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Dr. Bob is Robert Hsiung, MD,
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Posted by Willow on July 20, 2001, at 15:39:18
In reply to Re: CFS, Effexor - YES!!!! - Zo?, posted by Teri on July 20, 2001, at 13:24:57
Teri
What other medications have you taken? Have you tried other types of treatments?
Yes there are side-effects with effexor, but they are more tolerable for me than the side-effects of other medications, and I have found that it helps with the cognitive problems that I was having.
I got best results at 150mg. Below that it made me too sleepy.
The remeron can make you tired I think.
Keep in touch!
Willow
Posted by Teri on July 20, 2001, at 16:05:28
In reply to Re: CFS, Effexor - YES!!!! » Teri, posted by Willow on July 20, 2001, at 15:39:18
Hi. I've had anxiety and depression problems for about 10 years and have been on a couple of TCA's, Zoloft which I had to stop because of Serotonin Syndrome caused by taking Zoloft and Trazodone at night for sleep. I went on Remeron after that 22.5mg but I've been burning the candle at both ends for a long time and started getting chronic fatigue symptoms about 6 or more months ago. It was probably building up before that. I have just been so run down. I used to exercise a lot and can't handle the level I used to be at. Yoga seems to help and I can still do some aerobic activity but too much of it and I pay dearly the next day. My doctor wanted to put me on Effexor XR because she thought it would help my chronic fatigue symptoms but it's really activating for me and that seemed to put more stress on my body. It did lift my mood, though, but I couldn't handle going up on it. It gave me insomnia which is tough to deal with when you're chronically fatigued. It seemed to help my anxiety after a while but that is getting worse. That's why I thought I would try to increase it. gotta sleep though! I've been on 37.5mg of Effexor XR for 2 months. I just stayed on a low dose of the Remeron to help me sleep but the Ambien is what seems to do the trick. Do you have CFS? Thanks Teri
Posted by jotho on July 20, 2001, at 16:54:30
In reply to Heide M, posted by jotho on July 20, 2001, at 9:52:06
Heide...please pardon my last answer. The site search engine (how i didn't see it i will never know) is on the same page as the Follow-up submittal box...about two inches underneath it.
Posted by Dr. Bob on July 21, 2001, at 12:54:02
In reply to Re: please be supportive, posted by ksc on July 20, 2001, at 8:50:42
> You're right Dr. Bob, it wasn't necessary and I appologize for my sarcasm.
Thanks for understanding. :-)
> This is just a very painful experience for so many of us here on this board. To simply say "get over it", is like telling a cancer patient to stop whining about their disease.
I know, people shouldn't say things like that. But this isn't a perfect world (or even a perfect board :-), so it's good to have an idea of to deal with it when it does inevitably happen.
Bob
PS: Any further follow-ups really should be redirected to Psycho-Babble Administration, thanks.
Posted by Willow on July 21, 2001, at 14:21:44
In reply to Re: CFS, Effexor - YES!!!! , posted by Teri on July 20, 2001, at 16:05:28
Teri
Yes I have CFS, became ill with it in the spring of '95, though I've had problems with depression starting from my teens. Once I stopped working because of symptoms I came across an article regarding somatization disorder (somatisation.) Since then I've been seeing a psychologist and almost a year ago started the effexor. Recently I've had a sleep study because of the side-effects of the effexor worsening my movements during sleep. Two years ago I was treated for a stomach inflammation (don't know what it is called - duodentitis?.) Treating these little things has helped me alot. Check out "generalized anxiety disorder" too. (GAD)
Do you have a hard time sleeping? For me I have a hard time staying awake. Getting restorative sleep obviously can help with daytime fatigue.
BEST WISHES
Willow
Posted by Zo on July 22, 2001, at 17:10:10
In reply to Re: CFS, Effexor - YES!!!! - Zo?, posted by Teri on July 20, 2001, at 13:24:57
Sorry I can't be of much help, because I had absolutely no trouble tolerating Effexor, in fact it is my mainstay. ..My dose varies from 300 to 375, if things get tough. I'm also on Dexedrine, couldn't function without it - and it also does much to help with pain, which most people don't realize - and a small dose of Neurontin also for the FM and for sleep. I found ALL SSRIs and tricyclics to worse than the illness itself, including Remeron. I'd rather take benzos to sleep. Had a super 6 months, best ever, adding Zyprexa - but also added 40 lbs. and ruined my blood sugar - am presently searching for a replacement. Geodon and Risperdol both felt awful. I am also BPII and have TLE, but as you probably know, a lot of dxs fit under the umbrella of CFS.
Let me know if I can help - have had CFS for 20 yrs. If there is a single key, I would say the Dex - or Adderall.
