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Dr. Bob is Robert Hsiung, MD,
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Posted by ren on January 19, 2004, at 20:09:41
In reply to Re: topomax » whtdovepeace, posted by headachequeen on January 19, 2004, at 19:36:48
I really think this is one medication that has to be started very slowly.... 25mg the first week was causing me trouble and even though the doctor wasn't convinced I was having so many side effects, she cut my dose back to every other day for now. The slower the better in my book. Everyone is different but you can't hurt anything by going slow.... good luck to all...Ren
Posted by redscarlet on January 19, 2004, at 23:25:54
In reply to Re: topomax » redscarlet, posted by headachequeen on January 19, 2004, at 19:40:15
I have decided to take more Botin. I read some place that some people need as much as 5000 mcg a day and I was only taking 2500 mcg a day. I'm hoping I will have some luck with this and hoping too that the Lonegran will not destroy the rest of what hair I have left!
Posted by sarita0001 on January 19, 2004, at 23:30:44
In reply to Just for weight loss, posted by Tierra on January 19, 2004, at 19:25:46
Hi,
I took Topamax and hated the side effects. When I started taking it, I was fed up with the weight gain from lithium. Try anything else first, diet, exercise, a different medication, lowering the dosage if possible. I would only recommend it if your weight is a risk to your health. I was 25 lbs overweight, which is a lot but at the time I was impatient and probably could have taken the weight off myself if I had just waited till I was less busy. Also, Topamax had been under clinical trials for weight loss and the trials usually didn't finish because people couldn't deal with the side effects. Some articles about it on www.qualitycounts.com.
Search under Topamax.Good luck
Sara
Posted by redscarlet on January 19, 2004, at 23:44:06
In reply to Just for weight loss, posted by Tierra on January 19, 2004, at 19:25:46
Not everyone losses weight on Topamax. So I don't think I would take it just for the possible chance I would loose weight, there are a LOT of side effects with this drug. I took it because I had to for Bipolar disorder. This is just my option, but you can decide if it's worth it or not.
Posted by micro on January 20, 2004, at 0:06:21
In reply to Re: weight loss, posted by kka on January 11, 2004, at 19:54:25
> > I started Topamax to counteract weight gain with Anti-D's and aslo help my Migrains. I have finally worked my way up to 125-150 mgs a day in three months. Although I have not had hardly and side effects since I have slowly increased the dose, I have not seen ANY weight loss. The urge to binge or over-eat has dimished, any I definitely eat less, but I am very fustrated with the lack of weight loss. What dosage has anyone begun to see real weight loss? Any input would be great! Thanks
> > increased by more than 100% (from 30mg to 75) if I'm going to naturally plateau or if (HA HA -- this is joke-able) I would hit a point where I'd actually lose too much or not be able to control the loss of weight.
> >
> >
> > I worried about that too but it seems that I have reached a point that some sort of control has come into effect and I am eating some sort of sensible amount of food on my own.. something that I have been unable to do for a long time...
> > first the anorexia routine then came the depression when food seemed to provide comfort...
> > but during December and into the first few days of January when I was battling depression I did not gain any weight...
> > so things seem to be controlling themselves I know it is not me...
> > I am not ready for a size eight jean or slacks but the waist of the ten is much too loose... not sure what to do there... and hate to look sloppy...
> > how things change in our outlook LOL
> > kat
>
> Hello, Try not to be so hard on yourself at this time. I know that it is difficult to do, but it will all balance out in time.Try to push fluids especially water and try some moderate exercise if you can. If you like veggies, you can eat lots of them with some carb free dressing or dips. Go to Walden Farms.com.These dips and dressings are actually quite good. These are empty calories with high fiber and healthy rewards especially your green leafy veggies. Also, There is a book called Eating for your Blood type which may be beneficial.Don't forget some light aerobics, go slow and build up. You will love the results. Good Luck! Micro
Posted by msmelissa on January 20, 2004, at 10:25:37
In reply to Topamax Experiences?, posted by Kingfish on January 4, 2001, at 7:29:48
Yes, my hair has been coming out at the roots but it is growing back in. I have colored it twice because of the grays and the same amount comes out. I have very straight hair and have been considering a perm for a long time and wonder what it might do. So, just curious if anyone else has gotten one since they have been on Topamax and if it was a good or bad experience.
