![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 723 to 747 of 1085. Go back in thread:
Posted by helenag on December 11, 2003, at 16:13:20
In reply to Re: Topamax-bipolar and weight loss? » Beck, posted by Cybele on December 11, 2003, at 8:57:55
Hi cybele: I'm on 300mg of topamax, increased from 250mg, which had been my dose for about 4 months previously. Am on it for mood stabilization and to help with alcohol cravings. Well, topamax does not help me with cravings. It does not prevent cravings nor deter drinking, at least not in my experience. There have been studies done on using the drug for this purpose for alcoholics.
Have never had any hangovers from drinking. Have never noticed any increase in the effect of alcohol. Am on a teeny tiny dose of seroquel and I won't take any of that if ever drinking--too sedating a mix. Have been on effexor xr 300mg for three years and have never noticed anything amiss while drinking and taking it.
However, I do note that lately I have had some leg cramps and wondered if it was from being dehydrated. Haven't drank for over a week. Also at 300mg, my cognition has me seeming quite ditsy at times.
Hope this helps. Just one person's experience.
Posted by Beck on December 11, 2003, at 19:30:08
In reply to Re: Topamax-bipolar and weight loss? » Beck, posted by Cybele on December 11, 2003, at 8:57:55
> > Good question, I was wondering that also. Plus, has anyone had any experiences, good or bad, while drinking alcohol while on topamax? Any info would be much appriciated!
>
> Beck, I read the archived posts about Topamax before I tried the med, and there were quite a few posts from people who say, "Don't drink alcohol on this med!" The PDR says that alcohol increases the side effects of Topamax. Because Topamax tends to dehydrate you without the alcohol, you add alcohol to the mix and you will have a helluva hangover. Drinking lots of water with the alcohol usually does not help much because alcohol seems to inhibit your body's absorption of water (this is purely my observation, LOL).
>
> That said, I took 25mg a day of Topamax for 3 weeks and had 3 drinks on Thanksgiving and did not have any untoward aftereffects. That was the only alcohol I had in those 3 weeks and I was on a baby-sized dose, so I would imagine if you were drinking 4-5 times a week at a higher dose you might feel pretty crapulent most of the time. I think the problems really kick in when you are at the more therapeutic doses.
>
> BTW, I stopped taking Topamax after three weeks because I started losing fistfuls of my hair when I shampooed. Now I am just taking 150mg WB-SR in the morning and getting a weekly 4 hours of good cardio exercise (i.e., with heart rate 70-80% of max.). My dx was double depression/soft bipolar, although I am feeling a lot better now than I was in September/October. (The exercise did it with a little boost from the Wellbutrin, I think.)
>
>HAIR LOSS???? No No No I'm too vain to loose hair:) Is this a symptom that is common for many people?
Posted by Cybele on December 11, 2003, at 19:55:22
In reply to Re: Topamax-bipolar and weight loss?, posted by Beck on December 11, 2003, at 19:30:08
Go to the bottom of this page and enter the following into the Google search box:
hair loss topamax
Then search on dr-bob.org.
Posted by headachequeen on December 11, 2003, at 20:00:56
In reply to Re: Topamax-bipolar and weight loss?, posted by Beck on December 11, 2003, at 19:30:08
> > BTW, I stopped taking Topamax after three weeks because I started losing fistfuls of my hair when I shampooed. > >
> >
>
> HAIR LOSS???? No No No I'm too vain to loose hair:) Is this a symptom that is common for many people?
>Tegretol and Topomax both cause hair loss and drying out of hair... so take biotin and vitamins c and e and zinc and there is no problem... I take 400 mg of both per day and my hair is not falling out and is no longer
imitating straw.. for a while there I was worried... and my hair is one of my greatest vanities... that and my voice...
and when I went for a single fibre bundle test... DON"T EVER LET ANYONE CON YOU INTO ONE OF THOSE... the neurologist doing it told me that the changes in my voice were a symptom...
not of what, but a symptom...
oh, joy... I am left in the dark again...
they treat us like mushrooms in that neurological area...
kat
Posted by kka on December 11, 2003, at 20:06:01
In reply to Re: Topamax-bipolar and weight loss? » Beck, posted by headachequeen on December 11, 2003, at 20:00:56
> > > BTW, I stopped taking Topamax after three weeks because I started losing fistfuls of my hair when I shampooed. > >
> > >
> >
> > HAIR LOSS???? No No No I'm too vain to loose hair:) Is this a symptom that is common for many people?
