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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 4 of 4. This is the beginning of the thread.
Posted by Tony C. on June 27, 2004, at 16:46:30
I give up all, I have shaved my dose down 20mg in last 27 days. I will NOT be reducing it anymore, physically I am fine, and I didn't do bad mentally either, HOWEVER I can't take the little changes I notice, like being a little more depressed, not for long but I can tell a slight difference, and that DEMON in my head has resurfaced somewhat and keeps telling me "WHAT IF" what if I spiral down at somepoint from reducing, and that is a TREMENDOUS fear I have. I totally got the raw deal, I found a medicine that worked for me like a charm 7 years ago ... SERZONE and then people ruined it, made it out to be worse than it is, and also they pressure to get rid of the EQUALLY EFFECTIVE Generic Version. I mean you talk about the cruelest prank, that is it. I was at Deaths door via suicide, and NOTHING helped except the Serzone, then it becomes a controversial medicine. I will get thru this crisis, I will resume my regular therapeautic dose of NEFAZODONE for as long as I possibly can, I hope the rest of my life. I must accept that my sex life is not the same and NEVER will be, but that is ok, but having that depressing anxiety demon n my head resurface is not an option, I will trade a POWERFUL ejaculation for being calm and not depressed, and keeping that depressing demon from resurfacing. People I need your support more than ever, I need good sound encouargement and assurance that even if they pull the Generic Serzone called NEFAZODONE, that I will survive, and there will be something else (I hope) to ease off the Nefazodone, and keep that Depression/Anxiety Demon in my head locked up where it belongs. Even tho I feel fine, I can just tell something was/is trying to resurface slowly. PEOPLE on Serzone/Nefazodone PLEASE keep petitioning the FDA and Generic companies to always make sure a long term user as myself has the right to stay on the medicine that helped me most. I mean I do not want to have this medicine ripped from me, then put me in a POSSIBLE suicidal state.
Sincerely - SAD Tony C. ; (
Posted by SLS on June 27, 2004, at 17:53:51
In reply to I GIVE UP CAN'T TAKE NO MORE - SERZONE/NEFAZODONE, posted by Tony C. on June 27, 2004, at 16:46:30
Hi Tony.
I'm sure you'll get plenty of support and creative ideas from the people here should you need to discontinue nefazadone.
Have you had any experience with Remeron or trazodone? I'd be curious to know what drugs you have failed to respond to. It's a good a place as any to start.
Don't give up hope so soon that nefazodone will be discontinued. My hunch is that there is too much financial incentive to keep making it. If I were in your shoes, I would continue taking it. You really have nothing to lose as long as you keep track of your liver function from time to time.
- Scott
Posted by Tony C. on June 27, 2004, at 20:47:49
In reply to Re: I GIVE UP CAN'T TAKE NO MORE - SERZONE/NEFAZODONE, posted by SLS on June 27, 2004, at 17:53:51
Hi Scott, thank you for your reply, I tried Zoloft (nothing except a pounding headache for 2 weeks), Paxil (PURE HELL stayed awake the whole 2 weeks I took it, and felt EXTREMELY Violent and Pissed off) I had MEGA Insomnia from my Depression Paxil made it 10 times worse. - Nortrpytaline, (Pounding Heart) Trilifon,(Psychotic) Elavil (worked to some extent with the Serzone I took 10mg tab of Elavil), Luvox(= Worthless for me) etc. so many I can barely remember them. Trilifon was for my racing thoughts, but Serzone took care of them better than the Trilifon. Oh yes I did take Trazodone also, HOWEVER my face got kind of red and my left nostril plugged shot like an allergy to pollen, so doc at that time said forget that one. BUT I may end up going back on Trazodone, I mean isn't it virtually the same as Nefazodone ? I need your support, and appreciate it, this is a very strssful difficult time for me with this controversy. I prefer to just stay on it and keep check my stool and piss, and getting LFT tests. My current Doc actually got MAD at me for wanting a liver test every 3 months, and threatend to send me to Psycho-Therapy to get me off of the Liver tests every 3 months, said once a year was fine. I know Nefazodone/Serzone is 3rd line Anti Depressant, but for me it was TOP OF THE LINE, I really felt the benefits pretty quickly.
Sincerely - Tony C.
Posted by MissAmy on June 28, 2004, at 4:14:03
In reply to Re: I GIVE UP CAN'T TAKE NO MORE - SERZONE/NEFAZODONE, posted by Tony C. on June 27, 2004, at 20:47:49
" My current Doc actually got MAD at me for wanting a liver test every 3 months, and threatend to send me to Psycho-Therapy to get me off of the Liver tests every 3 months"
Dear Tony,
It sounds like some psychotherapy or counseling might HELP with your level of depression---I cannot just take meds--I have to be addressing childhood issues/current issues to help me beat the blues and therapy is an important place to start.. I have always been told they go hand in hand---some doctors (although the number seems to be dropping anymore--hehe!) get upset when they hear patients are not getting therapy while they are on medication. Cognitive Behavioral Therapy REALLY really helped me with my anxiety attacks and everytime I get one I refer to my little panic workbook (In fact, I just ordered a new one since I am moving to a big city soon and I am a bit freaked out!--I lost my old one because I had not had to refer to it for a few years). Anyway...try to think positively and don't wig yourself out! (I am good at wigging myself out and getting those "what if???" feelings too). Do your very best to "stay in the moment" and not catastrophize--with some practice it can be done! I got a neat book the other day called "The Places that Scare You" (or something like that) by Pema Chodron--it is a buddhist book about staying in the moment, allowing pain and easing suffering. If you have a library card or if you can order it off amazon it might help--it helped me put some things into perspective. Good luck, babe. Everything will be okay. It just seems whacked right now. :) Hope you feel better soon!
Amy
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