Zo
Posted by Willow on July 22, 2001, at 18:56:54
In reply to Re: CFS, Effexor - YES!!!! - Zo? » Teri, posted by Zo on July 22, 2001, at 17:10:10
*I'm also on Dexedrine, couldn't function without it - and it also does much to help with pain, which most people don't realize
What does the dexedrine do for you?
Willow
Posted by Zo on July 22, 2001, at 20:48:41
In reply to - Zo? , posted by Willow on July 22, 2001, at 18:56:54
> *I'm also on Dexedrine, couldn't function without it - and it also does much to help with pain, which most people don't realize
>
> What does the dexedrine do for you?
>
> WillowIt gives me a *mind!* By now, it feels like normal, but I remember when I started, it was like putting glasses on my brain.
I can also tell when my dose is low because I have poorer posture. . .and if I forget a dose, which I never do, I am a mental vegetable. . .feels like CFS is back full force. Dex and Neurontin wiped out that Sick All Over All The Time feeling.
Zo
Posted by Zo on July 22, 2001, at 20:48:46
In reply to - Zo? , posted by Willow on July 22, 2001, at 18:56:54
> *I'm also on Dexedrine, couldn't function without it - and it also does much to help with pain, which most people don't realize
>
> What does the dexedrine do for you?
>
> WillowIt gives me a *mind!* By now, it feels like normal, but I remember when I started, it was like putting glasses on my brain.
I can also tell when my dose is low because I have poorer posture. . .and if I forget a dose, which I never do, I am a mental vegetable. . .feels like CFS is back full force. Dex and Neurontin wiped out that Sick All Over All The Time feeling.
Zo
Posted by Willow on July 22, 2001, at 21:20:47
In reply to Re: - Zo? » Willow, posted by Zo on July 22, 2001, at 20:48:41
> It gives me a *mind!* By now, it feels like normal, but I remember when I started, it was like putting glasses on my brain.I guess the effexor did this for me. Have you found anything that has helped you with stamina. This is my major problem.
Willow
Posted by Zo on July 23, 2001, at 3:29:19
In reply to Re: - Zo? , posted by Willow on July 22, 2001, at 21:20:47
Willow, email me, zozo1029@mac.com
Posted by RAMFAN13 on July 24, 2001, at 9:19:32
In reply to Re: I did it--finally! » dshort, posted by paulk on July 10, 2001, at 22:09:41
> Do you have any source to back up your statement “as you take it is damage to the nervous system” ?
>
> The withdrawal symptoms are nasty – and you need to taper – VERY slowly. But the withdrawal effects do go away. For me, they lasted for over 4 weeks after I had completely stopped.
>
> There are many how will read this and be scared off from taking it – despite the nasty withdrawal effects I consider it a wonder drug and would recommend it as a worthy candidate for treating depression.
I consider it a "wonder" drug also. I wonder why anyone would take it. I cant believe you would recommend it after 4 weeks of withdrawal. I am on my second week and on leave from work. I had to take leave finally after missing several days of work. Before this, I could hardly work due to extreme fatigue, aches, lack of concentration. The pain I have been through while being on and getting off this drug is extreme. I almost lost job and relationships. I know it works differently for different people, but I have read about two much of this. Why would anyone want to risk this. We simply do not know yet of any permanent damage, but I dont want to find out later. Any drug that does this much harm should be looked at closely. Why do we put up with months of withdrawal from this. Many people lose jobs and family due to this and of course this only increases depression and suicide risk. I am not against all meds, but I would definitely say to anyone to look at this drug closely before you start taking it and do not stay on it for long if you have to take it. I want everyone to avoid the pain that I and many others have gone through due to taking this. Sorry for the rant, but had to vent a little. The pain is extreme folks, worse than any depression I have been through. Thanks.John
Posted by Iris on July 24, 2001, at 9:36:32
In reply to Re: I did it--finally!, posted by RAMFAN13 on July 24, 2001, at 9:19:32
John, how long did you take the Effexor? I started taking Effexor XR in April. It took about six weeks for the side effects to go away. Since then I have been doing great! Not a single Anxiety/Panic Attack and my daily headaches and dizzyness are completely gone.I must say so far I don't have any complaints. I started out on 75mg and I am still on the same dosage. I just hope and pray that everything will be this smoothe when I have to get off it - which will be in about three months. To all of you good luck.