> >
>
> Tegretol and Topomax both cause hair loss and drying out of hair... so take biotin and vitamins c and e and zinc and there is no problem... I take 400 mg of both per day and my hair is not falling out and is no longer
> imitating straw.. for a while there I was worried... and my hair is one of my greatest vanities... that and my voice...
> and when I went for a single fibre bundle test... DON"T EVER LET ANYONE CON YOU INTO ONE OF THOSE... the neurologist doing it told me that the changes in my voice were a symptom...
> not of what, but a symptom...
> oh, joy... I am left in the dark again...
> they treat us like mushrooms in that neurological area...
> kat
Kat,I know I have read that you take 2500 mgs of Biotin which I have now started, but what do you take 400 mgs of Vitamin E and C? How much Zinc.
BTW - Does anyone have that link Murphia posted re the other discussion group for Topamax users? Any help would be great. I couldn't find the old post! Thanks
>
Posted by Beck on December 11, 2003, at 20:31:03
In reply to Topamax Experiences?, posted by Kingfish on January 4, 2001, at 7:29:48
Wow, when I look at all the horrendious possible side-effects of Topamax I have to look forward to, I find myself wondering why my neurologist asked me to try it. This medicine sounds like more trouble than its worth really. But anyway, thanks for educating me on the horrors/great things about Topamax!
Posted by headachequeen on December 11, 2003, at 20:36:58
In reply to Re: Topamax Experiences?, posted by Beck on December 11, 2003, at 20:31:03
> Wow, when I look at all the horrendious possible side-effects of Topamax I have to look forward to, I find myself wondering why my neurologist asked me to try it. This medicine sounds like more trouble than its worth really. But anyway, thanks for educating me on the horrors/great things about Topamax!
it may well depend upon the reason for trying it... there are other meds out there that do the same thing and have worse side effects.. I am trying to convince my doctor to take me off tegretol and put me on topomax exclusively because believe me, tegretol makes topomax look like a walk in the park on sunday afternoon... followed by a picnic while the band plays in the band stand and swans sail majestically down the river...
I am still enjoying the tingling in the hands and feet and now have the tingling in my face... and that is all thanks to Tegretol.. or maybe it is new symptoms of the epilepsy... who knows??? I can find out by stopping the meds entirely to see... and then go into seizures... what a lovely choice....
kat
Posted by Beck on December 11, 2003, at 20:52:45
In reply to Re: Topamax Experiences? » Beck, posted by headachequeen on December 11, 2003, at 20:36:58
> > Wow, when I look at all the horrendious possible side-effects of Topamax I have to look forward to, I find myself wondering why my neurologist asked me to try it. This medicine sounds like more trouble than its worth really. But anyway, thanks for educating me on the horrors/great things about Topamax!
>
> it may well depend upon the reason for trying it... there are other meds out there that do the same thing and have worse side effects.. I am trying to convince my doctor to take me off tegretol and put me on topomax exclusively because believe me, tegretol makes topomax look like a walk in the park on sunday afternoon... followed by a picnic while the band plays in the band stand and swans sail majestically down the river...
> I am still enjoying the tingling in the hands and feet and now have the tingling in my face... and that is all thanks to Tegretol.. or maybe it is new symptoms of the epilepsy... who knows??? I can find out by stopping the meds entirely to see... and then go into seizures... what a lovely choice....
> katThe tingling in your hands and feet is from Tegretol? When my neurologist perscribed Topamax he said that that would probly happen, not looking forward to that! Luckily it hasnt began yet, but its only week 1, so I'll wait and see.
Posted by headachequeen on December 11, 2003, at 21:39:32
In reply to Re: Topamax Experiences?, posted by Beck on December 11, 2003, at 20:52:45
> The tingling in your hands and feet is from Tegretol? When my neurologist perscribed Topamax he said that that would probly happen, not looking forward to that! Luckily it hasnt began yet, but its only week 1, so I'll wait and see.
There is some tingling with the Topomax I am told but there is a lot of tingling ... tingling??? it is as if someone cut off the circulation to my hands and feet and then let it start again... extreme pins and needles... with the tegretol... has been going on ever since I started taking the stuff...
yes there are side effects to Topomax... no pretending otherwise... but I have come to think and experience that the side effects are less and easier to live with from Topomax...
just my experience and opinion I realise... and I have also found that there is more help available for the side effects from Topomax and dealing with them... and that is here...
