8, 2004, at 22:14:27
> Yes, I know what mean. I think a better name for it would be Effixer. LOL>>>
When you finish with the 37 !/2mg, you might need to open the capsules and pour half of it out and take that for a week and save what you pour out and cut that in half and take it for a week and so on until you get down to just a few grains and then stop. I still had withdrawls when I tried to stop at 37 1/2. You may not have a problem but just in case, and you don't have to have them in a capsule to take them. It just makes it a little easier to swallow. Good luck. Sammi
Posted by awatts on December 9, 2004, at 6:27:44
In reply to Re: side effects from withdrawing/fatigue, posted by S.Bartel on December 8, 2004, at 22:25:07
> > Yes, I know what mean. I think a better name for it would be Effixer. LOL>>>
>
>
> When you finish with the 37 !/2mg, you might need to open the capsules and pour half of it out and take that for a week and save what you pour out and cut that in half and take it for a week and so on until you get down to just a few grains and then stop. I still had withdrawls when I tried to stop at 37 1/2. You may not have a problem but just in case, and you don't have to have them in a capsule to take them. It just makes it a little easier to swallow. Good luck. Sammi
>
My withdrawal was not that bad until I tried to go from 37 1/2 to zero. I had to go back up to 37 1/2 mgs, and taper to zero over several months. 225 to 37.5 mgs was MUCH easier than 37.5 to zero mgs.
Posted by ask on December 9, 2004, at 18:37:35
In reply to Re: ***********Must Read Effexor Article************** » dancingstar, posted by corafree on December 7, 2004, at 21:41:13
Interesting... They describe many of the problems that I've had in the past--namely insomnia and agitation...
Posted by jlo on December 9, 2004, at 20:35:55
In reply to Re: ***********Must Read Effexor Article**************, posted by ask on December 9, 2004, at 18:37:35
yeah, i'm on lamictal and started effexor xr 2 weeks ago. i experienced lightheadednes (almost a "tipsy" feeling) and dilated pupils resulting in blurred vision. so far not sure of the anti-depressant effect.... think i feel more energy, but with no motivation. does that make sense?
Posted by S.Bartel on December 9, 2004, at 20:41:26
In reply to Re: ***********Must Read Effexor Article**************, posted by jlo on December 9, 2004, at 20:35:55
Yes it does make sense when you first start taking it. After awhile the energy goes away and fatigue sets in. Your brain is so fogged by then that you don't realize the fatigue comes from the effexor.
Posted by ask on December 9, 2004, at 23:36:07
In reply to Re: ***********Must Read Effexor Article**************, posted by jlo on December 9, 2004, at 20:35:55
Yes, that makes sense. When I first started taking Effexor I felt like I had all of this energy but couldn't get expel it--basically, I no motivation to work off the energy and agitation. It also resulted in insomnia too. After a while, though, it started to subside. I'm waiting too see if it stays that way for a prolonged period of time before I assume it's totally gone.
However, I'm not sure if it's helping my depression. My level of depression seems to be more affected by my general attitude based on what's going on in my life than on the medication. Has anyone felt this too? If so, what did you do to fix the problem? Up the meds? Taper them down and start a new med?
Many thanks.
Posted by ask on December 9, 2004, at 23:40:36
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
I'm not sure if the Effexor is helping my depression. My level of depression seems to be more affected by my general attitude based on what's going on in my life than on the medication. Has anyone felt this too? If so, what did you do to fix the problem? Up the med? Taper it down and start a new med?
Many thanks.
Posted by absolute on December 10, 2004, at 0:30:58
In reply to Re: Anyone had success on Effexor XR?, posted by ask on December 9, 2004, at 23:40:36
I've been on Effexor for almost a year- When things are bad it's hard to keep a good attitude but the Effexor seems to level things out a little. Increasing/decreasing the dosage is tricky. I've had problems in the past where I've felt fine again so I stopped taking it, then relapsed. This med is weird because with any change in dosage, you feel "surges" or tingling feet right away, but your mood stabling out might take a few weeks to a month. I would give it time if I were you and your general attitude might get better without your realizing it.
If you decide to stop taking Effexor, taper off. 150 to 75 to 37.5mg.... Withdrawl is no fun!!
> I'm not sure if the Effexor is helping my depression. My level of depression seems to be more affected by my general attitude based on what's going on in my life than on the medication. Has anyone felt this too? If so, what did you do to fix the problem? Up the med? Taper it down and start a new med?