msmelissa
Posted by headachequeen on January 20, 2004, at 10:26:41
In reply to Re: topomax headachequeen, posted by redscarlet on January 19, 2004, at 23:25:54
> I have decided to take more Botin. I read some place that some people need as much as 5000 mcg a day and I was only taking 2500 mcg a day. I'm hoping I will have some luck with this and hoping too that the Lonegran will not destroy the rest of what hair I have left!
>
Try taking Vitamin E and a small amount of zinc so your system can process the E along with fish oil capsule it really helps the hair too... I learned so much about skin and hair from conditioning the dogs,,, then learned to apply it to my own hair from the Tegretol once Murph jogged my memory; now I take the same regimen my dogs follow LOL and it works,
remember that Topomax depletes the vitamins we have in our systems so we have to replenish them...
and for those who want to lose weight there are rumours about specific foods helping... apples, celery, low fat milk, salmon (the Omega 3 oils in it), spinach, grapefruit, strawberries,oh man there are three others and I can't remember them but they will come to me later ...
they are not rumour or old wives' tales.. they do help...
as do the cashews and pecans and so on...
oh peanut butter is one of them...
had some time to kill in the clinic yesterday waiting for the eye surgeon and read this information in one of the brochures he had there.. he has this thing about fad diets so he keeps information there for his patients.. I wrote down the info but it is downstairs and I am here... shall find it and post it later...
kat
Posted by helenag on January 20, 2004, at 16:24:33
In reply to Just for weight loss, posted by Tierra on January 19, 2004, at 19:25:46
There is no way I would recommend this drug for use as a weight loss aid only. Loss of appetite is a side effect of the drug, among other things such as: numbness and tingling in fingers and toes, tiredness, cognitive slowness (forgetting the names of people, for one).
The weight loss associated with topamax is not a reason to be on the drug, in my opinion. It is an excellent mood stabilizer for those who need it and for whom it has helped.
It is certainly not harmless or akin to Slim Fast or some other over the counter pill (which have their own side effects, I would imagine.)
In any event, I hope you consult a physician with all your questions and pay attention to the folks on this board who have shared their experiences with topamax.
Peace,
Posted by sarita0001 on January 21, 2004, at 19:31:20
In reply to Ladies, have you had a perm after starting Topamax, posted by msmelissa on January 20, 2004, at 10:25:37
Hi,
Some anticonvulsants can change hair texture temporarily( eg, smooth to coarse, curly to less curly. My hair is straight and every now and then has the tendency to become frizzy on top, this happened more on Tmax.
Sara
Posted by headachequeen on January 21, 2004, at 20:06:35
In reply to Re: Just for weight loss » Tierra, posted by helenag on January 20, 2004, at 16:24:33
>
> It is certainly not harmless or akin to Slim Fast or some other over the counter pill (which have their own side effects, I would imagine.)
Many of the over the counter pills and potions have truly frightening side effects
when one considers that they are not monitored by physicians of any sort they are even more frightening.. there have been deaths attributed to some of them btwIt is important to remember that Topomax has a link to weight loss but as a SIDE EFFECT of its primary intent...
kat
Posted by Beck on January 21, 2004, at 20:35:07
In reply to Topamax Experiences?, posted by Kingfish on January 4, 2001, at 7:29:48
Yipee!!!! no more topamax! My neurologist said I could just stop taking it. I REALY disliked that med! I admit, yeah sure if I had Bipolar or seizures or somthing more serious than migrains onece or twice a week, then maybe, just maybe, I could put up with the horrendous side-effects, but nope, this med isn't for me. I think 23 is to young to loose your hair, maybe I'm just vain though. Due to other problems I oonly get 60oz of water a day, I worry this is not enough to prevent kidney stones. i lost weight, then gained it bck, so that did nothing. Forgetting everything just does not work with me(I'm proud of my memory), and my fiancee is trying to be patient but I repeat myself, stutter, and do just plain dumb stuff, and somtimes he gets a bit irritated. So Bye Bye to this medicine! My question is, should i listen to my neurologist and just quit cold turkey? I take one 25mg. in the am, 1/2 of a 25mg in the pm.
