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Dr. Bob is Robert Hsiung, MD,
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Posted by BarbaraCat on September 29, 2003, at 11:20:10
In reply to Re: BP2, FMS, and seroquel here » BarbaraCat, posted by Sabina on September 29, 2003, at 0:45:44
Hi Sabina,
Wait, wait. I just reread your post. Do you mean that seroquel is the MAIN med you're on for BP? How could this be? No lithium, depakote, tegretol, lamictal, trileptal, topamax, dilantin - did I miss any? Were you on any of these previously? Yes, I know about SSRI's. They made me worse too, but lithium and Lam are helping - does squat for fibro however. But seroquel does it all for you? Now, that would be a miracle if it helped both fibro and BP!!! - Barbara
Posted by Chicklet on September 29, 2003, at 12:55:55
In reply to Re: BP2, FMS, and seroquel here » BarbaraCat, posted by Sabina on September 29, 2003, at 0:45:44
hey guys...sleep dep sucks. That's why i'm not around...first fell down the stairs and then biffed my head on a stone table later. No concussion but we went to the hospital anyway. Doc presribed seroquel to knock the heck out me and deposit my brain to the Land Of REMs...I fought right through 100 mg. Sucha a stubborn and willful gal, huh? At the ER they gave me Geodon which did end up prevailing but I had nasty s/e. I had tried Zyp in the past (actually for sleep too) and i felt like my head was spinning around (Exorcist style)...vomiting etc.
Oy- aren't we all so interesting? I think we should just love to be us because we have such diverse moods, wackadoodle neurotransmitters and uncannily (is that word i wonder. don't care) similar intellecutal.
I'd like to chat more about this famed Seroquel...I've read posts on it but never paid them any mind because it didn't apply to me...
> i also am bipolar and have fibromyalgia.
time med i'm on, augmented by the occasional xanax and vicodin or ultram for pain.>quality of life/peace of mind while on seroquel has improved dramatically from the dark place i was
Same goes for me with Provigil! I'll keep my paws crossed but...well you guys know.
Yo-yo. Dawg.>feel more able to leave the house i am spending more time at the gym (in the pool)
Isn't it so amazing...and evil at the same time- that exercise tends to help moods but the only time I can do it is when I feel good. Sooooo...? Oh I forgot you are the poolwoman! How inspirational!
>>ultra vivid dreams featuring estranged folks from my past. yucky.
Ewww. That IS yucky. I guess the people from your past are always there in the recesses of your frontal lobe somewhere! My dreams have been kooky on the Provig. And are wicked funny. A good time is had by all. I started talking in my sleep and my husband ends up laughing so hard (or I do, because i apparently guffaw while asleep now and then. Hmm what does that say about me?)
Also dreamed about cheese. ??? my husband had been trying to eat the red waxy part and I yapped at him because my impressionable nephew was going to see him and try it. Oh yeah, and I tsk and sigh. Funny schtuff.>>especially since we have the fibro/BP thing in common.
Ah yes, but what if we all start to cycle at the same time... ? :O
karen wants to sleep. really really.
I mean sleeeep.
hope eveybody's okelly dokelly...can't read many posts but am trying.Oh btw, What dose of lamictal did I sAY I was on? The correct answer would've been 550. i dunno what i wrote. 2 and 1/2 am, 3 pm.....
Posted by nmk on September 29, 2003, at 13:39:03
In reply to Re: Hey Fluffy » Dalilah, posted by BarbaraCat on September 28, 2003, at 13:28:10
Hi Barbara,
I just cried on your shoulder in a previous thread we had going on but I wish I would have caught your message to Dahlila first. Thanks for the great advice, I will try to keep it with me in this time of doom.
Gratefully,
Nicole
Posted by katia on September 29, 2003, at 14:50:50
In reply to Lam - split dose?, posted by BarbaraCat on September 28, 2003, at 21:12:08
Hi,
I've actually got 5mg pills, so I just take 2 for the moment in the am. I get a buzz for awhile after, so I don't think it'd be good at night.
katia
Posted by katia on September 29, 2003, at 14:55:07
In reply to Dalilah and anyone on Seroquel » Dalilah, posted by BarbaraCat on September 28, 2003, at 18:40:48
Hi Barb,
Don't know if you were following another thread or if it still is here; but it was about Seroquel (and the next day blues).
I've been taking it occassionally for sleep (1/4 of 25mg) and normally wake up off balance and a bit depressed. It helps with the sleep tho'. There were a few others experiencing what I experienced.
It's all individual as you know.
