Posted by headachequeen on August 24, 2005, at 15:28:43
In reply to Re: Topamax increase - stupifying! » headachequeen, posted by Nickengland on August 24, 2005, at 14:27:18
> Hi Kat,
>
> I'm very glad to hear you now have managed to achieve such a good recovery with the aid of Topamax from those seizures...
>
> >when I waken I relive the day previous until something calls the actual day to my attention, so that I sometimes stay on one day for several days at a time... it can be truly confusing...
> and exhausting
>
> I can only imagine, that sounds very exhausting :( Do you still go through this since you've been on Topamax?...or have you been more or less seizure free so to speak since you started topamax?
>
> Kind regards
>
> Nick
>
Salut Nick!When I started taking Topamax it was as backup to the tegretol. At first the neuro was going to increase the tegretol still more and, as he said, forget about the blood results... oh joy. With my most recent discoveries about that stuff, I am so happy for the migraine headache involvement!!!
The topamax not only controlled the migraines, but it slowed down the seizures, boosting the effects of the tegretol.
While I still had seizures, it changed from several a week, sometimes two or more a night, to one or two a week...
For the longest time I had been fortunate, in that I had perhaps one or two a month, sometimes with months between, but for some reason the situation changed and the intensity increased seven or eight years ago.
I have been on Topamax for almost three years now and it made a huge change. In fact given the intensity of some of the seizures, I don't like to think what might have happened without T.
There have been two massive episodes that resulted in hospital time, the first time, before T, I spent almost a month in hospital until they managed to find a way to balance things, the second was a matter of a few days and I think the Topamax was a part of the difference, a big part.
That time the new neuro prescribed the clobazam...
which I have quit taking as well...since I quit taking Tegretol and Clobazam (May) I have had three seizures ... the tegretol was causing as many seizures as it prevented, as it turned out...
and because of extreme stress in my life in the past two or three weeks I have had couple of seizures as well but nothing in comparison to what I would have had with the tegretol to interfere...
Topomax really modifies the situation -- there has been only one of the lost days episodes when given the circumstances, it would have been expected that I would have had many seizures and probably had to be admitted to the emergency department if not hospitalised...
I know this med has its problems and that others have side effects from it...
but I do think it comes from titring up too fast and not following instructions in most cases...
it certainly can help if used properly...I hate to think where I would be without it...
kat
poster:headachequeen
thread:542426
URL: http://www.dr-bob.org/babble/20050821/msgs/546126.html