Any help would be appriciated!
Posted by ren on January 22, 2004, at 6:55:47
In reply to Re: Topamax Experiences?, posted by Beck on January 21, 2004, at 20:35:07
Hi Beck.... I'm with you... I was also taking this for migraines. I have vertigo as well, which the nuero thinks is coming from the headaches, however on the Topamax I felt foggier than ever! Along with the other side effects, I was beside myself!! And that was at only 25mg, which I was suppose to increase weekly until I reached 100! We decided to cut back to 25 every other day to get started more slowly, but I swear I feel better on the days I don't take it... I don't think its the right med for me either and am deciding to stop it all together... I hope you find something that works, medications are soooo fustrating....
good luck...
Ren
Posted by Dr. Bob on January 24, 2004, at 13:21:11
In reply to Re: Tomamax for weight loss, posted by Magazine Reporter on November 25, 2003, at 8:46:38
> I am a reporter for a national women's magazine writing an article on drugs that people use for weight loss, and on people's real experiences with those drugs...
For those who are interested, the article's out:
One Pill Makes You Smaller?
by Eliza McCarthy
http://www.elle.com/article.asp?article_id=3828Bob
Posted by blueeye on January 26, 2004, at 22:55:04
In reply to Re: Just for weight loss » Tierra, posted by helenag on January 20, 2004, at 16:24:33
I have to laugh about all the weight loss stuff and topomax. I took Depakote for ten years, and have taken Topomax for just over a month and dropped the 20 pounds Depakote packed on. The hair loss is nothing like the clumps that fell out with Depakote. One thing-my pdoc said people on Topomax were "collapsing;" three to five people in my rural area-anyone heard of that? I TAKE it for bi-polar and seizure disorder, so for God's sake...
She switched me to trileptil and is ever so slowly bringing me back up on the topomax (25mg per 2 weeks) for the bi-polar treatment. Yes, it makes you feel like a walking drunken idiot for awhile, but THAT PASSES. It seems many forget that the side effects do actually PASS.
God Bless.
Posted by headachequeen on January 27, 2004, at 16:54:23
In reply to Re: Just for weight loss, posted by blueeye on January 26, 2004, at 22:55:04
> I have to laugh about all the weight loss stuff and topomax. I took Depakote for ten years, and have taken Topomax for just over a month and dropped the 20 pounds Depakote packed on. The hair loss is nothing like the clumps that fell out with Depakote. One thing-my pdoc said people on Topomax were "collapsing;" three to five people in my rural area-anyone heard of that? I TAKE it for bi-polar and seizure disorder, so for God's sake...
> She switched me to trileptil and is ever so slowly bringing me back up on the topomax (25mg per 2 weeks) for the bi-polar treatment. Yes, it makes you feel like a walking drunken idiot for awhile, but THAT PASSES. It seems many forget that the side effects do actually PASS.
>
> God Bless.
I take it for epileptic seizures as a secondary med and it has never caused any sort of collapse or my neuro would never have prescribed it...
epilepsy is a big enough problem for heaven's sake without that...
anyone I know who is on Topomax is usually prescribed it on a slow schedule of increments... 25 mg for two weeks then a 25 mg increase for the next two weeks and so on...
at the moment I am taking 400 mg each evening and 400 mg each morning so as to be able to cut back on TEgretol to see if that makes any difference in the reactions to the tegretol...
the side effects to the topomax have reduced greatly over the months but the tegretol seems to keep on keeping on...
and it did not really take effect until the topomax was added...
so why is topomax secondary is what I want to know...
as for collapsing??? this is the first I have heard of it....
interesting indeed
kat
Posted by terrics on January 29, 2004, at 15:22:40
In reply to Re: The benefits of Topamax, posted by phillybob on January 9, 2001, at 12:46:41
Hi anyone, Are you using topamax for bipolar? Or if not what does it treat? Hope this is not a stupid question. theresaM
Posted by headachequeen on January 29, 2004, at 16:40:51
In reply to Re: The benefits of Topamax, posted by terrics on January 29, 2004, at 15:22:40
> Hi anyone, Are you using topamax for bipolar? Or if not what does it treat? Hope this is not a stupid question. theresaM
Hi
Topomax was originally developed to deal with seizures. As I am an epileptic I take it to help prevent further seizures (to back up the dread Tegretol)
apparently it has shown, as one of its side effects, some efficacy in dealing with migraines another of the problems I live with and wish I didn't.