Posted by Sophia B on July 24, 2001, at 10:45:44
In reply to Re: I did it--finally!, posted by RAMFAN13 on July 24, 2001, at 9:19:32
John,
I agree with you totally. I've been off Effexor (cold turkey) for about 12 days now. I went to my doctor yesterday, because I was so sick at work that I could't stand it. He acted as if the withdrawal was "all in my head". That is so frustrating to me! Anyway, he prescribed BuSpar. I have taken two doses, quite simply because I don't know what else to do. The withdrawal symptoms of Effexor are ruining my life! I had decided that I wouldn't take anything from now on, but I had to do something. I just hope and pray that I can get Effexor out of my system for good one day! Any advice anyone could give me would be greatly appreciated! Thanks, and good luck to all!> > Do you have any source to back up your statement “as you take it is damage to the nervous system” ?
> >
> > The withdrawal symptoms are nasty – and you need to taper – VERY slowly. But the withdrawal effects do go away. For me, they lasted for over 4 weeks after I had completely stopped.
> >
> > There are many how will read this and be scared off from taking it – despite the nasty withdrawal effects I consider it a wonder drug and would recommend it as a worthy candidate for treating depression.
>
>
> I consider it a "wonder" drug also. I wonder why anyone would take it. I cant believe you would recommend it after 4 weeks of withdrawal. I am on my second week and on leave from work. I had to take leave finally after missing several days of work. Before this, I could hardly work due to extreme fatigue, aches, lack of concentration. The pain I have been through while being on and getting off this drug is extreme. I almost lost job and relationships. I know it works differently for different people, but I have read about two much of this. Why would anyone want to risk this. We simply do not know yet of any permanent damage, but I dont want to find out later. Any drug that does this much harm should be looked at closely. Why do we put up with months of withdrawal from this. Many people lose jobs and family due to this and of course this only increases depression and suicide risk. I am not against all meds, but I would definitely say to anyone to look at this drug closely before you start taking it and do not stay on it for long if you have to take it. I want everyone to avoid the pain that I and many others have gone through due to taking this. Sorry for the rant, but had to vent a little. The pain is extreme folks, worse than any depression I have been through. Thanks.
>
> John
Posted by Sophia B on July 24, 2001, at 10:52:46
In reply to Re: Buspar - is it really helpful for anxiety? » Lynnae, posted by Becca L. on June 29, 2001, at 8:28:04
My doctor prescribed BuSpar to help me get through the withdrawal side effects of Effexor. Does anyone have any thoughts on that? Also, he acted as if the withdrawal symptoms were "all in my head". I'm at a loss.....I desperately need to get the Effexor out of my system, but I don't want to end up worse off than I am already. Any comments would be appreciated. Thanks!
lynnae,
> i'd have to agree with most of the other people who have commented on this--buspar is terrible. for me it wasn't so much a matter of unbearable side effects (though it did make me nauseated) as its utter lack of efficacy, even after several weeks; this was just so frustrating. my anxiety and fear of panic attacks felt crippling to me in my daily life, and i felt like they weren't being taken seriously at all by my doctor; he seemed to have put me on something that may as well have been a sugar pill because he didn't want to deal with the hassle of monitoring a patient on a "controlled substance" (i.e., a benzodiazepene tranqulizer).
>
> if ativan hasn't been especially helpful, there are many other drugs in the same family (benzodiazepenes) that you could try. i have been taking klonopin (the generic name is clonazepam) 3x daily for the past 2 years, and it has kept my panic attacks in check very well. just gives me the security to see my friends, go to work, talk to people, sleep, etc. i think in fact that klonopin is the most frequently prescribed medication for panic disorder. i think it makes a big difference, though, whether you take it on an 'as needed' basis or regularly. 'as needed' seems to work better for generalized anxiety, regular dosing better for panic disorder.
>
> anyway, from my own experience i'd have to say that buspar is one of the most bizarrely useless anti-anxiety drugs out there. i have no idea what it's still doing on the market. try another benzodiazepene instead. good luck!
Posted by MB on July 24, 2001, at 11:13:57
In reply to Re: I did it--finally!, posted by Sophia B on July 24, 2001, at 10:45:44
BuSpar induced side effects in me that felt identical to the withdrawal symptoms of SSRIs (that's why I had to quit taking the BuSpar). I definitely wouldn't want to take it if I were having brain shivers or dizzyness from SSRI withdrawal. To me, the withdrawal symptoms of Effexor are so similar to the withdrawal symptoms of the SSRIs that I would be scared to take BusPar if withdrawing from Effexor. It's not all in your head. Good luck to you. You'll be fine...you just may feel sick for a while, but it *does* pass. Peace.