>
> Many thanks.
Posted by Gia on December 10, 2004, at 6:40:14
In reply to Re: Anyone had success on Effexor XR?, posted by absolute on December 10, 2004, at 0:30:58
Hello Absolute,
I have the same problem my depression seems to relaspe involving things going on in my life at that time. It is Atypical Depression which I have diagnosed with and is probably the same for you. I have been hospitalized and on many AD's until I found Effexor which has helped me a great deal I finally feel happy and at ease. I have not been through the withdrawl yet though and I am not looking forward to that process.Gia
> I've been on Effexor for almost a year- When things are bad it's hard to keep a good attitude but the Effexor seems to level things out a little. Increasing/decreasing the dosage is tricky. I've had problems in the past where I've felt fine again so I stopped taking it, then relapsed. This med is weird because with any change in dosage, you feel "surges" or tingling feet right away, but your mood stabling out might take a few weeks to a month. I would give it time if I were you and your general attitude might get better without your realizing it.
>
> If you decide to stop taking Effexor, taper off. 150 to 75 to 37.5mg.... Withdrawl is no fun!!
>
> > I'm not sure if the Effexor is helping my depression. My level of depression seems to be more affected by my general attitude based on what's going on in my life than on the medication. Has anyone felt this too? If so, what did you do to fix the problem? Up the med? Taper it down and start a new med?
> >
> > Many thanks.
>
>
Posted by tulip on December 10, 2004, at 12:57:57
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
Hello to everyone and please bear with me as this may be a lengthy submission. I have been following this thread since first being described this medication 4 months ago and would like to say how appreciative I am to everyone who has shared their advice and experiences here. Without this thread ‘true’ information is hard to come by and myself , like others, would have thought I was alone in the misery this drug caused. I would like to say first off though to all the people who have found success with this drug and cannot understand our dilemma that people are different and react differently to medications. Congratulations that you found success but others truly have found hell. I don’t take everything I read here as ‘fact’ about the med’s it’s just what different people have experienced. But I have been able to read between the lines and compare my own personal observations and therefore not only learn general things but also ease my mind that I’m not crazy or that I’m not the only one not finding this to be the ‘symptom-free wonder drug’ MY particular doctor deemed it to be. The most important thing that we are all trying to get across is that there is MUCH room for error with this drug. Someone has to take responsibility and to be honest I don’t know enough to know who. I would like to blame my (now dismissed) doctor but then again how much are they told by the companies? But he’s not off the hook either…..doctors are there to tell us what we need or else we would write our own prescriptions right? The time MUST be spent by them to talk to their patients and truly be familiar with any drugs they think might help the individual. The individual! Not the general public. They must also listen to us carefully when we express our displeasure at a drug they have prescribed. I’m appalled that I hear so many stories of doctors telling us that these symptoms we are experiencing with effexor are all in our heads or a stomach flu etc etc. God I’d love to slip my doctor these pills for a month or so!
O.k. I’ll get to my point. I wanted to briefly detail my experience in case it brings light to anyone else currently starting or stopping this medication. I found sooo many little tidbits of advice while reading this that I wanted to share back. I was prescribed effexor 4 months ago after suffering a full blown ‘panic attack’. My first! I had always suffered mild waves of depression over the years but had chosen to avoid the medication route until that attack. ( They are horrific for anyone who has never experienced them.) I went to a new doctor who after listening to my account of the attack immediately suggested effexor xr and ativan. I was astute enough to ask about both and how long I would be expected to take them. He said effexor was used to treat ‘mild’ anxiety and depression and that the treatment would only be 5 or 6 months of taking these.
HA! What a quack!