I take 400 mg a day of Topomax and while at times I found it scary because of what I read and what I scared myself into believing... the experience has not been as bad as the Tegretol one... and the control over the seizures has been much greater since the Topomax entered the picture... again my opinion and experience...
and I am still working on getting the Tegretol out of the picture... or on getting onto less Tegretol and replacing it with Topomax...
kat
Posted by mags on December 12, 2003, at 8:54:35
In reply to Re: Topamax Experiences?, posted by Beck on December 11, 2003, at 20:52:45
I got tingling in face, arms, hands and feet. It usually was at its worst after each increase in dose..it was annoying but I could live with it. It was like pins and needels when your foot goes asleep when you lay on it. THe worst for me was my face..especailly when I ate... my lips would tingle!! Really weird!! But it has pretty well all gone away!! Titrate slowly and you will be fine.
Good Luck.Maggie
Posted by cyndie on December 12, 2003, at 12:04:15
In reply to Re: Topamax-bipolar and weight loss? » Beck, posted by headachequeen on December 11, 2003, at 20:00:56
Whoa...what is this about a change in your voice?!?!?!?!
Posted by jtevers on December 12, 2003, at 14:27:01
In reply to Re: Topamax Experiences? » Beck, posted by mags on December 12, 2003, at 8:54:35
> I got tingling in face, arms, hands and feet. It usually was at its worst after each increase in dose..it was annoying but I could live with it. It was like pins and needels when your foot goes asleep when you lay on it. THe worst for me was my face..especailly when I ate... my lips would tingle!! Really weird!! But it has pretty well all gone away!! Titrate slowly and you will be fine.
Maggie, et. al.,
i have read seldomly that ingesting moderate (amount?) doses of a complex vitamin B helps quell the tingling sensation, any experience?
am i understanding correctly that the tingling that occurred in response to dose increases in your topamax also abated with time ... until the next increase? and may be avoided with slow titration?
Posted by Beck on December 13, 2003, at 0:19:57
In reply to Re: Topamax tingling and vitamin B ?, posted by jtevers on December 12, 2003, at 14:27:01
> > I got tingling in face, arms, hands and feet. It usually was at its worst after each increase in dose..it was annoying but I could live with it. It was like pins and needels when your foot goes asleep when you lay on it. THe worst for me was my face..especailly when I ate... my lips would tingle!! Really weird!! But it has pretty well all gone away!! Titrate slowly and you will be fine.
>
> Maggie, et. al.,
>
> i have read seldomly that ingesting moderate (amount?) doses of a complex vitamin B helps quell the tingling sensation, any experience?
>
> am i understanding correctly that the tingling that occurred in response to dose increases in your topamax also abated with time ... until the next increase? and may be avoided with slow titration?
>
>Whats titration? and is complex vitamin b different than just vitamin b?
Posted by jtevers on December 13, 2003, at 12:23:48
In reply to Re: Topamax tingling and vitamin B ?, posted by Beck on December 13, 2003, at 0:19:57
> > Maggie, et. al.,
> >
> > i have read seldomly that ingesting moderate (amount?) doses of a complex vitamin B helps quell the tingling sensation, any experience?
> >
> > am i understanding correctly that the tingling that occurred in response to dose increases in your topamax also abated with time ... until the next increase? and may be avoided with slow titration?
> >
> >
>
> Whats titration? and is complex vitamin b different than just vitamin b?answer: titration is the process of gradually increasing the dose you ingest, ie. to titrate slowly step by step.
and i don't know why or how but b-complex is a different vitamin than plain old B.
Posted by Beck on December 14, 2003, at 22:04:39
In reply to Topamax Experiences?, posted by Kingfish on January 4, 2001, at 7:29:48
So its only been a week since I started taking 1/2 of a 25mg topamax once a day and I'm so incredibley tired! I sleep 11 hours a night and it kills me to get up even then. this is okay now because I'm on break, but when school begins again I cant do this. Has anyone experienced this sleepiness and does it go away or get worse as I increase dose?