The neuro prescribed it instead of increasing the tegretol...
he warned me though that topomax also had a side effect of causing weight loss which has happened too ...kat
Posted by PoohBear on January 29, 2004, at 17:26:56
In reply to Re: The benefits of Topamax, posted by terrics on January 29, 2004, at 15:22:40
> Hi anyone, Are you using topamax for bipolar? Or if not what does it treat? Hope this is not a stupid question. theresaM
There are no stupid questions...
I take Topamax for sleep and as a mood stabilizer. I have clinical depression/ADHD, and it looks like I may have bipolar 2 as well, so the Topamax will fit right in with the Effexor. It's worked quite well so far, sleep has been good, with no side effects. Haven't noticed any weight LOSS, but at least no weight GAIN, like on Remeron...
Tony
Posted by Karen_kay on January 29, 2004, at 20:06:52
In reply to Re: The benefits of Topamax, posted by terrics on January 29, 2004, at 15:22:40
I take topamax for Bipolar I disorder. I've been taking it for about 8 months now and have lost over 25 lbs. I'm taking 300 mgs per day. And it has helped me Tremendously!!! If you have any other questions, feel free to enquire! And there is no such thing as a stupid question, dear! Didn't you learn anything in school? :)
Posted by Sooshi on January 29, 2004, at 21:17:54
In reply to Re: The benefits of Topamax, posted by terrics on January 29, 2004, at 15:22:40
I take it for BPII and it has helped, along with Effexor. Lots of side effects at first, which have mostly gone away as I've adjusted to the med.
Posted by headachequeen on January 30, 2004, at 16:23:35
In reply to Re: The benefits of Topamax » terrics, posted by PoohBear on January 29, 2004, at 17:26:56
> > Hi anyone, Are you using topamax for bipolar? Or if not what does it treat? Hope this is not a stupid question. theresaM
okay folks, speaking of questions that may or may not be stupid and probably are and are probably repetitive in that I have probably asked before...
what is the difference between BipolarI and BipolarII ???
thanks
kat who is so easily confused
Posted by PoohBear on January 30, 2004, at 16:40:11
In reply to Re: topomax » PoohBear, posted by headachequeen on January 30, 2004, at 16:23:35
Headachequeen:
Again, not a stupid question...
Since I'm NOT currently taking Topamax for Bipolar but rather for sleep, perhaps someone else can answer this better than I, but I'll take a stab at it...
As I understand the difference is in the amplitude or severity of the difference between the high of the mania and the low of the depression parts of the disease. If you understand waveforms and amplitude (height) and frequency (distance between crests), then it will make understanding bipolar much, much easier, because that's really what it is:
a rhythmic cycling of emotional highs and lows.
The cycles (frequencies) can be very longgggggg or they can be very short or they can even be mixed.
Bipolar I is the more severe form while Bipolar II is the less severe. A good website is:
http://www.dbsalliance.org/info/bipolar.html
Cheers!
Tony
> > > Hi anyone, Are you using topamax for bipolar? Or if not what does it treat? Hope this is not a stupid question. theresaM
>
>
> okay folks, speaking of questions that may or may not be stupid and probably are and are probably repetitive in that I have probably asked before...
> what is the difference between BipolarI and BipolarII ???
> thanks
> kat who is so easily confused
Posted by Karen_kay on January 30, 2004, at 19:26:29
In reply to Re: topomax » PoohBear, posted by headachequeen on January 30, 2004, at 16:23:35
Bipolar I dx is made when a person has had at least one manic or mixed episode, lasting for one week, unless hospitalization occurs (I think??) and at least one major depressive episode (though you don't have to have a depressive episode to be dx).