KatiaHi Dalilah,
> How is it with the Seroquel? I was taking Ambien for insomnia and stopped because of tolerance and potential exacerbation of depression. I still have problems sleeping and wonder if Seroquel might help since it's also an anti-psychotic and may benefit my BP condition.
>
> Do you feel hung over from it in the morning? Any motor disturbances? Dry mouth? Weight gain? Do you think it benefits the BP or is it mainly a sleep aid? Do you know if it interferes with stage IV sleep? I've got fibromyalgia and anything that affects deep sleep is a no-no. Anything other s/e? Thanks for any info on this. - Barbara
Posted by BarbaraCat on September 29, 2003, at 15:57:37
In reply to Ultra vivid to say the least!, posted by Chicklet on September 29, 2003, at 12:55:55
Posted by BarbaraCat on September 29, 2003, at 16:16:24
In reply to Re: Dalilah and anyone on Seroquel » BarbaraCat, posted by katia on September 29, 2003, at 14:55:07
Hi Katia,
It sure is individual. So many different med reactions by those of us with similar d/x's. I'd like to not take an AP, just one more thing, I hated Zyprexa (felt similar nextday disorientation) and don't need any more pork producers, thank you very much. I've been cooling it for the most past with glass o' D and been sleeping so much better. This past Saturday was a reality test. I was using some wine for cooking and thought 'oh, what the heck' and ended up drinking 1/2 the bottle thinking I'd been a good girl and probably wouldn't feel bad from it. Wrong. Didn't sleep well, woke up with a mild hangover and felt fried the whole day. Yesterday, no alcohol, slept great and feel pretty darn good today, like doing normal things - even got back into playing piano again and that is very satisfying.Hard liquor doesn't bother me at all the way wine does. Probably because I don't drink very much of it, but it also has a different effect on my bod. Problem is, it's wine, that pissy putrid swampwater, that I long for. Hope your days are continuing to feel lighter and brigher. - Barbara
Posted by Chicklet on September 29, 2003, at 17:01:50
In reply to Re: BP2, FMS, and seroquel here » Sabina, posted by BarbaraCat on September 29, 2003, at 11:12:02
Ok, just a little buttinsky...
muchas gracias for that aside about sero-q - I've been drinking like a..well, a ...camel (?) and had no idea why my mouth was so dry! It's been a tad incontinent, I mean inconvenient to be drinking so much water, diet vanilla coke, etc. Esp last night and the night before at the hospital. 'If she's nodding off like this there's no way she can go into the bathroom' was followed up with Kar lying on a cold, cardboard life preserver trying to go.
Oh that sero-q...what now, when my bladder is the size of an acorn?
May be time for some Butter Rum lifesavers.
Gawtta do whatcha gawtta do.man you guys- sound like the FM is really tough. Why, in addtion to everything else...?
Posted by Chicklet on September 29, 2003, at 17:31:31
In reply to Holy dry mouth, Batman! » BarbaraCat, posted by Chicklet on September 29, 2003, at 17:01:50
that I'd be trying to use the lifesavers as a bedpan.
It would take too many rolls
Ok that's enough. This is one of my silly stages in the sleep deprivation production.hey am I like the Lamictal stoner of this group? I feel like Cheech.
Posted by katia on September 29, 2003, at 17:57:26
In reply to Re: Dalilah and anyone on Seroquel » katia, posted by BarbaraCat on September 29, 2003, at 16:16:24
My days are indeed feeling brighter. It's so wonderful.
I have actually been partaking in the rancid skunk blood for the past three nights (2 - 2 1/2 per night).
I don't feel depressed for it. And I don't crave more when I do drink. Those are enough.
I'm in a good space right now. God don't let me lose it!!!!!!
Mild irritability flares up sometimes, but nothing is perfect.
Ah piano playing. I've actually been considering buying one (just a baby grand :-).
I miss it too. I think the Avro (sp?) has done it to us. What do you think? HAve you gotten it yet?
hugs,
Katia
Posted by BarbaraCat on September 29, 2003, at 20:58:51
In reply to Re: Dalilah and anyone on Seroquel » BarbaraCat, posted by katia on September 29, 2003, at 17:57:26
Vat is dees 'Avro' ting?
>I think the Avro (sp?) has done it to us. What do you think? HAve you gotten it yet?
Posted by Chicklet on September 30, 2003, at 4:03:13
In reply to Feel better soon, you wildwoman! (nm) » Chicklet, posted by BarbaraCat on September 29, 2003, at 15:57:37
Posted by Dr. Bob on September 30, 2003, at 18:57:45
In reply to Avro? » katia, posted by BarbaraCat on September 29, 2003, at 20:58:51
> Vat is dees 'Avro' ting?