Posted by jhlsgirl on December 15, 2003, at 9:30:16
In reply to Re: Topamax Experiences?, posted by Beck on December 14, 2003, at 22:04:39
I too just started 1/2 of 25 mg. It's so weird how this drug effects people differently. I am a little tired during the day and maybe a little foggy. I have slept better then I have in a long time. but really sleepy I am not. In fact I have to say I am a little less sleepy then before I started. I was prescribed topamax as a mood stablizer and to correct my sleep I have sleep apnea as well. I started on 1/2 25 mg because of this board..thank you all so much..i hope the teeny improvment I feel gets alot bigger!!
Posted by Sooshi on December 15, 2003, at 9:33:15
In reply to Re: Topamax Experiences?, posted by Beck on December 14, 2003, at 22:04:39
Hi Beck,
My experience was the same...extreme tiredness for the first two weeks (I started with 25mgs at night). I literally couldn't function. But, it DID go away, and now I don't have any tiredness at all. I actually have a LOT of energy. With every increase in dosage though, expect another few days/week of fatigue and tiredness. Hang in there...it takes a while to build up to your therapeutic dosage, so you'll need a lot of patience!
Posted by headachequeen on December 15, 2003, at 11:29:19
In reply to Re: Topamax tingling and vitamin B ?, posted by jtevers on December 12, 2003, at 14:27:01
>
> am i understanding correctly that the tingling that occurred in response to dose increases in your topamax also abated with time ... until the next increase? and may be avoided with slow titration?
>
>Arrgghhh there are days when one should either sleep until the next day or not turn on the computer or something....
<g>Tegretol, another of the anti-seizure medications causes the tingling...tingling, now there is a nice euphemism... we live in a cold climate... they do not call it NORTHERN Ontario for no reason, believe me... and I never know if my hands and feed are telling me that they are about to file for separate maintenance because of impending frostbite or about to fall off because they are frozen or if it is just another Tegretol reaction...
the tingling side effect from the Tegretol never goes away...
at least not in my experience...it made it fun trying to sort out the Topomax experience .... :)
and before the Topomax introduction, which was done at 25 mg increments over a period of months.. and at my discretion, I could increase the dosage every two weeeks or go slower if I wished... the 'tingling' was so extreme at times that my doctor thought it might be a symptom of something else...
No one has ever told me that the Tegretol Tingles will go away...
they also affect the face... and it seems to be more on a whenever they feel like it basis...
indeed it is time to convince Someone... ANYONE that Tegretol needs to be replaced with more Topomax... maybe I am the only lunatic here? I don't know but I am convinced with all that I read that there is less risk from it than from Tegretol.... fewer side effects...
and less discomfort...
kat
Posted by jhlsgirl on December 15, 2003, at 12:30:34
In reply to Re: Topamax Experiences? » Beck, posted by jhlsgirl on December 15, 2003, at 9:30:16
how many of us have started with 1/2 of 25 mg? I have heard the slower the better. I have been on this for 4 days now and I really do feel a slight improvement..IM SLEEPING! does anyone else have fibromyalgia? my pdoc says this is also a help for that. Sounds all to good to be true when you factor in the weight loss that he also says will happen. What is the lowest dose that anyone has lost weight on? I swear I feel a small glimmer of happiness creeping in if i still remember what that feels like.
Posted by Cybele on December 15, 2003, at 13:05:12
In reply to Re: slow tritration, posted by jhlsgirl on December 15, 2003, at 12:30:34
> Sounds all to good to be true when you factor in the weight loss that he also says will happen. What is the lowest dose that anyone has lost weight on? I swear I feel a small glimmer of happiness creeping in if i still remember what that feels like.
Now this is purely anecdotal, but I took 25mg of Topamax daily for 3 weeks after being on Wellbutrin for 6 weeks (I am continuing on Wellbutrin). The Wellbutrin helped me stay on WW, but I think that effect fades after 4-6 weeks. So I was already losing weight and not stress eating when I started Topamax. A week ago or so I stopped taking Topamax because the hair loss was freaking me out. Within a few days I was struggling to stay on WW and for the last two days it was simply impossible. I was back to my gourmet/gourmand ways. Last night we had blue camembert cheese, tarragon chicken salad, french bread, Pinot Grigio, and dark chocolate for dinner--definitely NOT on WW in the volume I ate of these treats. So, last night I started back on Topamax. I don't know if it is a placebo effect (i.e., all in my head), but as I thought the Wellbutrin was helping me to stay with my eating plan I did not expect this low dose of Topamax to also help with this, and hence did not *expect* going off of it to cause a problem. Hope this makes sense.