Posted by jotho on July 24, 2001, at 11:14:56
In reply to Re: Buspar - is it really helpful for anxiety?, posted by Sophia B on July 24, 2001, at 10:52:46
To Sophia B....Of course it's all in your head but not because you are 'creating' these side-effects. It would appear (this is certainly a guess on my part) that either traces of Effexor are still in your system...you did not mention when you stopped taking it...or, as many of us are concerned of, the Effexor has altered the physiology (hopefully temporarily) of certain receptors and their peripheral systems. It is about 7 weeks since i stopped Effexor entirely (after reducing the dosages over the course of a month) and i still have some of the brain "swooshing". I would put Buspar on this site's search engine and read all the postings regarding it. I would then get on a web search engine (google is good) and read everything you can. And, personally, if my doctor told me the side-effects i was feeling from Effexor withdrawal were figments of my imagination, i would tell him to get on the search engine also, instead of listening exclusively to drug reps. for his information.
Posted by MB on July 24, 2001, at 11:21:15
In reply to Re: Buspar - is it really helpful for anxiety?, posted by Sophia B on July 24, 2001, at 10:52:46
I thought BuSpar was effective against anxiety...almost immediately. But at the doses it took to alleviate anxiety, I got symptoms similar to SSRI withdrawal (as I mentioned above). Also, my hands and lips went numb, and my hands started involuntarily clapping (not with one another, but my fingertips kept slapping the palm of the same hand). This freaked me out because the last time that happened to me, it turned out to be a precursor to a seizure. I stopped the BuSpar immediately. But, I have to admit, I wasn't having anxiety...even when I thought I was about to do the funky chicken.
Posted by Sophia B on July 24, 2001, at 16:13:08
In reply to Re: Buspar - is it really helpful for anxiety?, posted by jotho on July 24, 2001, at 11:14:56
Thanks for the reply. I was on 75 MG (once a day) of Effexor since April. I quit "cold turkey" 12 days ago. I'm now realizing that probably wasn't the best thing for me to do. I hate to start back on the Effexor at this point, though. I will see what I can find on all of the search engines. I just wish my doctor would do the same. Somehow, I doubt that he ever would. I am grateful to know that there are others out there who are going through, or have gone through the same things I am now. I was starting to think that maybe I had a brain tumor or something. Thanks again for the reply.....
Sophia> To Sophia B....Of course it's all in your head but not because you are 'creating' these side-effects. It would appear (this is certainly a guess on my part) that either traces of Effexor are still in your system...you did not mention when you stopped taking it...or, as many of us are concerned of, the Effexor has altered the physiology (hopefully temporarily) of certain receptors and their peripheral systems. It is about 7 weeks since i stopped Effexor entirely (after reducing the dosages over the course of a month) and i still have some of the brain "swooshing". I would put Buspar on this site's search engine and read all the postings regarding it. I would then get on a web search engine (google is good) and read everything you can. And, personally, if my doctor told me the side-effects i was feeling from Effexor withdrawal were figments of my imagination, i would tell him to get on the search engine also, instead of listening exclusively to drug reps. for his information.
Posted by Howiecook on July 25, 2001, at 0:13:47
In reply to Re: 7 WEEKS--EFFEXOR FREE » Leo, posted by Pattyk on April 5, 2001, at 18:29:55
I went to the emergency room a few weeks ago when I had stopped taking effexor for 2 days. I had driven my 2 children and a friend to kung fu lessons several miles from home when what I now know were "brain shivers" started. I went to the emergency room thinking that I was having a stroke or a nervous breakdown. I can't thank the people who have shared similar effects enough. After reading what has been posted on the internet, I realized that I was not alone in what I was feeling, which alleviated a lot of the horrible anxiety that the withdrawal symptoms gave me. A nurse posted a way to gradually reduce the amount taken, which is what I am doing now. This has been a lifesaver. At the emergency room they told me to stop taking both the effexor and the wellbutrin that I had switched to. I can't imagine how awful that would have been. I'm down to 17.5 mg/day now and "only" having dizziness, numbness and shock feelings a couple of times a day. I could have seriously injured my children and their friend driving around in that condition. It seems inexcusible that doctors don't warn their patients that such symptoms are possible or even probable.
