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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 14 of 14. This is the beginning of the thread.
Posted by v on December 17, 2002, at 14:19:40
i could really use to connect with those taking medications who have DID.
anybody out there?
blessings,
v
Posted by leslieg on December 17, 2002, at 16:47:42
In reply to DID - dissociative identity disorder, posted by v on December 17, 2002, at 14:19:40
I do not have DID, but my mother does. I am on a wonderful group on Yahoo for significant others of those with DID. (SOSUPPORT is the name of the group). My understanding is that there are some good Yahoo groups for those with DID too. And that a great many with DID are taking drugs!
Good luck. I hope you find someone here.
> i could really use to connect with those taking medications who have DID.
>
> anybody out there?
>
> blessings,
> v
Posted by v on December 17, 2002, at 19:02:01
In reply to Re: DID - dissociative identity disorder » v, posted by leslieg on December 17, 2002, at 16:47:42
thank you for your help... it is greatly appreciated...
i wonder if anyone else will answer...blessed be
v
Posted by judy1 on December 17, 2002, at 19:13:56
In reply to DID - dissociative identity disorder, posted by v on December 17, 2002, at 19:02:01
I find when I'm extremely anxious I dissociate so klonopin and xanax are part of my med regime along with therapy. I really do think therapy is the mainstay for this disorder though, and there are a few of us on this board if you want to post on Psychological Babble. take care, judy
Posted by v on December 18, 2002, at 6:51:47
In reply to Re: DID - dissociative identity disorder, posted by judy1 on December 17, 2002, at 19:13:56
thanks for replying judy... my main interest is in the meds other DIDs are taking as it is very hard to medically treat several personalities.. do you have alters? how much klonopin & xanax are you on? thanks again for answering...
blessings,v
> I find when I'm extremely anxious I dissociate so klonopin and xanax are part of my med regime along with therapy. I really do think therapy is the mainstay for this disorder though, and there are a few of us on this board if you want to post on Psychological Babble. take care, judy
Posted by judy1 on December 19, 2002, at 10:37:13
In reply to DID - dissociative identity disorder » judy1, posted by v on December 18, 2002, at 6:51:47
Hi
Klonopin- was at 6mg/day, now down to 3mg/day (I'm on the Truehope supplement) and xanax prn- sometimes 2-4mg/day, sometimes none. I really have been trying to keep the stress down through alternative means like meditation, etc. and supplement with meds. Yes, I seem to have child alters but no names or anything. On the dissociative spectrum I probably fall more in the DD-NOS than DID diagnosis. hope this helps- judy
Posted by jimmygold70 on December 21, 2002, at 12:30:14
In reply to DID - dissociative identity disorder, posted by v on December 17, 2002, at 14:19:40
Not me, but what do you take for DID ?
Posted by v on December 21, 2002, at 14:02:40
In reply to Re: DID - dissociative identity disorder, posted by jimmygold70 on December 21, 2002, at 12:30:14
> Not me, but what do you take for DID ?
just idle curiousity then? there is no medication for DID... that's why i am trying to find others on medications to talk to.
Posted by jimmygold70 on December 21, 2002, at 16:15:55
In reply to DID - dissociative identity disorder » jimmygold70, posted by v on December 21, 2002, at 14:02:40
to quote Kaplan & Zadock's:
"The use of anipsychotic medication in the patients is almost never indicated. Some data indicate that antidepressants and antianxiety medications may be useful as adjuvants to psychotherapy. A few uncontrolled studies report that anticonvulsant medications such as carbamazepine (Tegretol) help selected patients"Well, that was on 1998. There are reasons to believe that atypical antipsychotics can do better (Zyprexa and Seroquel - my best bets). The cycling nature of the disorder may suggest that any mood stabilizer can do (Depakote, Tegretol, and more recently - Lamictal, Neurontin and mostly Topamax).
Goog luck!