Sorry to interrupt, but I'd like to redirect the discussion that doesn't have to do with medication to Psycho-Social-Babble. Here's a link:
http://www.dr-bob.org/babble/social/20030913/msgs/264570.html
Thanks,
Bob
Posted by Sabina on October 1, 2003, at 1:30:23
In reply to Re: BP2, FMS, and seroquel here » Sabina, posted by BarbaraCat on September 29, 2003, at 11:12:02
Hey Barbara and Bean (chicklet) both,
To begin with a side item, I wish you guys would consider posting on the social board so's I could feel freer about mentioning more non-med stuffs. I don’t want to be re-directed and it’s not so very bad over there. ;) Just a thought to think about?
Otherwise, sorry so disjointed a response, but I have been in a hormonal funk the past few daze.
Unfortunately, my hypomanic response to fibromyalgia is to push myself until I collapse in a heap and then can’t leave the bed for three days. I so seldom feel up to par that, when I am able to function enough to overdo, I do. I absolutely don't know when to say when. I’m working on finding a middle gear in my life. Fibro is my teacher. (I’m feeling philosophically optimistic tonight.) Back in the 40's, my grandmother was just considered crazy and/or lazy when she presented with the same (fibro) symptoms. Too bad I never really knew her, we’d have quite a talk now!
Like you, I believe that a lack of quality sleep is a prime issue with this condition. I dare anyone to live with as little sleep as I do at times and still manage to function properly, act normal, etc. I was dx’d w/ FMS in ‘97. Things went on fairly uneventfully (full time job, etc.) until a run-in w/ depo-provera (aka satan-in-a-syringe) last year, which began a flare-up of major, job and mind losing proportions. It was then that natural coping skills abandoned me and deep seated, long camouflaged chemical imbalances became unavoidable. It was all just too much to deal with at once.
Seroquel has definitely been the best option I’ve found so far, especially compared to the horrors of SSRI’s, which are routinely prescribed to fibro patients as a first line of defense, because god knows if you aren’t depressed when you're dx'd fibro, you will be soon enough just from dealing with it! Yes, Seroquel is the only thing I’m on...at the moment, apart from the occasional Xanax, Ultram, or Vicodin. I talked to my therapist about it just today, and I think that because I feel *so* much better than I did on Lexapro that I’m just now willing to admit that there’s still (much) room for improvement.
I’m just so thankful that I’m not actively planning my suicide or drinking almost daily as a coping mechanism, and that I'm rid of those demon racing thoughts (with me since childhood), that I almost don’t want to mess about with it. I feel almost like asking or trying for more or better would be ungrateful, in a way. Considering my dreadful history with psych meds (SSRI is a four letter word, as far as I’m concerned) , I’m more than a little reluctant to try anything else, even though my therapist has clients with fibro who’ve had great success with the Adderall. I do think I need something else, though what I don’t yet know.
I only seem to have serious (way too bad to pretend away) problems during certain points in my menstrual cycle. I’d *really* rather not get all strung out on some intricate cocktail that I may not need but one week out of the month, especially since I’m hoping to get pregnant next year and will have to go off them for awhile then, anyway. I’m planning to keep a journal for the next month, noting both emotional and physical problems to help me see any correlations and to help my pdoc make the best decision as to a second drug. Right this minute, I’m leaning toward Trileptil and/or Adderall, though I’d most wish for something I didn’t have to take full time. I already have to divide my Seroquel doses into four times a day to feel fully functional.
Half the time I feel like some neurasthenic Victorian lady, shutters drawn, sitting in a dimly lit room with orders to be quiet and not to read or think too much. I used to be so clever, overly think-y and creative. Now, I can seldom follow my own train of thought, much less anyone else’s. I’ve never tried Ambien, but good luck, certainly, with the au naturel approach. I know everyone’s so different, but I’ve had a very good response to Seroquel. So necessarily, it’s all the stuff I *haven’t* tried that terrifies me! No dry mouth here, and I can’t yet speak to withdrawal issues.
As far as other fibro measures, the water exercises have made more of a difference than anything else...by far and away. Even when I can barely summon the energy to straighten up the house, and can barely stand the idea of leaving the house, I can do this...mostly because I love the water so much. Did you happen to see my post on it? Even my husband has mentioned that I sleep better on the days that I go to the pool. Then there’s the sauna...oh so toasty on the old (oh so old) joints.http://www.dr-bob.org/babble/social/20030913/msgs/262093.html
Drifting off on Vicodin now...serious back pain tonight. Hope to hear from you again soon.