The ativan I was supposed to take twice a day knocked me on my ass immediately (I’m 5’8 and 105 lbs). Sure that would help the panic as I was almost comatose. I stopped taking those immediately after the first and started taking them as needed. (was still feeling on-set of attacks at that point). The effexor I took that morning and was a mess by the evening. My doctor for-warned me of nothing! Sure the info that comes with it gives general things to expect but we all know that that comes with most med’s and the doctor normally tells you that these side effects would be minimal. Not with Effexor! I was shaking like a leaf, sweating, stuttering, having weird yawning feelings, tenseness in my whole body, especially my jaw. The feelings of an impending ‘attack’ were coming in waves. I felt so out of it I didn’t even want my fiance around me. I felt lost in my own skin. I decided that this was just the beginning and that I should give it a chance to go away….it didn’t. I got so lethargic and hopeless. (I personally never experienced it working at all …not even briefly) When I went back to the doctor he doubled the dose to 75mg and said to give it a couple weeks. I ended up quitting my job as I could barely function around people at all and started to turn into a recluse. (I’m normally extremely social) I truly thought I was going crazy…my mind was racing and racing with sometimes foreign, disturbing thoughts. I would have ‘attacks’ every time I left the house. I was sleeping up to 12 hours a day if I was left to. I lost 5 lbs immediately and would wake up choking and nauseous in my sleep. I also started having trouble sleeping as I was getting terrible leg cramps, night sweats and severe restlessness in my legs throughout the night. (none of this I would have ever dreamed to be a product of the med’s…I just thought I was falling apart on my own until reading this thread). After almost 3 months of this I confronted my doctor (who I might add never once monitored my progress or checked my BP) I pleaded with him to reconsider another med and he said I was being difficult and ‘inventing’ these symptoms as a product of my stress. I’m not a stupid girl (even for 24) and trust my gut immensely so I told him that I thought what he was doing was borderline malpractice and that he should be ashamed of himself for not listening to my concerns and addressing them. He (in a rage) demanded I leave his office and I said I would gladly.(truly though I was terrified and in tears about what to do next. I had gone to him BECAUSE I was scared!) Our lawyers have been in contact since.
Which brings me to 3 days ago. I quit cold turkey! I’ve lived on my own since 16 and never has my life spun so out of control as it has over the last 4 months. I would read this thread and cry at the horrific stories and fears of others in my boat. I felt like I was stuck and too terrified to try to get off these drugs but things has already spun so far out of control what was the worse that could happen? I was already still off work so I just decided to not take the pill one night. (to people taking these still….I found it made me less sleepy if taken in the night). By morning I was already in a mess. (not even 12 hrs since last dose). I had awoke soaked in sweat in the night and terrorized by vivid nightmares such as my teeth all crumbling in my mouth. ( I think I was clenching my jaw in my sleep). When I tried to get out of bed a wave of dizziness hit me so hard I had to sit back down. I was so shocked that it really was as intense as people had portrayed withdrawal to be.(I thought it was probably exaggerated a little or mostly just with people who were on high doses.) The next fun thing was immediate cramps thru my stomach. It felt worse than any stomach flu I had EVER gone thru. I ran back and forth to the bathroom about 7 times that day. And there is no relief I might add…..the cramps continue even if there is nothing in your stomach. Next came the shocks. I had heard about them but wasn’t sure what people were describing. Now I know! It feels like when you get a little shock from the toaster or a plug except it felt like it was emanating from my center. They didn’t’ stop either! I have to say though that even though they are a very alien feeling they were the easiest to deal with so far. They don’t hurt but I do cry out from time to time when they are extra strong. They have stayed with me over the last 3 days. Sometimes they come more or less often. Thank you so much to the person(s) who mentioned that Benadryl helps because it really did. For some reason it lessened the shocks and made me feel much less dizzy. Here I am on day three and doing alright. It sucks that the withdrawal seems to get more symptoms every day but I’ve come up with other ways to combat it. Another lady suggested b-12 isotonix and I have been taking that and anti-diaherrea pills.(to be fair and accurate I should also mention I smoke marijuana daily and I think that may have helped with the shocks and nervousness as well….but please don’t take that as a recommendation!) For me at least…I’m tentatively gaining hope. I have pills at the ready in case I cave but unless it truly becomes hell I won’t touch another. I’m still dizzy and my sight definitely is blurry (took me almost 15 min’s for my eyes to focus this morning) but ironically I feel more happy and awake than I have in 4 months even with shocks and all. I’m even going to venture to work for a couple hours tonight (though that seems a little soon as I’ve been ‘doing fine’ only in private.) We’ll see what happens. The important thing is that the scariest part is over…..the ‘unknown’. I’m already in the middle of ‘withdrawal’ and it doesn’t look half as scary as imagining myself on these drugs years later. I’m sorry to those of you on high dosages as I can imagine your battle will be all that much harder but if you want this for you …if you want your mind back…..fight!