Posted by jhlsgirl on December 15, 2003, at 13:39:12
In reply to Re: slow tritration » jhlsgirl, posted by Cybele on December 15, 2003, at 13:05:12
Hair Loss huh? well I guess I'll wait that one out. I actually lost 60 lbs on WW last year but have gained back 30 how sad is that? My Pdoc says its because I'm bi polar Im waiting that one out too. Im beginning to think that all my problems are from a sleep disorder.The topamax does make me sleep. this is all so confusing, its so hard to trust doctors. I dont know if im doing the right thing or not. with me weight gain leads to depression cant sleep because of fibromyalgia and who knows what else?
Posted by Beck on December 15, 2003, at 18:29:54
In reply to Re: slow tritration » Cybele, posted by jhlsgirl on December 15, 2003, at 13:39:12
i am not to happy to be sleeping all the time. People make Topamax sound like some wonder drug. Well I don't think its so wonderous. it causes hairloss, I've already escaped that sentance once in life, thats enough. It causes wightloss, I already lost 20 pounds (yay slimfast!) and cant realy afford to loose more. I read somewhere were theres a high rate of kidney stones in patients on topamax, that scares me. And also I read Topamax could be used as a mood stabilizer, so I was thinking hey cool, eventhough I dont need it. Well my mood certainly is not stable now! and mee and my depression were just peachy with 45mg of Remron before Topamax came along. Some wonder drrug! However I'm notorious for not taking meds the neurologist prescribes me so I guess I will stick with topamax for atleast 2 months. I hope the sleepieness goes away quickly!
Posted by mags on December 15, 2003, at 19:58:34
In reply to Re: slow tritration, posted by Beck on December 15, 2003, at 18:29:54
Hi all, Maggie hear....few notes to add,
re kidney stones, yes Topomax can be bad but not if you drink lots of water and that is also good for weight loss! I find it great for helping me sleep at night and it used to make me sleepy during day but not so much anymore. I am up to 75 mg and because I titrated(upped dose) slowly I don't have any more side effects. I feel next time I see doc I can start upping more quickly. I have not had any hair problems (keeping fingers crossed!)I am still finding I have good days and bad days mood wise but I think I am feeling more stable and happier moments are definately peaking through a lot!. My appetite has decreased but that could also be because I am on the Atkins diet.I started Atkins and Topomax at the same time, 8 weeks ago and I have lost 30 lbs.I am not complaining ;o)I haven't felt this good in a long time......
Maggie
Posted by mags on December 15, 2003, at 21:55:55
In reply to Re: Topamax tingling and vitamin B ?, posted by jtevers on December 12, 2003, at 14:27:01
I do take a Vtamin B complex 90 mg. I don't know if this helps or not 'cause I took this before I started Topamax and I sure still got tingling but my tingling has stopped. I think it is a S/E that is doseage dependant and if you titrate slowly won't be so bad...that worked for me anyway......
Maggie
Posted by jhlsgirl on December 16, 2003, at 8:29:21
In reply to Re: slow tritration, posted by mags on December 15, 2003, at 19:58:34
> Hi all, Maggie hear....few notes to add,
> re kidney stones, yes Topomax can be bad but not if you drink lots of water and that is also good for weight loss! I find it great for helping me sleep at night and it used to make me sleepy during day but not so much anymore. I am up to 75 mg and because I titrated(upped dose) slowly I don't have any more side effects. I feel next time I see doc I can start upping more quickly. I have not had any hair problems (keeping fingers crossed!)
>
> I am still finding I have good days and bad days mood wise but I think I am feeling more stable and happier moments are definately peaking through a lot!. My appetite has decreased but that could also be because I am on the Atkins diet.I started Atkins and Topomax at the same time, 8 weeks ago and I have lost 30 lbs.I am not complaining ;o)I haven't felt this good in a long time......
> Maggie
>
hi maggie I just started WW again with the Topamax even at 1/2 of 25mg I seem to be able to control my appitite better(maybe in my head but ill take it either way) at what dosage did you begin to lose? This drug is funny it seems that people either love it or hate it.
Go forward in thread:
Psycho-Babble Medication | Extras | FAQ
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.org
Script revised: February 4, 2008
URL: http://www.dr-bob.org/cgi-bin/pb/mget.pl
Copyright 2006-17 Robert Hsiung.
Owned and operated by Dr. Bob LLC and not the University of Chicago.