Bina
Posted by Chicklet on October 3, 2003, at 7:00:32
In reply to Re: BP2, FMS, and seroquel (long) » BarbaraCat, posted by Sabina on October 1, 2003, at 1:30:23
Posted by St. John on October 24, 2003, at 11:05:41
In reply to Lamictal side effects - itch! » HenryO, posted by Barbara Cat on August 4, 2003, at 2:49:50
I have unipolar, treatment resistent depression. My response to medication has been at best minimal, and this includes every type of antidepressant and almost all of their varieties. I have also been through a series of ECT treatments with no effective result. For 18 months I have been off all antidepressants and am pleased to be without their side effects. However, I remain depressed. In response to my resignation, my psychiatrist has recommended I consider Lamictal. Are their people out there who share my experience and have had results, good, bad, or nil, from the drug? Is it worth the effort? The absence of side effects, most prominently weight gain, from other antidepressants has been almost worth the emotional wasteland I inhabit. Thanks
Posted by Dalilah on October 24, 2003, at 11:45:01
In reply to Lamictal , posted by St. John on October 24, 2003, at 11:05:41
I too have tried almost every anti-depressant conceivable and was ready to try the ECT's when my doctor said - one more try: Lamictal. I am so amazed to tell you that it has made an incredible difference in my life. There are very few side effects, actually I've had none. I think that's a good sign that you're on the right med. No weight gain! The frustrating part is that you must do the creeper dose (because of potential for rash.) It takes a while to get up to therapeutic dose. I needed to get to 200 before it started to work and am stable at 250mg. I say, give it a try. It's not an antidepressant and I think that's good. They suck.
Dalilah
Posted by fluffy on October 24, 2003, at 11:52:03
In reply to Lamictal , posted by St. John on October 24, 2003, at 11:05:41
Hi St. John--
I most definitely responded to Lamictal. I was diagnosed bipolar II, though. If I hadn't volunteered more information to my pdoc, I might have been diagnosed unipolar. But I had a really bad reaction to SSRI's which alerted my pdoc to the bipolar II diagnosis.
Have you ever tried any mood stabilizers before? Did your doc try Lithium with an AD? If anything, it might be worth a try. It can't be worse than non-response to AD's or ECT, right?
Lamictal had a very activating response in me. Some people experience agitation. At first, I had a kind of activated tiredness. But it eventually went away. Other than that, no major side effects, except for a bit of a rash which also went away.
And I did clearly have an AD response. But I didn't have a FULL response, so I am augmenting with Trileptal currently to whomp the hypomania and rapid cycling I've had lately.
I've also read about Tegretol or Trileptal being successfully used in treatment resistant depressions.
I hope you feel better soon. I'm in the wasteland as well. Take care, and good luck!
Katy
(dx bipolar II, currently in a major depressive episode)200 mg Lamictal (7months)
1200 mg Trileptal (1 day)
2g fish oil (1 month)
7.5 mg Restoril for sleep (2 months)
Posted by St. John on October 24, 2003, at 11:58:59
In reply to Re: Lamictal , posted by fluffy on October 24, 2003, at 11:52:03
Thanks for the thoughtful and encouraging responses. I'm considering giving it a chance, but the return to the side effect merry-go round is a strong impediment. In less than a year off all AD's I lost 40 pounds without changing one thing about my lifestyle. That in itself is an antidepressant. I'd love to hear what others think about Lamictal as a treatment for resistent depression.
Posted by ginger C on October 24, 2003, at 13:26:11
In reply to Re: Lamictal , posted by St. John on October 24, 2003, at 11:58:59
I have been taking Lamictal for about two years as a mood stabilizer and I don't feel it has done much as far as my depression has gone.
Posted by galkeepinon on October 24, 2003, at 16:19:15
In reply to Lamictal , posted by St. John on October 24, 2003, at 11:05:41
Hi there, I've always had great results with Lamictal, never any side effects, or weight gain!
:-)
To me, it IS worth the effort to try it, if you don't you'll never know if it would have helped, and helped tremendously!
Good luck and hang in there!
Posted by BarbaraCat on October 24, 2003, at 22:09:44
In reply to Re: Lamictal , posted by fluffy on October 24, 2003, at 11:52:03
Hey Fluffy!