Thank you again to everyone who wrote about their similar experiences. It kept me from feeling that I was going "over the edge" or dying. Knowing that these horrible symptoms are "normal" under the circumstances made all of the difference
Posted by girlie on July 25, 2001, at 8:21:14
In reply to Re: Anyone had success on Effexor XR? , posted by jotho on July 12, 2001, at 15:32:02
> Girlie...Two things, three actually, first, congatulations on your success with Effexor. Second, I, and I would bet many, on this posting site were never told by our doctor of the possible extent and severity that might accompany the taking, and stopping, of Effexor. Third, before I did stop I read about many instances of problems and decided to withdraw slowly. I was on the lower dosage of 75 mg. I reduced it by 1/4 and stayed on it for over a week at which time I reduced it by another 1/4 (of the original dosage). I followed this procedure (taking over a month) till finally I stopped totally. It is between 3-4 weeks now since I stopped and the notorious "brain swooshing" is still there (not as bad, though). I also still have problems sleeping, and I still have the involuntary jerkiness in my legs as I try to fall asleep. My wife says this occurs even after I have taken a sleep aid and am in a deep sleep................john
John, I just saw my doctor yesterday because I've been freaking out with just reducing my daily doseage from 300mg to 225mg. The worst thing to me is that I can't tell if it's the medication withdrawl that's making me feel this way or if it's just ME and my anxiety....which gives me more anxiety about going off! We decided that I would stay at this level until after my wedding (Oct 12) and honeymoon, then we would reduce again. She confirmed that getting off Effexor would not be a pleasant experience....ugh! BUT, I want to get pregnant so, I will go through what I have to!
BTW, it's nice to find a place and people who understand "brain swooshing"! It's so hard to explain to people what that feels like! : )
Girlie
Posted by jotho on July 25, 2001, at 9:10:53
In reply to Re: Anyone had success on Effexor XR? » jotho, posted by girlie on July 25, 2001, at 8:21:14
Hey Girlie...
Congratulations on the wedding thing! Just to update you, it's been 7-8 weeks that i'm off effexor. I have slept without taking either ambien, benedry, alcohol (a beer or two seemed to relax me enough) for four nights in a row now, and, most happily, the "brain swooshing" thing has all but totally resolved itself. I still have the leg twitching at night but not with the severity or frequency i once had. So, two things...first is that you might not have a bad problem coming off effexor...some don't (regardless, make sure you wean off SLOWLY) and secondly, it may take time but the side effects will go away...stay confident that that will happen.
Anxiety was not really relieved by my taking effexor, and i think what you should do is type in a phrase like "effexor and anxiety" and post it on this site. There are quite a few really knowledgable people with many personal experiences who can give you more on the 'anxiety' thing and possibly suggest alternate or additional meds. to help you with that...........stay positive about finding the right combination and good luck.....john
Posted by helmi on July 25, 2001, at 10:09:39
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
hi,
i´ve been on effexor for 2 years, since december i´m lowering my dose. and sunday i took my last dose. i dont feel very well and expeience all that was written before. especially my head is behaving weird. fortunately i dont have to work for another 4 days. i hope this shit will soon be over.sice 5 years i have anorexia. two years ago my physician told that when i would take effexor i would be better and gain weight. stupid enough i thought that it would heal me from anorexia, so i would eat and gain weight and be normal.
but this was not what he meant. my family knew this but said nothing.
i gained weight, but the anorexia didn´t disappear. i hardly ate anything but i still gained weight. i was afraid that i was boulimic (my worst mightmare) and i got more depressed. so my physician increased my dose.
i didn´t tell anybody why i was depressed.
i gained more weight but hardly ate anything. then i suspected that it might have to do with effexor.
i asked my physician and parents who easily confirmed it.i can´t say how guilty i feel, for having used effexor
but i´m also angry, i can´t understand that somebody gives effexor to someone who is anorexic.
are there people who recognise my situation?
who have been given effexor for the same reason?sorry for my bad english but i cant think clearly át this moment
how long will the withdrawel symptoms last?
thanx helmi
Posted by Jocor on July 25, 2001, at 10:29:45
In reply to anorexia, posted by helmi on July 25, 2001, at 10:09:39
Hi Helmi,
I read your post about anorexia...Effexor sure is not the drug to take for that. I'm sorry your doctor tricked you!
Have you heard about Zyprexa (Olanzapine)? It is used by some psychiatrist on a trial basis to treat anorexia - they think that anorexia could be some kind of psychosis where you see your body as "fat" when you really are not. Zyprexa does cause some weight gain on its own but it is also used to treat the weird thinking about anorexia.
Maybe talk to your doctor about that.
Good luck.
Jocor
Posted by Stef on July 25, 2001, at 12:01:38
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
Hello,
I am taking 112.5 mg of Effexor a day and the only complaint I have is that the sweating is out of control! I sweat all the time,and it is a lot,enough to make me really uncomfortable,especially here where I live where it is about 100 degrees already.
Anyone else have this side-effect? And if so,how long before it passes?
I have been at this dose for about a week,so I am hoping this will pass with time. Also,I seem to be very nervous,like I am on a small amount of speed. Does this pass as well?
Otherwise,effexor seems to be working really well for me.
Cheers,Stef
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