For me personally (Shhh, you won't tell, right???) I had a habit of getting nakie in public and walking around town at four o'clock in the afternoon, I've flashed police cars, random strangers, slept with strangers off the street. Of course my sister suggested I do it (walk around town naked, that is), and she knew I wasn't "feeling well" but she didn't know I had Bipolar Disorder. She just thought I was a riot (it's not quite so funny now). I also spent money I didn't have (to the sum of thousands of dollars while I was a starving college student), shop lifted, and gone on very little sleep for numerous days.Bipolar II Disorder dx is made when a person alternates between major depressive episodes and hypomanias. So, hypomania is a form of mania, only less severe and may not last as long as mania. Hypomania usually doesn't require hospitalization, and some people find it to be enjoyable. Usually I'm very talkative, need only a few hours of sleep, am very productive, have increased energy.
Hope that helps explain things with my embarrassing stories :)
Posted by headachequeen on January 30, 2004, at 23:00:32
In reply to Re: topomax » headachequeen, posted by Karen_kay on January 30, 2004, at 19:26:29
> Bipolar I dx is made when a person has had at least one manic or mixed episode, lasting for one week, unless hospitalization occurs (I think??) and at least one major depressive episode (though you don't have to have a depressive episode to be dx).
> For me personally (Shhh, you won't tell, right???) I had a habit of getting nakie in public and walking around town at four o'clock in the afternoon, I've flashed police cars, random strangers, slept with strangers off the street. Of course my sister suggested I do it (walk around town naked, that is), and she knew I wasn't "feeling well" but she didn't know I had Bipolar Disorder. She just thought I was a riot (it's not quite so funny now). I also spent money I didn't have (to the sum of thousands of dollars while I was a starving college student), shop lifted, and gone on very little sleep for numerous days.
>
> Bipolar II Disorder dx is made when a person alternates between major depressive episodes and hypomanias. So, hypomania is a form of mania, only less severe and may not last as long as mania. Hypomania usually doesn't require hospitalization, and some people find it to be enjoyable. Usually I'm very talkative, need only a few hours of sleep, am very productive, have increased energy.
>
> Hope that helps explain things with my embarrassing stories :)Thanks for the explanation...
I have been treated for depression for a longer time than I can remember eventually ending up in hospital a year and a-half past... my doctor thought I was bipolar actually; the psychiatrist who admitted me said I was not bipolar and diagnosed me as something else entirely, the which I have forgotten; actually she said she suffered from the same disorder and was really helpful.
The psych in charge of the department decided my mixture of symptoms was so interesting he would take my case; told me that himself eventually and made me feel like a some sort of insect on a pin being examined under a microscope or something... really wonderful feeling believe me! then went on to tell me I was not depressed at all but had a personality disorder and was hypomanic and did not need psychiatric care...
totally confused me by the time he was finished and I am still confused... but struggling to get through it all without him...
find more help here than he could ever provide...
I am thinking though of finding a way to arrange treatment with the first one... except she treats in-patients only and that is not an option I care to consider if possible...
contrary aren't I?
kat
Posted by Sooshi on January 31, 2004, at 11:56:34
In reply to Re: topomax » Karen_kay, posted by headachequeen on January 30, 2004, at 23:00:32
Kat-your hospitalization sounds a lot like my first hospitalization. They didn't know how to dx me either. Basically, I ended up with a dx of Major Depression, NOS, because back in the day (early 80's) there wasn't (I'm guessing) a BPII dx. Every time they would put me on a tricyclic ad (I don't think they were even using Prozac then), I'd get manic, although I had never had a true "manic" episode in my life. But when they would put me on lithium or tegretol, it would horribly aggrivate my depression (besides the fact that I was allergic to both, and got a terrible rash!). I was eventually released taking Desyrl and Xanax in megadoses and was back in the hospital within two weeks!
Anyway, I think one of the ways they dx BPII is how one responds to antidepressants...if you get hyper/manic on them, they tend to lean toward a dx of BPII.
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