Jimmy
Posted by v on December 21, 2002, at 17:10:57
In reply to Re: DID - dissociative identity disorder » v, posted by jimmygold70 on December 21, 2002, at 16:15:55
thank you for the information.
what i meant when i said there were no meds for DID was exactly that... but of course, there are many meds to treat the various symptoms and end results of those who were forced to "split" to protect themselves to begin with.... i'm on a very interesting cocktail at the moment... but not any of the drugs you mentioned
stress is considered a big factor in disociation, so obviously anti-anxiety drugs help
interestingly, i just found out at my most recent visit to my pdoc that he doesn't believe in it!
now this is the first doc to EVER "listen" to all of me & treat "all" of me whether he knew it or not... i've never taken so many meds, yet not felt medicated, have been more "me" (whatever that means) and actually the stabilizing effects have allowed alot of alters to come pouring out so it's been great for therapy.
which is not to say that all is well in oz... not everyone inside gets to benefit... that was one of my main reasons for wanting to find other DIDs on meds... life is still a rollercoaster.
i was quite shocked when i brought up my DID & had him tell me that in his opinion it doesn't really exist! this man is basically brilliant & to have found such a blind spot has astounded me completely.
but since he's not the one treating my DID - that's between all of us & my therapist - i suppose i'll just use him for what he does best & keep my mouth shut.... but boy, i'd love to put him inside me for awhile... he'd change his mind awfully quickly... :)thanks again for the info... i appreciate your concern
blessings,
v
> to quote Kaplan & Zadock's:
> "The use of anipsychotic medication in the patients is almost never indicated. Some data indicate that antidepressants and antianxiety medications may be useful as adjuvants to psychotherapy. A few uncontrolled studies report that anticonvulsant medications such as carbamazepine (Tegretol) help selected patients"
>
> Well, that was on 1998. There are reasons to believe that atypical antipsychotics can do better (Zyprexa and Seroquel - my best bets). The cycling nature of the disorder may suggest that any mood stabilizer can do (Depakote, Tegretol, and more recently - Lamictal, Neurontin and mostly Topamax).
>
> Goog luck!
> Jimmy
Posted by leslieg on December 21, 2002, at 18:41:53
In reply to Re: DID - dissociative identity disorder » v, posted by jimmygold70 on December 21, 2002, at 16:15:55
Don't forget the incredible difficulty in finding meds and doses when there is often at least one alter / personality who reacts differently to meds than the main host does. And there can be suicidal alters who couldn't be trusted with potent meds (even if the host can be.) Sometimes a primary alter is bipolar but the host is depressed, or the host has a problem with overeating but there are alters who are anorexic ...
Such a tricky, complex situation.
v, it sure would be good if your pdoc believed. As long as he doesn't try to swtich you onto antipsychotics or change your diagnosis to something like bipolar (and thus change your meds) because of this "new" information. I'm glad the meds you are on appear to be encouraging healing.
> to quote Kaplan & Zadock's:
> "The use of anipsychotic medication in the patients is almost never indicated. Some data indicate that antidepressants and antianxiety medications may be useful as adjuvants to psychotherapy. A few uncontrolled studies report that anticonvulsant medications such as carbamazepine (Tegretol) help selected patients"
>
> Well, that was on 1998. There are reasons to believe that atypical antipsychotics can do better (Zyprexa and Seroquel - my best bets). The cycling nature of the disorder may suggest that any mood stabilizer can do (Depakote, Tegretol, and more recently - Lamictal, Neurontin and mostly Topamax).
>
> Goog luck!
> Jimmy
Posted by v on December 21, 2002, at 19:40:49
In reply to Re: DID - dissociative identity disorder, posted by leslieg on December 21, 2002, at 18:41:53
exactly, exactly, exactly....!
thank youblessed be,
v> Don't forget the incredible difficulty in finding meds and doses when there is often at least one alter / personality who reacts differently to meds than the main host does. And there can be suicidal alters who couldn't be trusted with potent meds (even if the host can be.) Sometimes a primary alter is bipolar but the host is depressed, or the host has a problem with overeating but there are alters who are anorexic ...