So there you are! Actually, I've been taking a sleeper from Bab but couldn't pass up the chance to say 'Hi'. Sorry you're in a funk. I go in and out but basically doing well since giving up alcohol. It was really contributing towards the dark bleak stuff. I'm still not sleeping well, however, and tiredness affects everything. Even the nights I break down and take Ambien I'm still jumpy and wakeful.You mention 2G fish oil. Have you ever tried taking more? The therapeutic dose was 9-12G in the research studies from Dr. Stoll, the father of fish oil, and stated anything below 4G showed no response. I think it helps. I know you now have gorgeous Asian priness fingernails, but maybe that's not why you're taking it. - BarbaraCat
Posted by BarbaraCat on October 24, 2003, at 22:41:04
In reply to Lamictal , posted by St. John on October 24, 2003, at 11:05:41
Hi St. John,
Interesting. I've only talked to people on this board who have used lamictal because of bipolar depression. I was originally dx'd with severe unipolar but responded fitfully to ADs, finally decompensating alltogether with constant panic disorder. It all turned out later to be bipolar mixed states depression. It was a hard recognition because I didn't think I ever had a manic episode. My idea of mania was the gleeful mad-hatter Hollywood version and it didn't ever mesh with what I was experiencing. Looking back I now recognize many classic episodes of hypomania and mania, but it mainly blurred together as an agitated mixed states depression that was getting worse with the years.The reason I metion this is to wonder if there might be another dx besides unipolar depression. This might explain alot about your treatment resistance. Not the ECT part, but the medications. Have you ever read "Why your depression isn't getting better", M. Bartos? Anyhow, just a thought since bipolar isn't always obvious.
As for lamictal, it's been very helpful for the depression but I have to use it with lithium. Each alone doesn't work and I either get very agitated (no lithium) or very depressed (no lamictal). The only side effect I've had is a bit of activation with each increase and now anytime I attempt to go past my current 125mg dose I start to get intense itching that is not the rash. I'd encourage you to give it a try. It's very different from any AD and might just work for you. But like Dalilah said, the slow ramp up can be frustrating. One other consideration is that if indeed you might be BP, lamictal without another mood stabilizer (lithium for me) can be quite agitating. But perhaps with unipolar that won't be a problem. Good luck and let us know. - BarbaraCat
Posted by St. John on October 24, 2003, at 23:07:54
In reply to Re: Lamictal » St. John, posted by BarbaraCat on October 24, 2003, at 22:41:04
Thanks Barbara for the information and insight. When my doc suggested the possibility of Lamictal working where other things haven't, he posed the possibility of "overlooked" mania, even though we've been working together for nearly 10 years and he can't see that there have been any indications of conventional bipolar disorder. He has just attended a workshop in Boston where one of the primary advocates of using Lamictal for unipolar disorder gave a presentation. Who the heck knows. The last time I sat before the Cambridge luminaries, it was for the Harvard/Mass General Bipolar clinic to consult. For an hour and a half, I answered questions to a shrink who typed furiously on a laptop. I figured he was taking notes and would use them for reflection and then evaluation. At the end of the 90 minutes, he said that he would provide me with an evaluation and report to give my doc. I asked when that might be available, and he said "as soon as Ms. X here prints it out." He then handed someone a disc that had the report he had written while we talked. The report was essentially a reiteration of what I'd said in response to his questions, ie, I read myself describing myself. His drug regimine was the last foray I've taken into the AD world. I'm convinced that anyone who has a answer to depression/mood disorders wouldn't sit on it, so I was skeptical on that trip to Boston, and I'm skeptical about yet another "guess what" imminating from the ivy halls. But all of what you say and what else I hear makes me waver on rejecting Lamictal out of hand. I'll let you know.
Posted by BarbaraCat on October 25, 2003, at 0:19:37
In reply to Re: Lamictal, posted by St. John on October 24, 2003, at 23:07:54
That's a funny but horrible story about your 'consultation'. Why didn't they just hire a court reporter? One wonders how these guys ever make it out of med school. What I find curious is how many of them never had a significant mood disorder but treat the field as an intellectual and pharmacological foray. Those are the ones to run like holy hell from. Fortunately there are many very gifted ones as well, but you don't really know until later.
Here are some questions you don't have to answer if you'd prefer not. What are the symptoms of your depression? Is it cyclical with normal days or is it always there? Vegetative, agitated or a mix? Do you ever get somatic symptoms, i.e., body pain, GI problems? What happened when you took SSRIs or other ADs? Normal side effects, yes, but anything else, like exacerbation of your symptoms, or was it that they just didn't do anything. You probably have, but have you had your thyroid checked? Low thyroid was a big contributor for me.
Not trying to diagnose or offer any unsolicited advice, it's just that my own experience of 'depression' was so bizarre that I felt like a strange and hopeless case, especially when none of the tried and true's were not only not working but making me worse. I'd imagine that you've gone through this kind of despair as well. Since being on the lithium/lam combo and finding a great naturopath who is treating other hormonal imbalances I can honestly say that this is the first time I've felt sustained health and hope in over 20 years. You're on my 'good wishes' list that you find a bright spot on your horizon. It's out there - it's only molecules. - Barbara
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