I hope I haven’t annoyed anyone rambling. I intend to keep posting (much shorter) updates if anyone is interested. I also wanted to extend an invitation to anyone with questions or comments to contact me. Hey…if I can help! Anyone who’d like to give me some help/advice would also be appreciated!
Good luck all……
Posted by ed_uk on December 10, 2004, at 13:15:51
In reply to Re: Anyone had success on Effexor XR?, posted by tulip on December 10, 2004, at 12:57:57
Hi Tulip,
I was sorry to hear about what you have been through on Effexor. I used to take Effexor myself, I took 150mg a day. When I stopped Effexor I didn't taper because my mum threw the tablets in the bin when I said that I wasn't going to be taking it anymore!
I just wanted to let you that my withdrawal symptoms only lasted about two weeks. You might be feeling much better soon :-)
Some people are not so lucky and their symptoms last much longer but I just wanted to say that they don't last a long time for everyone.Best Wishes,
Ed.
Posted by dancingstar on December 10, 2004, at 13:29:18
In reply to Re: Anyone had success on Effexor XR?, posted by tulip on December 10, 2004, at 12:57:57
Thank you for your beautifully written and articulate post. It is sure to help many other people. I hope that this hell is very short lived, and that your life returns to happiness soon.
Bebe
Posted by S.Bartel on December 10, 2004, at 14:25:09
In reply to Re: Anyone had success on Effexor XR?, posted by tulip on December 10, 2004, at 12:57:57
Tulip,
Going cold turkey can be very dangerous. I've heard of people dying from that. I completely understand what you are going through and so do many others that post here. Many of us are taking steps to insure that this doesn't happen to others. Please email me at, <sammibar@sbcglobal.net>. Did you watch Prime Time Live last night?
Good luck, Sammi
Posted by jclint on December 10, 2004, at 14:50:02
In reply to Re: Anyone had success on Effexor XR? » tulip, posted by S.Bartel on December 10, 2004, at 14:25:09
Woah, hold up a minute there!
You've heard of people dying from Efexor withdrawal?
Posted by S.Bartel on December 10, 2004, at 14:56:28
In reply to Re: Anyone had success on Effexor XR? » S.Bartel, posted by jclint on December 10, 2004, at 14:50:02
Go to <petitiononline.com> Read all the comments.
Posted by jclint on December 10, 2004, at 15:53:54
In reply to Re: Anyone had success on Effexor XR? » jclint, posted by S.Bartel on December 10, 2004, at 14:56:28
Are you talking about people committing suicide during withdrawal? I have been on the petition many times, but have not seen any accounts of death as a direct result of withdrawal. I can't see how that's physically possible.
Posted by Dr. Bob on December 10, 2004, at 18:12:15
In reply to Re: Anyone had success on Effexor XR? » jclint, posted by S.Bartel on December 10, 2004, at 14:56:28
> Going cold turkey can be very dangerous. I've heard of people dying from that.
>
> S.Bartel> You've heard of people dying from Efexor withdrawal?
>
> jclint> Go to <petitiononline.com> Read all the comments.
>
> S.BartelPlease don't exaggerate or overgeneralize. What comments led you to conclude that people have died?
Bob
Posted by MKB on December 10, 2004, at 19:13:45
In reply to Re: Anyone had success on Effexor XR? » S.Bartel, posted by jclint on December 10, 2004, at 15:53:54
I'm not sure, but I think what Sammi meant was that people have committed suicide or had fatal accidents during the withdrawal. I say this because of the many personal accounts I've read at www.petitiononline.com/effexor.
Posted by S.Bartel on December 10, 2004, at 20:56:22
In reply to Re: Anyone had success on Effexor XR? » jclint, posted by MKB on December 10, 2004, at 19:13:45
Thank you MKB for clarifying for me. I don't think it's an exageration when people die for whatever reason from taking a prescription drug that they were not warned about. I was just trying to be helpful to someone that was quitting cold turkey when I personally know what the side effects can be.
Sammi
Posted by dancingstar on December 10, 2004, at 23:35:55
In reply to Re: Anyone had success on Effexor XR? » jclint, posted by MKB on December 10, 2004, at 19:13:45
I haven't been following this, but a drug that causes you to commit suicide when you stop taking it can't be good, really. It can't. Logic must come into play at some point, mustn't it??
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