>
> Such a tricky, complex situation.
>
> v, it sure would be good if your pdoc believed. As long as he doesn't try to swtich you onto antipsychotics or change your diagnosis to something like bipolar (and thus change your meds) because of this "new" information. I'm glad the meds you are on appear to be encouraging healing.
>
> > to quote Kaplan & Zadock's:
> > "The use of anipsychotic medication in the patients is almost never indicated. Some data indicate that antidepressants and antianxiety medications may be useful as adjuvants to psychotherapy. A few uncontrolled studies report that anticonvulsant medications such as carbamazepine (Tegretol) help selected patients"
> >
> > Well, that was on 1998. There are reasons to believe that atypical antipsychotics can do better (Zyprexa and Seroquel - my best bets). The cycling nature of the disorder may suggest that any mood stabilizer can do (Depakote, Tegretol, and more recently - Lamictal, Neurontin and mostly Topamax).
> >
> > Goog luck!
> > Jimmy
>
>
Posted by judy1 on December 22, 2002, at 10:59:37
In reply to DID - dissociative identity disorder » jimmygold70, posted by v on December 21, 2002, at 17:10:57
My shrink also has a 'blind spot' with DID, but my therapist, who has written books on the subject has been really helpful in educating him. If he's as intelligent as you say then he should be open to your diagnosis. If he's not, how is he helping you? Do you have a therapist who does? I guess I would find it difficult to deal with a 'nonbeliever' at the same time I was putting the (extreme) effort it takes to get well. Also, just the other post about alters having other disorders- I find that's really true, and I think bipolar and borderline disorders seem to rank high. Particularly borderline when you consider the childhhood factors that shape this diagnosis. take care, judy
Posted by v on December 22, 2002, at 14:10:36
In reply to Re: DID - dissociative identity disorder » v, posted by judy1 on December 22, 2002, at 10:59:37
hi judy, thanks for responding
my main reason for initiating this thread was specifically to address the issue of everyone inside not being treated... you can't medically treat all of us. there are contradictions & subversives & on & on & on... :) you know what i mean...
that was why i was hoping for other DIDs to come forward, so we could discuss some of the strategies as well as the specific meds we take... i am so curious to know about others like myself... and i think you are right, since there has been so little feedback re: meds, i may look into psychological babble to try and connect - i've never been there... i remember when psycho-babble was just psycho-babble.... my, how it's grown!!!
i do have a wonderful therapist i'm working with, & the pdoc just prescribes the meds, although i am very disappointed to find such ignorance in someone i admire.
as i had said, he was the first doctor to ever treat the whole of me (i guess without realizing he was treating someone with DID. :) the meds i am currently on have made a huge difference in many ways... most of them having to do with the access i now have to so much more of myself. and he is courageous in his willingness to prescribe the kind of "cocktail" i'm taking to begin with. i asked him about it once... did he prescribe many of his patients so many drugs? he was shocked at my question - absolutely not! he says. i don't have any other patients like you.. to him, i am quite special and i've come to find out that he can be quite conservative regarding meds. i think he intuitively knew to treat me as a DID even though he doesn't believe in it.. :)
so we'll stop "babbling" now... thanks again for responding... it's been a pleasure meeting you... :) and we appreciate everyone who responded to my post.
thank you all
blessed be
v
> My shrink also has a 'blind spot' with DID, but my therapist, who has written books on the subject has been really helpful in educating him. If he's as intelligent as you say then he should be open to your diagnosis. If he's not, how is he helping you? Do you have a therapist who does? I guess I would find it difficult to deal with a 'nonbeliever' at the same time I was putting the (extreme) effort it takes to get well. Also, just the other post about alters having other disorders- I find that's really true, and I think bipolar and borderline disorders seem to rank high. Particularly borderline when you consider the childhhood factors that shape this diagnosis. take care, judy
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